Experiences with

Venetoclax

I am on 200 mgs of venetoclax. I also have an enlarged prostate and was suggested to drink around 2 liters of water or less to help with helping with less urine. My question with being on 200 mgs. of venetoclax is this enough to drink daily. Thanks, Bill1288

Just wondering if anyone else has had elevated blood pressure while taking venetoclax. I did not have high blood pressure when I took acalabrutinib and venetoclax for just over a year in 2019. Thanks. Cindy

From what I have read, the dose of venetoclax is increased over the first five weeks before rituximab is introduced (monthly infusions for six months?). I was wondering if he will need to spend any time in hospital when he first starts venetoclax? Thank you!

cells and thereby slows down progression of the disease.​" https://en.wikipedia.org/wiki/Venetoclax

Just wondering……. I just completed two years of treatment in the V plus R arm of the LOXO trial in July 2024. Had a great response: MRD negative in blood and bone. This is my third line of treatment after FCR in 2012 followed by a trial of acala in 2017-22. The LOXO protocol provides that if I make

I am just coming to the end of 3 months of 15 months Ibrutinib and start 12 months of Venetoclax in pill form later this week as a day patient initially.

After 3 prior therapies (Acalabrutinib, Venetoclax and Pirtobrutinib/Obinutuzumab), my CLL/ Marginal Zone Lymphoma has transformed to DLBCL. Has anyone on here been treated with Car-T for DLBCL? Thank you.

Hi, While on Venetoclax I developed frozen shoulder and other muscle and joint pain. Additionally I have plaque build up in my coronary and carotid arteries. Would Crestor or Pravocol plus Zetia be most suitable considering my muscle condition? Thanks

I stopped Venetoclax and am Being monitored with a test called clonoseq. I’m excited.

I think I might have pneumonia as well and possibly a reaction to the venetoclax 😫😫😫. My lower "back" sides are getting sore. Last time Stony Brook doc immediately took me off of voraconizole when I had the sore sides. Maybe it wasn't really that .....maybe it was the venetoclax.

Finished Obinituzumab some months ago and now i have four more months of Venetoclax ahead. The problem is that due to antibiotics (almost one or two every month) and maybe Venetoclax i started suffering from hepatotoxicity.

Good morning, I was wondering of anyone else is having digestive issues and severe constipation while being on Venetoclax? Thank you for your help.

Today our doctor suggested a second line therapy for cll Venetoclax combined with immunotherapy.My husband took for 6 years Ibrutinib but now unfortunatelly the disease relapsed.What do you think?Thank you.Mu husband has cll with 11q deletion

Hi all, I’m currently having Obinutusamab and Venetoclax treatment for CLL and having major problems raising my haemaglobin levels. I’ve had 16 pints of blood transfused in the last 12 weeks which feels excessive.

I am now 40% of the way through 15 months of Ibrutinib and Venetoclax and continue to do well. All my counts are in the normal range and the attached shows the speed of change in my wbc. I feel very well and have much more energy than before treatment.

After years with Venetoclax I now have inflammatory myositis Is there any connection known?

FOR CONTEXT: I am on 400mg of Venetoclax for another 7 months. Thank you for any information you may wish to share.🥰

I finished the Venetoclax treatment in July 24 but kept getting chest infections. This has led to my consultant putting me on a course of Profylaxis antibiotics (Azithromycin) to see if it prevents further infection.

I recently started taking Idelalisib after my Venetoclax stopped working. I have been feeling dizzy pretty much whenever I get up from my chair. I had had a rapid rise in lymphocytes, and I assumed this was causing the dizziness, but now I’m wondering if it’s actually an effect of Idelalisib.

Hello, This week I started the final increase of venetoclax, 400mg. I had few side effects on previous increases. I am now experiencing mild stomach pain and nausea starting an hour or two after taking my meds in the morning.