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Great hepatologist not so great treatment
I see my hepatologist every 6 months because I am participating in the Intercept clinical trial. However, he doesn't really treat my illness. If I bring up anything, he tells me to contact my PCP. Even when I call to ask for say, a recommendation for safe OTC medications. My hepatologist is very knowledgeable
I see my hepatologist every 6 months because I am participating in the Intercept clinical trial. However, he doesn't really treat my illness. If I bring up anything, he tells me to contact my PCP. Even when I call to ask for say, a recommendation for safe OTC medications. My hepatologist is very knowledgeable
NYLassie
in
Living with Fatty Liver and NASH
3 years ago
Ivermectin for Cancer
I picked up a little Ivermectin for its possible anti-Covid-19 properties. Maybe I should take it for PC? The mechanism discussed is above my pay grade, and it certainly seems unlikely that it is effective against all or most cancers. Highlights Ivermectin effectively suppresses the proliferation and
I picked up a little Ivermectin for its possible anti-Covid-19 properties. Maybe I should take it for PC? The mechanism discussed is above my pay grade, and it certainly seems unlikely that it is effective against all or most cancers. Highlights Ivermectin effectively suppresses the proliferation and
cigafred
in
Advanced Prostate Cancer
3 years ago
Nivolumab
I am looking into a clinical trial with Nivolumab in treating Pc? Does anyone have any experience or information about this? My Google searches have limited results.
I am looking into a clinical trial with Nivolumab in treating Pc? Does anyone have any experience or information about this? My Google searches have limited results.
rembrothers
in
Advanced Prostate Cancer
3 years ago
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Modified Citrus Pectin - Galectin-3 Inhibitors
Modified Citrus Pectin is OTC and is, I guess, a relatively weak Galectin-3 Inhibitor. More powerful Galectin-3 Inhibitors are in development. https://www.alzdiscovery.org/uploads/cognitive_vitality_media/Galectin-3-Inhibitors-Cognitive-Vitality-For-Researchers.pdf Evidence Summary Have the potential
Modified Citrus Pectin is OTC and is, I guess, a relatively weak Galectin-3 Inhibitor. More powerful Galectin-3 Inhibitors are in development. https://www.alzdiscovery.org/uploads/cognitive_vitality_media/Galectin-3-Inhibitors-Cognitive-Vitality-For-Researchers.pdf Evidence Summary Have the potential
Bolt_Upright
in
Cure Parkinson's
3 years ago
Zeolite Clinoptilolite: Therapeutic Virtues of an Ancient Mineral
2019 Apr; 24(8): 1517. Published online 2019 Apr 17. doi: 10.3390/molecules24081517 PMCID: PMC6515299 PMID: 30999685 Zeolite Clinoptilolite: Therapeutic Virtues of an Ancient Mineral Andrea Mastinu,1,*† Amit Kumar,2,† Giuseppina Maccarinelli,1 Sara Anna Bonini,1 Marika Premoli,1 Francesca Aria,1 Alessandra
2019 Apr; 24(8): 1517. Published online 2019 Apr 17. doi: 10.3390/molecules24081517 PMCID: PMC6515299 PMID: 30999685 Zeolite Clinoptilolite: Therapeutic Virtues of an Ancient Mineral Andrea Mastinu,1,*† Amit Kumar,2,† Giuseppina Maccarinelli,1 Sara Anna Bonini,1 Marika Premoli,1 Francesca Aria,1 Alessandra
Bolt_Upright
in
Cure Parkinson's
3 years ago
Has your Oncologist broke up with you???
Well Hello, On Thursday went to start my 2nd cycle of Topotecan, which I thought was the norm type of day - blood drawn, labs, visit Dr and then get treatment. Well when my Oncologist came into the room sat down and said he thinks it isn't working because lately I was getting nauseous. So he doesn't
Well Hello, On Thursday went to start my 2nd cycle of Topotecan, which I thought was the norm type of day - blood drawn, labs, visit Dr and then get treatment. Well when my Oncologist came into the room sat down and said he thinks it isn't working because lately I was getting nauseous. So he doesn't
PCCDaisy
in
My Ovacome
3 years ago
Ultra V Clinical
Ultra V clinical trial, is anyone presently on this? I’m going to be entering this soon and wonder if there is anything I should know, or ask?
Ultra V clinical trial, is anyone presently on this? I’m going to be entering this soon and wonder if there is anything I should know, or ask?
Sherms757
in
CLL Support
3 years ago
Learn about clinical trials at AWARE for All - Midwest, July 22nd, 4:30-6PM CDT
When considering if you should join a clinical trial, you can never ask too many questions! Tune in to the AWARE for All – Midwest webinar to learn about the clinical trials process and ask any questions you may have. Register today: http://bit.ly/AWARE-MW
When considering if you should join a clinical trial, you can never ask too many questions! Tune in to the AWARE for All – Midwest webinar to learn about the clinical trials process and ask any questions you may have. Register today: http://bit.ly/AWARE-MW
ciscrp_official
Partner
in
Understanding Clinical Trials
3 years ago
T cell and antibody responses induced by a single dose of ChAdOx1 nCoV-19 (AZD1222) vaccine in a phase 1/2 clinical trial
Just found this whilst trawling the net, its it good or bad for Ibrutinib users? https://www.nature.com/articles/s41591-020-01194-5
Just found this whilst trawling the net, its it good or bad for Ibrutinib users? https://www.nature.com/articles/s41591-020-01194-5
zaax
in
CLL Support
3 years ago
NEVRO SCS
Hi, I'm Rob and like all of you, suffered chronic pain...myself, for over four decades. I attended St Thomas Hospital INPUT and took the residential course. I was accepted to have a Spinal Chord Stimulator implanted. I was asked to take part in the clinical trials for a new stimulator produced by NEVRO
Hi, I'm Rob and like all of you, suffered chronic pain...myself, for over four decades. I attended St Thomas Hospital INPUT and took the residential course. I was accepted to have a Spinal Chord Stimulator implanted. I was asked to take part in the clinical trials for a new stimulator produced by NEVRO
nevro1
in
Pain Concern
3 years ago
CHAMP Clinical Trial Time for this kid
Greetings Brothers. Just met with my MO at Duke Cancer Institute and the clinical trials experts. Given my prostate has evolved to Gleason 10 and neuroendocrine (small cell) I'm in the process of qualifying for the CHAMP trial: Nivolumab, ipilimumab, cabazitaxel and carboplatin. I'm aware the predicament
Greetings Brothers. Just met with my MO at Duke Cancer Institute and the clinical trials experts. Given my prostate has evolved to Gleason 10 and neuroendocrine (small cell) I'm in the process of qualifying for the CHAMP trial: Nivolumab, ipilimumab, cabazitaxel and carboplatin. I'm aware the predicament
HerbieP
in
Advanced Prostate Cancer
3 years ago
Nearly 28% of 13,874 completed trials in the EU Clinical Trials Register (EUCTR) on 1 July had not posted their results"
https://www.sciencemag.org/news/2021/07/european-law-could-improve-scandalous-lack-clinical-trial-data-reporting
https://www.sciencemag.org/news/2021/07/european-law-could-improve-scandalous-lack-clinical-trial-data-reporting
Farooqji
in
Cure Parkinson's
3 years ago
Another clinical trial resource
When my sons treatment stops being effective, I start this rather panicked roller coaster ride of seeking new treatment and clinical trials. It’s just how I handle things and move forward I guess . I need to feel that I have left few stones unturned . My last search was in May. Today I got a followup
When my sons treatment stops being effective, I start this rather panicked roller coaster ride of seeking new treatment and clinical trials. It’s just how I handle things and move forward I guess . I need to feel that I have left few stones unturned . My last search was in May. Today I got a followup
strawberryjam
in
Melanoma Caregivers
3 years ago
Join us at AWARE for All - Midwest
Join us Thursday July 22nd, 4:30-6PM CDT at AWARE for All – Midwest to hear from our panelists who share their clinical trial stories and what to expect throughout the process. http://bit.ly/AWARE-MW
Join us Thursday July 22nd, 4:30-6PM CDT at AWARE for All – Midwest to hear from our panelists who share their clinical trial stories and what to expect throughout the process. http://bit.ly/AWARE-MW
ciscrp_official
Partner
in
Understanding Clinical Trials
3 years ago
Clinical Trial searches
hello all Three times during this melanoma journey, i have had to search for clinical trials. When that happens, I get totally consumed in a complex process. Thanks to the folks on this site who have offered help- i am so grateful for that. This time, i added Trialjectory to my arsenal and I wanted
hello all Three times during this melanoma journey, i have had to search for clinical trials. When that happens, I get totally consumed in a complex process. Thanks to the folks on this site who have offered help- i am so grateful for that. This time, i added Trialjectory to my arsenal and I wanted
strawberryjam
in
Melanoma Caregivers
3 years ago
CLL Society COVID-19 guidelines, & Explaining to Family and Friends Why the CDC Guidelines for Those Vaccinated - Do Not Apply to us
COVID-19, it’s not over! CLL Society will keep hammering away at this topic because we are continuing to hear that the general public, CLL patients, and even healthcare providers are still unaware that COVID-19 vaccines may not reliably protect the immunocompromised. The CLL community is lucky to have
COVID-19, it’s not over! CLL Society will keep hammering away at this topic because we are continuing to hear that the general public, CLL patients, and even healthcare providers are still unaware that COVID-19 vaccines may not reliably protect the immunocompromised. The CLL community is lucky to have
lankisterguy
Volunteer
in
CLL Support
3 years ago
Ipatasertib+abiraterone effective in men with PTEN-loss
As genomic breakdown continues in prostate cancer metastases, PTEN, a tumor suppressor gene, and the protein it makes, is often lost. PTEN deletion is common even early (18% of prostatectomy samples). Without PTEN, the cancer cell signals proliferation with a chemical called AKT. Ipatasertib inhibits
As genomic breakdown continues in prostate cancer metastases, PTEN, a tumor suppressor gene, and the protein it makes, is often lost. PTEN deletion is common even early (18% of prostatectomy samples). Without PTEN, the cancer cell signals proliferation with a chemical called AKT. Ipatasertib inhibits
Tall_Allen
in
Advanced Prostate Cancer
3 years ago
Covid-19 vaccine efficacy in immunocompromised patients/gov.uk announcement
This was published by the government today. I would say it is quite good news, but please have in mind that *the data used is Real World Data (derived from electronic health records (EHRs), claims and billing activities, product and disease registries, etc), not from clinical trials researching about
This was published by the government today. I would say it is quite good news, but please have in mind that *the data used is Real World Data (derived from electronic health records (EHRs), claims and billing activities, product and disease registries, etc), not from clinical trials researching about
zoe69
Vasculitis UK
in
Vasculitis UK
3 years ago
Stay in trial or find a new one?
Started a clinical trial with Lynparza and AZD6738 ATR inhibitor on 3/15/2021. (My profile shows detailed history from diagnosis in 2014.) On start date my PSA was 17.77. It reached a nadir of 6.92 by 5/24/2021. In two weeks, on 6/9/2021, it had gone to 11.32! This past Tuesday, two weeks later, it rise
Started a clinical trial with Lynparza and AZD6738 ATR inhibitor on 3/15/2021. (My profile shows detailed history from diagnosis in 2014.) On start date my PSA was 17.77. It reached a nadir of 6.92 by 5/24/2021. In two weeks, on 6/9/2021, it had gone to 11.32! This past Tuesday, two weeks later, it rise
hadleycash
in
Advanced Prostate Cancer
3 years ago
People of HU - Where are they now? Ryan's journey with metastatic melanoma
[i]Hello everyone, I hope you had a great week and are looking forward to a relaxing weekend. [/i] [i]Two years ago Ryan, a musician battling metastatic melanoma, shared his story with us. We recently caught up with him to see how he was getting on. Ryan is a true inspiration and a beacon for supporting
[i]Hello everyone, I hope you had a great week and are looking forward to a relaxing weekend. [/i] [i]Two years ago Ryan, a musician battling metastatic melanoma, shared his story with us. We recently caught up with him to see how he was getting on. Ryan is a true inspiration and a beacon for supporting
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
3 years ago
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