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Experiences with
Tramazoline / Dexamethasone
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Slow rising PSA. Wait and watch?
Hello everyone My father has been on ADT since two years (Zytiga and Lupron). His PSA fell from 500 at diagnosis to 0.41 last September. Since then it has slowly been creeping up. In 5 months it has risen to 0.74. I have got his PSA tested every month so this is not a random jump but a slow increase
Hello everyone My father has been on ADT since two years (Zytiga and Lupron). His PSA fell from 500 at diagnosis to 0.41 last September. Since then it has slowly been creeping up. In 5 months it has risen to 0.74. I have got his PSA tested every month so this is not a random jump but a slow increase
Rodeoz15
in
Advanced Prostate Cancer
1 year ago
Reaching the end of treatment, suggestions beyond Docetaxel and Carboplatin.
1st Docetaxel in ‘21 held psa down to 8, but further treatments have been with no success. I read once that the steroid to use with chemo could be Dexamethasone 1 mg rather than prednisone 5 mg. Is there a clinical reason why? What next?
1st Docetaxel in ‘21 held psa down to 8, but further treatments have been with no success. I read once that the steroid to use with chemo could be Dexamethasone 1 mg rather than prednisone 5 mg. Is there a clinical reason why? What next?
docbulldog
in
Advanced Prostate Cancer
1 year ago
Dexamethasone
After 10 cycles of Docetaxel I'm having a break from treatment for a few weeks before deciding on the next treatment. My PSA is still rising In the meantime I've been prescribed Dexamethasone. 500 micrograms. I've read some previous posts on this. Is the view on balance this can be helpful in keeping
After 10 cycles of Docetaxel I'm having a break from treatment for a few weeks before deciding on the next treatment. My PSA is still rising In the meantime I've been prescribed Dexamethasone. 500 micrograms. I've read some previous posts on this. Is the view on balance this can be helpful in keeping
Finlay66
in
Advanced Prostate Cancer
1 year ago
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Thyroid or Pituitary Problem?
Sorry in advance for the long essay! Desperatly hoping for some advice. I am a 30-year-old female suffering fatigue, brain fog & migraine with visual disturbances since July 2020, therefore I stopped the COCP after a 10-year use (which was prescribed for the management of menorrhagia). Since stopping
Sorry in advance for the long essay! Desperatly hoping for some advice. I am a 30-year-old female suffering fatigue, brain fog & migraine with visual disturbances since July 2020, therefore I stopped the COCP after a 10-year use (which was prescribed for the management of menorrhagia). Since stopping
Amy_O
in
Thyroid UK
1 year ago
Two years and counting
I thought I'd provide an update. Some info may be of help to others. I met with Dr Sartor of Tulane University, Jan 10, 2023. He said my bloodwork was excellent. I had some questions. Can I go snow skiing in March? Yes. When do I have to worry about bones breaking. Dr Sartor said his recent
I thought I'd provide an update. Some info may be of help to others. I met with Dr Sartor of Tulane University, Jan 10, 2023. He said my bloodwork was excellent. I had some questions. Can I go snow skiing in March? Yes. When do I have to worry about bones breaking. Dr Sartor said his recent
Skippy3
in
Advanced Prostate Cancer
1 year ago
Mandibular (trigeminal) nerve interference... relief?
For over a week I have experienced discomfort in my left ear and jaw, with some headache also on the left side. Over the weekend the discomfort worsened a bit to the point of occasional "pain." (The issue is not one of intense pain, thankfully, but mostly of persistent ongoing discomfort of a minor headache
For over a week I have experienced discomfort in my left ear and jaw, with some headache also on the left side. Over the weekend the discomfort worsened a bit to the point of occasional "pain." (The issue is not one of intense pain, thankfully, but mostly of persistent ongoing discomfort of a minor headache
noahware
in
Advanced Prostate Cancer
1 year ago
Started Triplet Therapy this week, new doc, new (better) treatment plan!
Started triplet therapy this week with first dose of NUBEQA on Wednesday and Docetaxel yesterday afternoon at City of Hope in Duarte, CA. "Fired" my local general oncologist whose plan was Xtandi, radiation, and Xgeva for me. She was against chemo in my case since the mets weren’t in organs. Contrast
Started triplet therapy this week with first dose of NUBEQA on Wednesday and Docetaxel yesterday afternoon at City of Hope in Duarte, CA. "Fired" my local general oncologist whose plan was Xtandi, radiation, and Xgeva for me. She was against chemo in my case since the mets weren’t in organs. Contrast
Gl448
in
Advanced Prostate Cancer
1 year ago
Docetaxel guideline for Prostate cancer
Dear friends, My father’s Onco had given just 5 days prednisolone 5 mg twice a day after the day of chemo and dexamethasone 8 mg intravenous the day of chemo. Unfortunately, I have lost my dear, sweet heart father 3 months after the last chemo (8 sessions). My father PSA was only 157. It is so devastating
Dear friends, My father’s Onco had given just 5 days prednisolone 5 mg twice a day after the day of chemo and dexamethasone 8 mg intravenous the day of chemo. Unfortunately, I have lost my dear, sweet heart father 3 months after the last chemo (8 sessions). My father PSA was only 157. It is so devastating
Samani
in
Advanced Prostate Cancer
1 year ago
n plate don't work after covid
I've been on n plate for 3 years and it was working until 2 months ago when I got sick from corona virus very lightly but a week later the platelets dropped to 10 and they don't go up only with dexamethasone for a while and again 10 and below, does anyone have a similar experience? thank you
I've been on n plate for 3 years and it was working until 2 months ago when I got sick from corona virus very lightly but a week later the platelets dropped to 10 and they don't go up only with dexamethasone for a while and again 10 and below, does anyone have a similar experience? thank you
lianaki
in
ITP Support Association
1 year ago
Looking for more wholistic answers to dealing with ITP
Hi, I am newly diagnosed since Aug. 2022 with ITP and have had two crashes with platelet levels in the single digits twice now. Last week they put me on a short dose of dexamethasone which helped and now I am getting Nplate injections weekly for a month. From everything I have read, I cannot find
Hi, I am newly diagnosed since Aug. 2022 with ITP and have had two crashes with platelet levels in the single digits twice now. Last week they put me on a short dose of dexamethasone which helped and now I am getting Nplate injections weekly for a month. From everything I have read, I cannot find
bonandmick
in
ITP Support Association
1 year ago
Can this be considered castrate resistance?
Hi all My father was diagnosed with PCa last year in April with an initial PSA of 500. Through ADT his PSA dropped to 0.4 in 16 months. In the last 3 months his PSA has increased as follows: September: 0.42 October: 0.45 November: 0.53 Is this considered three consecutive increases which people talk
Hi all My father was diagnosed with PCa last year in April with an initial PSA of 500. Through ADT his PSA dropped to 0.4 in 16 months. In the last 3 months his PSA has increased as follows: September: 0.42 October: 0.45 November: 0.53 Is this considered three consecutive increases which people talk
Rodeoz15
in
Advanced Prostate Cancer
2 years ago
ThIrd infusion of JANX007
Hello all, I had my 3rd infusion today of the new immunotherapy drug called JANX007. They had been giving me IV steriods and benadryl. My MO came in today and said we are going to change things up, NO STERIODS. He said the odds of having a reaction to the cancer drug was less than 10%. So he sent
Hello all, I had my 3rd infusion today of the new immunotherapy drug called JANX007. They had been giving me IV steriods and benadryl. My MO came in today and said we are going to change things up, NO STERIODS. He said the odds of having a reaction to the cancer drug was less than 10%. So he sent
ehoneycutt29
in
Advanced Prostate Cancer
2 years ago
with drawl side effects or new side effects
My dads psa was rising so they switched prednisone to dexamethasone in may- the psa continues to rise- he dad get a cat scan a month ago chest, abdominal, pelvic and there was minimal change but do to not being as effective and because of my dad having swollen ankles and feet they took him off from
My dads psa was rising so they switched prednisone to dexamethasone in may- the psa continues to rise- he dad get a cat scan a month ago chest, abdominal, pelvic and there was minimal change but do to not being as effective and because of my dad having swollen ankles and feet they took him off from
Chris52981
in
Advanced Prostate Cancer
2 years ago
Egg collection straight after FET - can you do this?
I had a failed FET earlier this week - third so far, two of them PGT tested. I want to do another egg collection asap. My consultant told me beforehand that would be fine but she is now off on long term sick. Got a new consultant yesterday who also said yes, that is fine, and put together the protocol
I had a failed FET earlier this week - third so far, two of them PGT tested. I want to do another egg collection asap. My consultant told me beforehand that would be fine but she is now off on long term sick. Got a new consultant yesterday who also said yes, that is fine, and put together the protocol
AdviceforJane
in
Fertility Network UK
2 years ago
zytiga, dexamethasone and weight gain/moonface
My husband, Mike, seems to be doing great cancer-wise sine switching from zytiga/prednisone to zytiga/dexamethasone (.5) Psa down to <.01and scans appearing clear. He switched in April. However he has been gaining weight 20lbs high on his abdomen and his face has become quite puffy. I know these are
My husband, Mike, seems to be doing great cancer-wise sine switching from zytiga/prednisone to zytiga/dexamethasone (.5) Psa down to <.01and scans appearing clear. He switched in April. However he has been gaining weight 20lbs high on his abdomen and his face has become quite puffy. I know these are
longleaf
in
Advanced Prostate Cancer
2 years ago
Rapidly rising PSA and new bone met(s).
Complete case history in the profile.
07/24/22 PSA - 0.97 08/24/22 PSA - 1.31 09/15/22 - PSA - 1.69 - Total Testosterone 23.38 ng/dl ( edit: mistyped as free earlier) Currently on 3 month lupron (since 08/22 ) and abirateron ( since 10/21 ) + radiation. New PSMA has shown a (first)
Complete case history in the profile.
07/24/22 PSA - 0.97 08/24/22 PSA - 1.31 09/15/22 - PSA - 1.69 - Total Testosterone 23.38 ng/dl ( edit: mistyped as free earlier) Currently on 3 month lupron (since 08/22 ) and abirateron ( since 10/21 ) + radiation. New PSMA has shown a (first)
meowlicious99
in
Advanced Prostate Cancer
2 years ago
intralipid infusion - what dosage did you have?
hi all, Looking for some info on what Intralipids they infused for you? What was the actual medicine and how many mg? I will ask my clinic but trying to figure out whether it is a generic dose like the Prednisolone 25mg/ Dexamethasone 0.5mg or is it individualises dosage of intralipids? thank you so
hi all, Looking for some info on what Intralipids they infused for you? What was the actual medicine and how many mg? I will ask my clinic but trying to figure out whether it is a generic dose like the Prednisolone 25mg/ Dexamethasone 0.5mg or is it individualises dosage of intralipids? thank you so
K8dferXdder
in
Fertility Network UK
2 years ago
Dexamethasone vs pred....My brain cells hurt
so I saw my primary care doc yesterday and we basically talked about PMR and the dance of the prednisone dose and the constant symptoms. I am having trouble doing much of anything which is not great onball kinds of levels. So first after being on 16 mgnpted for weeks I decided it was time to up a
so I saw my primary care doc yesterday and we basically talked about PMR and the dance of the prednisone dose and the constant symptoms. I am having trouble doing much of anything which is not great onball kinds of levels. So first after being on 16 mgnpted for weeks I decided it was time to up a
Wallysma
in
PMRGCAuk
2 years ago
Follow up on low platelets and stopping Acalabrutinib
Hi to all my CLL friends , i was doing well after 9 months on calquence ... i had minimal side effects which were occasional stabbing pains in my joints and muscle stiffness . I also had petechiae in my lower legs and feet as well as purpura on my hands and arms . to me this was no big deal compared
Hi to all my CLL friends , i was doing well after 9 months on calquence ... i had minimal side effects which were occasional stabbing pains in my joints and muscle stiffness . I also had petechiae in my lower legs and feet as well as purpura on my hands and arms . to me this was no big deal compared
craterlake
in
CLL Support
2 years ago
CT Scan
hello My dads psa increased the last few times it’s now at .60 so the oncologist wants to do a CT scan and then I guess if it shows anything he will change meds- he has had two pet scans prior about a year and then two years ago which were good. But now the pSA is slowly rising - Is this CT Scan common
hello My dads psa increased the last few times it’s now at .60 so the oncologist wants to do a CT scan and then I guess if it shows anything he will change meds- he has had two pet scans prior about a year and then two years ago which were good. But now the pSA is slowly rising - Is this CT Scan common
Chris52981
in
Advanced Prostate Cancer
2 years ago
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