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GCA and Ocular TIA (mini stroke)??
I was diagnosed with GCA four and a half years ago , am on my third relapse and am tapering (now 10mg prednisolone and weekly Actemra). At the onset I had severe headaches and a dark 'veil' over half of my left eye which went after about 5 minutes and the opthalmologist put me on 60 mg prednisolone
I was diagnosed with GCA four and a half years ago , am on my third relapse and am tapering (now 10mg prednisolone and weekly Actemra). At the onset I had severe headaches and a dark 'veil' over half of my left eye which went after about 5 minutes and the opthalmologist put me on 60 mg prednisolone
JulietPotion
in
PMRGCAuk
2 months ago
Osteoporosis and RA
Last October went to work and my back locked never had any problems with my back before I am on 25mg mtx and 40g every fortnight of amgevita doing great then this happened to my back and my world completely changed. I had been on Amgevita for 10 months it stopped my uveitis in its tracks felt great
Last October went to work and my back locked never had any problems with my back before I am on 25mg mtx and 40g every fortnight of amgevita doing great then this happened to my back and my world completely changed. I had been on Amgevita for 10 months it stopped my uveitis in its tracks felt great
Bhlen1963
in
NRAS
2 months ago
confused
I’ve been on thyroxine for 50 years and for last 30 years reasonable stable on 1.25 a day. I do have a medichecks test every year. I don’t have high antibodies . A few years ago I was waking in the night chocking and mri showed my thyroid gland had all but disappeared, with a small part of what was left
I’ve been on thyroxine for 50 years and for last 30 years reasonable stable on 1.25 a day. I do have a medichecks test every year. I don’t have high antibodies . A few years ago I was waking in the night chocking and mri showed my thyroid gland had all but disappeared, with a small part of what was left
Auntyp62
in
Thyroid UK
2 months ago
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History of Hypothyroidism on Maternal Side (Gma, mom, aunt, sister). HELP! Should I get tested?
After I gave birth in 2006, I immediately had a “flare up.” My body ached , I felt exhausted and was covered in hives (rashes, welts, eczema). I was put on a Prednisone taper starting at 60mg. Throughout the time between 2006 and 2024, I have regular flare ups. I’ve torn two rotator cuffs, awoken to
After I gave birth in 2006, I immediately had a “flare up.” My body ached , I felt exhausted and was covered in hives (rashes, welts, eczema). I was put on a Prednisone taper starting at 60mg. Throughout the time between 2006 and 2024, I have regular flare ups. I’ve torn two rotator cuffs, awoken to
Chronichives
in
Thyroid UK
2 months ago
Help Please 🙏
Hello 👋 Everyone ☺️ Posting on behalf of my partner . John is 64 yrs and is currently suffering from parathyroid issues with raised calcium - see my previous posts for further information . He has lost his libido and is tired / fatigued and muscle loss . I’ve attached his recent bloods and I’m no
Hello 👋 Everyone ☺️ Posting on behalf of my partner . John is 64 yrs and is currently suffering from parathyroid issues with raised calcium - see my previous posts for further information . He has lost his libido and is tired / fatigued and muscle loss . I’ve attached his recent bloods and I’m no
Kisca
in
Thyroid UK
2 months ago
calcium supplement before reclast infusion
is it best to take a calcium supplement before my infusion, I have had a blood test prior to my infusion but a blood test doesn't really show how much calcium in your bones and I have been reading that reclast lowers calcium levels.
is it best to take a calcium supplement before my infusion, I have had a blood test prior to my infusion but a blood test doesn't really show how much calcium in your bones and I have been reading that reclast lowers calcium levels.
Radars
in
Bone Health and Osteoporosis UK
2 months ago
bone protection
2 weeks in to Pred and very grateful for all the excellent advice. Resting a lot more, taking AdCal/ Vit D supplements and following advice in here have upped dietary intake of calcium ( enjoying hot milk before bed!). Have been told I don’t need a Dexa scan. have got Vit D/ K2 from Amazon. Can I
2 weeks in to Pred and very grateful for all the excellent advice. Resting a lot more, taking AdCal/ Vit D supplements and following advice in here have upped dietary intake of calcium ( enjoying hot milk before bed!). Have been told I don’t need a Dexa scan. have got Vit D/ K2 from Amazon. Can I
Scaredofpred
in
PMRGCAuk
2 months ago
Is drinking milk bad for osteoporosis?
I've just heard Heather Mills on TV make this statement! I am shocked to say the least. I always have a large bowl of cereal in the evening and go to bed on hot milk as I believed this was one way of getting calcium in me????
I've just heard Heather Mills on TV make this statement! I am shocked to say the least. I always have a large bowl of cereal in the evening and go to bed on hot milk as I believed this was one way of getting calcium in me????
Y3she
in
Bone Health and Osteoporosis UK
2 months ago
R223 - PSA 26 Doubled since February
My husband has had 3 treatments of R223, had to postpone 4th treatment because of flu. On Monday had bloods taken in preparation of 4th treatment on 18th April 2024. Blood results ALP 76, at started of R223 106, HB 92 down from 102, (has Proctitis and occasional bleed, calcium a little low, taken
My husband has had 3 treatments of R223, had to postpone 4th treatment because of flu. On Monday had bloods taken in preparation of 4th treatment on 18th April 2024. Blood results ALP 76, at started of R223 106, HB 92 down from 102, (has Proctitis and occasional bleed, calcium a little low, taken
Janhpr
in
Advanced Prostate Cancer
2 months ago
Blood tests
Hi,I have an interactive thyroid and for many years now. I have just recently had blood tests completed. twice now and have now been told I need to have more completed. The first time I was informed that my B12 was 2000 so had another blood test completed. I have now been informed my folic is low and
Hi,I have an interactive thyroid and for many years now. I have just recently had blood tests completed. twice now and have now been told I need to have more completed. The first time I was informed that my B12 was 2000 so had another blood test completed. I have now been informed my folic is low and
Summerage11
in
Thyroid UK
2 months ago
Hello - I'm new to all this.
Just been diagnosed with Polymyalgia 2 weeks ago and am on Prednisone 15mg steroid dose alongside 2 x 500mg Naproxen, 1 dose 20mg Omeprazole, 4 daily doses of 2 x 500mg paracetamol plus 2 Adcal-D Calcium/vit D tablets. The pain is manageable now - I can get some sleep and the pain/stiffness in my shoulders
Just been diagnosed with Polymyalgia 2 weeks ago and am on Prednisone 15mg steroid dose alongside 2 x 500mg Naproxen, 1 dose 20mg Omeprazole, 4 daily doses of 2 x 500mg paracetamol plus 2 Adcal-D Calcium/vit D tablets. The pain is manageable now - I can get some sleep and the pain/stiffness in my shoulders
Positive__
in
PMRGCAuk
2 months ago
Any success with only one Lap surgery for DIE?
Hi ladies, hope everyone is doing as well as possible. I'm 5 weeks post op for my first lap for DIE, large cysts organs stuck together. All the good stuff. I've recovered pretty well and feel ok now. I'm on Utrogestan 200mg to hopefully stop my period and reduce chances of regrowth. I also take NAC,
Hi ladies, hope everyone is doing as well as possible. I'm 5 weeks post op for my first lap for DIE, large cysts organs stuck together. All the good stuff. I've recovered pretty well and feel ok now. I'm on Utrogestan 200mg to hopefully stop my period and reduce chances of regrowth. I also take NAC,
DarkStar85
in
Endometriosis UK
2 months ago
Perplexed over lab work
Hello, I am a 32 y/o white female. Some history about me that may be applicable: Surgeries: Gallbladder removed (2011), Gastric Sleeve (2017) Weight loss surgery: Started at 332lbs, currently fluctuate between 178-185. Diagnoses: Major Depressive Disorder, GERD (resulting from WLS), ADHD, Anemia
Hello, I am a 32 y/o white female. Some history about me that may be applicable: Surgeries: Gallbladder removed (2011), Gastric Sleeve (2017) Weight loss surgery: Started at 332lbs, currently fluctuate between 178-185. Diagnoses: Major Depressive Disorder, GERD (resulting from WLS), ADHD, Anemia
aybaylay
in
Pernicious Anaemia Society
2 months ago
My Angina Story - 2024
Hi - telling my story since I'm feeling a little confused and down, and wanted to share. Last year in 2023 I was diagnosed with high blood pressure (it's been a little high for past 20 years) but GP wanted to bring it down consistently so put onto Ramipril that did the job nicely. It was early Jan
Hi - telling my story since I'm feeling a little confused and down, and wanted to share. Last year in 2023 I was diagnosed with high blood pressure (it's been a little high for past 20 years) but GP wanted to bring it down consistently so put onto Ramipril that did the job nicely. It was early Jan
djparkie
in
British Heart Foundation
2 months ago
Could eating Natto cure Parkinson's?
Natto is fermented soybeans and a dish traditionally eaten in Japan. See article below and the connection in how it could help cure your Parkinson's. Since it has many benefits it would be worth trying. The food itself is bland but can be mixed with other foods to be more enjoyable. You should be careful
Natto is fermented soybeans and a dish traditionally eaten in Japan. See article below and the connection in how it could help cure your Parkinson's. Since it has many benefits it would be worth trying. The food itself is bland but can be mixed with other foods to be more enjoyable. You should be careful
Trailing
in
Cure Parkinson's
2 months ago
Nocturia
Ever since my radiotherapy and brachytherapy 2 months ago I have been suffering nocturia, sometimes being forced awake 5 times a night by a painful call and having little or no product when staggering once again to the toilet for a little dribble. I am now trying to limit the liquid I drink during the
Ever since my radiotherapy and brachytherapy 2 months ago I have been suffering nocturia, sometimes being forced awake 5 times a night by a painful call and having little or no product when staggering once again to the toilet for a little dribble. I am now trying to limit the liquid I drink during the
tunybgur
in
Advanced Prostate Cancer
2 months ago
Knee and nails
I have Graves with TED, on Carbmizole but developed a really painful knee and my nails are rubbish. Should I take magnesium and calcium (already on Selenium, bit D and B12)
I have Graves with TED, on Carbmizole but developed a really painful knee and my nails are rubbish. Should I take magnesium and calcium (already on Selenium, bit D and B12)
Apodemus
in
Thyroid UK
2 months ago
Post thyroidectomy.
Am now three weeks past total thyroidectomy and removal of numerous lymph glands. First week on levothyroxine I felt great. The last week I have been sleeping around sixteen hours a day. I could sleep right now! Due to see my surgeon next week for first check up since operation. What should I ask? I've
Am now three weeks past total thyroidectomy and removal of numerous lymph glands. First week on levothyroxine I felt great. The last week I have been sleeping around sixteen hours a day. I could sleep right now! Due to see my surgeon next week for first check up since operation. What should I ask? I've
HelenaJ
in
Thyroid UK
2 months ago
Recently diagnosed and have questions
I'm 41 and went for a DEXA scan in January due to a family history of osteoporosis. I have mild scoliosis in my thoracic spine. The results came back as having osteoporosis.AP Spine BMD 0.713 t score -3.0 z score -2.8 Femoral neck BMD 0.564 t score -2.6 z score -2.3 Hip BMD 0.640 t score -2.5 z score
I'm 41 and went for a DEXA scan in January due to a family history of osteoporosis. I have mild scoliosis in my thoracic spine. The results came back as having osteoporosis.AP Spine BMD 0.713 t score -3.0 z score -2.8 Femoral neck BMD 0.564 t score -2.6 z score -2.3 Hip BMD 0.640 t score -2.5 z score
BoneJangles
in
Bone Health and Osteoporosis UK
2 months ago
calcium supplement
Was on 10 mg for 9 months, now down to 7 after a year. Heard of calcium supplement being prescribed for some friends (female). Is that something everyone on steroids should be taking?
Was on 10 mg for 9 months, now down to 7 after a year. Heard of calcium supplement being prescribed for some friends (female). Is that something everyone on steroids should be taking?
Winckle
in
PMRGCAuk
2 months ago
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