Search
Search
About
Log in
Join
Experiences with
Un-Aspirin
Posts
Communities
5,809 public posts
Filter results
fatigue
was diagnosed with ET and Jak2 in October 2023. I have been on Hydroxycarbamide, 500 mg per day and 75 mg aspirin since then with platelets decreasing to 310 last week. Been not too bad until encountered the fatigue which I find overwhelming. It surprised me how it just suddenly happens and how debilitating
was diagnosed with ET and Jak2 in October 2023. I have been on Hydroxycarbamide, 500 mg per day and 75 mg aspirin since then with platelets decreasing to 310 last week. Been not too bad until encountered the fatigue which I find overwhelming. It surprised me how it just suddenly happens and how debilitating
Maxpenny
in
MPN Voice
3 months ago
5 failed ET from first cycle. recurrent implantation failure.
I had 5 embryos as part of my first cycle, transferred 1 fresh and 2 single transfers and the last one a double transfer. All failed. My doctor has me on manufactured cycle for the last 3 and on steroid,antibiotics and low dose aspirin and did hcg fusion on the last 2. I am going to do another cycle
I had 5 embryos as part of my first cycle, transferred 1 fresh and 2 single transfers and the last one a double transfer. All failed. My doctor has me on manufactured cycle for the last 3 and on steroid,antibiotics and low dose aspirin and did hcg fusion on the last 2. I am going to do another cycle
Harvey123456
in
Fertility Network UK
3 months ago
Arm Pain
Hi Everyone. I had a blockage in my main LAD and a stent fitted September 2020. I’ve been really well since then. Meds at the moment Aspirin and Atorvastatin. I’ve started to have aching arms. Not terrible but just a bit worried as that was the first symptom I had before I was diagnosed with Angina
Hi Everyone. I had a blockage in my main LAD and a stent fitted September 2020. I’ve been really well since then. Meds at the moment Aspirin and Atorvastatin. I’ve started to have aching arms. Not terrible but just a bit worried as that was the first symptom I had before I was diagnosed with Angina
Lizbeth61
in
British Heart Foundation
3 months ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Was it a TIA?
Hi all, recently had a suspected TIA nearly 3 months ago. I got home one night and went to lock the door and I couldn’t get the key in the lock. I had no pain, no disorientation or confusion, no blurred vision, no pins and needles or numbness, no slurred speech, my left arm just felt a bit heavy. I immediately
Hi all, recently had a suspected TIA nearly 3 months ago. I got home one night and went to lock the door and I couldn’t get the key in the lock. I had no pain, no disorientation or confusion, no blurred vision, no pins and needles or numbness, no slurred speech, my left arm just felt a bit heavy. I immediately
DonnaA
in
British Heart Foundation
3 months ago
NK cells and pcos -steroids or hydroxychloroquine?
Hi all, I’m under Prof Shehata’s NHS clinic (recurrent miscarriage )and my results showed raised NK cells although activation markers were in range. Everything else pretty good too although AMH was very high which is not necessarily a good thing and suggests that my PCOS is back (was diagnosed approx
Hi all, I’m under Prof Shehata’s NHS clinic (recurrent miscarriage )and my results showed raised NK cells although activation markers were in range. Everything else pretty good too although AMH was very high which is not necessarily a good thing and suggests that my PCOS is back (was diagnosed approx
PN85
in
Fertility Network UK
3 months ago
Viramin B12 deficiency
I am Jak 2 ET and taking 1000mg hydroxycarbamide daily and 75mg aspirin. I saw my consultant today and he said my vitamin B12 levels were extremely low so I have to have B12 injections every other day for two weeks then one a week for four weeks. I'll be doing another blood test then to see if it's
I am Jak 2 ET and taking 1000mg hydroxycarbamide daily and 75mg aspirin. I saw my consultant today and he said my vitamin B12 levels were extremely low so I have to have B12 injections every other day for two weeks then one a week for four weeks. I'll be doing another blood test then to see if it's
Lilbert
in
MPN Voice
3 months ago
bone pain
hi any advice on bone pain besides aspirin was taking 81 mg 3 times a day for erymtha but has a bleeding issue..so stopped aspirin for a while bone pain has me in tears at times
hi any advice on bone pain besides aspirin was taking 81 mg 3 times a day for erymtha but has a bleeding issue..so stopped aspirin for a while bone pain has me in tears at times
Nc3500
in
MPN Voice
3 months ago
How frequently do you see your MPN specialist?
Hi all, I'm curious to hear how often you see your MPN specialist and get your platelet level checked. My specialist recently suggested we go from follow ups every 4 months to every 6, as my platelets counts are and have been stable since my diagnosis in late 2022, and indeed since they were first
Hi all, I'm curious to hear how often you see your MPN specialist and get your platelet level checked. My specialist recently suggested we go from follow ups every 4 months to every 6, as my platelets counts are and have been stable since my diagnosis in late 2022, and indeed since they were first
ETinNYC
in
MPN Voice
3 months ago
Undiagnosed: Likely stress cardiomyopathy, MINOCA
I'm in my mid fifties and had an ACS event about four weeks ago (chest pain radiating in a band around my chest and back, weird electrical feelings down both brachial arteries) with raised troponin (100, raising to 1000) and spent four days in hospital. EGC showed inverted T on the bottom line of the
I'm in my mid fifties and had an ACS event about four weeks ago (chest pain radiating in a band around my chest and back, weird electrical feelings down both brachial arteries) with raised troponin (100, raising to 1000) and spent four days in hospital. EGC showed inverted T on the bottom line of the
Takonoca
in
British Heart Foundation
3 months ago
IVF newbie (question about lister and mental health)
Hello, I had a negative this cycle, my 3rd letrozole + trigger + progesterone cycle, it all seemed to look great, two follicles at 25 mm. I haven't felt this low in a while, overall mental health has been low last 15 months we are trying. We tried naturally always. I've been pregnant 3 times last year
Hello, I had a negative this cycle, my 3rd letrozole + trigger + progesterone cycle, it all seemed to look great, two follicles at 25 mm. I haven't felt this low in a while, overall mental health has been low last 15 months we are trying. We tried naturally always. I've been pregnant 3 times last year
PenpalLdn
in
Fertility Network UK
3 months ago
Unexplained infertility
Hi I do wonder how many cases of unexplained infertility are actually due to undiagnosed ET and the blood clots that can develop. Is there any research on this? When i was trying to conceive in my late 30’s ( I did eventually have a son) my MPN hadn't been diagnosed, but might well have
Hi I do wonder how many cases of unexplained infertility are actually due to undiagnosed ET and the blood clots that can develop. Is there any research on this? When i was trying to conceive in my late 30’s ( I did eventually have a son) my MPN hadn't been diagnosed, but might well have
Gipsy123
in
MPN Voice
3 months ago
New to CAD
I’m 48 years old and just recently had a calcium score done. It’s came back as 312. My cardiologist put me on a statin and told me to take a low dose aspirin 81 mg every day. I was also advised to change my diet and get more cardio exercise. I have changed my diet completely and started riding an exercise
I’m 48 years old and just recently had a calcium score done. It’s came back as 312. My cardiologist put me on a statin and told me to take a low dose aspirin 81 mg every day. I was also advised to change my diet and get more cardio exercise. I have changed my diet completely and started riding an exercise
Natas6
in
British Heart Foundation
3 months ago
Coated v dispersible aspirin?
Getting conflicting advice from GP and pharmacist. Have recently come off ticagrelor and wanting to come off lansaprazole too ( for malabsorption reasons). Suggested to GP I move to coated aspirin and drop lansaprazole and she said fine. Not sure how much she thought about it. On checking with pharmacist
Getting conflicting advice from GP and pharmacist. Have recently come off ticagrelor and wanting to come off lansaprazole too ( for malabsorption reasons). Suggested to GP I move to coated aspirin and drop lansaprazole and she said fine. Not sure how much she thought about it. On checking with pharmacist
Heartmum56
in
British Heart Foundation
3 months ago
Flaxseed
Hi there, Been listening to Michael Mosley podcast and benefits of flaxseed. I am taking 90mg ticegrelor, 1.25mg bisoprolol and Aspirin 75mg. Had NStemi 6 months ago and stent fitted. My BP is quite low but considered good. Apparently on a big trial flaxseed didnt reduce BP in those that had low BP
Hi there, Been listening to Michael Mosley podcast and benefits of flaxseed. I am taking 90mg ticegrelor, 1.25mg bisoprolol and Aspirin 75mg. Had NStemi 6 months ago and stent fitted. My BP is quite low but considered good. Apparently on a big trial flaxseed didnt reduce BP in those that had low BP
Lovesunflower
in
British Heart Foundation
3 months ago
magnesium supplements
Hi all It’s been a while since I posted on here. But I have a question regarding sleep. I have ET, Jak2, had it 7 years, and at the moment take aspirin and hydroxy. Had my telephone consultation yesterday and was pleased to hear my platelets are the lowest they’ve ever been at 355. Even though I
Hi all It’s been a while since I posted on here. But I have a question regarding sleep. I have ET, Jak2, had it 7 years, and at the moment take aspirin and hydroxy. Had my telephone consultation yesterday and was pleased to hear my platelets are the lowest they’ve ever been at 355. Even though I
Grumpyfairy
in
MPN Voice
3 months ago
ASPIN WOUNDER DRUG
I have taken aspirin dayly since I was about 40 I am now 86 in October if I forget to take it I quickly knew. Without it I felt quite lethargic But my point now is. Now I am on Lixiana 60 mg I was advised I no longer needed aspirin But after about 18 months decided to try my old friend aspirin
I have taken aspirin dayly since I was about 40 I am now 86 in October if I forget to take it I quickly knew. Without it I felt quite lethargic But my point now is. Now I am on Lixiana 60 mg I was advised I no longer needed aspirin But after about 18 months decided to try my old friend aspirin
Ronzy
in
PMRGCAuk
3 months ago
How do you get a doctor ? Cramps - 4 weeks pregnant
Hi everyone hope you’re ok. I’m 4 weeks pregnant (shocking natural pregnancy after two bad rounds of IVF. 40 years old. First ever pregnancy. For the past week I’ve had cramps and sore boobs but today a lot less of these symptoms… if feel worried when I’m cramping and worried when I’m not 😂 My boobs
Hi everyone hope you’re ok. I’m 4 weeks pregnant (shocking natural pregnancy after two bad rounds of IVF. 40 years old. First ever pregnancy. For the past week I’ve had cramps and sore boobs but today a lot less of these symptoms… if feel worried when I’m cramping and worried when I’m not 😂 My boobs
Cuppppatea
in
Fertility Network UK - Pregnancy Support
3 months ago
Salbutamol for Myasthenia
My EMG results were "Normal" so, despite the fact I have chronic muscle weakness that responds to prednisolone, 0.12 nmol/L of anti-AChR antibodies, and have lost my tendon reflexes, my neurologist says I don't have any neurological condition. I also have no detectable inflammation, so my rheumatologist
My EMG results were "Normal" so, despite the fact I have chronic muscle weakness that responds to prednisolone, 0.12 nmol/L of anti-AChR antibodies, and have lost my tendon reflexes, my neurologist says I don't have any neurological condition. I also have no detectable inflammation, so my rheumatologist
AtopicGuy
in
Neuropathy Support
3 months ago
Aura migraine.
I had another Aura Migraine a couple of nights ago. I took an asprin as soon as I remembered. It’s a bit worrying as I was once told it could mean I could have a stroke. I got rid of my really awful migraines a few years ago but aura migraines took over and although they are not painful they do make
I had another Aura Migraine a couple of nights ago. I took an asprin as soon as I remembered. It’s a bit worrying as I was once told it could mean I could have a stroke. I got rid of my really awful migraines a few years ago but aura migraines took over and although they are not painful they do make
Mavary
in
National Migraine Centre
3 months ago
Blueberries
Just been given some blueberries is it safe for me to add them to porridge etc on ticagrelor Bisoprolol atorvastatin asprin and Lansoprazole.
Just been given some blueberries is it safe for me to add them to porridge etc on ticagrelor Bisoprolol atorvastatin asprin and Lansoprazole.
Coopergirl52
in
British Heart Foundation
3 months ago
1
...
6
7
8
...
100
Next page
10
20
30
40
50
60
70
80
90
100
Filter results
Clear filters
Posted in
All communities
MPN Voice
1424 results
British Heart Foundation
1231 results
Hughes Syndrome APS Forum
709 results
View top 10 communities
Sort by
Most Relevant
Newest