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Venetoclax
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CLL treatment
I was wondering if anyone is on
Venetoclax
and infusions of Obinutuzumab.my
Venetoclax
has been increased to 400mg a day. White cell count is low and I'm having lots of diarrhoea and tummy pain.
I was wondering if anyone is on
Venetoclax
and infusions of Obinutuzumab.my
Venetoclax
has been increased to 400mg a day. White cell count is low and I'm having lots of diarrhoea and tummy pain.
helpisonitsway
in
CLL Support
13 days ago
Fully Funded Ibrutinib is finally coming to New Zealand!
This will mean funded access for people: • whose disease progresses during treatment with
venetoclax
• whose disease relapses within 3 years of treatment with
venetoclax
• for whom
venetoclax
results in intolerable side effects We estimate that in the first year approximately 30 people will be eligible
This will mean funded access for people: • whose disease progresses during treatment with
venetoclax
• whose disease relapses within 3 years of treatment with
venetoclax
• for whom
venetoclax
results in intolerable side effects We estimate that in the first year approximately 30 people will be eligible
morepork
in
CLL Support
2 months ago
Optimal Treatment Combinations in the Management of CLL/SLL Jeff Sharman, MD Provided by Clinical Care Options, LLC
The
venetoclax
-based arms include:
venetoclax
plus obinutuzumab,
venetoclax
plus obinutuzumab and ibrutinib, and
venetoclax
plus rituximab.
The
venetoclax
-based arms include:
venetoclax
plus obinutuzumab,
venetoclax
plus obinutuzumab and ibrutinib, and
venetoclax
plus rituximab.
lankisterguy
Volunteer
in
CLL Support
1 month ago
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O and V treatment
For some reason, I thought it was 6 months of Obinutuzumab then the
Venetoclax
. How have your treatments been going?!!! Thx in advance! Sylvia
For some reason, I thought it was 6 months of Obinutuzumab then the
Venetoclax
. How have your treatments been going?!!! Thx in advance! Sylvia
filmcaptive1
in
CLL Support
1 month ago
irutinib plus venetoclax
Would love to hear from anyone that has been doing the fixed duration treatment with irutinib plus
venetoclax
or accalabrutinib plus
venetoclax
. What has been your experience and, knowing what you know now, would you choose this treatment plan again?
Would love to hear from anyone that has been doing the fixed duration treatment with irutinib plus
venetoclax
or accalabrutinib plus
venetoclax
. What has been your experience and, knowing what you know now, would you choose this treatment plan again?
111853
in
CLL Support
3 months ago
platelets down to 118
was in remission for a few year after
venetoclax
and retuximab combo. Platelets are down again and thinking the cll is resurfacing. anyone go back on
venetoclax
after a few years? Any luck? thank you.
was in remission for a few year after
venetoclax
and retuximab combo. Platelets are down again and thinking the cll is resurfacing. anyone go back on
venetoclax
after a few years? Any luck? thank you.
CM19
in
CLL Support
4 months ago
Venetoclax availability
I have just read that Abbievie, the manufacturers of
Venetoclax
are pulling out of the NHS National pricing agreement, on the basis that they aren't being paid enough to continue research, etc.
I have just read that Abbievie, the manufacturers of
Venetoclax
are pulling out of the NHS National pricing agreement, on the basis that they aren't being paid enough to continue research, etc.
Dawson21
in
CLL Support
11 days ago
Results on triple combination (A+V+O) for high risk patients -with-chronic-lymphocytic-leukemia-or-small-lymphocytic-lymphoma-cll
The Bottom Line: In this ongoing trial, the triple combination therapy using acalabrutinib,
venetoclax
, and obinutuzumab is highly active.
The Bottom Line: In this ongoing trial, the triple combination therapy using acalabrutinib,
venetoclax
, and obinutuzumab is highly active.
spi3
in
CLL Support
3 days ago
Travel Insurance
Has anyone been able to get travel insurance whilst taking Ibrutinib &
Venetoclax
? Is it classed as chemotherapy? Thanks
Has anyone been able to get travel insurance whilst taking Ibrutinib &
Venetoclax
? Is it classed as chemotherapy? Thanks
SupportiveMum
in
CLL Support
2 months ago
Venetoclax
I’ve been on
Venetoclax
for 14 months now and would just like to say that this drug has done wonders for me. My bloods have not been this good in 6 years. I have suffered very few side effects and would recommend it to anyone due to start treatment.
I’ve been on
Venetoclax
for 14 months now and would just like to say that this drug has done wonders for me. My bloods have not been this good in 6 years. I have suffered very few side effects and would recommend it to anyone due to start treatment.
Racing1961
in
CLL Support
4 months ago
Starting treatment Wednesday
Hello everyone, has anyone had obinutzumab and
venetoclax
, if anyone could share there experiences it would be much appreciated.... 👍
Hello everyone, has anyone had obinutzumab and
venetoclax
, if anyone could share there experiences it would be much appreciated.... 👍
mfc86
in
CLL Support
2 months ago
Obinuzuzumab & venetoclax
Morning.. Could I just ask, for those on this treatment, did you need much time off work, i have completed cycle 1 & so far so good, we're any of you able to return to work during treatment? My consultant advises waiting until after cycle 3 but what are other people's experiences. Thanks
Morning.. Could I just ask, for those on this treatment, did you need much time off work, i have completed cycle 1 & so far so good, we're any of you able to return to work during treatment? My consultant advises waiting until after cycle 3 but what are other people's experiences. Thanks
mfc86
in
CLL Support
26 days ago
Loxo305 trial
I looked at it but apparently there are several phases, this is the one we are looking at: BRUIN CLL-322: a Phase 3 open-label, randomized study of fixed duration pirtobrutinib (LOXO-305) plus
venetoclax
and rituximab versus
venetoclax
and rituximab in previously treated Chronic Lymphocytic Leukemia
I looked at it but apparently there are several phases, this is the one we are looking at: BRUIN CLL-322: a Phase 3 open-label, randomized study of fixed duration pirtobrutinib (LOXO-305) plus
venetoclax
and rituximab versus
venetoclax
and rituximab in previously treated Chronic Lymphocytic Leukemia
Alex830
in
CLL Support
3 months ago
Happy Thanksgiving CLLers
Wifie and I had swiss cheese fondue with a side of
venetoclax
and washed down with pine float of 56 oz of water. :)
Wifie and I had swiss cheese fondue with a side of
venetoclax
and washed down with pine float of 56 oz of water. :)
Big_Dee
in
CLL Support
2 months ago
Intermittent fasting
I am on the O&V program although am now only taking
venetoclax
(400 mg daily). I am also a type 2 diabetic and am considering doing intermittent fasting. Is that a good idea?
I am on the O&V program although am now only taking
venetoclax
(400 mg daily). I am also a type 2 diabetic and am considering doing intermittent fasting. Is that a good idea?
Nanaimo1
in
CLL Support
18 days ago
Venetoclax and irregular heartbeat?
I have been on 400 mg dose of
Venetoclax
since September 2022. Has anyone else experienced this? If so, what was done about it?
I have been on 400 mg dose of
Venetoclax
since September 2022. Has anyone else experienced this? If so, what was done about it?
Tangolover
in
CLL Support
19 days ago
Acalabrutinib and Venetoclax
Hi Everyone, I am on combo of Acalabrutinib and
Venetoclax
.
Hi Everyone, I am on combo of Acalabrutinib and
Venetoclax
.
dave20
in
CLL Support
16 days ago
Monocytes and therapy, or not.
Has anyone had their monocytes go up (above normal range) while on therapy, specifically acalabrutinib or
venetoclax
or both? (Mine has creeped up over the past two months since I started
venetoclax
, don't know if any of these are related or just coincidence.)
Has anyone had their monocytes go up (above normal range) while on therapy, specifically acalabrutinib or
venetoclax
or both? (Mine has creeped up over the past two months since I started
venetoclax
, don't know if any of these are related or just coincidence.)
Lavinia-Blue
in
CLL Support
5 months ago
Extreme fatigue with Rituximab and Venetoclax 24-month regimen
Has anyone had a similar experience and what did it feel like once the
Venetoclax
treatment was completed? All replies will be greatly appreciated. Ramses
Has anyone had a similar experience and what did it feel like once the
Venetoclax
treatment was completed? All replies will be greatly appreciated. Ramses
RamsesII
in
CLL Support
22 days ago
post Venetoclax treatment
Problems after finishing my treatment for CLL. I took Covid in July that resulted in a Lung infection I was admitted to hospital and stayed there for 10 weeks I had 20 different antibiotics and ant-virals they could not understand as they had never had this before, I had 2 Bronchoscopes the respiratory
Problems after finishing my treatment for CLL. I took Covid in July that resulted in a Lung infection I was admitted to hospital and stayed there for 10 weeks I had 20 different antibiotics and ant-virals they could not understand as they had never had this before, I had 2 Bronchoscopes the respiratory
Alma555
in
CLL Support
2 months ago
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