Here is Website for lab requirements to det... - PBC Foundation

PBC Foundation

9,484 members8,376 posts

Here is Website for lab requirements to determine PBC

1 Reply

Found it. Go to Www.arupconsult.com. Type in PBC. Take it from there. Lists REPEAT- guidelines etc. All there on this site. As I said initially was diagnosed in hospital when admitted with fever chills sweating back pain etc. I had it for days - they did an AMA then and determined I had PBC when it showed AMA testing of 29 - six months later and a liver biopsy shows I have no autoimmune disease and no AMA - what happened when I was still in the hospital and I was diagnosed with AMA. What else can make mitochondrial's activate like they did. Saw 3 specialist - all board-certified doctors - no one can understand we have been to hell and back all this time. However was diagnosed with enlarged inflamed liver and have NASH - no cirrhosis. PBC affects about 10 in a million - that is why no drug company is going to be looking for another drug except urso - no money to be made by it. Bought good masticating juicer - treadmill - found also A1c high - lucky me!!!!-

so now foods are limited completely. Hard to plan family meals.

High trigs - a lot of same symptoms. Leg itching I am a firm believer in checking tumor necrosis factor levels TNF and interleukins six [IL-6] and other cytokines - I think the information plays a part here. cancer cells are an inflammation - going awry. Checking inflammation is important

believe everyone should have a cytokine panel to see if there something wrong Check SED rate and any ANTI-INFLAMMATORY specific information going on ask dr. They don't like to do but if you are humble enough maybe they will do it as a courtesy for you to give you peace of mind

I don't think there's enough being done there's no money to be made in it by drug companies doing Clinical research and studies. I check everything and I google everything.

QUESTION DOES ANYONE HAVE ANY GOOD BOOKS OR KINDLE RECIPES FOR THE LIVER OR FOR DIABETES. THEY SEEM TO WALK HAND-IN-HAND

Read more about...
1 Reply
GrittyReads profile image
GrittyReads

Hi Shores,

Thanks - again - for the link. I will read all asap and try to get myself more up to speed on as much as possible. And not just for myself ... as I agree about attitudes, and if big pharma and the medics are not going to push for change in this area, then we have to do it from below: and meanwhile try to help ourselves and each other.

Sorry, as yet no diet ideas. I'm going into my local alternative health place on Monday, so will ask there once I'm spending loads on other stuff.

Take care - hope you get some diet replies.

Not what you're looking for?

You may also like...

PBC and new here.

Hi, I am new here also. I failed the AMA 2 years ago at age 48 1:380 high alt/ast and had some...
Maur22 profile image

Urso for PBC

Hi everyone I'm fairly new to this group and I've posted a couple of times but have never received...

Is it normal for ALP levels to fluctuate?

I was diagnosed with pbc in December on the basis of AMA and liver biopsy (liver function tests...
Kitsilano profile image

Hi, I have been told that raised ALT is associated with AIH/PBC overlap and not pure PBC.Does anyone have PBC and have raised ALT? Thanks

I have been on URSO since jan 2014 following positive AMA and raised ALP of 135. ALT has been...
Mumoftwo81 profile image

strange PBC , LFT back to normal before starting Urso- anyone with similar experience?

I’m 31  and have had raised ALT on and off and GGT (ever since my first pregnancy ) (GGT highest 98...
Tramezzini profile image

Moderation team

See all
PBCCheryll profile image
PBCCheryllAdministrator
janethomas profile image
janethomasModerator
Cupcake1971_ profile image
Cupcake1971_Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.