Found it. Go to Www.arupconsult.com. Type in PBC. Take it from there. Lists REPEAT- guidelines etc. All there on this site. As I said initially was diagnosed in hospital when admitted with fever chills sweating back pain etc. I had it for days - they did an AMA then and determined I had PBC when it showed AMA testing of 29 - six months later and a liver biopsy shows I have no autoimmune disease and no AMA - what happened when I was still in the hospital and I was diagnosed with AMA. What else can make mitochondrial's activate like they did. Saw 3 specialist - all board-certified doctors - no one can understand we have been to hell and back all this time. However was diagnosed with enlarged inflamed liver and have NASH - no cirrhosis. PBC affects about 10 in a million - that is why no drug company is going to be looking for another drug except urso - no money to be made by it. Bought good masticating juicer - treadmill - found also A1c high - lucky me!!!!-
so now foods are limited completely. Hard to plan family meals.
High trigs - a lot of same symptoms. Leg itching I am a firm believer in checking tumor necrosis factor levels TNF and interleukins six [IL-6] and other cytokines - I think the information plays a part here. cancer cells are an inflammation - going awry. Checking inflammation is important
believe everyone should have a cytokine panel to see if there something wrong Check SED rate and any ANTI-INFLAMMATORY specific information going on ask dr. They don't like to do but if you are humble enough maybe they will do it as a courtesy for you to give you peace of mind
I don't think there's enough being done there's no money to be made in it by drug companies doing Clinical research and studies. I check everything and I google everything.
QUESTION DOES ANYONE HAVE ANY GOOD BOOKS OR KINDLE RECIPES FOR THE LIVER OR FOR DIABETES. THEY SEEM TO WALK HAND-IN-HAND