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228 public communities
Blue Faery Liver Cancer
631 members
Blue Faery’s mission is to prevent, treat and cure primary liver cancer, specifically Hepatocellular Carcinoma (HCC), through research, education and advocacy. Our Liver Cancer Community is our online, private forum for HCC patients and caregivers. Blue Faery is a 501(c)(3) national nonprofit organization with offices in Burbank, California and Birmingham, Alabama.
AMN EASIER
1,314 members
AMN Easier was set up to help men and women who have adrenomyeloneuropathy (AMN) - to help make this disease a bit easier to live with. AMN EASIER provides information and support by (1) providing answers to health questions from other AMN patients with experience of the disease; (2) showing what other AMN patients are doing and thinking; (3) describing ideas and possibilities for therapies that could help
Thyroid UK
139,403 members
The Thyroid UK community is for anyone with diagnosed or undiagnosed underactive or overactive thyroid disease. Thyroid UK is a charity that supports people with thyroid disease and related disorders. We support people by informing them of various aspects of thyroid health and testing as well as other conditions such as adrenal deficiency, vitamin and mineral deficiencies and genetics that affect thyroid function. Your health journey is unique. HealthUnlocked can help you identify your unmet thyroid health needs allowing you to ask for the most appropriate support so that you can improve your health outcome in a way that is personalised to you by taking the Needs Assessment survey. Simply click on your profile picture and select "Your needs". The survey will take no longer than 3 minutes to complete and you can retake the assessment multiple times (up to once a month) giving you a tangible way to measure improvements in your health.
Non Hodgkin's Lymphoma Friends
1,785 members
Patient Empowerment Network (PEN) is honored to offer a peer-support community for those living with Non-Hodgkin's Lymphoma, their families and their loved ones. Connect with patients like you and share your experiences. Discuss treatment, recovery, diagnoses, and help other patients through their journey. PEN is a nonprofit (501(c)(3) Public Charity) based in the US that works to help you gain confidence and strength to get yourself the best care and most personalized treatment. We are here to help you stand up and advocate for yourself and become informed so that you can make the right decisions for you. Giving medical advice or promoting alternative treatment that is not proven by clinical trials and approved by regulatory agencies is prohibited. Your participation should be respectful, honest and in the spirit of supporting and learning from others
Group B Strep Support
746 members
This is a community dedicated to helping those affected by group B Strep (GBS). GBS is a common bacterium that lives in 20-30% of adults, usually with no symptoms or side-effects. Most commonly found in the intestines, it can also live in the vagina of adult women. It is a ‘commensal’ – an organism that lives on another without causing harm. GBS can cause infection, most often in newborn babies. It more rarely causes infection in adults (typically women during pregnancy or after birth, the elderly and those with serious underlying medical conditions causing impaired immune system). Although relatively uncommon, GBS is the most common cause of infection in newborn babies and of meningitis in babies under age 3 months. On average in the UK, one baby a day develops GBS infection - one baby a week dies and one survivor a fortnight has long-term disability.
Children with Allergies
332 members
The Children With Allergies Support Group was established in 2010 to give children with allergies a chance to talk and play with other children who also live with allergies. Children have the opportunity to talk about having allergies with others who understand what it is like, and gain support from making friends with children who are going through the same experiences.
Living with Asthma
3,628 members
Living with Asthma is a community for people with asthma who want to learn more about their condition from their peers, and help support one another. The community is run by Allergy & Asthma Network, the leading nonprofit patient education and advocacy organization dedicated to ending needless death and suffering due to asthma, allergies and related conditions. Our patient-centered network unites individuals, families, healthcare professionals, industry and government decision makers to improve health and quality of life for people with asthma and allergies.
Young Adults with Melanoma
431 members
Welcome to the Young Adults with Melanoma community, a place where you can access peer to peer support from others affected by melanoma.
Help with Healthcare Costs
157 members
Welcome to the conversation! NeedyMeds is a national non-profit organization that maintains a website of free information on programs that help people who can't afford medications and healthcare costs in the United States. More than 1.3 million patients, family members, healthcare professionals, social workers and patient advocates use the NeedyMeds website each year. We regularly update data on over 9,000 assistance programs, 15,000 free/low-cost/sliding scale clinics and nearly 1,500 drug discount coupons. We also publish information about resources for specific diseases.
Living Well with HIV
1,016 members
This community is for people affected by HIV/ AIDS. If you or someone you know is positive, this is a safe peer support community is for you.
Living with a Stoma
1,020 members
We are a peer support community for people who experienced stoma or are affected by stoma surgery on their bowel or bladder. Join us to discuss your condition, ask questions and get quick advice from others like you!
Living Positively with Cerebral Palsy
461 members
I have Cerebral Palsy. I have had it since birth. I'm adult now. What I have found is that there is a lot of information out there for parents who have children with Cerebral Palsy. However, there is not a lot of support and information for adults with the condition. This is bad because Cerebral Palsy is treated like a childhood condition. This is surprising as it is not a progressive condition. People with Cerebral Palsy do not fall off the face of the earth when they hit eighteen years old. 1 in every 400 children are affected by cerebral palsy. These children will have this chronic condition for life. So if you want to share your experiences of Cerebral Palsy in adulthood. This is the place to do it. Connect with others who understand your situation!
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