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The way to access COVID-19 treatments has changed
The way to access COVID-19 treatments has changed, and is now different in the different nations of the UK. Check our article to find out what the process is for where you live: https://www.lupusuk.org.uk/accessing-covid-19-treatments/ These changes are particularly important for people in England and
The way to access COVID-19 treatments has changed, and is now different in the different nations of the UK. Check our article to find out what the process is for where you live: https://www.lupusuk.org.uk/accessing-covid-19-treatments/ These changes are particularly important for people in England and
Debbie_kinsey
Administrator
in
LUPUS UK
11 months ago
Ah...I am breathing easier
This is for everyone (though it is old news for most) but I haven't ordered Pan Pharma hydroxy for a year...in fact I believe I got the end of the lot and when it finally came it had a very short expiration. It also took 6 nail-biting weeks to get here. I was worried but have noticed the trend of it
This is for everyone (though it is old news for most) but I haven't ordered Pan Pharma hydroxy for a year...in fact I believe I got the end of the lot and when it finally came it had a very short expiration. It also took 6 nail-biting weeks to get here. I was worried but have noticed the trend of it
EiCa
in
Pernicious Anaemia Society
7 months ago
Hi all an update on my new rheumy
Hi everybody, yesterday evening I had an appointment with my new Rheumy. I was actually dreading it due to my last experience with the previous rheumatologist. Well I have to say he was brilliant listened to me, Then going on my symptoms and doing an ultrasound on my hands and looking at all my blood
Hi everybody, yesterday evening I had an appointment with my new Rheumy. I was actually dreading it due to my last experience with the previous rheumatologist. Well I have to say he was brilliant listened to me, Then going on my symptoms and doing an ultrasound on my hands and looking at all my blood
Wonderfullifeandmore
in
PMRGCAuk
11 months ago
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Raynauds: Cold exposure therapy
I would like to know if anyone has tried cold exposure therapy as a way of managing Raynaud's. I've read about this on some blogs and there's a good article about it from a credible source below https://time.com/5712904/adjust-to-cold-weather/ The article states [i]If you really want to accelerate
I would like to know if anyone has tried cold exposure therapy as a way of managing Raynaud's. I've read about this on some blogs and there's a good article about it from a credible source below https://time.com/5712904/adjust-to-cold-weather/ The article states [i]If you really want to accelerate
mike444
in
Scleroderma & Raynaud's UK (SRUK)
1 year ago
Cramping at 10 weeks
Hi everyone I’m currently 10+3 after a successful ICSI cycle. I am getting a bit worried about cramps that have started today and have continued all day. I have had the odd twinge and cramp along the way, but they haven’t really lasted long - whereas these cramps have lingered today. I contacted the
Hi everyone I’m currently 10+3 after a successful ICSI cycle. I am getting a bit worried about cramps that have started today and have continued all day. I have had the odd twinge and cramp along the way, but they haven’t really lasted long - whereas these cramps have lingered today. I contacted the
Waitingonarainbow
in
Fertility Network UK - Pregnancy Support
5 months ago
I did it 🙏
Have been quiet on here as I have been restarting since 2019. A non running related injury and the pneumonia followed by successive chest infections and the odd injury have kept me from graduation. However, today was the day 😀. Short term goals - to run for 5k and to join a running club in Jan Mid
Have been quiet on here as I have been restarting since 2019. A non running related injury and the pneumonia followed by successive chest infections and the odd injury have kept me from graduation. However, today was the day 😀. Short term goals - to run for 5k and to join a running club in Jan Mid
Rotti57
in
Couch to 5K
1 year ago
RLS and Covid vaccine
Just for everyones awareness, my RLS was way worsened by the covid vaccine and so far it seems to have been a permanent side effect. I had RLS since I was a kid but tyically lasted 10 to 30 minutes each night whereas after the vaccine (within days) it shot up to 2 to 3 hours. I wanted to make sure I
Just for everyones awareness, my RLS was way worsened by the covid vaccine and so far it seems to have been a permanent side effect. I had RLS since I was a kid but tyically lasted 10 to 30 minutes each night whereas after the vaccine (within days) it shot up to 2 to 3 hours. I wanted to make sure I
the7thsong
in
Restless Legs Syndrome
11 months ago
Methylene Blue
Has anyone used or considered Methylene Blue in very low dosages for their Parkinson's? Franciso Gonzalez-Lima of the University of Texas, Austin is an expert on its advantages for treating neurological diseases. Mercola did an interview with him on the subject. Mercola does not promote synthetic drugs
Has anyone used or considered Methylene Blue in very low dosages for their Parkinson's? Franciso Gonzalez-Lima of the University of Texas, Austin is an expert on its advantages for treating neurological diseases. Mercola did an interview with him on the subject. Mercola does not promote synthetic drugs
Trailing
in
Cure Parkinson's
1 year ago
Rejected for anti virals
Hi everyone I tested positive for Covid on Tuesday and reported it to my GP surgery on Wednesday. I heard from Chelsea and Westminster Hospital on Thursday. They asked about how active my Lupus had been and I told them recently it had been pretty well controlled and they asked how it affected me and
Hi everyone I tested positive for Covid on Tuesday and reported it to my GP surgery on Wednesday. I heard from Chelsea and Westminster Hospital on Thursday. They asked about how active my Lupus had been and I told them recently it had been pretty well controlled and they asked how it affected me and
BookishVibes
in
LUPUS UK
11 months ago
Paxlovid for Covid if you have PMR
hi all. Living in France for 5 months didn’t think I would get Covid here but I did. I think it came with our guests on the plane. But in any case I have Paxlovid with me but I keep seeing things that say don’t take it if you have autoimmune disorder. Is that us? My doctor gave it to me but…. I am down
hi all. Living in France for 5 months didn’t think I would get Covid here but I did. I think it came with our guests on the plane. But in any case I have Paxlovid with me but I keep seeing things that say don’t take it if you have autoimmune disorder. Is that us? My doctor gave it to me but…. I am down
bluegirl7
in
PMRGCAuk
11 months ago
Cold, asthma and really struggling
I developed a cough and then a cold this last week. The cold started to bother my asthma. On monday night (i was away visiting my mum). I gave myself 4 puffs of ventolin and was fine th next two days. My cold improved and I came home on Thursday. When travelling home I started to cough. Thursday night
I developed a cough and then a cold this last week. The cold started to bother my asthma. On monday night (i was away visiting my mum). I gave myself 4 puffs of ventolin and was fine th next two days. My cold improved and I came home on Thursday. When travelling home I started to cough. Thursday night
elanaoali
in
Asthma Community Forum
1 year ago
Dreading seeing the Rheumatologist
Hi everyone, I have an appointment coming up with my Rheumatologist which I’ve been under for the last 3 1/2 years (I’m in the UK, we don’t get a choice in who we see). It took him a couple of years to finally diagnose PMR. During that time I’d become almost housebound. He insisted I take the
Hi everyone, I have an appointment coming up with my Rheumatologist which I’ve been under for the last 3 1/2 years (I’m in the UK, we don’t get a choice in who we see). It took him a couple of years to finally diagnose PMR. During that time I’d become almost housebound. He insisted I take the
Bramble2000
in
PMRGCAuk
11 months ago
Gamma light and Alzheimers - free app
I know this is not specific to PD, but thought I'd share this article. You all have been so kind to share new advancements, thank you. This looks very interesting!!! https://www.cogentica.com/alzheimers-research-gamma/ Direct from the article: (also talks about bacteria and gamma light and sound
I know this is not specific to PD, but thought I'd share this article. You all have been so kind to share new advancements, thank you. This looks very interesting!!! https://www.cogentica.com/alzheimers-research-gamma/ Direct from the article: (also talks about bacteria and gamma light and sound
Kat343
in
Cure Parkinson's
10 months ago
Immunocompromised people aged 50+ are now eligible for the shingles vaccine
Immunocompromised people aged 50 and over are now eligible for the shingles vaccine. The vaccine reduces your chances of getting shingles and reduces the risk of complications if you still develop it. Read more on our website, including answers to some commonly asked questions, here: https://www.lupusuk.org.uk
Immunocompromised people aged 50 and over are now eligible for the shingles vaccine. The vaccine reduces your chances of getting shingles and reduces the risk of complications if you still develop it. Read more on our website, including answers to some commonly asked questions, here: https://www.lupusuk.org.uk
Debbie_kinsey
Administrator
in
LUPUS UK
8 months ago
seniors flu shot
I am on Ibrutinib . I got my annual flu shot a few weeks ago .Was that okay to do that? Does doing this affect my treatment with CLL? Thank you.
I am on Ibrutinib . I got my annual flu shot a few weeks ago .Was that okay to do that? Does doing this affect my treatment with CLL? Thank you.
Dyba
in
CLL Support
1 year ago
Shingles vaccine
Just seen the BBC news health website. Shingles vaccines being offered to over 65’s ( was 70) and, even better, to vulnerable immune suppressed people over 55 from September 2023.
Just seen the BBC news health website. Shingles vaccines being offered to over 65’s ( was 70) and, even better, to vulnerable immune suppressed people over 55 from September 2023.
Amnesiac3637
in
NRAS
10 months ago
Flare and due COVID jab Friday
Hi all. I hope you are all well or as well as can be. 🙂 I'm booked for my spring COVID booster tomorrow but I'm starting to flare, sore hands and shoulders etc and they are starting me on hydroxychloroquine next week as well as the 3g if sulfasalazine I'm already on. Have any of you had the jab whilst
Hi all. I hope you are all well or as well as can be. 🙂 I'm booked for my spring COVID booster tomorrow but I'm starting to flare, sore hands and shoulders etc and they are starting me on hydroxychloroquine next week as well as the 3g if sulfasalazine I'm already on. Have any of you had the jab whilst
Haz58
in
NRAS
11 months ago
Oral Thrush - off topic
Hi mod, if not appropriate then please delete. My wife suddenly developed oral thrush perhaps from the inhaler she used for her breathing. Anybody with experience with oral thrush, Nystatin is not helping. thanks, Akai
Hi mod, if not appropriate then please delete. My wife suddenly developed oral thrush perhaps from the inhaler she used for her breathing. Anybody with experience with oral thrush, Nystatin is not helping. thanks, Akai
akaipop3ps
in
Advanced Prostate Cancer
1 year ago
How often and duration of the Tass gloves?
Just completed the build. Wife used first time for 2 hrs with improved gait was able to walk in house without walker. Used walking sticks just due to fear of falling. Hand printing improved. However today after 2 hrs she said she felt very jittery, kind of like a residual feeling of vibratio So she
Just completed the build. Wife used first time for 2 hrs with improved gait was able to walk in house without walker. Used walking sticks just due to fear of falling. Hand printing improved. However today after 2 hrs she said she felt very jittery, kind of like a residual feeling of vibratio So she
Furch
in
Cure Parkinson's
7 months ago
Slow, slow, quick quick slow -to taper or not?
I've forgotten the name of the tapering method. It's come to me in an hour or so I am sure. Canada was amazing and exhausting, we've been back since the 31st May and are still recovering. Mark was diagnosed with OA in his knees in March. Despite steroid injections before we left, his knees did not
I've forgotten the name of the tapering method. It's come to me in an hour or so I am sure. Canada was amazing and exhausting, we've been back since the 31st May and are still recovering. Mark was diagnosed with OA in his knees in March. Despite steroid injections before we left, his knees did not
IdasMum
in
PMRGCAuk
11 months ago
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