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Experiences with
Urso
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Getting my head round this PBC
Put on
urso
I take 2 250mg tabs one in morning and one in the evening. Felt a bit rough at 1st but appear to be getting used to it all. However I do have to watch what I eat. I'm reasonably healthy most of the time. But I do have a sweet tooth.
Put on
urso
I take 2 250mg tabs one in morning and one in the evening. Felt a bit rough at 1st but appear to be getting used to it all. However I do have to watch what I eat. I'm reasonably healthy most of the time. But I do have a sweet tooth.
Louedwards
in
PBC Foundation
9 years ago
Urso prices skyrocketing in US
I was diagnosed with PBC in 2014 and have been relatively lucky so far to deal well with the
URSO
and also deal well prices on the drug. The last two years my deductible on my insurance was met due to lots of medical issues and tests, so my drugs have been pretty cheap.
I was diagnosed with PBC in 2014 and have been relatively lucky so far to deal well with the
URSO
and also deal well prices on the drug. The last two years my deductible on my insurance was met due to lots of medical issues and tests, so my drugs have been pretty cheap.
NotorDJP
in
PBC Foundation
9 years ago
alps and pbc
Put on
Urso
last year, three time a day 750 mg (which may be too little for my weight). My recent ALP has come back at 159,(ALP has stayed the same for the past two years) bilirubin 9 and albumin 39. Can anyone let me know if these readings seem ok? Thanks
Put on
Urso
last year, three time a day 750 mg (which may be too little for my weight). My recent ALP has come back at 159,(ALP has stayed the same for the past two years) bilirubin 9 and albumin 39. Can anyone let me know if these readings seem ok? Thanks
mel16
in
PBC Foundation
9 years ago
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Feeling rough
Could this be
Urso
?
Could this be
Urso
?
Goldsworthyhelen
in
PBC Foundation
9 years ago
Liver ache with pbc
My concern is because I feel well I don't want to take medication (
urso
) which will make me feel unwell. Sorry to waffle, any feedback gratefully received x
My concern is because I feel well I don't want to take medication (
urso
) which will make me feel unwell. Sorry to waffle, any feedback gratefully received x
Bellalou10
in
PBC Foundation
9 years ago
Urso Questions
Considering the good results with
Urso
, Is there any possibility that I DON'T have PBC? I understand that
Urso
can be used for gallstones (which I have) but I read that it might take at least 6 months for gallstones to be dissolved using
Urso
. 4.
Considering the good results with
Urso
, Is there any possibility that I DON'T have PBC? I understand that
Urso
can be used for gallstones (which I have) but I read that it might take at least 6 months for gallstones to be dissolved using
Urso
. 4.
tinypixie
in
PBC Foundation
9 years ago
Increased itch
Hi started taking
Urso
and itch driving me mad,worse than before . Any one else had this ? I did wonder if it was in my mind.
Hi started taking
Urso
and itch driving me mad,worse than before . Any one else had this ? I did wonder if it was in my mind.
Goldsworthyhelen
in
PBC Foundation
9 years ago
PBC and Hepatitis
My liver function tests have always been high even on
Urso
although they had settled. the consultant said that previous two blood tests shown a dramatic increase that suggests now I also have hepatitis, he took more blood and said if still so high then I will be put on steroids for a bit..
My liver function tests have always been high even on
Urso
although they had settled. the consultant said that previous two blood tests shown a dramatic increase that suggests now I also have hepatitis, he took more blood and said if still so high then I will be put on steroids for a bit..
Hidden
in
PBC Foundation
9 years ago
New Urso RX
Just picked up RX to start Urdo and was shocked at the # of pills for a one month supply, 270. 3 pills, 3 times a day, forever. I have PBC but no cirrhosis. Is this the normal RX?
Just picked up RX to start Urdo and was shocked at the # of pills for a one month supply, 270. 3 pills, 3 times a day, forever. I have PBC but no cirrhosis. Is this the normal RX?
Love4Liver
in
PBC Foundation
9 years ago
Upset stomach
Hi everyone I am just wondering start my
urso
lady week and have had upset stomach since will it settle down in time xxx
Hi everyone I am just wondering start my
urso
lady week and have had upset stomach since will it settle down in time xxx
Kimmy1972
in
PBC Foundation
9 years ago
Urso and hair loss
Hi Is there anyone out there that can tell me if they are taking
urso
and it is having NO effect on their hair? I'm reading stories about hair thinning and was hoping to hear if anyone's hair has not been affected?
Hi Is there anyone out there that can tell me if they are taking
urso
and it is having NO effect on their hair? I'm reading stories about hair thinning and was hoping to hear if anyone's hair has not been affected?
Bellalou10
in
PBC Foundation
9 years ago
Emlarged spleen
For a few days I feel unusually tired despite being on
Urso
for over a year. Is my spleen an other organ I have to worry about beside my liver.
For a few days I feel unusually tired despite being on
Urso
for over a year. Is my spleen an other organ I have to worry about beside my liver.
Jonathan1985
in
British Liver Trust
9 years ago
Just Diagnosed
I've been put on
Urso
and will go back to Gastro in 4 months. I also went through early menopause starting in my late 30's. I'm 49 now and still work full time (which can be exhausting).
I've been put on
Urso
and will go back to Gastro in 4 months. I also went through early menopause starting in my late 30's. I'm 49 now and still work full time (which can be exhausting).
Heleno
in
PBC Foundation
9 years ago
Still not listening
too well).i was told by gastro it was proven taking more
urso
than you need actively damages the liver!
too well).i was told by gastro it was proven taking more
urso
than you need actively damages the liver!
cazz22
in
PBC Foundation
9 years ago
PBC OR NOT
He immediately put me on
Urso
and sent me to a Hepatologist. The Hepatologist wanted his own bloodwork because he said I was entirely too young to have PBC (I am 34). It also came back positive so he scheduled a liver biopsy which I had done a week ago today.
He immediately put me on
Urso
and sent me to a Hepatologist. The Hepatologist wanted his own bloodwork because he said I was entirely too young to have PBC (I am 34). It also came back positive so he scheduled a liver biopsy which I had done a week ago today.
Cstar1079
in
PBC Foundation
9 years ago
Itching
Been taking
urso
since I was diagnosed 6 month ago but the itching as just started this week on the back of my head and my inner thigh but it's leaving these marks what look like bite marks ?
Been taking
urso
since I was diagnosed 6 month ago but the itching as just started this week on the back of my head and my inner thigh but it's leaving these marks what look like bite marks ?
Steelie
in
PBC Foundation
9 years ago
Is Pbc progressing?
mine have never been high but have dropped a lot even tho docs won't give me full dose
urso
. I recently googled a site that said docs shouldn't take any notice of blood results as to progression of Pbc.i then wondered why bother having them done then.sorry can't find the site-think it wasamerican
mine have never been high but have dropped a lot even tho docs won't give me full dose
urso
. I recently googled a site that said docs shouldn't take any notice of blood results as to progression of Pbc.i then wondered why bother having them done then.sorry can't find the site-think it wasamerican
cazz22
in
PBC Foundation
9 years ago
How Long
I take 1,000 mg
Urso
and latest scan on Mon was showing no change in other words no worse than last Scan I know we are never going to be told PBC is getting better because no cure but no change must be a good sign surely .
I take 1,000 mg
Urso
and latest scan on Mon was showing no change in other words no worse than last Scan I know we are never going to be told PBC is getting better because no cure but no change must be a good sign surely .
cavi
in
PBC Foundation
9 years ago
Upset and confused 😭
He did confirm that my ALT has gone from 108 to 49 since taking
urso
and said he is happy for me to continue taking it. I asked him why I would need to take it if I do not have PBC and his reply was that it has no side effects and it is up to me if I want to carry on taking it???
He did confirm that my ALT has gone from 108 to 49 since taking
urso
and said he is happy for me to continue taking it. I asked him why I would need to take it if I do not have PBC and his reply was that it has no side effects and it is up to me if I want to carry on taking it???
Happy43
in
PBC Foundation
9 years ago
Side affects from urso?
Started taking
urso
no problem. It's been 15 months and suddenly I'm not feeling well. Nausea, funny head. Little dizzy. Needing or feeling like I need to urinate a lot.
Started taking
urso
no problem. It's been 15 months and suddenly I'm not feeling well. Nausea, funny head. Little dizzy. Needing or feeling like I need to urinate a lot.
Jen11804
in
British Liver Trust
9 years ago
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