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Venetoclax
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Boost Hemoglobin and Venetoclax coverage in Ontario
Tickets and reservations already done. 2- as I am 53 years old,
Venetoclax
is not covered for me, (10 000 cad/month) did anybody else in Ontario had this challenge? I know trillium drugs can help, top limit 2 000/month. Appreciate a lot your advices:)
Tickets and reservations already done. 2- as I am 53 years old,
Venetoclax
is not covered for me, (10 000 cad/month) did anybody else in Ontario had this challenge? I know trillium drugs can help, top limit 2 000/month. Appreciate a lot your advices:)
Sunny-planet
in
CLL Support
1 year ago
Having to start treatment
The two options I am being told are Ibrutinib or
Venetoclax
. I am a healthy person not overweight I'm on no medication I'm 60 years old are there any thoughts on which medication.
The two options I am being told are Ibrutinib or
Venetoclax
. I am a healthy person not overweight I'm on no medication I'm 60 years old are there any thoughts on which medication.
Mog811
in
CLL Support
1 year ago
Obinutuzumab & Venetoclax - tired & weak all the time
Hello, I’m appr. 6 weeks into the teatment. - Is it normal to feel very tired and weak during treatment? I am at a point where even sittings with ‘m’y legs down is tiring. Cannot do normal House hold chores anymore. - Also, how often should the blood be checked? Your input is much appreciated.
Hello, I’m appr. 6 weeks into the teatment. - Is it normal to feel very tired and weak during treatment? I am at a point where even sittings with ‘m’y legs down is tiring. Cannot do normal House hold chores anymore. - Also, how often should the blood be checked? Your input is much appreciated.
Mumu1
in
CLL Support
1 year ago
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Is Distilled water better to consume during treatment ?
I am shortly coming off watch and wait and will start treatment with obinutuzumab and
Venetoclax
. I understand I will have to increase drinking water to flush out drugs and waste products.
I am shortly coming off watch and wait and will start treatment with obinutuzumab and
Venetoclax
. I understand I will have to increase drinking water to flush out drugs and waste products.
Abbey222
in
CLL Support
1 year ago
Travel Insurance
Has anyone been able to get travel insurance whilst taking Ibrutinib &
Venetoclax
? Is it classed as chemotherapy? Thanks
Has anyone been able to get travel insurance whilst taking Ibrutinib &
Venetoclax
? Is it classed as chemotherapy? Thanks
SupportiveMum
in
CLL Support
1 year ago
Time-limited Pirtobrutinib triple for treatment naive CLL or Richters at M.D. Anderson
If no response after 7 cycles, an additional 6 cycles of Pirtobrutinib and
Venetoclax
will be given. The protocol document does not mention MRD testing. They do not define "response"in the protocol document like they do on the clinicaltrials link above. I will be asking about that.
If no response after 7 cycles, an additional 6 cycles of Pirtobrutinib and
Venetoclax
will be given. The protocol document does not mention MRD testing. They do not define "response"in the protocol document like they do on the clinicaltrials link above. I will be asking about that.
SeymourB
in
CLL Support
1 year ago
Husband's last O Infusion rescheduled due to low Neutrophils and WBC
He is off of
Venetoclax
for the week in hopes of improving. WBC is 1.7 k/ul. If anyone has any ideas about how to get these numbers back in range, or how common or uncommon this occurrence might be, please share.
He is off of
Venetoclax
for the week in hopes of improving. WBC is 1.7 k/ul. If anyone has any ideas about how to get these numbers back in range, or how common or uncommon this occurrence might be, please share.
lisakc1
in
CLL Support
1 year ago
Starting treatment Wednesday
Hello everyone, has anyone had obinutzumab and
venetoclax
, if anyone could share there experiences it would be much appreciated.... 👍
Hello everyone, has anyone had obinutzumab and
venetoclax
, if anyone could share there experiences it would be much appreciated.... 👍
mfc86
in
CLL Support
1 year ago
Feeling a bit down. Slipped disc and just been told that I should start treatment soon.
They are proposing a combination of Obinutuzumab and then
Venetoclax
- unless I have misunderstood , it was a bit of a blur. I would really value the views of the knowledgeable people in this group.
They are proposing a combination of Obinutuzumab and then
Venetoclax
- unless I have misunderstood , it was a bit of a blur. I would really value the views of the knowledgeable people in this group.
FairweatherSailor
in
CLL Support
1 year ago
Anyone has followed Rituxan -Venetoclax treatment with good results?
I am terrified to start new treatment because of afib due to Calquence (Alcalabrutinib). Thank you for any reassurance and bless you all. 🙏🏼💚
I am terrified to start new treatment because of afib due to Calquence (Alcalabrutinib). Thank you for any reassurance and bless you all. 🙏🏼💚
unairdefamille
in
CLL Support
8 months ago
Progressed
If it has - has given me two options:
Venetoclax
+ Rituximab OR LOXO 305 trial . Any thoughts folks? Anybody on one of these 2nd line treatments? Thanks Steve
If it has - has given me two options:
Venetoclax
+ Rituximab OR LOXO 305 trial . Any thoughts folks? Anybody on one of these 2nd line treatments? Thanks Steve
steve_canada
in
CLL Support
1 year ago
Immunocomprised and suddenly have an asymptomatic Covid infection!
My husband has CLL and is in treatment (finished Obinutuzumab, now on
Venetoclax
). He has had two pretty severe Covid infections; first one in June 2022, second one in December 22. The second infection turned into long Covid (fatigue, daily low grade fevers) - lasting over six months now.
My husband has CLL and is in treatment (finished Obinutuzumab, now on
Venetoclax
). He has had two pretty severe Covid infections; first one in June 2022, second one in December 22. The second infection turned into long Covid (fatigue, daily low grade fevers) - lasting over six months now.
keikikumu
in
CLL Support
8 months ago
CLL Staging
Either Rituximab or
Venetoclax
. My husband is always dismissive of his condition and does not want to discuss with me as he thinks he is way off becoming unwell. He also doesn't want to worry me. I would like to know if anyone can give me an idea of what stage of CLL he has.
Either Rituximab or
Venetoclax
. My husband is always dismissive of his condition and does not want to discuss with me as he thinks he is way off becoming unwell. He also doesn't want to worry me. I would like to know if anyone can give me an idea of what stage of CLL he has.
Rocky0181
in
CLL Support
1 year ago
Happy Thanksgiving CLLers
Wifie and I had swiss cheese fondue with a side of
venetoclax
and washed down with pine float of 56 oz of water. :)
Wifie and I had swiss cheese fondue with a side of
venetoclax
and washed down with pine float of 56 oz of water. :)
Big_Dee
in
CLL Support
1 year ago
A trial and some tribulations
, a week later, I started the NCT05536349 trial , "Time-limited Triplet Combination of Pirtobrutinib,
Venetoclax
, and Obinutuzumab for Patients With Treatment-naïve Chronic Lymphocytic Leukemia (CLL) or Richter Transformation (RT)" at M.D.
, a week later, I started the NCT05536349 trial , "Time-limited Triplet Combination of Pirtobrutinib,
Venetoclax
, and Obinutuzumab for Patients With Treatment-naïve Chronic Lymphocytic Leukemia (CLL) or Richter Transformation (RT)" at M.D.
SeymourB
in
CLL Support
1 year ago
ASH 2022 | Key highlights in CLL: clinical trial updates combination therapies novel BTKis Lindsey Roeker and Matthew Davids • 10 Dec 2022
The experts comment on the role of doublet therapies with ibrutinib and
venetoclax
, and discuss long-term follow-up data from several clinical trials, including CAPTIVATE (NCT02910583), ALPINE (NCT03734016), and GLOW (NCT03462719).
The experts comment on the role of doublet therapies with ibrutinib and
venetoclax
, and discuss long-term follow-up data from several clinical trials, including CAPTIVATE (NCT02910583), ALPINE (NCT03734016), and GLOW (NCT03462719).
lankisterguy
Volunteer
in
CLL Support
1 year ago
post Venetoclax treatment
Problems after finishing my treatment for CLL. I took Covid in July that resulted in a Lung infection I was admitted to hospital and stayed there for 10 weeks I had 20 different antibiotics and ant-virals they could not understand as they had never had this before, I had 2 Bronchoscopes the respiratory
Problems after finishing my treatment for CLL. I took Covid in July that resulted in a Lung infection I was admitted to hospital and stayed there for 10 weeks I had 20 different antibiotics and ant-virals they could not understand as they had never had this before, I had 2 Bronchoscopes the respiratory
Alma555
in
CLL Support
1 year ago
"Three-drug combination highly effective in patients with high-risk forms of chronic lymphocytic leukemia"
highly effective in patients with high-risk forms of chronic lymphocytic leukemia - https://www.news-medical.net/news/20221212/Three-drug-combination-highly-effective-in-patients-with-high-risk-forms-of-chronic-lymphocytic-leukemia.aspx - small USA trial (68) with acalabrutinib, obinutuzumab and
venetoclax
highly effective in patients with high-risk forms of chronic lymphocytic leukemia - https://www.news-medical.net/news/20221212/Three-drug-combination-highly-effective-in-patients-with-high-risk-forms-of-chronic-lymphocytic-leukemia.aspx - small USA trial (68) with acalabrutinib, obinutuzumab and
venetoclax
JIDD
in
CLL Support
1 year ago
Celebrating the end of treatment with a case of Covid!
On Monday I took my last
Venetoclax
from a year of treatment. Woo hoo! About a week before, I noticed that my lymph nodes in my underarms felt swollen and I got worried that my SLL had returned but they didn't feel swollen to the touch.
On Monday I took my last
Venetoclax
from a year of treatment. Woo hoo! About a week before, I noticed that my lymph nodes in my underarms felt swollen and I got worried that my SLL had returned but they didn't feel swollen to the touch.
Winegrape
in
CLL Support
1 year ago
Venetoclax and coughing (a lot)
Since I started
Venetoclax
(in July) I have coughed and coughed up as well as had sinuses absolutely full of alternatively green and brown mucus. I cannot believe the huge amounts I am coughing up. Although I did have an early bacterial infection, subsequent samples are pretty much negative.
Since I started
Venetoclax
(in July) I have coughed and coughed up as well as had sinuses absolutely full of alternatively green and brown mucus. I cannot believe the huge amounts I am coughing up. Although I did have an early bacterial infection, subsequent samples are pretty much negative.
carolly
in
CLL Support
1 year ago
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