Hi Everyone
Long time, no post so I apologise.
Since I last spoke to anyone I have been diagnosed with Osteoperosis, so fighting a number of demons. My Rheumatologist has been concerned about my ever decreasing levels of calcium despite eating calcium rich food and doubling my prescribed Calcium supplements. The rheumatology nurse called me on Monday saying my calcium levels had dropped to 2.2 and she was sending my latest blood results to the consultant to look at.
I am suffering from overwhelming tiredness again, as tired as I was when first diagnosed with PV.
Yesterday I had a blood form come through the post requesting 12 different tests. On it was also written “Secondary causes for osteoporosis “. On the top of the form, in capital letters was “PLEASE HAVE THESE TAKEN ASAP” which worried me.
The tests ordered are FBC, PV, RENAL, LIVER, BONE. COELIAC SCREEN, SPE, TSH, EGFR, PTH, Vit D and Serum Light Chains. I know the Serum LC is taken when testing for Multiple Myeloma as my best friends husband has bone marrow cancer.
My rheumatology nurse always sounds totally bored or like she has just got out of bed so I phoned the nurse at Leukaemia Care, who answers most questions but she wouldn’t discuss what the tests were and what they were for so I decided to try my friends here who are the fountain of knowledge in most things.
I am not frightened to know things, it’s the not knowing that frightens me more, so please let me know if you have any info about these tests.
thanks in advance
Jill xx