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Rocking Kidney Disease
I was diagnosed with FSGS when I was 18 years old. I was very lucky and didn’t have to start dialysis until I was 40 years old. I’ve been on dialysis for 6 months. I’ve been on the transplant list for 7 years, but wasn’t active because my kidneys were still holding on. I received several offers but declined
I was diagnosed with FSGS when I was 18 years old. I was very lucky and didn’t have to start dialysis until I was 40 years old. I’ve been on dialysis for 6 months. I’ve been on the transplant list for 7 years, but wasn’t active because my kidneys were still holding on. I received several offers but declined
Curvychic_76
in
Kidney Transplant
7 years ago
Women on dialysis
Hi I’m Oneisha I’ve been on hemo dialysis about 4 months and did PD before that so all together I’ve been on dialysis a year now...I recently started back having my menstrual cycle after not having one for almost a year is this normal? Has anyone else experienced this?
Hi I’m Oneisha I’ve been on hemo dialysis about 4 months and did PD before that so all together I’ve been on dialysis a year now...I recently started back having my menstrual cycle after not having one for almost a year is this normal? Has anyone else experienced this?
92nova
in
Kidney Transplant
7 years ago
My Testimony
Hello all, I had been on dialysis for 6 1/2 years before being blessed with a Kidney Transplants on July 8, 2015. My kidneys shut down from FSGS which means that something inside my kidney attacked itself and caused them to shut down. This is how my doctors explained it to me. I have no history of diabetes
Hello all, I had been on dialysis for 6 1/2 years before being blessed with a Kidney Transplants on July 8, 2015. My kidneys shut down from FSGS which means that something inside my kidney attacked itself and caused them to shut down. This is how my doctors explained it to me. I have no history of diabetes
pgjohnson2012
in
Kidney Transplant
7 years ago
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Introduction
Hello everyone, I am new to this forum. I was on dialysis for ten years prior to receiving a kidney transplant. I was 15 years old when I was diagnosed with Glomerulonephritis. I did not start dialysis treatments till I was in my early forties.I am so very thankful for this healthy kidney. I am going
Hello everyone, I am new to this forum. I was on dialysis for ten years prior to receiving a kidney transplant. I was 15 years old when I was diagnosed with Glomerulonephritis. I did not start dialysis treatments till I was in my early forties.I am so very thankful for this healthy kidney. I am going
Hidden
in
Kidney Transplant
7 years ago
Need answers
Does person with CKD 3 always end up on dialysis?
Does person with CKD 3 always end up on dialysis?
cheetah8351
in
Early CKD Support
7 years ago
Dilemma
Hi after my liver transplant nearly two years which was combined with a kidney transplant (luckily my liver transplant is good but the kidney failed. ) Now I am faced with the choice of staying on dialysis or going for another kidney there are advantages and disadvantages 1 ) I would like to come off
Hi after my liver transplant nearly two years which was combined with a kidney transplant (luckily my liver transplant is good but the kidney failed. ) Now I am faced with the choice of staying on dialysis or going for another kidney there are advantages and disadvantages 1 ) I would like to come off
Elouise444
in
British Liver Trust
7 years ago
NEW TO SITE AND DIALYSIS
Hello, My very good friend (John) just had his second kidney removed due to Kidney Cancer. He was just released from the hospital a few days ago. My best friend is his life companion and caretaker. The doctors gave my friends almost no information on how to take care of him, what to eat, what to
Hello, My very good friend (John) just had his second kidney removed due to Kidney Cancer. He was just released from the hospital a few days ago. My best friend is his life companion and caretaker. The doctors gave my friends almost no information on how to take care of him, what to eat, what to
gundomom
in
Kidney Dialysis
7 years ago
My father 80 years old has only 20% liver functioning, what are the prospects?
My father 80 years old. He is hospitalized since two weeks under treatment by hepatologist. Doctor is saying he has liver cirrhosis middle grade and liver functioning only 20%. kidney also affected and the creatinine reached to 4 mg/dl. Dialysis have been done twice. Creatinine dropped down to 2.2 mg
My father 80 years old. He is hospitalized since two weeks under treatment by hepatologist. Doctor is saying he has liver cirrhosis middle grade and liver functioning only 20%. kidney also affected and the creatinine reached to 4 mg/dl. Dialysis have been done twice. Creatinine dropped down to 2.2 mg
subhanmines
in
British Liver Trust
7 years ago
New here
Hi, How are you all? I'm on hemo dialysis eight and half year,that's after I lost my 16 years transplant.I have a very good kidney center-northwest kidney center. I hope I can have a good community here especially on rainy days, amen.
Hi, How are you all? I'm on hemo dialysis eight and half year,that's after I lost my 16 years transplant.I have a very good kidney center-northwest kidney center. I hope I can have a good community here especially on rainy days, amen.
mingmiley
in
Kidney Dialysis
7 years ago
Dialysis
Dear to whom it may concern I was on dialysis for 8 years .I think everyone feels the same at some point there was a few times that I spoke to my dr and told him I was wanting to stop it .let me encourage please don't stop dialysis .
Dear to whom it may concern I was on dialysis for 8 years .I think everyone feels the same at some point there was a few times that I spoke to my dr and told him I was wanting to stop it .let me encourage please don't stop dialysis .
Astridstuart
in
Kidney Dialysis
7 years ago
Annoying cough
I have obliterative bronchiolitis and I'm on dialysis. For the past 3 weeks I've had a cough and recently my appetite hasn't been good. Had a chest xray which came back clear. Got blood tests done and there is no infection, just low in phosphate because I'm not eating so good. Have had antibiotics from
I have obliterative bronchiolitis and I'm on dialysis. For the past 3 weeks I've had a cough and recently my appetite hasn't been good. Had a chest xray which came back clear. Got blood tests done and there is no infection, just low in phosphate because I'm not eating so good. Have had antibiotics from
Elisa82
in
Lung Conditions Community Forum
7 years ago
I'm new here...hello!
Just signed up! I'm hopeful I'll find information and support from other dialysis patients. I was diagnosed in 2015 with multiple myeloma, and within a few weeks I experienced kidney failure. My doctors were hopeful my dialysis might be temporary but two years later, I am still receiving treatment
Just signed up! I'm hopeful I'll find information and support from other dialysis patients. I was diagnosed in 2015 with multiple myeloma, and within a few weeks I experienced kidney failure. My doctors were hopeful my dialysis might be temporary but two years later, I am still receiving treatment
doxiemom
in
Kidney Disease
7 years ago
Dialysis Ports exhausted
My husband has been on dialysis for over 5 years since he was 45 years old. He has had about 8 failed ports and about 10-12 different catheters installed. He just received the Hero graft port last week and it has already stopped working. The surgeon said there is nothing else he can do. How do we find
My husband has been on dialysis for over 5 years since he was 45 years old. He has had about 8 failed ports and about 10-12 different catheters installed. He just received the Hero graft port last week and it has already stopped working. The surgeon said there is nothing else he can do. How do we find
channah7
in
Kidney Dialysis
7 years ago
PASSED BY THE U.S. SENATE as posted in the Nephrology News and Issues
Bill that would expand telehealth options for home dialysis patients passes Senate REBECCA ZUMOFF — OCTOBER 2, 2017 Getty Images/iStockphoto/ThinkStock On Sept. 26, the U.S. Senate unanimously passed the Creating High-Quality Results and Outcomes Necessary to Improve Chronic (CHRONIC) Care Act of
Bill that would expand telehealth options for home dialysis patients passes Senate REBECCA ZUMOFF — OCTOBER 2, 2017 Getty Images/iStockphoto/ThinkStock On Sept. 26, the U.S. Senate unanimously passed the Creating High-Quality Results and Outcomes Necessary to Improve Chronic (CHRONIC) Care Act of
Hidden
in
Kidney Dialysis
7 years ago
Dialysis Port
Any advice for receiving a dialysis port? Regarding care and dialysis?
Any advice for receiving a dialysis port? Regarding care and dialysis?
AlexysB
in
Kidney Dialysis
7 years ago
My latest life happenings.
I am having difficult times. My sweet husband passed away September 20.He had struggled with COPD for the past 6 months. So now I have to face dialysis on my own. With God's help, I know I can. I need your prayers and good thoughts. I am totally stressed out and soooo tired.
I am having difficult times. My sweet husband passed away September 20.He had struggled with COPD for the past 6 months. So now I have to face dialysis on my own. With God's help, I know I can. I need your prayers and good thoughts. I am totally stressed out and soooo tired.
judystuddard
in
Kidney Dialysis
7 years ago
Declining GFR
Just got my 3 month bloodwork and my GFR dropped from 14 to 11. My doctor is waiting for me to tell him it's time to start dialysis. I work full time and I am wondering what the recovery time is when you have the peritoneal port put in? I have my bad days, but so far, I am hanging on.
Just got my 3 month bloodwork and my GFR dropped from 14 to 11. My doctor is waiting for me to tell him it's time to start dialysis. I work full time and I am wondering what the recovery time is when you have the peritoneal port put in? I have my bad days, but so far, I am hanging on.
Cettaroo
in
Kidney Disease
7 years ago
"The goal, whenever possible, is to avoid dialysis completely. ...
... "When this is not possible, the goal is to shorten the time on dialysis. As a transplant candidate, it is not in your best interest to not make getting your transplant a priority. The longer you wait, the greater the risk of losing a transplant eligibility." I've been researching ways to make kidney
... "When this is not possible, the goal is to shorten the time on dialysis. As a transplant candidate, it is not in your best interest to not make getting your transplant a priority. The longer you wait, the greater the risk of losing a transplant eligibility." I've been researching ways to make kidney
Zay-KidneyDonorGuru
in
Kidney Dialysis
7 years ago
AOSD - Read what it did to my wife
Hi, where do I start. My wife for a long time has had recurrent Lung Infections, Pneumonia, Pleurisy etc. In 2013 she was unable to work for 6 months due to Pleurisy and that is where this story begins. Investigations began as to how a young woman (39 at the time) kept getting chest infections. My
Hi, where do I start. My wife for a long time has had recurrent Lung Infections, Pneumonia, Pleurisy etc. In 2013 she was unable to work for 6 months due to Pleurisy and that is where this story begins. Investigations began as to how a young woman (39 at the time) kept getting chest infections. My
AOSD
in
NRAS
7 years ago
Hi Kidney Patients!
I'm a 56 year-old man arrived at stage 5 due to Polycystic Kidney Disease. I was in denial as my GFR dropped over the years. In hindsight I wish I'd done more to preserve my remaining kidney function--not sure if it would have helped with PKD but I'll always wonder. But I have a pretty good life even
I'm a 56 year-old man arrived at stage 5 due to Polycystic Kidney Disease. I was in denial as my GFR dropped over the years. In hindsight I wish I'd done more to preserve my remaining kidney function--not sure if it would have helped with PKD but I'll always wonder. But I have a pretty good life even
EndStageRenal
in
Kidney Disease
7 years ago
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