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Chance to participate: Barriers for vaccination - research study for immunosuppressed patients with inflammatory condtions.
As you know I always like to support any research, and Paul Howard at LupusUK has found another opportunity: https://healthunlocked.com/lupusuk/posts/147129807/research-study-barriers-facilitators-for-
vaccination
?
As you know I always like to support any research, and Paul Howard at LupusUK has found another opportunity: https://healthunlocked.com/lupusuk/posts/147129807/research-study-barriers-facilitators-for-
vaccination
?
PMRpro
Ambassador
in
PMRGCAuk
3 years ago
Third dose of the COVID-19 vaccination scheme
Have you had any trouble accessing your third dose of the COVID-19
vaccination
scheme, despite being severely immounosuppressed?
Have you had any trouble accessing your third dose of the COVID-19
vaccination
scheme, despite being severely immounosuppressed?
Aribah-NRAS
NRAS
in
NRAS
3 years ago
Pfizer jab
I was told by a specialist this is due to a fault in my mast cells due to my condition Tonight I went for my booster
vaccination
,sat in the chair decided I couldn’t go through with it without speaking to a few like minded people .
I was told by a specialist this is due to a fault in my mast cells due to my condition Tonight I went for my booster
vaccination
,sat in the chair decided I couldn’t go through with it without speaking to a few like minded people .
millycat
in
MPN Voice
3 years ago
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Connection between Hair Loss and Covid Vaccine?
Hi All, I have had ET for 16 years and on HU for 14. I experienced significant hair loss at the beginning but it let up after the first year. I have been on higher doses but for the last year I have been on 2 a day with platelets staying between 700-900. About 6 months ago I started experiencing heavy
Hi All, I have had ET for 16 years and on HU for 14. I experienced significant hair loss at the beginning but it let up after the first year. I have been on higher doses but for the last year I have been on 2 a day with platelets staying between 700-900. About 6 months ago I started experiencing heavy
Ladygolf
in
MPN Voice
2 years ago
Covid vaccination
Is it ok to get the Phizer booster while on anticoagulants such as Apixaban?
Is it ok to get the Phizer booster while on anticoagulants such as Apixaban?
Mabrook
in
British Heart Foundation
3 years ago
Covid positive journey so far…..
I have tested positive for Covid, after sometime of feeling like I was on borrowed time with 2 children at secondary school, a husband who is self employed and worked in peoples homes throughout the pandemic and me working as a frontline NHS worker I have tested positive on Monday. Son and husband were
I have tested positive for Covid, after sometime of feeling like I was on borrowed time with 2 children at secondary school, a husband who is self employed and worked in peoples homes throughout the pandemic and me working as a frontline NHS worker I have tested positive on Monday. Son and husband were
Nickyanne
in
MPN Voice
2 years ago
Rapid survey regarding 3rd primary dose of COVID vaccine
https://docs.google.com/forms/d/e/1FAIpQLSf3sbFbE3gvkyENsV6Ce0Fj5fc9qtgAQeQjFOPbE-0lIKPJDg/viewform Full guidance on third primary doses can be read here. https://www.gov.uk/government/publications/third-primary-covid-19-vaccine-dose-for-people-who-are-immunosuppressed-jcvi-advice/joint-committee-on-
vaccination
-and-immunisation-jcvi-advice-on-third-primary-dose-
vaccination
https://docs.google.com/forms/d/e/1FAIpQLSf3sbFbE3gvkyENsV6Ce0Fj5fc9qtgAQeQjFOPbE-0lIKPJDg/viewform Full guidance on third primary doses can be read here. https://www.gov.uk/government/publications/third-primary-covid-19-vaccine-dose-for-people-who-are-immunosuppressed-jcvi-advice/joint-committee-on-
vaccination
-and-immunisation-jcvi-advice-on-third-primary-dose-
vaccination
Hidden
in
NRAS
3 years ago
Over a year ..
It’s been almost a year and a half since my Mom has been in the same room with my siblings. This past Sunday, I offered some time to be together —- all vaccinated and boosted — I was afraid to wait longer … Mom needed to see her boys face to face and beyond a screen. Knowing it has been viewed by other
It’s been almost a year and a half since my Mom has been in the same room with my siblings. This past Sunday, I offered some time to be together —- all vaccinated and boosted — I was afraid to wait longer … Mom needed to see her boys face to face and beyond a screen. Knowing it has been viewed by other
bazooka111
in
PSP Association
2 years ago
NRAS's new video on the importance of the COVID-19 vaccines
The majority of COVID-19 cases being hospitalised currently are those who have not yet been fully vaccinated. These vaccines are still relatively new and many have had understandable concerns about taking them. I imagine even many who are fully vaccinated may have had some concerns or questions. Unfortunately
The majority of COVID-19 cases being hospitalised currently are those who have not yet been fully vaccinated. These vaccines are still relatively new and many have had understandable concerns about taking them. I imagine even many who are fully vaccinated may have had some concerns or questions. Unfortunately
Victoria-NRAS
NRAS
in
NRAS
2 years ago
Where an I get travel insurance?
Hoping to travel to Canada in July for a month, for our sons wedding. Already had Bronchiectasis & other issues but after the vaccinations for covid heart started playing up.Consultant diagnosed angina, written up on health record.As a consequence the travel insurance quotes I’m getting are outrageous
Hoping to travel to Canada in July for a month, for our sons wedding. Already had Bronchiectasis & other issues but after the vaccinations for covid heart started playing up.Consultant diagnosed angina, written up on health record.As a consequence the travel insurance quotes I’m getting are outrageous
Lfcpremier
in
Lung Conditions Community Forum
2 years ago
Please get vaccinated
I honestly believe the
vaccination
saved my life. It’s not about whether you get Covid, we all probably will. It’s how prepared is your body to fight it off.
I honestly believe the
vaccination
saved my life. It’s not about whether you get Covid, we all probably will. It’s how prepared is your body to fight it off.
CCLandwell
in
CLL Support
3 years ago
3rd Jab
Hi I have my 3rd jab booked and have received a letter from my local hospital saying that in preference I should have a third AZ
vaccination
. I understand Pfizer is the most likely
vaccination
locally so I think I will have to go with what I am given. Does anyone have a view? Thank you
Hi I have my 3rd jab booked and have received a letter from my local hospital saying that in preference I should have a third AZ
vaccination
. I understand Pfizer is the most likely
vaccination
locally so I think I will have to go with what I am given. Does anyone have a view? Thank you
Happygarden
in
CLL Support
3 years ago
3rd Primary dose
I'm on day 3 of side effects from 3rd primary dose and go today diagnosed pleurisy as a result of the
vaccination
. I'm still getting high fevers followed by sweats. Fevers are incredibly unbearable as I swear every bit of my body hurts and the movement of shivering is giving my pains pain!
I'm on day 3 of side effects from 3rd primary dose and go today diagnosed pleurisy as a result of the
vaccination
. I'm still getting high fevers followed by sweats. Fevers are incredibly unbearable as I swear every bit of my body hurts and the movement of shivering is giving my pains pain!
Catherine83
in
LUPUS UK
3 years ago
Worried and concerned
I am new to this very helpful site and have a few questions . Whilst checking my liver in 2015 a tumour was found on my right kidney so all liver investigations stopped and my right kidney was removed( tumour benign) in 2017. I have a NAFL( fibro scan last week and results with doctor tomorrow ) , one
I am new to this very helpful site and have a few questions . Whilst checking my liver in 2015 a tumour was found on my right kidney so all liver investigations stopped and my right kidney was removed( tumour benign) in 2017. I have a NAFL( fibro scan last week and results with doctor tomorrow ) , one
Lindy65
in
British Liver Trust
2 years ago
Shingrix Vaccination
I had my first Shingrix
vaccination
on the NHS yesterday, I’m feeling slightly lethargic today but fingers crossed no further reaction.
I had my first Shingrix
vaccination
on the NHS yesterday, I’m feeling slightly lethargic today but fingers crossed no further reaction.
Richardmint
in
CLL Support
3 years ago
Third vaccination
I had my third
vaccination
last week this is not the booster which will be in 6 months. Received a letter from my Surgery also the NHS to say I have a very low immune system.
I had my third
vaccination
last week this is not the booster which will be in 6 months. Received a letter from my Surgery also the NHS to say I have a very low immune system.
kenbren
in
Lung Conditions Community Forum
3 years ago
DOES IVERMECTIN SLOW CLL
I previously posted that my absolute lymphocyte count was steadily growing then after I had both vaccinations my counts rose 50% in a few months. I later got covid and took ivermectin for a few days and my lymphocyte count went down from 30k to about 26.5k. I thought maybe a coincidence. Doing some
I previously posted that my absolute lymphocyte count was steadily growing then after I had both vaccinations my counts rose 50% in a few months. I later got covid and took ivermectin for a few days and my lymphocyte count went down from 30k to about 26.5k. I thought maybe a coincidence. Doing some
mleo123
in
CLL Support
2 years ago
Has everyone here been vaccinated?
Hi anyone on biological and methotrexate and not been vaccinated? Asking for a friend!
Hi anyone on biological and methotrexate and not been vaccinated? Asking for a friend!
Cunnijo
in
NRAS
2 years ago
4th covid vaccination/ Methotrexate query.
I take 20mgm methotrexate and sulfasalazine & am reading/hearing different info from several sources as to whether I need a 4th vaccine. NRAS & Versus Arthritis suggest anyone taking methotrexate should have a 4th one , my GP says "we know you take methotrexate" that's it, Rheumatology say no unless
I take 20mgm methotrexate and sulfasalazine & am reading/hearing different info from several sources as to whether I need a 4th vaccine. NRAS & Versus Arthritis suggest anyone taking methotrexate should have a 4th one , my GP says "we know you take methotrexate" that's it, Rheumatology say no unless
Sallysuk
in
NRAS
3 years ago
Went to ER for asthma exacerbation, tested positive for Omicron and some pneumonia on X-ray
Not the way I thought my Thursday was going to go. I’d already had a negative COVID test 2 days before. Now I have COVID, asthma exacerbation and pneumonia. They sent me home after IV steroids, IV magnesium and a RX for antibiotics. Not a lot of details about what to do or expect. I am vaccinated and
Not the way I thought my Thursday was going to go. I’d already had a negative COVID test 2 days before. Now I have COVID, asthma exacerbation and pneumonia. They sent me home after IV steroids, IV magnesium and a RX for antibiotics. Not a lot of details about what to do or expect. I am vaccinated and
Shadowcat04
in
Asthma Community Forum
2 years ago
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