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CLL treatment

I was wondering if anyone is on Venetoclax and infusions of Obinutuzumab.my Venetoclax has been increased to 400mg a day. White cell count is low and I'm having lots of diarrhoea and tummy pain.
I was wondering if anyone is on Venetoclax and infusions of Obinutuzumab.my Venetoclax has been increased to 400mg a day. White cell count is low and I'm having lots of diarrhoea and tummy pain.
helpisonitsway profile image
helpisonitsway
in CLL Support
13 days ago

Fully Funded Ibrutinib is finally coming to New Zealand!

This will mean funded access for people: • whose disease progresses during treatment with venetoclax • whose disease relapses within 3 years of treatment with venetoclax • for whom venetoclax results in intolerable side effects We estimate that in the first year approximately 30 people will be eligible
This will mean funded access for people: • whose disease progresses during treatment with venetoclax • whose disease relapses within 3 years of treatment with venetoclax • for whom venetoclax results in intolerable side effects We estimate that in the first year approximately 30 people will be eligible
morepork profile image
morepork
in CLL Support
2 months ago

Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD Provided by Clinical Care Options, LLC

The venetoclax-based arms include: venetoclax plus obinutuzumab, venetoclax plus obinutuzumab and ibrutinib, and venetoclax plus rituximab.
The venetoclax-based arms include: venetoclax plus obinutuzumab, venetoclax plus obinutuzumab and ibrutinib, and venetoclax plus rituximab.
lankisterguy profile image
lankisterguy
Volunteerin CLL Support
1 month ago
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O and V treatment

For some reason, I thought it was 6 months of Obinutuzumab then the Venetoclax. How have your treatments been going?!!! Thx in advance! Sylvia
For some reason, I thought it was 6 months of Obinutuzumab then the Venetoclax. How have your treatments been going?!!! Thx in advance! Sylvia
filmcaptive1 profile image
filmcaptive1
in CLL Support
1 month ago

irutinib plus venetoclax

Would love to hear from anyone that has been doing the fixed duration treatment with irutinib plus venetoclax or accalabrutinib plus venetoclax. What has been your experience and, knowing what you know now, would you choose this treatment plan again?
Would love to hear from anyone that has been doing the fixed duration treatment with irutinib plus venetoclax or accalabrutinib plus venetoclax. What has been your experience and, knowing what you know now, would you choose this treatment plan again?
111853 profile image
111853
in CLL Support
3 months ago

platelets down to 118

was in remission for a few year after venetoclax and retuximab combo. Platelets are down again and thinking the cll is resurfacing. anyone go back on venetoclax after a few years? Any luck? thank you.
was in remission for a few year after venetoclax and retuximab combo. Platelets are down again and thinking the cll is resurfacing. anyone go back on venetoclax after a few years? Any luck? thank you.
CM19 profile image
CM19
in CLL Support
4 months ago

Venetoclax availability

I have just read that Abbievie, the manufacturers of Venetoclax are pulling out of the NHS National pricing agreement, on the basis that they aren't being paid enough to continue research, etc.
I have just read that Abbievie, the manufacturers of Venetoclax are pulling out of the NHS National pricing agreement, on the basis that they aren't being paid enough to continue research, etc.
Dawson21 profile image
Dawson21
in CLL Support
11 days ago

Results on triple combination (A+V+O) for high risk patients -with-chronic-lymphocytic-leukemia-or-small-lymphocytic-lymphoma-cll

The Bottom Line: In this ongoing trial, the triple combination therapy using acalabrutinib, venetoclax, and obinutuzumab is highly active.
The Bottom Line: In this ongoing trial, the triple combination therapy using acalabrutinib, venetoclax, and obinutuzumab is highly active.
spi3 profile image
spi3
in CLL Support
3 days ago

Travel Insurance

Has anyone been able to get travel insurance whilst taking Ibrutinib & Venetoclax ? Is it classed as chemotherapy? Thanks
Has anyone been able to get travel insurance whilst taking Ibrutinib & Venetoclax ? Is it classed as chemotherapy? Thanks
SupportiveMum profile image
SupportiveMum
in CLL Support
2 months ago

Venetoclax

I’ve been on Venetoclax for 14 months now and would just like to say that this drug has done wonders for me. My bloods have not been this good in 6 years. I have suffered very few side effects and would recommend it to anyone due to start treatment.
I’ve been on Venetoclax for 14 months now and would just like to say that this drug has done wonders for me. My bloods have not been this good in 6 years. I have suffered very few side effects and would recommend it to anyone due to start treatment.
Racing1961 profile image
Racing1961
in CLL Support
4 months ago

Starting treatment Wednesday

Hello everyone, has anyone had obinutzumab and venetoclax, if anyone could share there experiences it would be much appreciated.... 👍
Hello everyone, has anyone had obinutzumab and venetoclax, if anyone could share there experiences it would be much appreciated.... 👍
mfc86 profile image
mfc86
in CLL Support
2 months ago

Obinuzuzumab & venetoclax

Morning.. Could I just ask, for those on this treatment, did you need much time off work, i have completed cycle 1 & so far so good, we're any of you able to return to work during treatment? My consultant advises waiting until after cycle 3 but what are other people's experiences. Thanks
Morning.. Could I just ask, for those on this treatment, did you need much time off work, i have completed cycle 1 & so far so good, we're any of you able to return to work during treatment? My consultant advises waiting until after cycle 3 but what are other people's experiences. Thanks
mfc86 profile image
mfc86
in CLL Support
26 days ago

Loxo305 trial

I looked at it but apparently there are several phases, this is the one we are looking at: BRUIN CLL-322: a Phase 3 open-label, randomized study of fixed duration pirtobrutinib (LOXO-305) plus venetoclax and rituximab versus venetoclax and rituximab in previously treated Chronic Lymphocytic Leukemia
I looked at it but apparently there are several phases, this is the one we are looking at: BRUIN CLL-322: a Phase 3 open-label, randomized study of fixed duration pirtobrutinib (LOXO-305) plus venetoclax and rituximab versus venetoclax and rituximab in previously treated Chronic Lymphocytic Leukemia
Alex830 profile image
Alex830
in CLL Support
3 months ago

Happy Thanksgiving CLLers

Wifie and I had swiss cheese fondue with a side of venetoclax and washed down with pine float of 56 oz of water. :)
Wifie and I had swiss cheese fondue with a side of venetoclax and washed down with pine float of 56 oz of water. :)
Big_Dee profile image
Big_Dee
in CLL Support
2 months ago

Intermittent fasting

I am on the O&V program although am now only taking venetoclax (400 mg daily). I am also a type 2 diabetic and am considering doing intermittent fasting. Is that a good idea?
I am on the O&V program although am now only taking venetoclax (400 mg daily). I am also a type 2 diabetic and am considering doing intermittent fasting. Is that a good idea?
Nanaimo1 profile image
Nanaimo1
in CLL Support
18 days ago

Venetoclax and irregular heartbeat?

I have been on 400 mg dose of Venetoclax since September 2022. Has anyone else experienced this? If so, what was done about it?
I have been on 400 mg dose of Venetoclax since September 2022. Has anyone else experienced this? If so, what was done about it?
Tangolover profile image
Tangolover
in CLL Support
19 days ago

Acalabrutinib and Venetoclax

Hi Everyone, I am on combo of Acalabrutinib and Venetoclax.
Hi Everyone, I am on combo of Acalabrutinib and Venetoclax.
dave20 profile image
dave20
in CLL Support
16 days ago

Monocytes and therapy, or not.

Has anyone had their monocytes go up (above normal range) while on therapy, specifically acalabrutinib or venetoclax or both? (Mine has creeped up over the past two months since I started venetoclax, don't know if any of these are related or just coincidence.)
Has anyone had their monocytes go up (above normal range) while on therapy, specifically acalabrutinib or venetoclax or both? (Mine has creeped up over the past two months since I started venetoclax, don't know if any of these are related or just coincidence.)
Lavinia-Blue profile image
Lavinia-Blue
in CLL Support
5 months ago

Extreme fatigue with Rituximab and Venetoclax 24-month regimen

Has anyone had a similar experience and what did it feel like once the Venetoclax treatment was completed? All replies will be greatly appreciated. Ramses
Has anyone had a similar experience and what did it feel like once the Venetoclax treatment was completed? All replies will be greatly appreciated. Ramses
RamsesII profile image
RamsesII
in CLL Support
22 days ago

post Venetoclax treatment

Problems after finishing my treatment for CLL. I took Covid in July that resulted in a Lung infection I was admitted to hospital and stayed there for 10 weeks I had 20 different antibiotics and ant-virals they could not understand as they had never had this before, I had 2 Bronchoscopes the respiratory
Problems after finishing my treatment for CLL. I took Covid in July that resulted in a Lung infection I was admitted to hospital and stayed there for 10 weeks I had 20 different antibiotics and ant-virals they could not understand as they had never had this before, I had 2 Bronchoscopes the respiratory
Alma555 profile image
Alma555
in CLL Support
2 months ago
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