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Coming off Liothyronine
Ive had thyroid probs for more than 20 years first hyperactive then following radio iodine treatment hypo, since then Ive been on Levothyroxine 125-150mg daily. I've never felt really satified with the treatment but had settle into a kind of acceptance and was self dosing at times. That is until 2/3
Ive had thyroid probs for more than 20 years first hyperactive then following radio iodine treatment hypo, since then Ive been on Levothyroxine 125-150mg daily. I've never felt really satified with the treatment but had settle into a kind of acceptance and was self dosing at times. That is until 2/3
technogran
in
Thyroid UK
2 years ago
sick of battling with GPs
sick of battling with GP over thyroxine levels when I feel absolutely fine ! Started with graves and had radio active iodine 20 years ago. Was very I’ll afterwards when thyroid was dying off. Put on 5 stone in 6 months before I was prescribed levothyroxine. Been on 175mu for 15 years and fine, when
sick of battling with GP over thyroxine levels when I feel absolutely fine ! Started with graves and had radio active iodine 20 years ago. Was very I’ll afterwards when thyroid was dying off. Put on 5 stone in 6 months before I was prescribed levothyroxine. Been on 175mu for 15 years and fine, when
Gbunny
in
Thyroid UK
2 years ago
Morning Cortisol low-not Addison's-dismissed by consultant
First post so hello everyone! Short history of me, underactive thyroid since age 25 after RAI (overactive from age 19), my thyroid has been stable on Levo for years until I was diagnosed with severe Endometriosis and had 2 surgeries and hormonal treatments to try to control it. Since then I haven't
First post so hello everyone! Short history of me, underactive thyroid since age 25 after RAI (overactive from age 19), my thyroid has been stable on Levo for years until I was diagnosed with severe Endometriosis and had 2 surgeries and hormonal treatments to try to control it. Since then I haven't
G3miniStar
in
Thyroid UK
1 year ago
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Subclinical Hyper / RAI induced Hypo & CBD oil?
Hello all, Getting confused - As a subclinical Hyperthyroid / RAI induced Hypothyroid person - Is it ok to take CBD oil? Have just started taking it twice a day (leaving a 4 hr gap between taking my Levothyroxine) - 1pm 2 sprays and 11pm 2 sprays - to help with occasional bouts of anxiety/insomnia
Hello all, Getting confused - As a subclinical Hyperthyroid / RAI induced Hypothyroid person - Is it ok to take CBD oil? Have just started taking it twice a day (leaving a 4 hr gap between taking my Levothyroxine) - 1pm 2 sprays and 11pm 2 sprays - to help with occasional bouts of anxiety/insomnia
Mikico
in
Thyroid UK
1 year ago
Analysis please on my sister’s results from Ireland - Hashimoto’s and cognitive issues - mainly short term memory
Bloods taken 22/11/22 (will be retested on 28/2/23) NDA started on 1/12/22 1 grain 60mg (was previously taking 75mcg of Levo). She is now taking supplements of Vit D3, K2, Selenium, Zinc, Omega 3. She is now “gluten free” and taking no artificial sugars. Diet changed to include more leafy veg. fruits
Bloods taken 22/11/22 (will be retested on 28/2/23) NDA started on 1/12/22 1 grain 60mg (was previously taking 75mcg of Levo). She is now taking supplements of Vit D3, K2, Selenium, Zinc, Omega 3. She is now “gluten free” and taking no artificial sugars. Diet changed to include more leafy veg. fruits
Butterflycake1
in
Thyroid UK
2 years ago
I just want to quit GCA!
I have tapered down to a 5mg/4mg alternating dose. Have had some issues with shoulder pain, scotomas and pressure back in temples. Went back up to 5mg which seemed to help. (How does 1mg make such a difference?) Last week I came down with my grandson’s croup the rheumatologist nurse said to not do my
I have tapered down to a 5mg/4mg alternating dose. Have had some issues with shoulder pain, scotomas and pressure back in temples. Went back up to 5mg which seemed to help. (How does 1mg make such a difference?) Last week I came down with my grandson’s croup the rheumatologist nurse said to not do my
pmac22
in
PMRGCAuk
2 years ago
under active Thyroid with vitamins
I’ve been taken vitamins since October. I have had a full blood count last week all normal, my urine came back normal .I have noticed aches and pains in my upper arms, neck and shoulders.. This might sound silly just wondering if anyone experienced the same.I have got under-active thyroid should I still
I’ve been taken vitamins since October. I have had a full blood count last week all normal, my urine came back normal .I have noticed aches and pains in my upper arms, neck and shoulders.. This might sound silly just wondering if anyone experienced the same.I have got under-active thyroid should I still
Peggymae-18
in
Thyroid UK
2 years ago
Kidney capsules to help with histamine intolerance...?
Has anyone tried these or something similar? I'm intrigued by the DAO content which I didn't know you could get from kidneys, I've previously used the ones made from beans.... I've enquired about the Iodine content? Wild Roaming Lamb Kidney Capsules Grass Fed & Wild: Wild Roaming Lamb Organs (Pure
Has anyone tried these or something similar? I'm intrigued by the DAO content which I didn't know you could get from kidneys, I've previously used the ones made from beans.... I've enquired about the Iodine content? Wild Roaming Lamb Kidney Capsules Grass Fed & Wild: Wild Roaming Lamb Organs (Pure
TiggerMe
in
Thyroid UK
2 years ago
B complex recommendation
Hi there, I have been using wild nutrition food source b complex which I was happy with but they have changed the formula to add iodine which I understand isn't good if you take Levothyroxine. Can anyone recommend an alternative "clean" supplement. Thanks X
Hi there, I have been using wild nutrition food source b complex which I was happy with but they have changed the formula to add iodine which I understand isn't good if you take Levothyroxine. Can anyone recommend an alternative "clean" supplement. Thanks X
Lilacsocks
in
Thyroid UK
2 years ago
New Member
Hello, my son (5 y/o) was diagnosed with anxiety and dysregulated anger and aggression disorder about 1 year ago (children's mental health professional). He was then diagnosed with ADHD about 3 months ago (physiologist). I now have a clearer understanding that the ladder diagnosis has much to do with
Hello, my son (5 y/o) was diagnosed with anxiety and dysregulated anger and aggression disorder about 1 year ago (children's mental health professional). He was then diagnosed with ADHD about 3 months ago (physiologist). I now have a clearer understanding that the ladder diagnosis has much to do with
Jsunshine
in
CHADD's ADHD Parents Together
2 years ago
Thyroidectomy
Hi there, I would really appreciate some advice from anyone that has had Graves disease/hyperthyroidism and had a total Thyroidectomy. I tried RAI back in Sept 2021 but it was unsuccessful and then caused TED. Diagnosed with Graves disease in Sept 2018 and have been taking Carbimazole ever since.
Hi there, I would really appreciate some advice from anyone that has had Graves disease/hyperthyroidism and had a total Thyroidectomy. I tried RAI back in Sept 2021 but it was unsuccessful and then caused TED. Diagnosed with Graves disease in Sept 2018 and have been taking Carbimazole ever since.
Clairem147
in
Thyroid UK
1 year ago
Levothyroxine. n hypothyroid .
I was diagnosed with graves back in 2015. I had radio iodine treatment .and felt fine started training ..But GP was getting angry and said shouldn't be doing it .till levels were measured.gave bloods .came back said thyroid had switched over .as started to put bit of weight on...cut long story short
I was diagnosed with graves back in 2015. I had radio iodine treatment .and felt fine started training ..But GP was getting angry and said shouldn't be doing it .till levels were measured.gave bloods .came back said thyroid had switched over .as started to put bit of weight on...cut long story short
Radgey
in
Thyroid UK
2 years ago
Had Blood Test
Hi Everyone Had blood test results no further action needed awaiting X ray left leg and knee extremely painful.Any thoughts what could be the problem? Really thought something would show up in Bloods.Using Voterol gel and codeine and steroid tablet 1 mg daily.Your help and advise really helps a lot
Hi Everyone Had blood test results no further action needed awaiting X ray left leg and knee extremely painful.Any thoughts what could be the problem? Really thought something would show up in Bloods.Using Voterol gel and codeine and steroid tablet 1 mg daily.Your help and advise really helps a lot
Brears
in
PMRGCAuk
2 years ago
Advice please, night tremours/seizures,hypothyroid
I was diagnosed as 'borderline' hypothyroid about 5 years ago. I take 75 mg daily well before breakfast. Sept 22 suddenly started having major tremours (body totally leaving the bed, freezing cold, tingling extremities, mainly starts 1am, tremours 3 - 5 am) That day I have small tremours, increased heart
I was diagnosed as 'borderline' hypothyroid about 5 years ago. I take 75 mg daily well before breakfast. Sept 22 suddenly started having major tremours (body totally leaving the bed, freezing cold, tingling extremities, mainly starts 1am, tremours 3 - 5 am) That day I have small tremours, increased heart
Signalbox
in
Thyroid UK
2 years ago
Epidural Injections for Back Pain for MPN Patient
I am scheduled for an epidural Friday and have some concerns since I have PV and ET. I have stopped taking aspirin as well as Eliquis; however, I am concerned about the possible risk involved with the epidural. I have been having some back and leg pain for about a month and went to an orthopedic dr
I am scheduled for an epidural Friday and have some concerns since I have PV and ET. I have stopped taking aspirin as well as Eliquis; however, I am concerned about the possible risk involved with the epidural. I have been having some back and leg pain for about a month and went to an orthopedic dr
Buggerbear
in
MPN Voice
2 years ago
Self medicating again: Wanting to try changing 200mcg T4 to T4/T3 combo
Hi, I have had RAI so have to use full exogenous replacement. Currently on 200 mcg thyroxine. Tried armour, T4 only, but T4/T3 combo I never got right - I found my anxiety is unbearable. Trying to do it correctly this time. The fatigue and moodiness on T4 sucks, even though my endo says my labs are
Hi, I have had RAI so have to use full exogenous replacement. Currently on 200 mcg thyroxine. Tried armour, T4 only, but T4/T3 combo I never got right - I found my anxiety is unbearable. Trying to do it correctly this time. The fatigue and moodiness on T4 sucks, even though my endo says my labs are
cody_lamonica
in
Thyroid UK
1 year ago
Medications, supplements and other therapies used in Parkinsons
Here is a partial list of medication, supplements for other therapies used in Parkinsons What do you believe are the most beneficial/essential to treating Parkinsons and/or mitochondrial damage Which way should I go? Most bang for your bucks Carbadopa/Levadopa L-5-hydroxytryptophan (5-HTP) Actylcholine
Here is a partial list of medication, supplements for other therapies used in Parkinsons What do you believe are the most beneficial/essential to treating Parkinsons and/or mitochondrial damage Which way should I go? Most bang for your bucks Carbadopa/Levadopa L-5-hydroxytryptophan (5-HTP) Actylcholine
healthyheart7
in
Cure Parkinson's
2 years ago
Serum iodine test, UK
Has anyone in the UK had a serum iodine test and can recommend a postal test supplier? I had one 6y ago done by Doctors Lab via Blue Horizon but there is some doubt if it can be done via post (I await confirmation but seek options anyhow). I live well away from London where I believe it could be done
Has anyone in the UK had a serum iodine test and can recommend a postal test supplier? I had one 6y ago done by Doctors Lab via Blue Horizon but there is some doubt if it can be done via post (I await confirmation but seek options anyhow). I live well away from London where I believe it could be done
userotc
in
Thyroid UK
2 years ago
Benlysta Side Effects
I had my first Benlysta Infusion last Tuesday and a few days later I began having fevers at night and early in the mornings. I also have crushing pain in my neck and chest. I'm thinking that I shouldn't take the drug again. Has anyone else had this or similar symptoms and did it get better allowing
I had my first Benlysta Infusion last Tuesday and a few days later I began having fevers at night and early in the mornings. I also have crushing pain in my neck and chest. I'm thinking that I shouldn't take the drug again. Has anyone else had this or similar symptoms and did it get better allowing
purejoy
in
LUPUS UK
2 years ago
Vitamin d causing pins and needles
Ok, so since having RAI when I take vitamin D I get tinnitus in my left ear, I have been trying to find the reason for 4 years, anyway, I am trying to take it again (only been 2 days) as not surprisingly I'm very low in it because I hate taking it because the noise in my ear gets unbearable. I have
Ok, so since having RAI when I take vitamin D I get tinnitus in my left ear, I have been trying to find the reason for 4 years, anyway, I am trying to take it again (only been 2 days) as not surprisingly I'm very low in it because I hate taking it because the noise in my ear gets unbearable. I have
Hookie01
in
Thyroid UK
1 year ago
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