Experiences with

Venetoclax

I stopped Venetoclax and am Being monitored with a test called clonoseq. I’m excited.

Anyone have treatment similar to this opposed to starting venetoclax on cycle 2 of obinutuzumab?

After years with Venetoclax I now have inflammatory myositis Is there any connection known?

Good morning, I was wondering of anyone else is having digestive issues and severe constipation while being on Venetoclax? Thank you for your help.

Finished Obinituzumab some months ago and now i have four more months of Venetoclax ahead. The problem is that due to antibiotics (almost one or two every month) and maybe Venetoclax i started suffering from hepatotoxicity.

Dear all, has anyone been taking venetoclax and gotten a kind of persistent expectoration and sometimes a cough, especially at night? I still haven't figured out if it's related to the venetoclax or the cortisone I'm taking because of my kidneys. Thank you and kind regards.

I think I might have pneumonia as well and possibly a reaction to the venetoclax 😫😫😫. My lower "back" sides are getting sore. Last time Stony Brook doc immediately took me off of voraconizole when I had the sore sides. Maybe it wasn't really that .....maybe it was the venetoclax.

I had to stay in the hospital en started wit venetoclax and rituximab. I did very well on that for 2 years. they were the best from my CLL journey. 2 months ago I had to stop with venetoclax because the 24 months were passed. After 3 weeks I already felt swollen lymph nodes on my neck.

Today our doctor suggested a second line therapy for cll Venetoclax combined with immunotherapy.My husband took for 6 years Ibrutinib but now unfortunatelly the disease relapsed.What do you think?Thank you.Mu husband has cll with 11q deletion

I take venetoclax for CLL. is it ok to take ibruprofin to reduce hip paqin?

I wonder if any of you on the VR treatment experienced itchy rashes on arms and legs?

Hello, This week I started the final increase of venetoclax, 400mg. I had few side effects on previous increases. I am now experiencing mild stomach pain and nausea starting an hour or two after taking my meds in the morning.

I recently started taking Idelalisib after my Venetoclax stopped working. I have been feeling dizzy pretty much whenever I get up from my chair. I had had a rapid rise in lymphocytes, and I assumed this was causing the dizziness, but now I’m wondering if it’s actually an effect of Idelalisib.

and a cBTKi - For patients with CLL/SLL and two or more prior therapies including a cBTKi and venetoclax, when retreatment with venetoclax ± an anti-CD20 mAb or transitioning to an alternate cBTKi is not preferred, we recommend pirtobrutinib in most cases.

I am seeing consultant next week and having bloods taken after finishing 15 months on Ibrutinib and venetoclax. Should I be asking for any other blood tests other than FBC?

This will start with obinutuzumab with venetoclax to be added in 3 weeks. Are these the standard drugs used? I’ve been due to start treatment previously (2 years ago) and the drugs were different then. Appreciate things move quickly. Thanks all Alan

I finished my two years of treatment with Rituxan and Venetoclax. After six months of being off the treatments, I have had a weight gain of 10 pounds. Eating habits not changed and actually started working out at the gym. Just wondering if anyone else has had this experience.

Originally it was Venetoclax plus obinutuzumab. What is the difference, we have an appointment on the 18th to discuss but I just want to be clear. Mum has been doing well but suddenly her spleen has slightly enlarged and her hemoglobin has dropped. She is slightly anemic.

My Venetoclax dose has been changed a number of times due to counts. Last few weeks have been 300mg and blood has been pretty normal except for platelets which have often been low but are now 88 - with everything else pretty much in line.

She is starting Venetoclax and immunotherapy this week and I was just checking to see if anyone had experience with this? TIA