I have been having bad joint pain, and fatigue for almost 5 years now. I also have had 2 children in the last 5 years, so everyone (including myself) attributed it to that. At least I did at first.
I started to feel something was really wrong about a year after. It was hard to get out of bed, walk, bend, grab etc. I was and still am so unusually tired. I went from Dr. To Dr. Trying to find something. PCP, Cardiologist,Neurologist,OB, Gastro,Nepherologist, etc. I kid you not I have seen about 30 different doctors of every specialty.
I have also had pain in my liver area, which has landed me in the ER about 5 times a year. The conclusion always the same "phantom gallbladder pain" (I had mine out in 2009 Dr. Said it was the worst he's ever seen almost calcified)
My LFT's have been slowly trending upwards for the last 5 years as well, and my symptoms have gotten worse. Fatigue, joint pain, dry everything, itching beyond control, and I also now have cholesterol spots all over my body on my skin.
My Gastroenterologist kept saying it was Fatty Liver Disease. He did a sonogram, then eventually an internal sonogram still the same results. Then about 8 months ago he tested my AMA because he said my LFT's were entirely too high to be just fatty liver, more than twice what they should be...it came back positive. He immediately put me on Urso and sent me to a Hepatologist. The Hepatologist wanted his own bloodwork because he said I was entirely too young to have PBC (I am 34). It also came back positive so he scheduled a liver biopsy which I had done a week ago today. He calls me today and leaves a message saying my biopsy came back and I do not have PBC???? Just some fatty liver... How is that possible? What about my LFT's and my AMA? I have all the symptoms, and have had for a long time. Also I notice a difference in pain from my liver when I take my Urso...if I ever forget to take it the pain gets worse. Once I take it, in about an hour it subsides?
Should I get a second opinion? Retake the biopsy? I read you do not even need a biopsy to be diagnosed??? If your LFT's are high, and your AMA is positive then you have PBC??? Could somebody please shed some light. Also my Dr. will call me tomorrow what questions should I ask him?