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Transplant getting close to the end
How do I get back on the transplant list if my kidney is getting close to the end? Do I have to go back on dialysis first? My doctor isn’t saying much, just monitoring and having me get labs. I don’t want to wait. I want to be proactive. I’m 65 and don’t have time to waste before it’s too late. What
How do I get back on the transplant list if my kidney is getting close to the end? Do I have to go back on dialysis first? My doctor isn’t saying much, just monitoring and having me get labs. I don’t want to wait. I want to be proactive. I’m 65 and don’t have time to waste before it’s too late. What
FancyJ26
in
Kidney Transplant
3 years ago
Face Pain Develops During Dialysis
I get sharp pain in my face on the left side only, and usually around the eye. It develops during dialysis sessions, which I am fairly new to. Has anyone else experienced anything like this? I have thought of other causes, but it is clear now that it always develops out of nowhere during dialysis. The
I get sharp pain in my face on the left side only, and usually around the eye. It develops during dialysis sessions, which I am fairly new to. Has anyone else experienced anything like this? I have thought of other causes, but it is clear now that it always develops out of nowhere during dialysis. The
MP11
in
Kidney Dialysis
3 years ago
CDB or no?
Can someone tell me if products containing CDB oil is safe for dialysis patients awaiting transplant? I get conflicting opinions from different nephrologists. Thank you! Ttampa77
Can someone tell me if products containing CDB oil is safe for dialysis patients awaiting transplant? I get conflicting opinions from different nephrologists. Thank you! Ttampa77
Ttampa77
in
Kidney Dialysis
3 years ago
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Let's talk about BP and CKD. (Take your ACE at night if using it for BP too?)
Poster Gerald1967 linked to this NCBI listed article (2014) which talks about BP and natural (vs. pharma) BP control approaches. Interesting read generally, but this popped out. The journo writes it as if it's a known fact. It likely is a known fact, but just not a fact known by your typical patient
Poster Gerald1967 linked to this NCBI listed article (2014) which talks about BP and natural (vs. pharma) BP control approaches. Interesting read generally, but this popped out. The journo writes it as if it's a known fact. It likely is a known fact, but just not a fact known by your typical patient
Skeptix
in
Kidney Disease
3 years ago
Chance to get transplant
I have very hard time, I have 2 little kids, my husband in dialysis 3 months, seems like he couldn’t survive because after dialysis so tired and feel very weak … Just would like to aks someone how can get more chance to get in to transplant list . Thank you so much!
I have very hard time, I have 2 little kids, my husband in dialysis 3 months, seems like he couldn’t survive because after dialysis so tired and feel very weak … Just would like to aks someone how can get more chance to get in to transplant list . Thank you so much!
CB09
in
Kidney Transplant
3 years ago
Dialysis
I have questions about dialysis? Do anyone have Dialysis and water goes inside lung and lung infection? And have blood infection? Are all those things dangerous?
I have questions about dialysis? Do anyone have Dialysis and water goes inside lung and lung infection? And have blood infection? Are all those things dangerous?
CB09
in
Kidney Transplant
3 years ago
Any advise on Peritoneal
Hi everyone. I have been on hemo dialysis for the last 3 months but considering Peritoneal, I like to travel and go on adventures. I would like to hear from you guys that are on Peritoneal or considering it. Thank you:)
Hi everyone. I have been on hemo dialysis for the last 3 months but considering Peritoneal, I like to travel and go on adventures. I would like to hear from you guys that are on Peritoneal or considering it. Thank you:)
falcon92
in
Kidney Dialysis
3 years ago
Hello everyone
I thought I would come and join this community; after having staved off dialysis for some ten years through diet and careful living, It looks like I shan't be able to put it off any longer - last egfr is 9%. Due to have a blood test in a couple of days ready for renal consultation next week. Not too
I thought I would come and join this community; after having staved off dialysis for some ten years through diet and careful living, It looks like I shan't be able to put it off any longer - last egfr is 9%. Due to have a blood test in a couple of days ready for renal consultation next week. Not too
Mich1949
in
Kidney Disease
3 years ago
how long between ocrevus
I have been so busy,my husband has been a very sick boy,he has to have heart valve repair work done, he is on dialysis 3 days a week and they are pulling 4 to 5 # of fluid off time 3 days a week.he has heart failure and kidney failure.can't do heart surgery until he is stable.soooo my 6 month appt for
I have been so busy,my husband has been a very sick boy,he has to have heart valve repair work done, he is on dialysis 3 days a week and they are pulling 4 to 5 # of fluid off time 3 days a week.he has heart failure and kidney failure.can't do heart surgery until he is stable.soooo my 6 month appt for
pamgarner
in
My MSAA Community
3 years ago
Restaurants and Dialysis!
On dialysis now, and wondering if any other dialysis patients eat at restaurants at all, or strictly avoid???
On dialysis now, and wondering if any other dialysis patients eat at restaurants at all, or strictly avoid???
MP11
in
Kidney Dialysis
3 years ago
My journey of CKD 5
Hello everyone. I'm glad to join this group. Last year 9th March, 2020. I went to my family physician due to my swelling on my whole body, vomiting and nausea. Doctor suggest me labs after my labs. I diagnosed with creatinine up to 9.7. And very next day i got admitted in hospital. I spend 15 days in
Hello everyone. I'm glad to join this group. Last year 9th March, 2020. I went to my family physician due to my swelling on my whole body, vomiting and nausea. Doctor suggest me labs after my labs. I diagnosed with creatinine up to 9.7. And very next day i got admitted in hospital. I spend 15 days in
Waqar5000
in
Kidney Disease
3 years ago
Quality of life on immunosuppressants
The side effects of the immunosuppressants have significantly decreased my quality of life. I felt better in kidney failure before dialysis started than I do now at five months post kidney transplant. I am 49, and I have a healthy diet and I have been pushing myself to get 30-40 minutes of cardiovascular
The side effects of the immunosuppressants have significantly decreased my quality of life. I felt better in kidney failure before dialysis started than I do now at five months post kidney transplant. I am 49, and I have a healthy diet and I have been pushing myself to get 30-40 minutes of cardiovascular
Tallyn
in
Kidney Transplant
3 years ago
Ckd stage 5
Why am I so tired after 2 months on dialysis after treatment
Why am I so tired after 2 months on dialysis after treatment
Pontooncaptain
in
Kidney Disease
3 years ago
Left Side Face Pain and Dialysis??
Without much warning, back in May I felt like I couldn't breathe and was dying. I went to the ER, and spent a week in the hospital where I started on dialysis. It has been an unpleasant experience on many days, mostly due to odd side effects. The worst of which is a pain in the left side of my face,
Without much warning, back in May I felt like I couldn't breathe and was dying. I went to the ER, and spent a week in the hospital where I started on dialysis. It has been an unpleasant experience on many days, mostly due to odd side effects. The worst of which is a pain in the left side of my face,
MP11
in
Kidney Disease
3 years ago
Dyalisis& Osteoporosis
My son who is special needs( cerebral palsy) has been on dialysis for the past three months. His appetite is real bad , I supplement his diet with s Pithiest containing Nepro HP , veggies & fruits. Two weeks ago( he has right side paralysis) his right upper arm snapped I. Two. This resulted in a very
My son who is special needs( cerebral palsy) has been on dialysis for the past three months. His appetite is real bad , I supplement his diet with s Pithiest containing Nepro HP , veggies & fruits. Two weeks ago( he has right side paralysis) his right upper arm snapped I. Two. This resulted in a very
Amrellessy66
in
Kidney Disease
3 years ago
New treatments
Hello everyone. I read the other day that there hope and new treatments coming through. One is where you swallow tiny pellets that sit in your gut. They absorb toxins to take the burden off the liver. And the other one is like a dialysis machine but for the liver.. As far as I know there in trails.
Hello everyone. I read the other day that there hope and new treatments coming through. One is where you swallow tiny pellets that sit in your gut. They absorb toxins to take the burden off the liver. And the other one is like a dialysis machine but for the liver.. As far as I know there in trails.
CHRISR999
in
British Liver Trust
3 years ago
If any one gives valuable suggestions.. I'm happy to hear
My father is a CKD patient with type 2 diabetes.. Recently he suffered with gangrene due to which his creatine levels are increasing..Now he is under dialysis whenever required.. We are planning kidney transplant.. We are in need of kidney.. So I want the details of websites in which we have to register
My father is a CKD patient with type 2 diabetes.. Recently he suffered with gangrene due to which his creatine levels are increasing..Now he is under dialysis whenever required.. We are planning kidney transplant.. We are in need of kidney.. So I want the details of websites in which we have to register
Pu_jitha
in
Kidney Transplant
3 years ago
Challenging/appealing Passive euthanasia resulting from patient's own will.
My would-have-been husband got severe covid in mid Feb. Damage was extensive, so they put him under medically induced coma. End of July will be 4 months in that state. He's on ECMO, ventilator and dialysis. I don't have information on exact kind of life support. He's never awakened but he can hear but
My would-have-been husband got severe covid in mid Feb. Damage was extensive, so they put him under medically induced coma. End of July will be 4 months in that state. He's on ECMO, ventilator and dialysis. I don't have information on exact kind of life support. He's never awakened but he can hear but
DivSin
in
ICUsteps
3 years ago
Are doctors always right when they say there's no chance of survival or miracles happen?
Do you know anyone, who doctors had left all hopes of surviving but they did? Does being young (29) and extra fit help? He had a severe case of covid and what seems like pneumonia and the infection has reached all major systems with DNR set for 31st August. Sorry, I have no information except he'd been
Do you know anyone, who doctors had left all hopes of surviving but they did? Does being young (29) and extra fit help? He had a severe case of covid and what seems like pneumonia and the infection has reached all major systems with DNR set for 31st August. Sorry, I have no information except he'd been
DivSin
in
ICUsteps
3 years ago
PD Accessories
Hello everyone, I hope you guys can stand a less serious question. I've been on hemodialysis for the last year and a half. I received Vancomycin, which saved my life but took out my kidneys. So one day no kidney issues, the next day dialysis. That actually has nothing to do with my question, just
Hello everyone, I hope you guys can stand a less serious question. I've been on hemodialysis for the last year and a half. I received Vancomycin, which saved my life but took out my kidneys. So one day no kidney issues, the next day dialysis. That actually has nothing to do with my question, just
raregiraffe21
in
Kidney Disease
3 years ago
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