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Experiences with
Venetoclax
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Disease Progression on Pirtobrutinib
My oncologist said I may be eligible for a CAR-T trial or go on
Venetoclax
+ Rituximab. Will discuss with Dr Chen next month . Oh well here we go again. Thanks Steve
My oncologist said I may be eligible for a CAR-T trial or go on
Venetoclax
+ Rituximab. Will discuss with Dr Chen next month . Oh well here we go again. Thanks Steve
steve_canada
in
CLL Support
2 months ago
venetoclax and ibruvica update
well my mom stopped
venetoclax
and ibruvica and has been off the drugs since the 25 April, She is having a gastroenterologist check to see if her Malt lymphoma has left on the 21 May so I will keep you guys updated.
well my mom stopped
venetoclax
and ibruvica and has been off the drugs since the 25 April, She is having a gastroenterologist check to see if her Malt lymphoma has left on the 21 May so I will keep you guys updated.
Eirinik
in
CLL Support
3 months ago
First Treatment for Richter’s Today
I was admitted into the hospital today for 5 days of DA EPOCH R w
Venetoclax
for large diffuse large b cell lymphoma, Richter’s Transformation, of my CLL. Still shocked by the diagnosis as I continue to feel pretty good despite the swollen spleen, enlarging lymph modes and fatigue.
I was admitted into the hospital today for 5 days of DA EPOCH R w
Venetoclax
for large diffuse large b cell lymphoma, Richter’s Transformation, of my CLL. Still shocked by the diagnosis as I continue to feel pretty good despite the swollen spleen, enlarging lymph modes and fatigue.
ReneeSusan
in
CLL Support
2 months ago
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Month 21 of 24 Rituximab and Venetoclax
I've been advised to stop
Venetoclax
for 2 weeks to see if this helps and have an appointment for an antibody PCV 13 injection on Friday. Wednesday, joy of joys, an appointment with the rectal specialist to rule out other causes.
I've been advised to stop
Venetoclax
for 2 weeks to see if this helps and have an appointment for an antibody PCV 13 injection on Friday. Wednesday, joy of joys, an appointment with the rectal specialist to rule out other causes.
Fastbike14
in
CLL Support
2 months ago
Confused? Venetoclax 400 v. 300
Now in Mth 9 and yesterday my
Venetoclax
dosage was lowered from 400 to 300. I was a bit surprised.
Now in Mth 9 and yesterday my
Venetoclax
dosage was lowered from 400 to 300. I was a bit surprised.
Steffi50
in
CLL Support
3 months ago
New Drug!!
My understanding is that this is super charged
Venetoclax
. https://finance.yahoo.com/news/innocare-announces-approval-clinical-trial-003700240.html
My understanding is that this is super charged
Venetoclax
. https://finance.yahoo.com/news/innocare-announces-approval-clinical-trial-003700240.html
Hidden
in
CLL Support
5 months ago
Majic trial arm "A"
For the Majic trail, arm "A", I would like to know if anyone has completed the first 15 cycles of Acalabrutinib and
Venetoclax
. Has your bone marrow testing showed below MRD indicating deep remission. My test comes up in June with my fingers crossed.
For the Majic trail, arm "A", I would like to know if anyone has completed the first 15 cycles of Acalabrutinib and
Venetoclax
. Has your bone marrow testing showed below MRD indicating deep remission. My test comes up in June with my fingers crossed.
JDG45
in
CLL Support
5 months ago
Sezary Syndrome.
After many months of fighting a complete body rash, I was visually diagnose with Sezary Syndome and had to discontinue my CLL treatment with
Venetoclax
, only did 8 months out of 24 months due to the rash condition. Is there anyone with knowledge of this or was there any previous postings?
After many months of fighting a complete body rash, I was visually diagnose with Sezary Syndome and had to discontinue my CLL treatment with
Venetoclax
, only did 8 months out of 24 months due to the rash condition. Is there anyone with knowledge of this or was there any previous postings?
Champlain
in
CLL Support
4 months ago
New to treatment possible for my CLL, 2options mentioned by doctor
Option two: obinituzumab IV treatments once a month, AND
Venetoclax
pill daily combination of IV and oral pill lasts one year fixed duration. Anyone who has had experienc or kowledge of either treatment experience or with with both, please respond.
Option two: obinituzumab IV treatments once a month, AND
Venetoclax
pill daily combination of IV and oral pill lasts one year fixed duration. Anyone who has had experienc or kowledge of either treatment experience or with with both, please respond.
tennis-dog
in
CLL Support
2 months ago
Treatment starts 9th July
Obinutuzumab and
Venetoclax
12 x 28 days Cycles. I will be at the Churchill in Oxford even though I live in Northants.
Obinutuzumab and
Venetoclax
12 x 28 days Cycles. I will be at the Churchill in Oxford even though I live in Northants.
TheFlyer
in
CLL Support
2 months ago
splashsplash
UK based, CLL for 15 years, Treatments: FC, FCR, Ibrutinib,
Venetoclax
for 2.5 years, 6 month break now back on
Venetoclax
UK based, CLL for 15 years, Treatments: FC, FCR, Ibrutinib,
Venetoclax
for 2.5 years, 6 month break now back on
Venetoclax
splashsplash
in
CLL Support
8 months ago
A COLD AND VENETOCLAX
Hi all….has anyone had a cold and paused
Venetoclax
? Still waiting to hear back from my Oncologist. Thanks…Diana
Hi all….has anyone had a cold and paused
Venetoclax
? Still waiting to hear back from my Oncologist. Thanks…Diana
difor29
in
CLL Support
6 months ago
Doxycycline long term use
I’m on Ibrutinib with
Venetoclax
and it’s suited me well, and I’m really pleased that my bloods now appear to be normal. I’m also on Co-Trimoxazole antibiotic and Aciclovir antiviral to deal with any infections should they arise during my treatment and I don’t have any concerns about them.
I’m on Ibrutinib with
Venetoclax
and it’s suited me well, and I’m really pleased that my bloods now appear to be normal. I’m also on Co-Trimoxazole antibiotic and Aciclovir antiviral to deal with any infections should they arise during my treatment and I don’t have any concerns about them.
Smiley60
in
CLL Support
2 months ago
Anyone with CLL and Myelodysplasia
A month ago I was diagnosed with Myelodysplasia after undergoing a biopsy when I was at the end of the
Venetoclax
treatment.
A month ago I was diagnosed with Myelodysplasia after undergoing a biopsy when I was at the end of the
Venetoclax
treatment.
Priss69
in
CLL Support
6 months ago
saw pimento
can you take saw pimento whilst on chemo Ibrutinib and
Venetoclax
? I use it fire enlarged prostate ?
can you take saw pimento whilst on chemo Ibrutinib and
Venetoclax
? I use it fire enlarged prostate ?
clifflee
in
CLL Support
7 months ago
Venetoclax
They have suggested treatment with
Venetoclax
only which they have said may reduce the frequency of transfusions which is currently weekly. I have only ever heard of V being used as a combination therapy. Does anyone have any experience of using it on its own and what we can expect it to do.
They have suggested treatment with
Venetoclax
only which they have said may reduce the frequency of transfusions which is currently weekly. I have only ever heard of V being used as a combination therapy. Does anyone have any experience of using it on its own and what we can expect it to do.
JoeMcDote
in
CLL Support
8 months ago
short term memory
Hope everyone is well Has anyone here experienced some memory issues while on ibruvica and
venetoclax
treatments Unfortunately my mother can only handle 100mg of
venetoclax
a day for a couple months now and I see she’s forgetting more easily or she seems a little off I had taken her for a brain
Hope everyone is well Has anyone here experienced some memory issues while on ibruvica and
venetoclax
treatments Unfortunately my mother can only handle 100mg of
venetoclax
a day for a couple months now and I see she’s forgetting more easily or she seems a little off I had taken her for a brain
Eirinik
in
CLL Support
7 months ago
Food poisoning.
I am in the middle of
Venetoclax
treatment for my cll, I contactedfood poisoning Sunday. I am still quite ill. I assume my cll is affecting my recovery? Hopefully this gets better?
I am in the middle of
Venetoclax
treatment for my cll, I contactedfood poisoning Sunday. I am still quite ill. I assume my cll is affecting my recovery? Hopefully this gets better?
Lisbon2022
in
CLL Support
6 months ago
STEM CELL TRANSPLANT FINALLY SCHEDULED (WE HOPE)
After three cycles, another bone marrow biopsy did not show the results the Mayo doctor had hoped for, so more Vidaza was ordered with the addition of
venetoclax
. David has now received six cycles of vidaza and two of
venetoclax
.
After three cycles, another bone marrow biopsy did not show the results the Mayo doctor had hoped for, so more Vidaza was ordered with the addition of
venetoclax
. David has now received six cycles of vidaza and two of
venetoclax
.
dwolden
in
CLL Support
2 months ago
Hearing Problem
Hi Everyone Interested to know has anyone had trouble with their hearing while taking Ibrutinib and
Venetoclax
. I'm around 6 months into taking the combined tablets, around 1 month ago I noticed a difference with my hearing, never had a problem with my hearing before I was diagnosed with CLL.
Hi Everyone Interested to know has anyone had trouble with their hearing while taking Ibrutinib and
Venetoclax
. I'm around 6 months into taking the combined tablets, around 1 month ago I noticed a difference with my hearing, never had a problem with my hearing before I was diagnosed with CLL.
wolfe1963
in
CLL Support
5 months ago
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