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Leukemia & Lymphoma Society (USA) provides a LLS Clinical Trial Nurse Navigator to assist you throughout the entire clinical trial process
CLINICAL TRIAL SUPPORT CENTER (CTSC)
https://www.lls.org/support-resources/clinical-trial-support-center-ctsc?c_src Finding a clinical trial can be overwhelming. Patients are often left to search on their own, leaving them with more questions than answers. Fortunately, The Leukemia & Lymphoma
CLINICAL TRIAL SUPPORT CENTER (CTSC)
https://www.lls.org/support-resources/clinical-trial-support-center-ctsc?c_src Finding a clinical trial can be overwhelming. Patients are often left to search on their own, leaving them with more questions than answers. Fortunately, The Leukemia & Lymphoma
lankisterguy
Volunteer
in
CLL Support
2 years ago
Test monthly or three months? Different PSA results from different labs?
Two issues here that might be of interest or help to some, to tackle in the same post. I have always realized there may be variations from lab to lab, but assumed they would normally be quite small. But maybe not super-small, as I read this: "Using the same laboratory is essential, because not all labs
Two issues here that might be of interest or help to some, to tackle in the same post. I have always realized there may be variations from lab to lab, but assumed they would normally be quite small. But maybe not super-small, as I read this: "Using the same laboratory is essential, because not all labs
noahware
in
Advanced Prostate Cancer
2 years ago
New cure for rheumatoid arthritis not yet in clinical trials
Forgive me if someone else posted this already, but I read about a vaccine that was discovered accidentally that looks like it will cure r.a here is the link:. https://www.drugtargetreview.com/news/98138/experimental-vaccine-a-major-breakthrough-for-rheumatoid-arthritis/
Forgive me if someone else posted this already, but I read about a vaccine that was discovered accidentally that looks like it will cure r.a here is the link:. https://www.drugtargetreview.com/news/98138/experimental-vaccine-a-major-breakthrough-for-rheumatoid-arthritis/
SpaghettiIsGood
in
NRAS
2 years ago
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Xgeva to be continued with Lu-177?
Did anyone have research on continuing with xgeva (or another bone strengthening drug) when you are on a Lu-177 clinical trial?
Did anyone have research on continuing with xgeva (or another bone strengthening drug) when you are on a Lu-177 clinical trial?
Cynthgob
in
Advanced Prostate Cancer
2 years ago
Tregs- regulatory T Cels this look interesting
Researchers have hypothesized that a particular type of white blood cell -- regulatory T cells, or Tregs -- may be inhibiting the ability of the immune system to recognize and thereby attack prostate cancer cells (as well as some other types of cancer cells). Tregs play an essential role in the immune
Researchers have hypothesized that a particular type of white blood cell -- regulatory T cells, or Tregs -- may be inhibiting the ability of the immune system to recognize and thereby attack prostate cancer cells (as well as some other types of cancer cells). Tregs play an essential role in the immune
Scout4answers
in
Advanced Prostate Cancer
2 years ago
Interesting Numbers
Those that followed me - metastatic at 57, chemotherapy and hormone therapy clinical trial, stopping Lupron/Eligard in February 2010, and starting dose testosterone replacement on Androgel in 2011. Four weeks ago I stopped the gel and replaced it with 0.4 ml of Testosterone Cypionate inter muscular twice
Those that followed me - metastatic at 57, chemotherapy and hormone therapy clinical trial, stopping Lupron/Eligard in February 2010, and starting dose testosterone replacement on Androgel in 2011. Four weeks ago I stopped the gel and replaced it with 0.4 ml of Testosterone Cypionate inter muscular twice
Hidden
in
Advanced Prostate Cancer
2 years ago
Swollen scrotum?
Has anyone had swollen scrotum.?? This started about 2 weeks ago, at same time he went off trial as new nodes found in clavicle area. Recent biopsy confirmed it is PCA!! The doctor has no idea what is reason for the swelling. Not painful but uncomfortable, ultra sound showed nothing. Also one ankle
Has anyone had swollen scrotum.?? This started about 2 weeks ago, at same time he went off trial as new nodes found in clavicle area. Recent biopsy confirmed it is PCA!! The doctor has no idea what is reason for the swelling. Not painful but uncomfortable, ultra sound showed nothing. Also one ankle
Judymin
in
Advanced Prostate Cancer
2 years ago
The Patch Trial...The Verdict is in!
I have reposted this from last year for the benefit of those of you who may have missed it. Transdermal oestradiol for androgen suppression in prostatecancer: long-term cardiovascular outcomes from the randomised Prostate Adenocarcinoma Transcutaneous Hormone (PATCH) trial programme. Summary Background
I have reposted this from last year for the benefit of those of you who may have missed it. Transdermal oestradiol for androgen suppression in prostatecancer: long-term cardiovascular outcomes from the randomised Prostate Adenocarcinoma Transcutaneous Hormone (PATCH) trial programme. Summary Background
E2-Guy
in
Advanced Prostate Cancer
2 years ago
10 Years With CLL: Two Trials & Lifesaving CAR T-Cell Therapy
I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have known for many years as DebinOz. She is one of the few I know of with a more aggressive form of CLL than mine. And I think she has more air miles than my 750,000 with United. Len - See: https://patientpower.info
I rarely cross post to Patient Power but today there is a story by a fellow CLL patient I have known for many years as DebinOz. She is one of the few I know of with a more aggressive form of CLL than mine. And I think she has more air miles than my 750,000 with United. Len - See: https://patientpower.info
lankisterguy
Volunteer
in
CLL Support
2 years ago
Israeli study shows vaccinating pregnant women with Pfizer shot is safe for fetus
Examining thousands of women for incidence of preterm births, hospitalizations, birth defects and mortality, research says no difference between vaccinated and unvaccinated 10 February 2022 Pfizer’s coronavirus vaccines are completely safe for pregnant women’s fetuses, and were not associated with
Examining thousands of women for incidence of preterm births, hospitalizations, birth defects and mortality, research says no difference between vaccinated and unvaccinated 10 February 2022 Pfizer’s coronavirus vaccines are completely safe for pregnant women’s fetuses, and were not associated with
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
2 years ago
Clinical Trials
Can anyone tell me the criteria, for enrolling on a Clinical trial. Do you need to be referred by your GP? Thanks.
Can anyone tell me the criteria, for enrolling on a Clinical trial. Do you need to be referred by your GP? Thanks.
Bluebird_77
in
The UK Mastocytosis Support Group
2 years ago
Nitric Oxide Nasal Spray (NONS) ... is this all it is cracked up to be?
Dear All, My colleague in India sent me this: https://www.prnewswire.co.uk/news-releases/glenmark-and-sanotize-announce-positive-results-from-phase-3-clinical-trial-of-nons-fabispray-r-in-non-hospitalized-adult-indian-patients-with-covid-19-853122218.html "Phase 3 trial in India met the key endpoints
Dear All, My colleague in India sent me this: https://www.prnewswire.co.uk/news-releases/glenmark-and-sanotize-announce-positive-results-from-phase-3-clinical-trial-of-nons-fabispray-r-in-non-hospitalized-adult-indian-patients-with-covid-19-853122218.html "Phase 3 trial in India met the key endpoints
Me2AsWell
in
CLL Support
2 years ago
The Metabolic Syndrome [MetS] & PCa
The "Metabolic syndrome is a clustering of at least three of the following five medical conditions:
- abdominal obesity,
- high blood pressure,
- high blood sugar,
- high serum triglycerides,
and
- low serum high-density lipoprotein (HDL).
" [1] "In the
The "Metabolic syndrome is a clustering of at least three of the following five medical conditions:
- abdominal obesity,
- high blood pressure,
- high blood sugar,
- high serum triglycerides,
and
- low serum high-density lipoprotein (HDL).
" [1] "In the
pjoshea13
in
Advanced Prostate Cancer
2 years ago
UK (London) based Ballet and Parkinson's clinical trial
I've just signed up for this! For anyone in easy travelling distance to King's College Hospital or the English National Ballet, the trial is still recruiting. There will be 3 cohorts with differing symptom severity. I think I'm allowed to say this - just sharing what I'm doing! Never done ballet in
I've just signed up for this! For anyone in easy travelling distance to King's College Hospital or the English National Ballet, the trial is still recruiting. There will be 3 cohorts with differing symptom severity. I think I'm allowed to say this - just sharing what I'm doing! Never done ballet in
Smokeypurple
in
Cure Parkinson's
2 years ago
Clinical trials
Is anyone on the mastocytosis clinical trial at Guys in London. How are you finding it? My first appointment is in March
Is anyone on the mastocytosis clinical trial at Guys in London. How are you finding it? My first appointment is in March
Mothertay
in
The UK Mastocytosis Support Group
2 years ago
STARTING 4th CYCLE OF NX-2127 TRIAL
Here's an update from my newest clinical trial, Nurex-2127. This first phase is the dose finding part. I started on 300mg, the max amount at the time. Things started off well, but after three weeks, my anc dropped to 1.0, the study requires 1.5 or higher. I found myself off of the study until I got
Here's an update from my newest clinical trial, Nurex-2127. This first phase is the dose finding part. I started on 300mg, the max amount at the time. Things started off well, but after three weeks, my anc dropped to 1.0, the study requires 1.5 or higher. I found myself off of the study until I got
steve5441
in
CLL Support
2 years ago
Anyone on Balversa trial x prostate cancer?
My b.f. has been through chemo, radiation and all types of oral meds. Currently his tumors have multiplied and we are considering a Balversa clinical trial vs immunotherapy. Does anyone tried this med before? Thanks , would appreciate any feedback.
My b.f. has been through chemo, radiation and all types of oral meds. Currently his tumors have multiplied and we are considering a Balversa clinical trial vs immunotherapy. Does anyone tried this med before? Thanks , would appreciate any feedback.
Michelle56pr
in
Advanced Prostate Cancer
2 years ago
I get it
Hello Seattle Dan....Do not want to sway you one way or another..Just wanted to share with you because I had to make a similar decision...The areas medistinal and superclavicular are areas where I they have found metastasis on me. Was on 1st line ADH when 6 spots showed up on a PSMA. Previously had
Hello Seattle Dan....Do not want to sway you one way or another..Just wanted to share with you because I had to make a similar decision...The areas medistinal and superclavicular are areas where I they have found metastasis on me. Was on 1st line ADH when 6 spots showed up on a PSMA. Previously had
myamic
in
Advanced Prostate Cancer
2 years ago
Dr. Jonathan Sackner-Bernstein - "What If I Discovered the Silver Bullet?" on Zoom at 7.30pm London time on Monday 21st Feb
I am delighted to announce that our next zoom session will be taking place at 7.30 pm London time on Monday, the 21st of February. Dr. Jonathan Sackner-Bernstein will be talking to us about: "What If I Discovered the Silver Bullet?" Motivated by a friend’s suffering from Parkinson’s, Dr. Sackner-Bernstein
I am delighted to announce that our next zoom session will be taking place at 7.30 pm London time on Monday, the 21st of February. Dr. Jonathan Sackner-Bernstein will be talking to us about: "What If I Discovered the Silver Bullet?" Motivated by a friend’s suffering from Parkinson’s, Dr. Sackner-Bernstein
Michel0220
in
Cure Parkinson's
2 years ago
Status on Xtandi effect
Hi Folks, you may remember I was speculating that the Xtandi dosage was designed in the clinical trials to be at the max possible without incurring adverse side effects. There was little attention paid to the efficacy of the doses. My theory was that while we need a high dose to reach saturation, we
Hi Folks, you may remember I was speculating that the Xtandi dosage was designed in the clinical trials to be at the max possible without incurring adverse side effects. There was little attention paid to the efficacy of the doses. My theory was that while we need a high dose to reach saturation, we
Stoneartist
in
Advanced Prostate Cancer
2 years ago
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