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Venetoclax
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Working, CLL and Covid
I'm on
Venetoclax
but doing very well and I'm vaccinated. Thank you.
I'm on
Venetoclax
but doing very well and I'm vaccinated. Thank you.
Kenn123
in
CLL Support
3 years ago
Clinical trial for waldenstrom
I started a clinical trial of two oral meds this week: ibrutinib and
venetoclax
. Dana farber is running the 50 person trial. They’re powerful, targeted meds to knock down the cancer.
I started a clinical trial of two oral meds this week: ibrutinib and
venetoclax
. Dana farber is running the 50 person trial. They’re powerful, targeted meds to knock down the cancer.
waer88
in
CLL Support
3 years ago
Captivate Trial MRD status
My treatment ended in May 2019....Ibrutinib for 12 months and
Venetoclax
for 9. I just received several test results including Flow Citometry and I am still MRD negative after 2 years. This trial was simply awesome and a life saver.
My treatment ended in May 2019....Ibrutinib for 12 months and
Venetoclax
for 9. I just received several test results including Flow Citometry and I am still MRD negative after 2 years. This trial was simply awesome and a life saver.
lamboman
in
CLL Support
3 years ago
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CLL Society COVID-19 guidelines, & Explaining to Family and Friends Why the CDC Guidelines for Those Vaccinated - Do Not Apply to us
Davids Discusses Duvelisib and
Venetoclax
, an Oral Time-Limited Treatment for Chronic Lymphocytic Leukemia (CLL).
Davids Discusses Duvelisib and
Venetoclax
, an Oral Time-Limited Treatment for Chronic Lymphocytic Leukemia (CLL).
lankisterguy
Volunteer
in
CLL Support
3 years ago
Venetoclax Low Blood
Is it possible to have G6PD deficiency while using
Venetoclax
? My Dads haemoglobin is 5 .
Is it possible to have G6PD deficiency while using
Venetoclax
? My Dads haemoglobin is 5 .
JessicAb94
in
CLL Support
3 years ago
Hi All . Anyone been having weekend away while on Venetoclax for breaks in UK
Just me and partner and thinking of short break away and just wondered if anyone has been still travelling with COVID numbers so high
Just me and partner and thinking of short break away and just wondered if anyone has been still travelling with COVID numbers so high
Hd07
in
CLL Support
3 years ago
I am new here and about to start venetoclax/rituximab treatment.
My question is: Having just completed 4 weekly doses of Rituximab and achieved excellent recovery from haemolytic anemia, can I start immediately the
venetoclax
/rituximab treatment or do I have to wait for some time and if yes, for how long? Any views are extremely welcome. Thank you.
My question is: Having just completed 4 weekly doses of Rituximab and achieved excellent recovery from haemolytic anemia, can I start immediately the
venetoclax
/rituximab treatment or do I have to wait for some time and if yes, for how long? Any views are extremely welcome. Thank you.
RamsesII
in
CLL Support
3 years ago
Venetoclax Side Effects
My Dad is on V ( 400mg). When he started his first 400 dose he got rash ( red to pink ) on his skin. It’s spreading. Please share what you now.
My Dad is on V ( 400mg). When he started his first 400 dose he got rash ( red to pink ) on his skin. It’s spreading. Please share what you now.
JessicAb94
in
CLL Support
3 years ago
I have had both doses of the Pfizer vaccine, while they applauded me after I got my 2nd dose, 90 days later I found that I have no immunity!
I took Ibrutinib prior to January 20 when it gave me AFib and a few other problems, then stated
Venetoclax
in July of 2020, and in August started the first of six doses of Rituxan.
I took Ibrutinib prior to January 20 when it gave me AFib and a few other problems, then stated
Venetoclax
in July of 2020, and in August started the first of six doses of Rituxan.
KevinCLLITP
in
CLL Support
3 years ago
Venetoclax and tiredness
I nearly always fall asleep about an hour after taking the dose of
Venetoclax
and allopurinol. I'm so disappointed as the whole reason I'm being treated is because of fatigue. Anybody else had this experience?
I nearly always fall asleep about an hour after taking the dose of
Venetoclax
and allopurinol. I'm so disappointed as the whole reason I'm being treated is because of fatigue. Anybody else had this experience?
Kenn123
in
CLL Support
3 years ago
AbbVie Pharm--positive phase 3 for CLL!
The most frequently occurring serious adverse reactions in patients receiving
venetoclax
in combination with obinutuzumab were pneumonia, sepsis, febrile neutropenia, and TLS.
The most frequently occurring serious adverse reactions in patients receiving
venetoclax
in combination with obinutuzumab were pneumonia, sepsis, febrile neutropenia, and TLS.
Vlaminck
in
CLL Support
3 years ago
Progression Free Survival
Just saw something saying there was good progression Free Survival 3 years after
venetoclax
and obinutuzimab. So does this mean that basically the disease has been knocked out and can't be seen 3 years later?
Just saw something saying there was good progression Free Survival 3 years after
venetoclax
and obinutuzimab. So does this mean that basically the disease has been knocked out and can't be seen 3 years later?
Research123
in
CLL Support
3 years ago
BTK inhibitors for the treatment of CLL - the current state of play of 'brutinibs'
Another very important trial is the
CLL17
trial which compares
Ibrutinib based therapy Vs
based therapy Vs Ibrutinib +
Venetoclax
based therapy.
Another very important trial is the
CLL17
trial which compares
Ibrutinib based therapy Vs
based therapy Vs Ibrutinib +
Venetoclax
based therapy.
CLLerinOz
Volunteer
in
CLL Support
3 years ago
The Leukemia & Lymphoma Society’s National Patient Registry COVID-19 vaccination antibody results - published today (Greenberg et al)
This includes BTK inhibitors such as ibrutinib, anti-CD20 antibodies, or combinations of these therapies or their use with
venetoclax
, a BCL2 inhibitor These results do not mean blood cancer patients should skip vaccination.
This includes BTK inhibitors such as ibrutinib, anti-CD20 antibodies, or combinations of these therapies or their use with
venetoclax
, a BCL2 inhibitor These results do not mean blood cancer patients should skip vaccination.
lankisterguy
Volunteer
in
CLL Support
3 years ago
Venetoclax and covid jab
I have been on
Venetoclax
for 16mths now. All going great. I see my haemotologist to morrow and will be asking about Covid vaccine. The last time I saw him he didn"t think I could have the vaccine. Has anyone else on
Venetoclax
had the vaccine? Has there been any side effects?
I have been on
Venetoclax
for 16mths now. All going great. I see my haemotologist to morrow and will be asking about Covid vaccine. The last time I saw him he didn"t think I could have the vaccine. Has anyone else on
Venetoclax
had the vaccine? Has there been any side effects?
nuttynannie1947
in
CLL Support
3 years ago
What’s the next step.
Options are 1/
Venetoclax
. 2 years 2/ Ibrutinib indefinitely. Or 3 Acalabrutinib indefinitely. I’m sure these are correct. Mind is swimming at the minute. Does anyone have any experience or advice. Billy.
Options are 1/
Venetoclax
. 2 years 2/ Ibrutinib indefinitely. Or 3 Acalabrutinib indefinitely. I’m sure these are correct. Mind is swimming at the minute. Does anyone have any experience or advice. Billy.
Billys60
in
CLL Support
3 years ago
CLL + Trisomy 8?
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab,
Venetoclax
, and Ibrutinib trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8.
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab,
Venetoclax
, and Ibrutinib trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8.
RyStock
in
CLL Support
3 years ago
CLL + Trisomy 8
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab,
Venetoclax
, and Ibrutinib trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8.
Was diagnosed with CLL in 2018 at 45yrs old, started treatment in 2019 and just finished my 19th month of Obinituzamab,
Venetoclax
, and Ibrutinib trial. Had BMB and showed remaining small population of B-cells - dang! Also showed Trisomy 8? Seems very rare for CLL patient to have Trisomy 8.
RyStock
in
CLL America Support
3 years ago
CLL Research: Phase 2 CAPTIVATE Study Suggests Role for Fixed-Duration Treatment of CLL/SLL
Meghan Thompson on successful retreatment with
venetoclax
.) The question remains as to the advisability of stopping all therapy upon attainment of uMRD.
Meghan Thompson on successful retreatment with
venetoclax
.) The question remains as to the advisability of stopping all therapy upon attainment of uMRD.
WinJ3
in
CLL Support
3 years ago
Muscle Relaxants for Pain?
To follow up on the pain from Acalabrutinib and
Venetoclax
—Have any of you been prescribed a muscle relaxant to help with the pain? We are trying to explore if there is an orthopedic issue. I realize that we need to talk with his doctor, but just wondering what others have experienced.
To follow up on the pain from Acalabrutinib and
Venetoclax
—Have any of you been prescribed a muscle relaxant to help with the pain? We are trying to explore if there is an orthopedic issue. I realize that we need to talk with his doctor, but just wondering what others have experienced.
Franklin2021
in
CLL Support
3 years ago
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