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Hello
Just got back out of the psychiatric hospital for the 3rd time in 2 years. Take 4mg ropinorole at night. Had RLS since the age of 12, I am 46. I am new to this forum but have been a member of the old Nightwalker board in the early 2000's . Don't know if still exists. Weaning down again, but doing
Just got back out of the psychiatric hospital for the 3rd time in 2 years. Take 4mg ropinorole at night. Had RLS since the age of 12, I am 46. I am new to this forum but have been a member of the old Nightwalker board in the early 2000's . Don't know if still exists. Weaning down again, but doing
discgolfrules
in
Restless Legs Syndrome
2 years ago
UPDATE AFTER IMRT
Haven't posted in a while, but here's a quick update (My Bio has the full details from diagnosis to present.). After recovering from RALP in mid February I had my PSA checked in late May. PSA was 8.11 which led to my Urology Oncologist (UO) starting me on Casodex & Eligard, and ordering a GA-68 PSMA-PET
Haven't posted in a while, but here's a quick update (My Bio has the full details from diagnosis to present.). After recovering from RALP in mid February I had my PSA checked in late May. PSA was 8.11 which led to my Urology Oncologist (UO) starting me on Casodex & Eligard, and ordering a GA-68 PSMA-PET
GMan-62
in
Advanced Prostate Cancer
2 years ago
Lookin for next phase of my PC fight
Just a short background. Surgery in 2009, IMRT completed in 08/2021 when PSA was at 0.12. I had a negative PSMA pet scan when my PSA was 0.3. My latest PSA result on 11/4/20222 was 0.42 up from 0.3 6 months ago. Because of my age, my Oncologist wants to wait as long as possible before starting me
Just a short background. Surgery in 2009, IMRT completed in 08/2021 when PSA was at 0.12. I had a negative PSMA pet scan when my PSA was 0.3. My latest PSA result on 11/4/20222 was 0.42 up from 0.3 6 months ago. Because of my age, my Oncologist wants to wait as long as possible before starting me
old64horn
in
Advanced Prostate Cancer
2 years ago
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Not losing weight - help!!
Hello All, I started exercising about 1 month ago. Mostly weights but have now started adding cardio. I haven’t even lost 1lb in weight. I’ve lost about 2 inches off my waist. My shoulders, arms & legs are clearly taking on shape…I just haven’t lost any weight. I am diabetic & take metformin & gliclazide
Hello All, I started exercising about 1 month ago. Mostly weights but have now started adding cardio. I haven’t even lost 1lb in weight. I’ve lost about 2 inches off my waist. My shoulders, arms & legs are clearly taking on shape…I just haven’t lost any weight. I am diabetic & take metformin & gliclazide
Rickyg83
in
Weight Loss Support
2 years ago
High blood pressure
I am a 45 year old woman. I discovered I had high BP when I had to go to hospital for heavy bleeding. It read 230/180 which was a surprise to me, actually I was very afraid. Doctor prescribed losartan 50mg at first then 100mg. Ally bloods came back normal.It has come down to a better reading of 140
I am a 45 year old woman. I discovered I had high BP when I had to go to hospital for heavy bleeding. It read 230/180 which was a surprise to me, actually I was very afraid. Doctor prescribed losartan 50mg at first then 100mg. Ally bloods came back normal.It has come down to a better reading of 140
Tiffan-future123
in
High Blood Pressure Support
2 years ago
Sacrum tumor biopsy
F/U on my post about Lynparza on my hubby, suggesting biopsy prior to IMRT, but at 80 yrs old, worried about risks going through bone and side effects. Dx last year with pc with meths to bones, G9, Orch last year, been on Nubeqa, other mets stable and psa still at <0.1. New met in Sacrum RO says was
F/U on my post about Lynparza on my hubby, suggesting biopsy prior to IMRT, but at 80 yrs old, worried about risks going through bone and side effects. Dx last year with pc with meths to bones, G9, Orch last year, been on Nubeqa, other mets stable and psa still at <0.1. New met in Sacrum RO says was
Pops78
in
Advanced Prostate Cancer
2 years ago
High Cholesterol
Hi Guys, I'm new to cholesterol support. I was diagnosed with cholesterol when I was 40 years old, and immediately got put on Atorvastatin by my consultant. Also not only I have cholesterol, also prediabetes and recently got diagnosed with stage 4 endometriosis. Basically a lot is going on with
Hi Guys, I'm new to cholesterol support. I was diagnosed with cholesterol when I was 40 years old, and immediately got put on Atorvastatin by my consultant. Also not only I have cholesterol, also prediabetes and recently got diagnosed with stage 4 endometriosis. Basically a lot is going on with
Oceanblue2016
in
Cholesterol Support
2 years ago
Blood test question
I need to book next blood tests. I’ve always had my bloods done first thing, no food or hot drinks, no thyroid meds until after test etc. I’m not sure whether I need to do this any more. I’ve been on T3/T4 combo since November 2020. I have raised cholesterol, average results around 7, was 8 and has been
I need to book next blood tests. I’ve always had my bloods done first thing, no food or hot drinks, no thyroid meds until after test etc. I’m not sure whether I need to do this any more. I’ve been on T3/T4 combo since November 2020. I have raised cholesterol, average results around 7, was 8 and has been
Flecmac
in
Thyroid UK
2 years ago
portal hypertension.
Could anyone tell me what stage liver disease I'm at to have portal hypertension & gastric & oesophagus varices. Thank you.
Could anyone tell me what stage liver disease I'm at to have portal hypertension & gastric & oesophagus varices. Thank you.
Chichi58
in
British Liver Trust
2 years ago
Anyone on Lymparza with positive results?
Have bone mets but been on Nubequa since 01/22 and have more mets now at Sacrum and tail bone. Orch last year with good PSA since. Either 3D or IMRT to start soon x 10 days for 3D, (not sure time for IMRT). RO says mets there on scans of 2/22 but small, now larger. We didn't know. MO wants to
Have bone mets but been on Nubequa since 01/22 and have more mets now at Sacrum and tail bone. Orch last year with good PSA since. Either 3D or IMRT to start soon x 10 days for 3D, (not sure time for IMRT). RO says mets there on scans of 2/22 but small, now larger. We didn't know. MO wants to
Pops78
in
Advanced Prostate Cancer
2 years ago
What Do You Make of This?
https://www.redjournal.org/article/S0360-3016(22)03349-1/fulltext I had a Gleason 4 tumor (2 cm x 1 cm) with a PSA in the 20's. Is this saying that targeted treatment with no or limited ADT would have been sufficient, especially if HDR brachytherapy were used with IMRT?
https://www.redjournal.org/article/S0360-3016(22)03349-1/fulltext I had a Gleason 4 tumor (2 cm x 1 cm) with a PSA in the 20's. Is this saying that targeted treatment with no or limited ADT would have been sufficient, especially if HDR brachytherapy were used with IMRT?
ADTMan
in
Advanced Prostate Cancer
2 years ago
Biomarkers as Predictive Tools for Selection of Treatment
A good reference for the state of art in biomarkers...some good work is being done that may help the community of men in this group. Be forewarned; PSA of 4.0 is useless...the Dr in this presentation says; "Its one of the worst decision in Oncology." DO NOT wait for PSA to get this high...do not depend
A good reference for the state of art in biomarkers...some good work is being done that may help the community of men in this group. Be forewarned; PSA of 4.0 is useless...the Dr in this presentation says; "Its one of the worst decision in Oncology." DO NOT wait for PSA to get this high...do not depend
RMontana
in
Active Surveillance - Prostate Cancer
2 years ago
What is your experience of TENS or Ultrasound Therapy ?
Hope everyone is having a good Fibro day , despite the heat. I am considering trying TENS or Ultrasound Therapy to help improve my Fibro pain. I am hoping that you friendly , helpful people on the forum can help me make a choice by telling me about your experience with these therapies. Have you used
Hope everyone is having a good Fibro day , despite the heat. I am considering trying TENS or Ultrasound Therapy to help improve my Fibro pain. I am hoping that you friendly , helpful people on the forum can help me make a choice by telling me about your experience with these therapies. Have you used
Blearyeyed
in
Fibromyalgia Action UK
2 years ago
Blood in the urine
Two months ago I noticed blood in my Urine. It only happened once but then in September, it happened again so my Urologist performed a cystoscopy in his office and saw some irritation in the bladder that may have been a result of the IMRT I had last year. . He ordered a CT scan of my groin area that
Two months ago I noticed blood in my Urine. It only happened once but then in September, it happened again so my Urologist performed a cystoscopy in his office and saw some irritation in the bladder that may have been a result of the IMRT I had last year. . He ordered a CT scan of my groin area that
old64horn
in
Advanced Prostate Cancer
2 years ago
Temgesic - Buprenorphine difference
Hello team 😊 I have recently started Temgesic 🥳🥳 and my neuro advised breaking the dose to twice in 24 hours. I made a straight switch, (with a 12 or so hour break from Oxynorm) and so far everything is very positive. After many years of broken sleep, say around 4/5 hours a night, I can now sleep
Hello team 😊 I have recently started Temgesic 🥳🥳 and my neuro advised breaking the dose to twice in 24 hours. I made a straight switch, (with a 12 or so hour break from Oxynorm) and so far everything is very positive. After many years of broken sleep, say around 4/5 hours a night, I can now sleep
smilingjane
in
Restless Legs Syndrome
2 years ago
donedarone
i am on vacation until Friday. Recently I have found that my Donedarone tablets are sticking in my throat. I was told it may have gone down and just feels like it’s stuck. It’s a big tablet like Panadol only bigger. However I am now finding that my resting pulse is anywhere between 60 and 70 whereas
i am on vacation until Friday. Recently I have found that my Donedarone tablets are sticking in my throat. I was told it may have gone down and just feels like it’s stuck. It’s a big tablet like Panadol only bigger. However I am now finding that my resting pulse is anywhere between 60 and 70 whereas
President2012
in
AF Association
2 years ago
PLAC test
Just sharing my recent experience. I’m in my early 50s, male, not overweight and very active. Blood pressure fine, etc. No medications. For a few years, I’ve had slightly high cholesterol (total 5.6, LDL 3.4, other figures and ratios are good). I did have a heart CT scan abroad out of curiosity three
Just sharing my recent experience. I’m in my early 50s, male, not overweight and very active. Blood pressure fine, etc. No medications. For a few years, I’ve had slightly high cholesterol (total 5.6, LDL 3.4, other figures and ratios are good). I did have a heart CT scan abroad out of curiosity three
CocoChannel
in
Cholesterol Support
2 years ago
Quick question on tapering with insulin.
Hi all, On 3mg of pred & due to taper to 2.5 tomorrow. I’m type2 diabetic on liquid Metformin & Gliclazide & hyperglycaemic now for 3 months.. After 2 visits to A&E over the August bank holiday with bg of 29.7 & 22.7, my GP and diabetes nurse have decided I should be put on Insulin. I’ve started injecting
Hi all, On 3mg of pred & due to taper to 2.5 tomorrow. I’m type2 diabetic on liquid Metformin & Gliclazide & hyperglycaemic now for 3 months.. After 2 visits to A&E over the August bank holiday with bg of 29.7 & 22.7, my GP and diabetes nurse have decided I should be put on Insulin. I’ve started injecting
Cact
in
PMRGCAuk
2 years ago
Subclinical hypothyroidism and cholesterol levels in blood
What is meant by subclinical hypothyroidism (if anything) has been the subject of much agonised debate as to whether or not to supplement with T4. On a different tack, patients with very low TSH on therapy are warned about future heart problems (AF). This paper shows that cholesterol, especially the
What is meant by subclinical hypothyroidism (if anything) has been the subject of much agonised debate as to whether or not to supplement with T4. On a different tack, patients with very low TSH on therapy are warned about future heart problems (AF). This paper shows that cholesterol, especially the
diogenes
in
Thyroid UK
2 years ago
Change in orgasm feeling after PCa treatment?
Gents, Curious: are you able to orgasm after PCa treatment? If so, is the feeling different than pre-treatment? How is it different? I had IMRT, ADT, and brachyboost. Definitely different for me pre/post- treatment. Sensation is not as intense now. Location of pleasure seems to be more concentrated
Gents, Curious: are you able to orgasm after PCa treatment? If so, is the feeling different than pre-treatment? How is it different? I had IMRT, ADT, and brachyboost. Definitely different for me pre/post- treatment. Sensation is not as intense now. Location of pleasure seems to be more concentrated
EdinBmore
in
Prostate Cancer And Gay Men
2 years ago
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