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Very newly diagnosed PBC still undergoing testing
Hello all! I'm a 59 year old female living in the Florida Panhandle Haven't had any serious issues of note, arthritis and joint replacements aside. I began with an overall itch in Sept of 2021 and didn't worry too much until about a week later, when I was sleep deprived and torn up from scratching,
Hello all! I'm a 59 year old female living in the Florida Panhandle Haven't had any serious issues of note, arthritis and joint replacements aside. I began with an overall itch in Sept of 2021 and didn't worry too much until about a week later, when I was sleep deprived and torn up from scratching,
Hidden
in
PBCers Organization
1 year ago
neuropathy flare after operation
Struggling with flare up of burning legs and feet plus all my sjogrens symptoms after recent hip replacement. Wondering if this is normal and how long it might last.
Struggling with flare up of burning legs and feet plus all my sjogrens symptoms after recent hip replacement. Wondering if this is normal and how long it might last.
Katerina1
in
Neuropathy Support
1 year ago
Exhaustion
Is exhaustion just something we have to put up with if you have PA? I’m SI Hydroxocobalamin twice a week with folate supplements , in between getting it from my GP every 2 months. I’m taking a B complex with 5 mg of B6. Potassium is fine, ferritin on the up 65 but I’m still taking gentle iron supplements
Is exhaustion just something we have to put up with if you have PA? I’m SI Hydroxocobalamin twice a week with folate supplements , in between getting it from my GP every 2 months. I’m taking a B complex with 5 mg of B6. Potassium is fine, ferritin on the up 65 but I’m still taking gentle iron supplements
Sea-blue
in
Pernicious Anaemia Society
1 year ago
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Test results
Hi Everyone, I had a Full blood count and Thyroid tests last week. I did the blood test following the guidance of SlowDragon and did not had supplements for over a week and no Levo for 24hrs and Lio for 8hrs. Time for the test 8 am and fasting. My tests results are as follow: Serum TSH: <0.01 mU/L
Hi Everyone, I had a Full blood count and Thyroid tests last week. I did the blood test following the guidance of SlowDragon and did not had supplements for over a week and no Levo for 24hrs and Lio for 8hrs. Time for the test 8 am and fasting. My tests results are as follow: Serum TSH: <0.01 mU/L
Carlax
in
Thyroid UK
1 year ago
I am getting there but…
Back here again… so helpful in the past, and need your help again! I have been slowly coming off pramipexole over 4 months, reducing tablets by a half every month. I am now on one and a half tablets. I have been taking gentle iron, 40 mg at night, with Vit c. My bloods tested in Dec when I started
Back here again… so helpful in the past, and need your help again! I have been slowly coming off pramipexole over 4 months, reducing tablets by a half every month. I am now on one and a half tablets. I have been taking gentle iron, 40 mg at night, with Vit c. My bloods tested in Dec when I started
Jukebox55
in
Restless Legs Syndrome
1 year ago
Please help. Im loosing my mind with insomnia
I feel like a broken record so I'll try not to make this long. 20 years of thyroid issues. 13 years of Levo. Usual story. Insomnia being biggest issue. Can't take anymore. Yes i've tried EVERYTHING from oils to baths, no tv or screens, supplements ........ - I know its my thyroid. It gets better
I feel like a broken record so I'll try not to make this long. 20 years of thyroid issues. 13 years of Levo. Usual story. Insomnia being biggest issue. Can't take anymore. Yes i've tried EVERYTHING from oils to baths, no tv or screens, supplements ........ - I know its my thyroid. It gets better
dayoff
in
Thyroid UK
1 year ago
Female Testosterone Replacement Users
My endo has suggested I replace very low levels of testosterone with Androfeme, to complement my existing HRT package of Lenzetto and Utrogestan. After learning Androfeme costs £150.00 upward, and that my NHS GP already has female patients supplementing testosterone, I approached him to take on my prescription
My endo has suggested I replace very low levels of testosterone with Androfeme, to complement my existing HRT package of Lenzetto and Utrogestan. After learning Androfeme costs £150.00 upward, and that my NHS GP already has female patients supplementing testosterone, I approached him to take on my prescription
radd
in
Thyroid UK
1 year ago
low Ferritin
recently had blood tests at GP’s and would be grateful for comments from other hypothyroid patients. FBC TWCc 5.1 (4.0-11) Hb 132g/L (115-165) Platelet count 228 (150-400) RBC 4.18 (3.80-5.50) Haematocrit (0.37-0.47) MCV 94fL (80-100) MCH 31.7 pg (27.0-33.0) Red blood cell distribution width
recently had blood tests at GP’s and would be grateful for comments from other hypothyroid patients. FBC TWCc 5.1 (4.0-11) Hb 132g/L (115-165) Platelet count 228 (150-400) RBC 4.18 (3.80-5.50) Haematocrit (0.37-0.47) MCV 94fL (80-100) MCH 31.7 pg (27.0-33.0) Red blood cell distribution width
Beardies2
in
Thyroid UK
1 year ago
anyone like me on HRT?
Hello all, I wonder if there is anyone here who have the following criteria but have successfully been using HRT? *hysterectomy kept ovaries *fibromyalgia * breast cancer in mother and sister in early 40s * very overweight I am suffering with symptoms in a big way, I'm due to speak to my doctor
Hello all, I wonder if there is anyone here who have the following criteria but have successfully been using HRT? *hysterectomy kept ovaries *fibromyalgia * breast cancer in mother and sister in early 40s * very overweight I am suffering with symptoms in a big way, I'm due to speak to my doctor
bethm1983
in
Menopause and Perimenopause Support
1 year ago
Updates- 😱😤🤯🧐
Hi Feel like the only ones that will understand are people who are the same as me. I previously posted that I had been listed for surgery as a priority 2. So I saw two consultants this week and was told that I havent been listed at all. 🤯😵😤 However both the consultants I have seen were brilliant
Hi Feel like the only ones that will understand are people who are the same as me. I previously posted that I had been listed for surgery as a priority 2. So I saw two consultants this week and was told that I havent been listed at all. 🤯😵😤 However both the consultants I have seen were brilliant
Awwy
in
Endometriosis UK
1 year ago
Confused - TSH and T4 levels
Hello. I wanted to firstly say I am new to this site and have learnt more in 2 weeks than i have in 8 years since diagnosed with underactive thyroid. I was fine for years on 100mg/125 levo. A few years back started getting a cough, was clearing throat etc and had antibodies tested and they were 329 so
Hello. I wanted to firstly say I am new to this site and have learnt more in 2 weeks than i have in 8 years since diagnosed with underactive thyroid. I was fine for years on 100mg/125 levo. A few years back started getting a cough, was clearing throat etc and had antibodies tested and they were 329 so
Hopeful129
in
Thyroid UK
1 year ago
Latest appointment update…..ET investigation
Further to my previous post from yesterday I just thought I’d update you all of the outcome from my Consultants telephone appointment today incase my info may be of use to others…. Due to ongoing high platelets (usually in 500’s) I am currently under investigation for ET. I have had numerous tests
Further to my previous post from yesterday I just thought I’d update you all of the outcome from my Consultants telephone appointment today incase my info may be of use to others…. Due to ongoing high platelets (usually in 500’s) I am currently under investigation for ET. I have had numerous tests
Purdy13
in
MPN Voice
1 year ago
Major Flare
Hello all, its been sometime since I put something on here. I have had RA for about 15 years and after being diagnosed, methotrexate kept it under control for about 4 years. Then Humira for a further 6/7 years which was a life saver. I had a knee replacement in 2021, complete success but when I went
Hello all, its been sometime since I put something on here. I have had RA for about 15 years and after being diagnosed, methotrexate kept it under control for about 4 years. Then Humira for a further 6/7 years which was a life saver. I had a knee replacement in 2021, complete success but when I went
mads1
in
NRAS
1 year ago
My letter to all powers-that-be, following my desperation for urgent need for improvements in education of medics an in management of RLS
Dear curriculum creators and top docs, As a medic with published research on Restless Legs Syndrome (RLS), I raise a number of concerns and some possible solutions , which have largely been endorsed by ******* Education Policy, GMC, who recommends that I contact you with these concerns to enable change
Dear curriculum creators and top docs, As a medic with published research on Restless Legs Syndrome (RLS), I raise a number of concerns and some possible solutions , which have largely been endorsed by ******* Education Policy, GMC, who recommends that I contact you with these concerns to enable change
Kakally
in
Restless Legs Syndrome
1 year ago
HIP REPLACEMENT SURGERY
Hello, Am booked for a hip replacement operation on 1st February. I had 2 knee replacement operations in 2017 and 2018. Although a hip replacement is supposed to be somewhat less painful and easier to recover from, I am dreading it for the simple reasons I have severe rheumatoid arthritis - so stopping
Hello, Am booked for a hip replacement operation on 1st February. I had 2 knee replacement operations in 2017 and 2018. Although a hip replacement is supposed to be somewhat less painful and easier to recover from, I am dreading it for the simple reasons I have severe rheumatoid arthritis - so stopping
JGBH
in
NRAS
1 year ago
Have I got thyroid problem?
Hi I was in here awhile ago with thyroid symptoms but I'm on no Medicaid fast forward health deteriorating endless fections. , Pleurisy, injured muscles I got the gp to do a test for thyroid the results are tsh.1.1 ( 0.27-4.2). Thyroid peroxidase 15.0 negative plasma parathyroid 2.8 ( 1.6-6.9, I've
Hi I was in here awhile ago with thyroid symptoms but I'm on no Medicaid fast forward health deteriorating endless fections. , Pleurisy, injured muscles I got the gp to do a test for thyroid the results are tsh.1.1 ( 0.27-4.2). Thyroid peroxidase 15.0 negative plasma parathyroid 2.8 ( 1.6-6.9, I've
geordieclaire120573
in
Thyroid UK
1 year ago
prostap3 and tibolone
I’m currently on prostap3 and tibolone hrt. On 2nd injection about mid way through the 10 weeks and I’ve felt so bad this week constant hot flushes day and worse at night( far worse than have been), bad headaches, feeling sick. Insomnia ( although had this since been on them) feel like I’m at the end
I’m currently on prostap3 and tibolone hrt. On 2nd injection about mid way through the 10 weeks and I’ve felt so bad this week constant hot flushes day and worse at night( far worse than have been), bad headaches, feeling sick. Insomnia ( although had this since been on them) feel like I’m at the end
nicbell24
in
Endometriosis UK
1 year ago
any advice please?
hello, I had PMR/GCA diagnosed January 2020 . A minor relapse and then a major one in August 2021 where I had to up my dose to 40mg Prednisolone. After that I have been tapering, cautiously until December 2022 where I was on 5.5mg. At Xmas I was hit by flu with high temperature and cough. My legs wouldn
hello, I had PMR/GCA diagnosed January 2020 . A minor relapse and then a major one in August 2021 where I had to up my dose to 40mg Prednisolone. After that I have been tapering, cautiously until December 2022 where I was on 5.5mg. At Xmas I was hit by flu with high temperature and cough. My legs wouldn
Dolcelatte
in
PMRGCAuk
1 year ago
Blood Test Results
My latest blood test results.Any advice would be greatly appreciated. Feeling unwell. Aches and pains. Blurry eyes. Brain fog. Weight gain. Fatigue. Poor sleep. Low mood. No motivation. High blood pressure. My consultant reduced my T3 from 10mg to 5mg daily because my TSH was too low. No change to
My latest blood test results.Any advice would be greatly appreciated. Feeling unwell. Aches and pains. Blurry eyes. Brain fog. Weight gain. Fatigue. Poor sleep. Low mood. No motivation. High blood pressure. My consultant reduced my T3 from 10mg to 5mg daily because my TSH was too low. No change to
Odinil
in
Thyroid UK
1 year ago
Another useless Endo appointment - anti anxiety drugs are apparently the answer to chronic insomnia?!
Having waited a year for my follow up appointment, my t/con with the Endo was pointless. I have recently posted re 20 years of chronic insomnia, sorry I’m unsure how to tag that post. It included my blood test results. She claims waking at 1-2am is anxiety, and wants me to take anti anxiety drugs.
Having waited a year for my follow up appointment, my t/con with the Endo was pointless. I have recently posted re 20 years of chronic insomnia, sorry I’m unsure how to tag that post. It included my blood test results. She claims waking at 1-2am is anxiety, and wants me to take anti anxiety drugs.
CornishChick
in
Thyroid UK
1 year ago
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