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Experiences with
Urso
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Newly diagnosed with PBC and starting Urso today
My GP referred me to a specialist who wrote to me to confirm it was PBC and said I needed to liaise with my doc to start on
Urso
.
My GP referred me to a specialist who wrote to me to confirm it was PBC and said I needed to liaise with my doc to start on
Urso
.
Aishah88
in
British Liver Trust
3 years ago
Life expectancy and impact of irregularities in taking Urso dose
I’m really bad at taking my
Urso
at regular intervals and expected dosage. How bad is it for my liver and how does it affect my life expectancy? What I have is Primary Biliary Cholangitis with an enlarged spleen.
I’m really bad at taking my
Urso
at regular intervals and expected dosage. How bad is it for my liver and how does it affect my life expectancy? What I have is Primary Biliary Cholangitis with an enlarged spleen.
pbclimbu
in
PBCers Organization
3 years ago
Life expectancy about onlyj
I was diagnosed and started on
Urso
in 2012 At that time being extremely sick since 2008 when my liver failed and kidneys and even heart. The country hospital being unable to diagnose me. I spent at least a year at home curled up with everything failing.
I was diagnosed and started on
Urso
in 2012 At that time being extremely sick since 2008 when my liver failed and kidneys and even heart. The country hospital being unable to diagnose me. I spent at least a year at home curled up with everything failing.
Deasimjay
in
PBC Foundation
3 years ago
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Herbal Supplements
Doc wants to put me on
URSO
again but not sure if I can tolerate it, and I'm interested in possible herbal supplements that could help. Any suggestions will be greatly appreciated.
Doc wants to put me on
URSO
again but not sure if I can tolerate it, and I'm interested in possible herbal supplements that could help. Any suggestions will be greatly appreciated.
Legs8323
in
PBCers Organization
3 years ago
Voltarol
Hi there Does anyone know if it’s ok to use Voltarol Joint pain gel if you have PBC and are on
Urso
? Thanks
Hi there Does anyone know if it’s ok to use Voltarol Joint pain gel if you have PBC and are on
Urso
? Thanks
Aishah88
in
PBC Foundation
3 years ago
Low Red and White blood cel counts.
I was diagnosed stage 0-1 in 2009, but
URSO
has been unresponsive.
I was diagnosed stage 0-1 in 2009, but
URSO
has been unresponsive.
Legs8323
in
PBCers Organization
3 years ago
Arthralgia and myalgia
I'm on
Urso
. Could this be pbc or anyone else have any ideas. Thank you. Nellie.
I'm on
Urso
. Could this be pbc or anyone else have any ideas. Thank you. Nellie.
Nellies47
in
PBC Foundation
3 years ago
weigth gain
Hello and thank you for accepting me in the group, I have a question, what are your side effects from
urso
?? gain weight, back pain, hair loss , I don’t know if I am more scare of symptoms or side effects.
Hello and thank you for accepting me in the group, I have a question, what are your side effects from
urso
?? gain weight, back pain, hair loss , I don’t know if I am more scare of symptoms or side effects.
casegaro
in
PBC Foundation
3 years ago
Nervous to take urso
I was prescribed 1000mg of
urso
and I’m also seeing a naturopathic dr who gave me some supplements, including milk thistle. Is
urso
generally well tolerated and is there something I can do to help curb potential side effects?
I was prescribed 1000mg of
urso
and I’m also seeing a naturopathic dr who gave me some supplements, including milk thistle. Is
urso
generally well tolerated and is there something I can do to help curb potential side effects?
ginabean
in
PBC Foundation
3 years ago
PBC and stool color
Of
URSO
a day. Can
URSO
cause this? Ty for any info 😁
Of
URSO
a day. Can
URSO
cause this? Ty for any info 😁
TanGram
in
PBC Foundation
3 years ago
Unknown liver disease - No symptoms
He told me to take
Urso
(he said that
urso
has some properties to protect the liver) and to repeat the test 3 months later. So, 3 months of
urso
, exercice, 0 alcohol and healthy food seemed to put all liver enzymes almost to its place (but always slightly elevated).
He told me to take
Urso
(he said that
urso
has some properties to protect the liver) and to repeat the test 3 months later. So, 3 months of
urso
, exercice, 0 alcohol and healthy food seemed to put all liver enzymes almost to its place (but always slightly elevated).
Kramkv
in
British Liver Trust
3 years ago
Milk Thistle and Boldo
I'm a 64 year old, diagnosed in 2019 and started taking
Urso
1250mg/day. Enzyme levels dropped some but not enough. Started on Ocaliva Feb. 2021, Wanted to know if Milk Thistle and Boldo combination is ok to take.
I'm a 64 year old, diagnosed in 2019 and started taking
Urso
1250mg/day. Enzyme levels dropped some but not enough. Started on Ocaliva Feb. 2021, Wanted to know if Milk Thistle and Boldo combination is ok to take.
Germinal
in
PBC Foundation
3 years ago
Normal ALP at time of Diagnosis
I have positive AMA and other elevated liver enzymes, now normal with
urso
. Can you explain why my ALP is normal? What does that indicate?
I have positive AMA and other elevated liver enzymes, now normal with
urso
. Can you explain why my ALP is normal? What does that indicate?
kerrypark
in
PBC Foundation
3 years ago
18 and newly diagnosed with PBC
I've been put on
URSO
and it seems to be working so far, but I was wondering what reliable sources I can look at to feel more comfortable with this diagnosis.
I've been put on
URSO
and it seems to be working so far, but I was wondering what reliable sources I can look at to feel more comfortable with this diagnosis.
18yrsmuse
in
PBC Foundation
3 years ago
Altermative to a liver biopsy???
I have not formally been diagnosed with PBC but am responding well to
urso
. I had a liver biopsy which went wrong and resulted in a perforrated gallbladder and I really dont want another one. Does a fibroscan do the same job as a biopsy?
I have not formally been diagnosed with PBC but am responding well to
urso
. I had a liver biopsy which went wrong and resulted in a perforrated gallbladder and I really dont want another one. Does a fibroscan do the same job as a biopsy?
ElviralovesFashion
in
British Liver Trust
3 years ago
Anyone's iron level low?
I'm currently on
Urso
twice a day for PBC
I'm currently on
Urso
twice a day for PBC
ElviralovesFashion
in
British Liver Trust
3 years ago
Gymnast1234
I have been diagnosed with PBC and have been on
Urso
twice daily (500mg per dose) for over 2 months. Side effects nausea and having diarrhea at minimum 6x a day. Looking for types of food that can help with these problems. There are so many “to keep away from”, but not many to help.
I have been diagnosed with PBC and have been on
Urso
twice daily (500mg per dose) for over 2 months. Side effects nausea and having diarrhea at minimum 6x a day. Looking for types of food that can help with these problems. There are so many “to keep away from”, but not many to help.
Gymnast1234
in
PBCers Organization
3 years ago
Hair loss and PBC
Has anyone suffered hair loss as a result ot PBC or
Urso
?
Has anyone suffered hair loss as a result ot PBC or
Urso
?
MsLibra
in
PBC Foundation
3 years ago
PRE-Habilitation Questions for Transplanted and Transplant Listed People
I am starting treatment for the first time ever and while my docs are hopeful they can ease progression with
Urso
, Budesonide, and Aza, they are keeping me on their radar for if/when my MELD score starts rising.
I am starting treatment for the first time ever and while my docs are hopeful they can ease progression with
Urso
, Budesonide, and Aza, they are keeping me on their radar for if/when my MELD score starts rising.
JennerLayne
in
British Liver Trust
3 years ago
ALT and AST?
I have been on 900 milligrams per day of
Urso
for 4.5 years. Numbers all went down. Now with this stronger strange pain in liver and bloating, I went to the internist, had blood drawn and my ALT and AST are creeping back up, not doubled but not good, and my protein was a little elevated again.
I have been on 900 milligrams per day of
Urso
for 4.5 years. Numbers all went down. Now with this stronger strange pain in liver and bloating, I went to the internist, had blood drawn and my ALT and AST are creeping back up, not doubled but not good, and my protein was a little elevated again.
claygi
in
PBC Foundation
3 years ago
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