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Life Is horrible
Hi ๐๐ฝ I'm Sal and I just started dialysis ๐ I'm finding it kinda hard, somedays it's ok and others it's not.. if you have any advice on dialysis please share with me thank you
Hi ๐๐ฝ I'm Sal and I just started dialysis ๐ I'm finding it kinda hard, somedays it's ok and others it's not.. if you have any advice on dialysis please share with me thank you
Sal6395
in
Kidney Dialysis
7 years ago
Kidneys kidneys kidneys kidneys
I was diagnosed when I was 2. Started dialysis when I was 12 had my first kidney transplant at 13. I have had a total of 4 kidney transplants and have been on dialysis before and after all my kidney transplants. 2 cadavers and 2 family members. My life and my health is complicated. But I feel blessed
I was diagnosed when I was 2. Started dialysis when I was 12 had my first kidney transplant at 13. I have had a total of 4 kidney transplants and have been on dialysis before and after all my kidney transplants. 2 cadavers and 2 family members. My life and my health is complicated. But I feel blessed
yayaca
in
Kidney Donation
7 years ago
Scared of my dialysis center
I am beside myself. Been doing dialysis for almost two years. I do real good with it. But where i go is horrid. The techs are brutal mean. I have bruises in my legs where they rammed me with chairs and I have been bruised for months. I reported it to higher ips and was just ignored Ive been left fifty
I am beside myself. Been doing dialysis for almost two years. I do real good with it. But where i go is horrid. The techs are brutal mean. I have bruises in my legs where they rammed me with chairs and I have been bruised for months. I reported it to higher ips and was just ignored Ive been left fifty
Hidden
in
Kidney Dialysis
7 years ago
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Dad has stage 5 CKD
My Dad has chronic nephritis and now he is down to only 14% function which puts him at stage 5 :( The Dr is not suggesting dialysis, my dad is 86 and has not really asked why it's not being offered. I am looking at diet etc and any supplements that might help him but everything I read online seems to
My Dad has chronic nephritis and now he is down to only 14% function which puts him at stage 5 :( The Dr is not suggesting dialysis, my dad is 86 and has not really asked why it's not being offered. I am looking at diet etc and any supplements that might help him but everything I read online seems to
HeatherBatch
in
Early CKD Support
7 years ago
Praying for a miracle
Hello everyone my name is Crystal. My 15 year old son has had kidney disease since he was 2 years old. He started with nephrotic syndrome that later developed into end stage renal disease. He was put on dialysis in 2009 but he was not in total renal failure. It has been a complicated journey where we
Hello everyone my name is Crystal. My 15 year old son has had kidney disease since he was 2 years old. He started with nephrotic syndrome that later developed into end stage renal disease. He was put on dialysis in 2009 but he was not in total renal failure. It has been a complicated journey where we
crystaleffexx
in
Kidney Disease
7 years ago
Financial help
Hi I was wondering if anyone had any suggestions. I work 3 days a week and my partner works full time due to this our joint income is above theach rate to qualify for any means tested benefit. We have a house with a mortgage and we live within our means However as I now work part time due to dialysis
Hi I was wondering if anyone had any suggestions. I work 3 days a week and my partner works full time due to this our joint income is above theach rate to qualify for any means tested benefit. We have a house with a mortgage and we live within our means However as I now work part time due to dialysis
fashiongee
in
Dialysis Support
7 years ago
Confused about fluid restriction
Hi all hope you are all doing well My gfr is 7% and not on dialysis but have my fistula ready for action. For the last 15months I've been on fluid restriction of 1000mls and 160mg of diuretic. All was going well until the last 10 weeks and all I seem to do is gain fluid. Saw my consultant Wednesday and
Hi all hope you are all doing well My gfr is 7% and not on dialysis but have my fistula ready for action. For the last 15months I've been on fluid restriction of 1000mls and 160mg of diuretic. All was going well until the last 10 weeks and all I seem to do is gain fluid. Saw my consultant Wednesday and
Charlene_Coxhead
in
Dialysis Support
7 years ago
No hope and we don't understand why
Well, fully armed with all the information about lung cancer protocols etc, we returned to see the Oncologist this week. We had such a bizarre conversation that I really feel we are in a catch 22 situation . We were told that my husbands stage 4 adenocarcinoma was not going to be treated as he is negative
Well, fully armed with all the information about lung cancer protocols etc, we returned to see the Oncologist this week. We had such a bizarre conversation that I really feel we are in a catch 22 situation . We were told that my husbands stage 4 adenocarcinoma was not going to be treated as he is negative
alice111
in
The Roy Castle Lung Cancer Foundation
7 years ago
Has anyone had Removal of 1 kidney. Being Prepped for dialysis
My mum has just been told that she needs to have one kidney taken out and is soon to be prepped for dialysis which will be 3x a week. They want to operate before Christmas. She is scared and I'm going out of my mind. She has been told that the surgery has many complications. She is on the transplant
My mum has just been told that she needs to have one kidney taken out and is soon to be prepped for dialysis which will be 3x a week. They want to operate before Christmas. She is scared and I'm going out of my mind. She has been told that the surgery has many complications. She is on the transplant
YasmeenK
in
PKD Charity for Autosomal Dominant PKD
7 years ago
Yes, there is such a thing as a "living donor".
There are so many questions to be asked and answered regarding kidney disease, dialysis & donating. Check out the link below for some info on increasing living donors! https://transplantfirst.org/increasing-living-kidney-donor-transplants/
There are so many questions to be asked and answered regarding kidney disease, dialysis & donating. Check out the link below for some info on increasing living donors! https://transplantfirst.org/increasing-living-kidney-donor-transplants/
Zay-KidneyDonorGuru
in
Kidney Disease
7 years ago
Decisions
My phone has not stopped ringing today... has anyone ever heard of starting dialysis while in stage 3 or 4 instead of waiting due to other health complications.... everything I have read says not til stage 5????
My phone has not stopped ringing today... has anyone ever heard of starting dialysis while in stage 3 or 4 instead of waiting due to other health complications.... everything I have read says not til stage 5????
Rmchan3
in
Kidney Disease
7 years ago
New to Unlocked
Listing for transplant and surgeon wants to remove both kidneys before hand to reduce infection risks. Anyone ever been in this situation? Could be some time before I get a match. Still have a little function, but I am on dialysis. Not sure about this.
Listing for transplant and surgeon wants to remove both kidneys before hand to reduce infection risks. Anyone ever been in this situation? Could be some time before I get a match. Still have a little function, but I am on dialysis. Not sure about this.
Kokoczka
in
Early CKD Support
7 years ago
In Search of A Living Donor
Hello! My husband just started dialysis in late August. He is actively on the transplant list but unfortunately we have not heard anything yet. Just wanted to join the site to get some feedback on everyone's experience. God Bless!
Hello! My husband just started dialysis in late August. He is actively on the transplant list but unfortunately we have not heard anything yet. Just wanted to join the site to get some feedback on everyone's experience. God Bless!
teamtank
in
Kidney Dialysis
7 years ago
In Search of A Living Donor
Hello! My husband just started dialysis in late August. He is actively on the transplant list but unfortunately we have not heard anything yet. Just wanted to join the site to get some feedback on everyone's experience. God Bless!
Hello! My husband just started dialysis in late August. He is actively on the transplant list but unfortunately we have not heard anything yet. Just wanted to join the site to get some feedback on everyone's experience. God Bless!
teamtank
in
Kidney Dialysis
7 years ago
In Search of A Living Donor
Hello! My husband just started dialysis in late August. He is actively on the transplant list but unfortunately we have not heard anything yet. Just wanted to join the site to get some feedback on everyone's experience. God Bless!
Hello! My husband just started dialysis in late August. He is actively on the transplant list but unfortunately we have not heard anything yet. Just wanted to join the site to get some feedback on everyone's experience. God Bless!
teamtank
in
Kidney Dialysis
7 years ago
Destiny Driven
Hello Kidney Family Just wondering...are any of my fellow dialysis patients dealing with really dark eyes? Is there anything that helps? And don't say eye drops I've tried that
Hello Kidney Family Just wondering...are any of my fellow dialysis patients dealing with really dark eyes? Is there anything that helps? And don't say eye drops I've tried that
Purposed
in
Kidney Disease
7 years ago
Kayla
My daughter is suffering from stage 4 due to her SLE Lupus nephritis receiving dialysis for just a month three times at week . Is so hard she is a very active young girl with 21 years old . It been hard bcuz she her new diet . Plzs can anyone help with suggestion about diet .
My daughter is suffering from stage 4 due to her SLE Lupus nephritis receiving dialysis for just a month three times at week . Is so hard she is a very active young girl with 21 years old . It been hard bcuz she her new diet . Plzs can anyone help with suggestion about diet .
Kayla321
in
Kidney Dialysis
7 years ago
Staying positive is the best thing you can do
Hi I've been on dialysis for a year and a half due to having two strokes a year apart it affected my kidneys so I'm on the transplant list
Hi I've been on dialysis for a year and a half due to having two strokes a year apart it affected my kidneys so I'm on the transplant list
Kiddie2
in
Kidney Transplant
7 years ago
Any caregivers out there?
Hi I'm new here and I am the caregiver of a new hemodialysis patient. Are there any groups for caregivers? My husband was gifted a kidney in 2012 by a friend and former co-worker of mine. From the beginning there was a problem with too much protein. Nothing the doctors did could help and he now at
Hi I'm new here and I am the caregiver of a new hemodialysis patient. Are there any groups for caregivers? My husband was gifted a kidney in 2012 by a friend and former co-worker of mine. From the beginning there was a problem with too much protein. Nothing the doctors did could help and he now at
Lovespuppies
in
Kidney Transplant
7 years ago
To My Fellow Americans
I'm currently looking at all types of dialysis so that when I have to choose one I can make an intelligent, informed choice. The article below was sent to me yesterday and if you are or believe you may have to be on dialysis this seems to be mandatory, required reading. I copied this post from the e-mail
I'm currently looking at all types of dialysis so that when I have to choose one I can make an intelligent, informed choice. The article below was sent to me yesterday and if you are or believe you may have to be on dialysis this seems to be mandatory, required reading. I copied this post from the e-mail
Hidden
in
Kidney Dialysis
7 years ago
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