Looking for more wholistic answers to dealing with ITP

[bonandmick]

Hi, I am newly diagnosed since Aug. 2022 with ITP and have had two crashes with platelet levels in the single digits twice now. Last week they put me on a short dose of dexamethasone which helped and now I am getting Nplate injections weekly for a month.

From everything I have read, I cannot find a rhyme or a reason or any sure way of treating or predicting this disease. I believe all disease must come from some imbalance in the body and I wonder about what my work to create health and recovery. I cannot find any studies that prove anything helps for sure and my doctor agrees that there is nothing suggested. Just wondering if anyone has any insight.

[Nicebaps]

Hi

I'm in the UK and have had ITP for the past 10 years +. It started as chronic and I've had breaks from it on and off over the years. Currently I have acute ITP and have had since May. My count varies from -10 to 30 ish and as such I have Platelet transfusions every other day. I wish I could recommend or suggest something that would increase your platelets more sadly I can't. If you read "Dr Google" there are lots of theory's on how to treat it including eating a shed load of a Kale but there is no scientific or medical proof that it does anything. Unless you are actively bleeding (normally in the mouth) I wouldn't worry to much. In addition to transfusions I'm also doing Nplate (500 mcg) every week. Has your doctor suggested using Rituxamab at all?

Col