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Experiences with
Urinary tract infections (UTIs)
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29 public communities
Aspergillosis and Rare Fungal Infection Support
3,859 members
Serious fungal infections are very rare but also very under-diagnosed and that has several consequences. 1) There are many more cases than we currently know about 2) People who are diagnosed can be very isolated and benefit from community support This community is intended to address these issues by informing and educating people in the UK about serious fungal infections, what to look out for, how to get diagnosed and where the expert help is in the UK. We also feel that informing patients is a great way to support their medical teams. The National Aspergillosis Centre (www.nationalaspergillosiscentre.org.uk), currently based in Manchester is the main UK centre for the serious fungal infections caused by Aspergillus (see aspergillosis.org) and is where admin of this community is based, so we have all we need t to advise you on aspergillosis - maybe even get you a referral to this centre if warranted. This is also the site of the Mycology Reference Centre in Manchester (http://mrcm.org.uk/) which is a big skill base for the identification of all pathogenic fungi, consequently, we can support the diagnosis and treatment of other rare fungal diseases like cryptococcal meningitis, Candida bloodstream infection, Pneumocystis pneumonia and more. Note that we only support people who can use the UK NHS and only for questions and conversation about serious rare fungal infections and NOT the very common infections that you should be consulting your GP or pharmacist about - we cannot replace your relationship with your medical team but we may be able to help them help you. Any entries that seem to us to be better dealt with by your medical team first will be deleted. Any non-UK questions will also be deleted - sorry, but we are funded by the UK taxpayer and they have to come first!
BASHH
21,263 members
The British Association for Sexual Health and HIV or BASHH for short is the UK's leading organisation dealing with all aspects of sexual health including Contraception, sexual infections and HIV. At present there is no one to actively monitor or moderate posts here. We advise that if you seek specific healthcare advice regarding sexual health you go to our website www.bashh.org Here you will find a wealth of information for the public - particularly patient information leaflets on a range of sexual infections: www.bashh.org/pils Other good sources of information include for both sexual infections and contraception include: www.sexwise.org.uk and www.nhs.uk
The Simon Foundation for Continence
631 members
Welcome to The Simon Foundation for Continence online support community. The Foundation is dedicated to providing educational information, resources, and support to people with incontinence and their caregivers, both professional and family/friends. We provide educational support to both urinary and/or bowel incontinence issues. Established in 1982 in the US, we have been continually dedicated to: Bringing the topic of incontinence out into the open, removing the stigma surrounding incontinence, and providing help and hope for people with incontinence, their families, and the health professionals who provide their care. While we are based in the US, we work internationally. And you can learn more about us and our history on our main website: https://www.simonfoundation.org/
Thyroid UK
137,799 members
The Thyroid UK community is for anyone with diagnosed or undiagnosed underactive or overactive thyroid disease. Thyroid UK is a charity that supports people with thyroid disease and related disorders. We support people by informing them of various aspects of thyroid health and testing as well as other conditions such as adrenal deficiency, vitamin and mineral deficiencies and genetics that affect thyroid function. Your health journey is unique. HealthUnlocked can help you identify your unmet thyroid health needs allowing you to ask for the most appropriate support so that you can improve your health outcome in a way that is personalised to you by taking the Needs Assessment survey. Simply click on your profile picture and select "Your needs". The survey will take no longer than 3 minutes to complete and you can retake the assessment multiple times (up to once a month) giving you a tangible way to measure improvements in your health.
Pelvic Pain Support Network
19,411 members
This community is run by the Pelvic Pain Support Network, a registered charity. The community forum exists to support those who wish to share and learn from others who have abdominal and/or pelvic pain and to provide peer support in managing the pain. It is moderated by trustees and members of the charity who are volunteers with personal experience of pelvic pain. Pelvic pain can be caused by many conditions affecting the pelvis such as adenomyosis, adhesions, endometriosis, painful periods, bladder pain, pelvic nerve damage, pudendal neuralgia, irritable bowel syndrome. One or more of these may be present or the person may not have a diagnosis. Pain that exists for 6 months or more, either intermittently or constant, is a condition in its own right. This community forum exists to support those who have had pain in the abdomen/pelvis for 6 months or longer with or without a diagnosis.
MY SKIN
8,512 members
Welcome to the MY SKIN Community, a peer support community for those experiencing issues with their skin. Join us to share your story and experiences, ask questions, and support others. Connect with others like you today and get real opinions from others who have experienced similar conditions. Anyone needing help or support from a patient organisation can choose from the list of resources in the pinned post in the right hand column on the posts/home page.
HIV Partners
2,318 members
Forum Link has joined forces with the HealthUnlocked team to create this HIV positive online community. We want to make it easier for HIV positive people to find a range of information and support we all need, particularly when we have just been diagnosed with HIV. We do this by highlighting resources from selected other community sites and encouraging members of this community to post messages online. Whether you are newly diagnosed or have been living with HIV for some time we hope you will find this online community of other people living with HIV useful. For more details see the Forum Link web site at http://www.forum-link.org
Living Well with HIV
1,009 members
This community is for people affected by HIV/ AIDS. If you or someone you know is positive, this is a safe peer support community is for you.
Group B Strep Support
746 members
This is a community dedicated to helping those affected by group B Strep (GBS). GBS is a common bacterium that lives in 20-30% of adults, usually with no symptoms or side-effects. Most commonly found in the intestines, it can also live in the vagina of adult women. It is a ‘commensal’ – an organism that lives on another without causing harm. GBS can cause infection, most often in newborn babies. It more rarely causes infection in adults (typically women during pregnancy or after birth, the elderly and those with serious underlying medical conditions causing impaired immune system). Although relatively uncommon, GBS is the most common cause of infection in newborn babies and of meningitis in babies under age 3 months. On average in the UK, one baby a day develops GBS infection - one baby a week dies and one survivor a fortnight has long-term disability.
Sensitive Issues for Men
3,008 members
Men's Health Network (MHN) is a non-profit organization whose mission is to reach men, boys, and their families where they live, work, play, and pray with health awareness and disease prevention messages and more. This community has been set up to have a dialogue about the different sensitive health issues that men struggle with in their everyday lives. Some of topics we will be discussing include: Prostate Cancer, Erectile Dysfunction (ED), Incontinence, Peyronie's Disease, Testicular Cancer, Low Testosterone, Hemorrhoids, and more. This community is run by Sean M.
Bladder Health UK
1,158 members
The Bladder Health UK Foundation gives support to people with all forms of cystitis, overactive bladder and continence issues together with their families and friends. We are the largest bladder patient support charity in the UK. We have the busiest message board forums in Europe and the most widely used website for those bladder illness sufferers seeking information, help and support.
PCD Family Support Group (UK)
609 members
This volunteer-run group supports patients and families affected by Primary Ciliary Dyskinesia (PCD) in the UK. Any advice given is from a personal perspective. For medical advice please consult your clinicians.
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