Experiences with

Tramazoline / Dexamethasone

Hi All, I was recently taking Dexamethasone and have started a new medication called Belzutifan. I have stopped from Tuesday 19th November 2024. I had a Liver blood test done on Tuesday 19th November 2024 and normally I am in normal range for everything please see below my blood test results is

Here is the answer. I am currently on Prednisolone, so will ask if I can change to Dexamethasone. Efficacy Comparison Dexamethasone appears to be more effective than prednisolone in treating castration-resistant prostate cancer (CRPC): A randomized phase 2 trial compared daily dexamethasone (0.5

My husband was diagnosed with a GBM grade 4 in an inoperable position in March this year. He has had radiotherapy and chemo tablets. Also taking a low dose of dexamethasone. His medical team has been fantastic and we are carrying on as best we can. But he has a constant headache which he cannot shift

Mr. Spouse 21 is starting a Docetaxel rechallenge next week--3 rounds then another PMSA-PET scan. If you did a Docetaxel rechallenge as well, can you compare your early experiences with the rechallenge in terms of side effects and effectiveness and where you are now? He developed neuropathy despite using

I have no idea if I am making a fuss over nothing, I find it so hard to tell and I am alone. I had a hysteroscopy under general anaesthetic on Wednesday. All went well, except for pain after the procedure, pain probably related to scarring from previous surgery in that area. On 6 mg pred atm. I didn't

My Dads new oncologist switched his steroid from prednisolone to dexamethasone - she was distressed at first appointment to see he was on zytiga and prednisolone. She said research pretty clear that dexamethasone is better. On today's PSA results she is clearly correct. We thought that he had become

Hi Everyone, I have just been recommended the Aqueous shunt surgery. I have had Glaucoma for years (since 30s, now I'm in my mid 40s) and was on latanoprost and everything was working well until I had the retina detachment surgery in May and my pressure will not drop, tried various drops without much

So visit to the hospital didn’t go as hoped. As I feared, not much understanding of husband’s side effects and my concerns about his pre existing conditions and his low mood due to 10 drops a day. Pressure in eye with failed trab was 30, so acetazolomide prescribed despite our reservations after side

Hi All, I was diagnosed with a brain tumor grade 2 Ependymoma in March of 2024. I had surgery but the doctor could only remove 10 To 15 % because of the location and several nerves surrounding the mass. I had radiation but after completion there was no change. Didn’t shrink but also didn’t grow.

i have aggressive open angle glaucoma in both eyes .An emergency trab was performed March 23 after sudden vision loss and very high IOP . July 23 Jan 24 bleb needlings .Feb24 steroid induced cataract occluded the vision IOP 26 .March 24 cataract removed and further bleb needling and mitomycin C .

Hi, I am looking for some help as hubby and I are struggling after his Trabeculectomy in March was described by his surgeon as a ‘spectacular failure’ ( his body healed the bleb and pressure went up to 60) . He’s now on Dexamethasone 4 times a day. Dorzolomide with Timolol twice a day both eyes, Iopidine

Hi all, A long post so I hope you can stay with me! It has been a while since I’ve written my own post on here but I’m always following others journeys and comment when I feel I can offer some support from afar. A little background; I’ve experienced two miscarriages and went through 2 IVF cycles

So, my question is, has anyone on here been diagnosed with incomplete Behcets?! At my 2nd CoE appointment at Liverpool in July, I was! They are saying that as I don't fulfill the ISG 1990 criteria (I have 2 out of three symptoms), that they cannot diagnose me properly. However, under the ICBD criteria

I had my 3 monthly OC visit last week. Blood test is showing 0.3 up from 0.15 six weeks ago. MO is suggesting that I should go into the ODM-208 (MK-5684): phase 3 trial if PSA rises above 1.0. PSA of 1.0 or above is a entry requirement for the trial, presumable to be sure that my current treatment

Since removing Prednisone and adding instead Dexamethasone medication at 1-mg to go with Zytiga I have a very hard time with insomnia. Any suggestions. Only able to sleep about 4 hours daily.

Hello. Am now in year 10. Details in profile. For 2+ years have been taking Zoladex, Zytiga and Prednisolone. The CT bone scans and Nuclear medicine full body scans every 6 months show no radiographic progression and I feel ok, apart from fatigue when not active. Recently have some discomfort

I'm writing this in pure agony in hopes, that it might help someone in the future. My father is castrate resistant and when Xtandi stopped working, his MO put him on dexamethasone + abiraterone + Lynparza (olaparib). This combo is now registered in European Union even for men without BRCA mutation

I am leaving PMRGCA uk and this group sadly I have to deal with terminal lung cancer that has moved into the bones. The NHS cannot cure only seek containment. I now have a major daily drug intake including dexamethasone (which replaces the parked 5mg maintenance prednisolone!) As I say goodbye I want

Hi everyone. I started with a flat purple rash last Tuesday. It’s spread across my stomach and down the front of my thighs. Then a more sporadic raised rash started on shoulders, back, and then my hands and arms on Friday evening. The first marks on upper body looked like I’d scratched the skin. Yesterday

So I've been having multiple tests for hormones and a dexamethasone 1mcg suppression test Wass done as my cortisol remained higher than 50 (the cut or is 50mnol and mine wasac 85. I was wondering if anyone has had cushing tests on here and if this lack of suppression can be caused by anything else. I