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Bright Light Therapy Zoom Call Sat Aug 5 Noon Eastern
30 minute meeting to talk about Bright Light Therapy for PD Sat 5 Aug at Noon Eastern. https://us05web.zoom.us/j/82099215722?pwd=novCzckkWh2jyFYw8uuFXHR2TDJt8P.1 I am not an expert on Bright Light Therapy but it looks useful and I have been trying it for a while. Surprisingly, it may be best to do
30 minute meeting to talk about Bright Light Therapy for PD Sat 5 Aug at Noon Eastern. https://us05web.zoom.us/j/82099215722?pwd=novCzckkWh2jyFYw8uuFXHR2TDJt8P.1 I am not an expert on Bright Light Therapy but it looks useful and I have been trying it for a while. Surprisingly, it may be best to do
Bolt_Upright
in
Cure Parkinson's
11 months ago
Red Light Therapy-Which Products are Legit?
I've read some positive articles on Red Light Therapy, and would like to try it. I've also read that scammers are selling ineffective RLT products. Could anyone let me know which are the most effective, and which aren't?
I've read some positive articles on Red Light Therapy, and would like to try it. I've also read that scammers are selling ineffective RLT products. Could anyone let me know which are the most effective, and which aren't?
Alock2020
in
Cure Parkinson's
1 year ago
Morphea treatment - PUVA or triamcinolone injections?
hello, looking for a bit of advice as I was diagnosed with Morphea a few months ago. I’m under the care of dermatology department. It affects my whole left arm, part of my rib cage and some of my right arm. The worst area is around my left wrist where the skin is particularly tight around the joint
hello, looking for a bit of advice as I was diagnosed with Morphea a few months ago. I’m under the care of dermatology department. It affects my whole left arm, part of my rib cage and some of my right arm. The worst area is around my left wrist where the skin is particularly tight around the joint
Katie46
in
Scleroderma & Raynaud's UK (SRUK)
8 months ago
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Red light therapy for PMR pain?
has anyone tried red light therapy for PMR pain? I have found some relief with it, although I think the pain comes back and in different places.
has anyone tried red light therapy for PMR pain? I have found some relief with it, although I think the pain comes back and in different places.
howtotaperdown
in
PMRGCAuk
1 year ago
Greg thru the keyhole.
I´ve chosen this title as I am going to give you a look at my life as it is, as it was when diagnosed and how I am moving forward as many people have been asking about my regime. I will keep to the facts . I am 74 this Nov and have tremor dominant PD. About 6 yr ago my GP suggested I get checked by
I´ve chosen this title as I am going to give you a look at my life as it is, as it was when diagnosed and how I am moving forward as many people have been asking about my regime. I will keep to the facts . I am 74 this Nov and have tremor dominant PD. About 6 yr ago my GP suggested I get checked by
gregorio
in
Cure Parkinson's
1 year ago
Heat or Light Therapy
Does anyone use Infrared heat or Red Light Therapy (RLT) and has it changed anything for you? I have not tried either one. I do use the sauna after each swim workout: ice cold shower, 15 min sauna, ice cold shower, sauna, shower. This really shocks my system and I feel that it is helpful to really
Does anyone use Infrared heat or Red Light Therapy (RLT) and has it changed anything for you? I have not tried either one. I do use the sauna after each swim workout: ice cold shower, 15 min sauna, ice cold shower, sauna, shower. This really shocks my system and I feel that it is helpful to really
Gym-rat
in
Advanced Prostate Cancer
1 year ago
New red light therapy from Symbyx
I know nothing about this... Just found it and thought I'd pass it along. ---------------------------------------------------------------- https://youtu.be/oJ1S9R594a4
I know nothing about this... Just found it and thought I'd pass it along. ---------------------------------------------------------------- https://youtu.be/oJ1S9R594a4
PDWarrior1900
in
Cure Parkinson's
1 year ago
Unkind
I don't seem to have much in the way of symptoms. I took motion classes but they said you're fine, come back when you have a problem. I took acupuncture sessions til they said come back when you have a problem. MY problem is the neurologist wants to take my license. I failed a driving test that didn't
I don't seem to have much in the way of symptoms. I took motion classes but they said you're fine, come back when you have a problem. I took acupuncture sessions til they said come back when you have a problem. MY problem is the neurologist wants to take my license. I failed a driving test that didn't
kaypeeoh
in
Cure Parkinson's
1 year ago
Red light therapy
Hi , I’ve read up a lot about red light therapy & have held back but now considering buying one. Just interested to know if any of you have bought one, how you have got on with it, re results, plus if so any recommendations. I know I have seen posts in the past where people have mentioned they use one
Hi , I’ve read up a lot about red light therapy & have held back but now considering buying one. Just interested to know if any of you have bought one, how you have got on with it, re results, plus if so any recommendations. I know I have seen posts in the past where people have mentioned they use one
Durrell
in
NRAS
1 year ago
The effect of light exposure on insomnia and nocturnal movement in Parkinson's disease: an open label, retrospective, longitudinal study
The effect of light exposure on insomnia and nocturnal movement in Parkinson's disease: an open label, retrospective, longitudinal study 2018 https://sci-hub.ru/10.1016/j.sleep.2018.01.001
Abstract
Insomnia, hypersomnia and REM Sleep Behavior Disorder (RSBD) during sleep are major problems for
The effect of light exposure on insomnia and nocturnal movement in Parkinson's disease: an open label, retrospective, longitudinal study 2018 https://sci-hub.ru/10.1016/j.sleep.2018.01.001
Abstract
Insomnia, hypersomnia and REM Sleep Behavior Disorder (RSBD) during sleep are major problems for
Bolt_Upright
in
Cure Parkinson's
1 year ago
Red light therapy trial results
In the study out of Australia, the new infrared light therapy helmet on patients living with Parkinson's helped improve facial expression, upper limb coordination and movement, lower limb coordination and movement, walking gait, and tremor https://medicalxpress.com/news/2023-04-parkinson-laser-helmet-therapy-motor.amp
In the study out of Australia, the new infrared light therapy helmet on patients living with Parkinson's helped improve facial expression, upper limb coordination and movement, lower limb coordination and movement, walking gait, and tremor https://medicalxpress.com/news/2023-04-parkinson-laser-helmet-therapy-motor.amp
Farooqji
in
Cure Parkinson's
1 year ago
New Clinical Trial Starting: A Study of AAV2-GDNF in Adults With Moderate Parkinson's Disease (REGENERATE-PD) (REGENERATE-PD)
Here is a link to the trial on clinicaltrials.gov https://clinicaltrials.gov/study/NCT06285643?term=REGENERATE-PD&rank=1 Below is an excerpt from a news article about the trial: A new Phase II trial, REGENERATE-PD, will study AB-1005, an adeno-associated virus 2 (AAV2) glial cell line-derived neurotrophic
Here is a link to the trial on clinicaltrials.gov https://clinicaltrials.gov/study/NCT06285643?term=REGENERATE-PD&rank=1 Below is an excerpt from a news article about the trial: A new Phase II trial, REGENERATE-PD, will study AB-1005, an adeno-associated virus 2 (AAV2) glial cell line-derived neurotrophic
Canddy
in
Cure Parkinson's
21 hours ago
Update on FIL -Venetoclax as a Monotherapy, Pancytopenia and Myelodysplasia
Hi everyone I have been meaning to post an update for months but things have been changing so rapidly, every day would have been a different story. So we did get to see a specialist who did a BM biopsy and recommended Venetoclax as a Monotherapy as his BM was 50% CLL. We were told it wasn't chemo
Hi everyone I have been meaning to post an update for months but things have been changing so rapidly, every day would have been a different story. So we did get to see a specialist who did a BM biopsy and recommended Venetoclax as a Monotherapy as his BM was 50% CLL. We were told it wasn't chemo
JoeMcDote
in
CLL Support
2 days ago
Help!
Hello everyone. 💙It's been six months since my mother had herpes encephalitis type 1, but she still can't stand up and is physically weak. I don't know if occupational therapy is useful or not? What should I do to improve her physical condition?
Hello everyone. 💙It's been six months since my mother had herpes encephalitis type 1, but she still can't stand up and is physically weak. I don't know if occupational therapy is useful or not? What should I do to improve her physical condition?
Ftmz
in
Encephalitis International
3 days ago
Newly diagnosed with HCC
I am a 78 year old retired educator who has battled GIST CANCER for 20 years. To my surprise, An HCC tumor was found in my liver in between two GIST tumors. in my June 5 MRI. The GIST tumors were shrinking out of site thanks to be taking Gleevec, a targeted therapy drug. My surgeon could not safely resect
I am a 78 year old retired educator who has battled GIST CANCER for 20 years. To my surprise, An HCC tumor was found in my liver in between two GIST tumors. in my June 5 MRI. The GIST tumors were shrinking out of site thanks to be taking Gleevec, a targeted therapy drug. My surgeon could not safely resect
Dachshund45
in
Blue Faery Liver Cancer
4 days ago
Advice
Hi All, I have hearing loss in both ears and have tinnitus all the time. This is a difficult challenge for us all. The doctors just put you on betahistine or amitriptyline or alprazolam or any anti depressants they say it helps reduce tinnitus or improve blood flow to inner ear. This is the same
Hi All, I have hearing loss in both ears and have tinnitus all the time. This is a difficult challenge for us all. The doctors just put you on betahistine or amitriptyline or alprazolam or any anti depressants they say it helps reduce tinnitus or improve blood flow to inner ear. This is the same
CMRN11
in
Tinnitus UK
5 days ago
More about Cu-67 PSMA : it seems better than Pluvicto (Lutetium) and it looks like experts are pushing it toward first line treatment!
I have already talked about this but it continues to look promising, so here is an update: https://www.urotoday.com/video-lectures/asco-2024/video-2/mediaitem/4152-secure-trial-copper-67-psma-therapy-for-prostate-cancer-geoffrey-johnson.html in a nutshell, improved Pluvicto: "the SECuRE trial for
I have already talked about this but it continues to look promising, so here is an update: https://www.urotoday.com/video-lectures/asco-2024/video-2/mediaitem/4152-secure-trial-copper-67-psma-therapy-for-prostate-cancer-geoffrey-johnson.html in a nutshell, improved Pluvicto: "the SECuRE trial for
Maxone73
in
Advanced Prostate Cancer
5 days ago
First gene therapy for prevalent pathologies in neurology receives FDA IND clearance - EG 427 initiating first-in-human clinical study
https://uk.finance.yahoo.com/news/first-gene-therapy-prevalent-pathologies-060000901.html
https://uk.finance.yahoo.com/news/first-gene-therapy-prevalent-pathologies-060000901.html
Farooqji
in
Cure Parkinson's
6 days ago
Suppressed TSH on combined therapy
Is there data/medical papers I can give my doctor as to why T3 is suppressed on combination therapy? I have tried looking at the Nice guidelines but they all seem against using combination therapy.Thanks Sue
Is there data/medical papers I can give my doctor as to why T3 is suppressed on combination therapy? I have tried looking at the Nice guidelines but they all seem against using combination therapy.Thanks Sue
redhead41
in
Thyroid UK
7 days ago
Debate on T3 between Prof Bianco & Prof Pearce
These 2 well-known endos had a formal 'debate' recently at the Endo 2024 conference in Boston. Prof Bianco was 'for' the use of T3 in combination therapy, and Prof Pearce was 'against' it. We know that these are their personal stances anyway, even when not in a formal debate setting. Prof Bianco '
These 2 well-known endos had a formal 'debate' recently at the Endo 2024 conference in Boston. Prof Bianco was 'for' the use of T3 in combination therapy, and Prof Pearce was 'against' it. We know that these are their personal stances anyway, even when not in a formal debate setting. Prof Bianco '
TaraJR
in
Thyroid UK
9 days ago
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