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Collected Responses to Give more funding for thyroid research and patients after price hike Petition
The petition launched by Pete Taylor has received a response, and there have now been numerous posts referencing that. And replies on each of them. This it is getting spread and some will be missed, there will be much repetition, etc. For that reason, this new post is intended to collect everything
The petition launched by Pete Taylor has received a response, and there have now been numerous posts referencing that. And replies on each of them. This it is getting spread and some will be missed, there will be much repetition, etc. For that reason, this new post is intended to collect everything
helvella
Thyroid UK
in
Thyroid UK
5 months ago
Trying again after surgery
Hi, I've just had a laparoscopy to remove a cyst on my ovary and dense grade 3 endometriosis which was on my womb, ovaries, bladder, bowel and ligaments. But the doctors didn't tell me how long I need to wait before trying for a baby again. Has anyone had any experience of this surgery and how long
Hi, I've just had a laparoscopy to remove a cyst on my ovary and dense grade 3 endometriosis which was on my womb, ovaries, bladder, bowel and ligaments. But the doctors didn't tell me how long I need to wait before trying for a baby again. Has anyone had any experience of this surgery and how long
Barney91
in
Fertility Network UK
5 months ago
Endometriosis
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
Tigerlily34
in
Women's Health
5 months ago
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Endo diagnosis
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
I've had period pain since I was 15 and each year the pain only gets worse. When I became 18, the pain became crippling. The pain will start mildly a week or two before I start my period. Then when I start my period the pain intensifies. I find it hard to walk, I feel like I have a fever then have an
Tigerlily34
in
Endometriosis UK
5 months ago
Anyone use Fobumix?
I had my annual asthma check at the surgery yesterday but it felt like a tick box exercise which i didnt benefit from, and none of my questions were addressed. I wanted to know about the Fostair MART regime which i think i could benefit from, already being on Fostair 200 i was hoping for some flexibility
I had my annual asthma check at the surgery yesterday but it felt like a tick box exercise which i didnt benefit from, and none of my questions were addressed. I wanted to know about the Fostair MART regime which i think i could benefit from, already being on Fostair 200 i was hoping for some flexibility
Shirazmataz
in
Lung Conditions Community Forum
5 months ago
Total hearing loss
After having MRI of auditory meatus both sides in December (total hearing loss) I had a further MR scan of neck with contrast and now have received a appointment with Dental Oral Surgery in March but I have been told nothing as to why can anyone advise what might be going on and what they suspect
After having MRI of auditory meatus both sides in December (total hearing loss) I had a further MR scan of neck with contrast and now have received a appointment with Dental Oral Surgery in March but I have been told nothing as to why can anyone advise what might be going on and what they suspect
Acoustguit
in
Acoustic Neuroma Support
5 months ago
Help, bad Decipher results, this changes everything, please advise (NE WI area but will travel)
Hi everyone~ I just wrote recently but this Decipher test seems to have up-ended our lives. My husband, 75, overweight w/Watchman, was dx'ed late Nov. w/what was originally classified as Favorable Risk Intermediate after random biopsy; we went to a urologic oncologist out of Froedtert in Milwaukee
Hi everyone~ I just wrote recently but this Decipher test seems to have up-ended our lives. My husband, 75, overweight w/Watchman, was dx'ed late Nov. w/what was originally classified as Favorable Risk Intermediate after random biopsy; we went to a urologic oncologist out of Froedtert in Milwaukee
AliceinW57
in
Prostate Cancer Network
5 months ago
Surgery vs SBRT Cyberknife
I posted this in the Advanced PC group and shouldn't have, as my Hubs is not in an advanced stage. Posting here in hopes of more input! I apologize if you are in the other group and have already seen this! Hubs diagnosed 11/15/23. 2 of 12 positive. Gleason 6 and 7. PSA 3.7-4.2. Met with Surgeon first
I posted this in the Advanced PC group and shouldn't have, as my Hubs is not in an advanced stage. Posting here in hopes of more input! I apologize if you are in the other group and have already seen this! Hubs diagnosed 11/15/23. 2 of 12 positive. Gleason 6 and 7. PSA 3.7-4.2. Met with Surgeon first
Pride123
in
Prostate Cancer Network
5 months ago
Endometriomas returning
Hi ladies,Im wondering those of you who have had endometriomas return, how long was it post lap before they come back? I had surgery in March 23, where I had extensive adhesiolysis and drainage of 2 9cm bilatreal cysts. I noticed a few months after I had similar recurrent pain as pre op, and brushed
Hi ladies,Im wondering those of you who have had endometriomas return, how long was it post lap before they come back? I had surgery in March 23, where I had extensive adhesiolysis and drainage of 2 9cm bilatreal cysts. I noticed a few months after I had similar recurrent pain as pre op, and brushed
Kirsty360
in
Endometriosis UK
5 months ago
It's been a long time...
I posted on here briefly a while back, but at the time I was pretty stable and I fell out of touch on here. Now, I am progressing pretty rapidly. I had a nasty gall bladder infection last April, resulting in surgery and five days in the hospital. I also got pneumonia. It all just sent my MS into hyperactivity
I posted on here briefly a while back, but at the time I was pretty stable and I fell out of touch on here. Now, I am progressing pretty rapidly. I had a nasty gall bladder infection last April, resulting in surgery and five days in the hospital. I also got pneumonia. It all just sent my MS into hyperactivity
nexttothesalt
in
My MSAA Community
5 months ago
A very sensitive post
Tonight, I reflect on my fertility journey. I got married in my early 30's and came to England, but marriage did not work. I started working at a fast food restaurant, earning enough to cover my rent, food, and some little savings. Of all I desire in life, family is number one. I moved on with my life
Tonight, I reflect on my fertility journey. I got married in my early 30's and came to England, but marriage did not work. I started working at a fast food restaurant, earning enough to cover my rent, food, and some little savings. Of all I desire in life, family is number one. I moved on with my life
Sar03
in
Fertility Network UK
5 months ago
Bleeding when opening the bowels
does anyone else get this? I had to have an emergency appointment today as I went to the toilet and when I opened my bowels and looked in the toilet, the water and bowl were full of blood! I had confirmed stage 2 endo on my bladder and ovary, I’ve also had mumtiple colonoscopies, sigmoidoscopies, endoscopies
does anyone else get this? I had to have an emergency appointment today as I went to the toilet and when I opened my bowels and looked in the toilet, the water and bowl were full of blood! I had confirmed stage 2 endo on my bladder and ovary, I’ve also had mumtiple colonoscopies, sigmoidoscopies, endoscopies
nikogirl18
in
Endometriosis UK
5 months ago
Sciatica after RP?
My husband has developed painful sciatica 4 months after his RP. Xray shows bulging disk. He can have an MRI 6 weeks after PT. Is it possible that there is a relation to his prostate surgery?
My husband has developed painful sciatica 4 months after his RP. Xray shows bulging disk. He can have an MRI 6 weeks after PT. Is it possible that there is a relation to his prostate surgery?
studioj
in
Prostate Cancer Network
5 months ago
Saline nasal rinse and glaucoma
I suffer with allergies and used to use steroid nasal spray. Now I have glaucoma I now know that these sprays are bad news! I've been looking into saline nasal rinse kits as an alternative to help me with the chronic catarrh in my throat but can't see any information about if these are safe to use for
I suffer with allergies and used to use steroid nasal spray. Now I have glaucoma I now know that these sprays are bad news! I've been looking into saline nasal rinse kits as an alternative to help me with the chronic catarrh in my throat but can't see any information about if these are safe to use for
Bonniecat7
in
Glaucoma UK
5 months ago
ocular migraines after surgery
Hi all. I had aortic valve replacement along with resectioning 5 months ago. Things have gone well. The first month I had a lot of ocular migraines which I attributed to the opiods. However, I'm no longer on the meds I'm still getting regular migraines. I'd say weekly, sometimes a couple a week.
Hi all. I had aortic valve replacement along with resectioning 5 months ago. Things have gone well. The first month I had a lot of ocular migraines which I attributed to the opiods. However, I'm no longer on the meds I'm still getting regular migraines. I'd say weekly, sometimes a couple a week.
TriumphLover
in
British Heart Foundation
5 months ago
baricitinib over 65
hi I hade a rheumatology appointment last week where I was told that if I was a new patient at 65 I wouldn’t have been given baricinib as new guide lines were that because it could cause coronary problems or some cancers this risk is higher over the age of 65. I was given the option to half the dose
hi I hade a rheumatology appointment last week where I was told that if I was a new patient at 65 I wouldn’t have been given baricinib as new guide lines were that because it could cause coronary problems or some cancers this risk is higher over the age of 65. I was given the option to half the dose
Darwin
in
NRAS
9 months ago
Failed Trabeculectomy
Hi!I have a failed trabeculectomy. 😢 Operated June 2022 with pressure of 16. Too high so 2 stitches were taken out and then pressure dropped to 2 and wouldn't come up so had to add a stitch to the bleb going through the conjunctiva. Pressure remained at about 11 for 9 months then then the bleb heal
Hi!I have a failed trabeculectomy. 😢 Operated June 2022 with pressure of 16. Too high so 2 stitches were taken out and then pressure dropped to 2 and wouldn't come up so had to add a stitch to the bleb going through the conjunctiva. Pressure remained at about 11 for 9 months then then the bleb heal
stephanie1977
in
Glaucoma UK
5 months ago
Major surgery and a Vasovagal event
I’ve been taking 5mg pred for a while. Reduced to 4.5 and after a few weeks began to feel unwell. I told my doctor who said go back on to 5mg. I then went into hospital last week. I had gluteal reconstructive surgery. The anaesthetist suggested I should increase my pred. So I did the sick day rule and
I’ve been taking 5mg pred for a while. Reduced to 4.5 and after a few weeks began to feel unwell. I told my doctor who said go back on to 5mg. I then went into hospital last week. I had gluteal reconstructive surgery. The anaesthetist suggested I should increase my pred. So I did the sick day rule and
Sumojo
in
PMRGCAuk
3 months ago
Not a UTI
Thinking I had picked up a UTI (strange feeling in bladder area and frequent feeling of needing to urinate) I requested a urine test, which was done. The triage nurse at my surgery informed me that although it showed no infection there were in fact microscopic traces of blood in there, (which would be
Thinking I had picked up a UTI (strange feeling in bladder area and frequent feeling of needing to urinate) I requested a urine test, which was done. The triage nurse at my surgery informed me that although it showed no infection there were in fact microscopic traces of blood in there, (which would be
Pusph
in
PMRGCAuk
5 months ago
Surgery Today!
I’m having spinal surgery today in my neck. So glad it’s finally happening but rather nervous too. I have cervical stenosis and myelopathy so I’m hoping this operation will stop the progression of spinal cord damage 🤞🏻🤞🏻🤞🏻. Has anyone else had this happen. Not sure if it’s RA related or not.
I’m having spinal surgery today in my neck. So glad it’s finally happening but rather nervous too. I have cervical stenosis and myelopathy so I’m hoping this operation will stop the progression of spinal cord damage 🤞🏻🤞🏻🤞🏻. Has anyone else had this happen. Not sure if it’s RA related or not.
Kati66
in
NRAS
3 months ago
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