Experiences with

Venetoclax

I was wondering if anyone is on Venetoclax and infusions of Obinutuzumab.my Venetoclax has been increased to 400mg a day. White cell count is low and I'm having lots of diarrhoea and tummy pain.

This will mean funded access for people: • whose disease progresses during treatment with venetoclax • whose disease relapses within 3 years of treatment with venetoclax • for whom venetoclax results in intolerable side effects We estimate that in the first year approximately 30 people will be eligible

The venetoclax-based arms include: venetoclax plus obinutuzumab, venetoclax plus obinutuzumab and ibrutinib, and venetoclax plus rituximab.

For some reason, I thought it was 6 months of Obinutuzumab then the Venetoclax. How have your treatments been going?!!! Thx in advance! Sylvia

Would love to hear from anyone that has been doing the fixed duration treatment with irutinib plus venetoclax or accalabrutinib plus venetoclax. What has been your experience and, knowing what you know now, would you choose this treatment plan again?

was in remission for a few year after venetoclax and retuximab combo. Platelets are down again and thinking the cll is resurfacing. anyone go back on venetoclax after a few years? Any luck? thank you.

I have just read that Abbievie, the manufacturers of Venetoclax are pulling out of the NHS National pricing agreement, on the basis that they aren't being paid enough to continue research, etc.

The Bottom Line: In this ongoing trial, the triple combination therapy using acalabrutinib, venetoclax, and obinutuzumab is highly active.

Has anyone been able to get travel insurance whilst taking Ibrutinib & Venetoclax ? Is it classed as chemotherapy? Thanks

I’ve been on Venetoclax for 14 months now and would just like to say that this drug has done wonders for me. My bloods have not been this good in 6 years. I have suffered very few side effects and would recommend it to anyone due to start treatment.

Hello everyone, has anyone had obinutzumab and venetoclax, if anyone could share there experiences it would be much appreciated.... 👍

Morning.. Could I just ask, for those on this treatment, did you need much time off work, i have completed cycle 1 & so far so good, we're any of you able to return to work during treatment? My consultant advises waiting until after cycle 3 but what are other people's experiences. Thanks

I looked at it but apparently there are several phases, this is the one we are looking at: BRUIN CLL-322: a Phase 3 open-label, randomized study of fixed duration pirtobrutinib (LOXO-305) plus venetoclax and rituximab versus venetoclax and rituximab in previously treated Chronic Lymphocytic Leukemia

Wifie and I had swiss cheese fondue with a side of venetoclax and washed down with pine float of 56 oz of water. :)

I am on the O&V program although am now only taking venetoclax (400 mg daily). I am also a type 2 diabetic and am considering doing intermittent fasting. Is that a good idea?

I have been on 400 mg dose of Venetoclax since September 2022. Has anyone else experienced this? If so, what was done about it?

Hi Everyone, I am on combo of Acalabrutinib and Venetoclax.

Has anyone had their monocytes go up (above normal range) while on therapy, specifically acalabrutinib or venetoclax or both? (Mine has creeped up over the past two months since I started venetoclax, don't know if any of these are related or just coincidence.)

Has anyone had a similar experience and what did it feel like once the Venetoclax treatment was completed? All replies will be greatly appreciated. Ramses

Problems after finishing my treatment for CLL. I took Covid in July that resulted in a Lung infection I was admitted to hospital and stayed there for 10 weeks I had 20 different antibiotics and ant-virals they could not understand as they had never had this before, I had 2 Bronchoscopes the respiratory