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Urso
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Newbie - Hello
I am taking
URSO
- will this help? I find it really difficult for friends and family to understand how unwell I feel. It is assumed by some as me being lazy. When I have the energy I try and do yoga and meditate to help me. Anyone suffering and have ways of how they cope would be appreciated.
I am taking
URSO
- will this help? I find it really difficult for friends and family to understand how unwell I feel. It is assumed by some as me being lazy. When I have the energy I try and do yoga and meditate to help me. Anyone suffering and have ways of how they cope would be appreciated.
Fredbare13
in
PBCers Organization
3 years ago
PBC itch
Hi I have PBC for past 4 years, non responder to
urso
but still take with bezafibrate.
Hi I have PBC for past 4 years, non responder to
urso
but still take with bezafibrate.
Rozm2004
in
PBC Foundation
3 years ago
PBC itch and bruising
I currently take
urso
daily and I’ve started taking the sachets more often as I was just told to take them as and when needed but this is almost every day at the moment. Does anyone else take different medication to help with the itching? TIA
I currently take
urso
daily and I’ve started taking the sachets more often as I was just told to take them as and when needed but this is almost every day at the moment. Does anyone else take different medication to help with the itching? TIA
Cookie712
in
PBC Foundation
3 years ago
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Ache on right side?
Hi, I was diagnosed with Pbc 11 months ago and I’m on
Urso
,but keep getting an ache and bloated feeling on my right side, about level with belly button. Is this a known effect of
Urso
?
Hi, I was diagnosed with Pbc 11 months ago and I’m on
Urso
,but keep getting an ache and bloated feeling on my right side, about level with belly button. Is this a known effect of
Urso
?
2009gardener
in
PBC Foundation
3 years ago
I’ve just started taking Urso
Hi there, I’ve very recently just been diagnosed with PBC, and I finally got my prescription for
Urso
. So I’ve been on it for 2 days now and to be honest I feel really quite rough today. My tummy is really sore and I’ve felt like I have a real bad dose of hay fever and just feel groggy.
Hi there, I’ve very recently just been diagnosed with PBC, and I finally got my prescription for
Urso
. So I’ve been on it for 2 days now and to be honest I feel really quite rough today. My tummy is really sore and I’ve felt like I have a real bad dose of hay fever and just feel groggy.
Darcy2608
in
PBC Foundation
3 years ago
URSO and fluctuating results
Hi... my wife was diagnosed with PBC last year and started on
URSO
9 months ago. Her first results were excellent, but her recent blood test showed a small elevation in her ALK/ALT. IS it normal for your readings to fluctuate on
URSO
?
Hi... my wife was diagnosed with PBC last year and started on
URSO
9 months ago. Her first results were excellent, but her recent blood test showed a small elevation in her ALK/ALT. IS it normal for your readings to fluctuate on
URSO
?
dlagasse
in
PBC Foundation
3 years ago
Cost of Urso
I went to the pharmacy to get my first prescription of
Urso
and the copay was $600.00 for a 3 month supply!! Has anyone found a less expensive way to get this needed medication? Don't get me started on the US health care system's flaws...
I went to the pharmacy to get my first prescription of
Urso
and the copay was $600.00 for a 3 month supply!! Has anyone found a less expensive way to get this needed medication? Don't get me started on the US health care system's flaws...
sjt58
in
PBC Foundation
3 years ago
ALP
I was diagnosed with PBC in 2016 and have been on
Urso
since. Does anyone know if 164 is really high. My Dr has said no action needed? Thank you, Jules
I was diagnosed with PBC in 2016 and have been on
Urso
since. Does anyone know if 164 is really high. My Dr has said no action needed? Thank you, Jules
Jules-S
in
PBC Foundation
3 years ago
Medication
Among my Meds pI take
Urso
and Sulfazalzaline. My pharmacy is struggling to get these for me . I am having to phone other pharmacies to see if they have them as these meds come from abroad. I have managed to get One months supply instead of two..
Among my Meds pI take
Urso
and Sulfazalzaline. My pharmacy is struggling to get these for me . I am having to phone other pharmacies to see if they have them as these meds come from abroad. I have managed to get One months supply instead of two..
lorac
in
PBC Foundation
3 years ago
PBC & HRT
I am taking
urso
and as I couldn’t use hormonal contraception, does anyone know if I can still take hormone replacements when the time comes to needing it?
I am taking
urso
and as I couldn’t use hormonal contraception, does anyone know if I can still take hormone replacements when the time comes to needing it?
Cookie712
in
PBC Foundation
3 years ago
Does hair loss slow down once you adjust to Urso?
I started
Urso
a two months ago and my hair is falling out. I know others have had problems with hair loss too. Does the hair loss slow down once your body gets used to the medication? How bad did the hair loss get? I don't mind thinner hair but is there a chance that I will lose most of my hair?
I started
Urso
a two months ago and my hair is falling out. I know others have had problems with hair loss too. Does the hair loss slow down once your body gets used to the medication? How bad did the hair loss get? I don't mind thinner hair but is there a chance that I will lose most of my hair?
sjt58
in
PBC Foundation
3 years ago
Bladder pain
Has anyone had this while taking
Urso
as well as frequent urination? Test are all over the place with UTI I was treated for one but still in so much pain. Some docs say that my culture is negative others say positive
Has anyone had this while taking
Urso
as well as frequent urination? Test are all over the place with UTI I was treated for one but still in so much pain. Some docs say that my culture is negative others say positive
Jennyhadenough
in
PBC Foundation
3 years ago
Gall Bladder
Are gall bladder problems associated with PBC or taking
Urso
?
Are gall bladder problems associated with PBC or taking
Urso
?
berg944
in
PBC Foundation
3 years ago
PBC and Poop
So, I adjusted
Urso
and cut tablets in order to make sure all food is accompanied by
Urso
...I also take Lypogold (an enzyme to help dissolve fat whenever I eat anything with fat in it). My poop immediately got much less orange.
So, I adjusted
Urso
and cut tablets in order to make sure all food is accompanied by
Urso
...I also take Lypogold (an enzyme to help dissolve fat whenever I eat anything with fat in it). My poop immediately got much less orange.
DianaCoats
in
PBC Foundation
3 years ago
Urso - Hair loss and weight gain...
I am newly diagnosed with PBC and have been taking
Urso
for just over two months. I am seeing that my hair is starting to fall out and for no reason at all gained two pounds last week. I know these can be common side effects with
Urso
but does this time frame make sense to anyone?
I am newly diagnosed with PBC and have been taking
Urso
for just over two months. I am seeing that my hair is starting to fall out and for no reason at all gained two pounds last week. I know these can be common side effects with
Urso
but does this time frame make sense to anyone?
Willow4096
in
PBC Foundation
3 years ago
Fingers
I am wondering if anyone else has experienced problems with their fingertips and nails (e.g. loss of sensation and thickening of tips of fingers, nails becoming painful and red at base) after having taken
urso
for a long time.
I am wondering if anyone else has experienced problems with their fingertips and nails (e.g. loss of sensation and thickening of tips of fingers, nails becoming painful and red at base) after having taken
urso
for a long time.
magria
in
PBC Foundation
3 years ago
When do you know if Urso is working?
Hello, I was recently diagnosed with PBC and just started on
Urso
. How long does it take before they know if the medication is working? When do they repeat the labs? Hoping it works for me...
Hello, I was recently diagnosed with PBC and just started on
Urso
. How long does it take before they know if the medication is working? When do they repeat the labs? Hoping it works for me...
sjt58
in
PBC Foundation
3 years ago
Worried about fibroscan
Anyway, here we are now, 2.5 years on, back on the
urso
, bloods close to normal, clinically well but with an ALT that is consistently slightly raised (eg last test it was 42).
Anyway, here we are now, 2.5 years on, back on the
urso
, bloods close to normal, clinically well but with an ALT that is consistently slightly raised (eg last test it was 42).
Smarties18
in
PBC Foundation
3 years ago
Recent Diagnosis. What tests should I ask for?
My GI doctor seems knowledgable and put me on
URSO
right away but should I see a specialist? Is there anything else I should know or do at this early stage? I am grateful for this forum.
My GI doctor seems knowledgable and put me on
URSO
right away but should I see a specialist? Is there anything else I should know or do at this early stage? I am grateful for this forum.
sjt58
in
PBC Foundation
3 years ago
PBC and Tylenol
Now early stage 4 , been taking
Urso
which worked for years but now going to also start on Ocaliva next month. Recently I was in a major car accident and have a ruptured spleen, which is on the mend, but a huge hematoma beside it which is causing me incredible pain.
Now early stage 4 , been taking
Urso
which worked for years but now going to also start on Ocaliva next month. Recently I was in a major car accident and have a ruptured spleen, which is on the mend, but a huge hematoma beside it which is causing me incredible pain.
BCer
in
PBC Foundation
3 years ago
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