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Arcticfox44
Hello - I'm about to return to the Mayo for the first review since my previous visit last November. As I've reported here, my last major treatment was chemo with cabazitaxel at the Oncology Center in Nicosia, Cyprus, where I live. This was successful: PSA fell from 83 at the start of chemo to about 3
Hello - I'm about to return to the Mayo for the first review since my previous visit last November. As I've reported here, my last major treatment was chemo with cabazitaxel at the Oncology Center in Nicosia, Cyprus, where I live. This was successful: PSA fell from 83 at the start of chemo to about 3
Arcticfox44
in
Advanced Prostate Cancer
1 month ago
A little update
Hi all, I just thought I'd give a little update as I've not posted here in about a year and just possibly my experience may be of interest. I am not in ANY way invalidating anyone else's condition or treatment, this is just my story. For years I have struggled with low mood, lacking 'oomph' in life.
Hi all, I just thought I'd give a little update as I've not posted here in about a year and just possibly my experience may be of interest. I am not in ANY way invalidating anyone else's condition or treatment, this is just my story. For years I have struggled with low mood, lacking 'oomph' in life.
Decant
in
Thyroid UK
1 month ago
Voice improvement
After following advice and wisdom from this fab group over the last couple of years I have now managed to feel much better with increased thyroxine and various supplements. One unexpected bonus has been my singing voice. I am in my 70s and have sung soprano in a large choral society for years but a year
After following advice and wisdom from this fab group over the last couple of years I have now managed to feel much better with increased thyroxine and various supplements. One unexpected bonus has been my singing voice. I am in my 70s and have sung soprano in a large choral society for years but a year
Pollypet
in
Thyroid UK
5 months ago
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Not a UTI
Thinking I had picked up a UTI (strange feeling in bladder area and frequent feeling of needing to urinate) I requested a urine test, which was done. The triage nurse at my surgery informed me that although it showed no infection there were in fact microscopic traces of blood in there, (which would be
Thinking I had picked up a UTI (strange feeling in bladder area and frequent feeling of needing to urinate) I requested a urine test, which was done. The triage nurse at my surgery informed me that although it showed no infection there were in fact microscopic traces of blood in there, (which would be
Pusph
in
PMRGCAuk
5 months ago
Blood Results- advice please
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Hi had blood test as recommended early in day & no levo for 24 hours, no biotin for a week etc. I am wanting an increase in dose by 25mcg which will take me to 75mcg- for weight recommended dose is 100mcg! Still symptomatic! Also now on ppi plus change of Bp meds, an anti flam & Hrt! Gp reluctant
Robinface
in
Thyroid UK
1 month ago
Anyone else with Jak2 PV have difficulty walking and leg pain?
I'm new here and really happy I found this forum. I've been diagonsed with Jak2 positive PV a year ago, after feeling unwell for a couple of years, and after my blood tests have been abnormal for quite a while. For the past year, I've been on aspirin and Phlebotomies, which have kept my Hematocrit under
I'm new here and really happy I found this forum. I've been diagonsed with Jak2 positive PV a year ago, after feeling unwell for a couple of years, and after my blood tests have been abnormal for quite a while. For the past year, I've been on aspirin and Phlebotomies, which have kept my Hematocrit under
Panda2014
in
MPN Voice
1 month ago
Iron infusion
I had an iron infusion. Finished it last week. My ferritin was 44 prior to infusion. I have to have a blood test to see if it went up. Just curious how long before you feel better. I still feel the same, very tired. Came off mirapex a month ago and waiting for my dr. to give me a new medication.
I had an iron infusion. Finished it last week. My ferritin was 44 prior to infusion. I have to have a blood test to see if it went up. Just curious how long before you feel better. I still feel the same, very tired. Came off mirapex a month ago and waiting for my dr. to give me a new medication.
lorri214
in
Restless Legs Syndrome
1 month ago
Rt3 - clarification
Hey all, I've been doing a fair bit of reading and I see that the stance here is that rt3 is useless. Maybe this will help someone. A cell will have a receptor for T3 and RT3 can bind to it weakly (thanks Helvella, I have corrected it). When you take too much T4 or you don't convert well, your protective
Hey all, I've been doing a fair bit of reading and I see that the stance here is that rt3 is useless. Maybe this will help someone. A cell will have a receptor for T3 and RT3 can bind to it weakly (thanks Helvella, I have corrected it). When you take too much T4 or you don't convert well, your protective
Incoguto
in
Thyroid UK
5 months ago
Levothyroxine in spain
Hi all getting desperate now with trying to self source levo as ive had to decrease my levo from 150mcg to 125mcg due to high ft4 on my blood test. I only get 100mcg from my doctor. Asked a few times for a private msg but nobody replied. Anyone know if you can buy it in spain as i am starting to feel
Hi all getting desperate now with trying to self source levo as ive had to decrease my levo from 150mcg to 125mcg due to high ft4 on my blood test. I only get 100mcg from my doctor. Asked a few times for a private msg but nobody replied. Anyone know if you can buy it in spain as i am starting to feel
giggy63
in
Thyroid UK
1 month ago
T3 and arrhythmia
I've been on levo for 25 years. A few years ago I found I have mitral and tricuspid regurgitation ,sinus tachycardia, and some PACs. I asked an internist if I could take t3 and he said no. But I can't tolerate the fatigue anymore. Is it safe to take t3 when having arrhythmia?
I've been on levo for 25 years. A few years ago I found I have mitral and tricuspid regurgitation ,sinus tachycardia, and some PACs. I asked an internist if I could take t3 and he said no. But I can't tolerate the fatigue anymore. Is it safe to take t3 when having arrhythmia?
nara8
in
Thyroid UK
5 months ago
NEW blood test results, i dont know what to do next.
hi everyone i been on t4 since 2021 and have hashis , i have posted results before on this forum over the last few years but today i have new results from medicheck, im currently on 125 mcg. TSH- 0.688 (0.27 - 4.2. ) FREE T3 - 5.3 (3.1 - 6.8) FREE THYROXINE - 20.9 (12 - 22) THYROGLOBULIN
hi everyone i been on t4 since 2021 and have hashis , i have posted results before on this forum over the last few years but today i have new results from medicheck, im currently on 125 mcg. TSH- 0.688 (0.27 - 4.2. ) FREE T3 - 5.3 (3.1 - 6.8) FREE THYROXINE - 20.9 (12 - 22) THYROGLOBULIN
ali2341
in
Thyroid UK
3 months ago
Dexamethasone suppression test
Has anyone had one of these please as I would like to know if I should take my Thyroxine beforehand?
Has anyone had one of these please as I would like to know if I should take my Thyroxine beforehand?
greenfingers
in
Thyroid UK
5 months ago
WTAF just happened?
So, just before Christmas we moved to South Yorkshire.Today my wife had her 1st appointment with her new GP. After over 12 years of constant fighting with her old GPs over her hypothyroidism. Never getting an appointment with a NHS endocrinologist, being under medicated (25mcg of T4). Being constantly
So, just before Christmas we moved to South Yorkshire.Today my wife had her 1st appointment with her new GP. After over 12 years of constant fighting with her old GPs over her hypothyroidism. Never getting an appointment with a NHS endocrinologist, being under medicated (25mcg of T4). Being constantly
rocketrob01
in
Thyroid UK
5 months ago
Liothyronine
Hi Iv been prescribed T3 10mcg by the endo and my GP was happy to agree and iv been taking it along side my levo for 5 years no issues , iv recently moved and had to change GP guess what , they are querying if I need T3 as its not cost effective ? I guessed there would be a problem as its expensive
Hi Iv been prescribed T3 10mcg by the endo and my GP was happy to agree and iv been taking it along side my levo for 5 years no issues , iv recently moved and had to change GP guess what , they are querying if I need T3 as its not cost effective ? I guessed there would be a problem as its expensive
Jodiedebs
in
Thyroid UK
5 months ago
Fighting for corrections is so hard.
I am coming up on the one year of my wife's passing. On this day last year, she was sitting in her hospital bed eating frozen fruit. She was at 99% Sat with 1l of O2, and the plan was to turn it off in the morning. LFT's bang on Normal. Indirect Billi is still high, direct normal. Albumin low Plat low
I am coming up on the one year of my wife's passing. On this day last year, she was sitting in her hospital bed eating frozen fruit. She was at 99% Sat with 1l of O2, and the plan was to turn it off in the morning. LFT's bang on Normal. Indirect Billi is still high, direct normal. Albumin low Plat low
ceward204
in
British Liver Trust
5 months ago
Dr Shandeep Momi
I have moved from overseas where I was taking T3/T4 combo. I need to find a new doctor ASAP as I haven't had levels checked for at least 18 months. Is Shandeep Momi good? I need full thyroid testing as well as extensive bloodwork Thanks
I have moved from overseas where I was taking T3/T4 combo. I need to find a new doctor ASAP as I haven't had levels checked for at least 18 months. Is Shandeep Momi good? I need full thyroid testing as well as extensive bloodwork Thanks
Bdagrl
in
Thyroid UK
5 months ago
Dr Georgina Conway
Please private message me commenting on this Bristol doctor above please. I have moved to the UK from overseas and am taking T3/T4 combo. I need someone to manage me and also do extensive bloodworm as its a long time since I have had any. I have hashimotos. I haven't had any bloodworm done at all
Please private message me commenting on this Bristol doctor above please. I have moved to the UK from overseas and am taking T3/T4 combo. I need someone to manage me and also do extensive bloodworm as its a long time since I have had any. I have hashimotos. I haven't had any bloodworm done at all
Bdagrl
in
Thyroid UK
5 months ago
Blood tests advice please
Hello, I wondered if you might advise on recent blood tests? Recently introduced T3 and not felt any improvements yet (I know 5mcg is small dose). May 15th 2024: FT 17.6 (12-22) FT3 4.8 (3.1-6.8) Blood tests were taken 24 hrs after last levo and 4 hrs after 1/2 dose of T3 (as recommended to
Hello, I wondered if you might advise on recent blood tests? Recently introduced T3 and not felt any improvements yet (I know 5mcg is small dose). May 15th 2024: FT 17.6 (12-22) FT3 4.8 (3.1-6.8) Blood tests were taken 24 hrs after last levo and 4 hrs after 1/2 dose of T3 (as recommended to
HotelHurricaine
in
Thyroid UK
1 month ago
Feeling fatigued & confused about blood tests
Morning everyone Would appreciate feedback Felt fatigued & overwhelmed at times, seen a much improvement with my gut since following a strict gluten & diary free diet which this sight has recommended. Confused about thyroid results though especially with antibodies being high Currently taking
Morning everyone Would appreciate feedback Felt fatigued & overwhelmed at times, seen a much improvement with my gut since following a strict gluten & diary free diet which this sight has recommended. Confused about thyroid results though especially with antibodies being high Currently taking
Aniba
in
Thyroid UK
22 days ago
Low TSH & Low T4
Can anyone help please? I was recently on 75mcg T4 and 20mcg of T3 but still felt low energy, dry skin, hair falling out, low mood etc. Doctor did a TSH and T4 test and then phoned me to reduce my T4 to 50mcg. My TSH was 0.023 and my T4 was 8.2. The reduction of T4 meds made me very ill, I crashed
Can anyone help please? I was recently on 75mcg T4 and 20mcg of T3 but still felt low energy, dry skin, hair falling out, low mood etc. Doctor did a TSH and T4 test and then phoned me to reduce my T4 to 50mcg. My TSH was 0.023 and my T4 was 8.2. The reduction of T4 meds made me very ill, I crashed
MerCorn
in
Thyroid UK
15 hours ago
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