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My letter to all powers-that-be, following my desperation for urgent need for improvements in education of medics an in management of RLS
Dear curriculum creators and top docs, As a medic with published research on Restless Legs Syndrome (RLS), I raise a number of concerns and some possible solutions , which have largely been endorsed by ******* Education Policy, GMC, who recommends that I contact you with these concerns to enable change
Dear curriculum creators and top docs, As a medic with published research on Restless Legs Syndrome (RLS), I raise a number of concerns and some possible solutions , which have largely been endorsed by ******* Education Policy, GMC, who recommends that I contact you with these concerns to enable change
Kakally
in
Restless Legs Syndrome
1 year ago
Another useless Endo appointment - anti anxiety drugs are apparently the answer to chronic insomnia?!
Having waited a year for my follow up appointment, my t/con with the Endo was pointless. I have recently posted re 20 years of chronic insomnia, sorry I’m unsure how to tag that post. It included my blood test results. She claims waking at 1-2am is anxiety, and wants me to take anti anxiety drugs.
Having waited a year for my follow up appointment, my t/con with the Endo was pointless. I have recently posted re 20 years of chronic insomnia, sorry I’m unsure how to tag that post. It included my blood test results. She claims waking at 1-2am is anxiety, and wants me to take anti anxiety drugs.
CornishChick
in
Thyroid UK
1 year ago
next steps
hi, I have recently been diagnosed with grade 4 endo. I was today told even surgery won’t help and even if choose it it’s an 18 month wait and major surgery. One of the medical options is the analogue injections, potentially with hrt. Can anyone offer me any advice or experience from their own journeys
hi, I have recently been diagnosed with grade 4 endo. I was today told even surgery won’t help and even if choose it it’s an 18 month wait and major surgery. One of the medical options is the analogue injections, potentially with hrt. Can anyone offer me any advice or experience from their own journeys
KTe23
in
Endometriosis UK
1 year ago
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Blood Test Results
My latest blood test results.Any advice would be greatly appreciated. Feeling unwell. Aches and pains. Blurry eyes. Brain fog. Weight gain. Fatigue. Poor sleep. Low mood. No motivation. High blood pressure. My consultant reduced my T3 from 10mg to 5mg daily because my TSH was too low. No change to
My latest blood test results.Any advice would be greatly appreciated. Feeling unwell. Aches and pains. Blurry eyes. Brain fog. Weight gain. Fatigue. Poor sleep. Low mood. No motivation. High blood pressure. My consultant reduced my T3 from 10mg to 5mg daily because my TSH was too low. No change to
Odinil
in
Thyroid UK
1 year ago
post traumatic stress/ anxiety
Hi. I have been suffering from anxiety for almost 1 1/2 now. Had a unexpected fall while alone & broke femur: resulted in partial hip replacement. Then my husbands multiple myeloma returned & COVID. I isolated for his sake & before I knew it I had panic attacks every night, depression & anxiety. Tried
Hi. I have been suffering from anxiety for almost 1 1/2 now. Had a unexpected fall while alone & broke femur: resulted in partial hip replacement. Then my husbands multiple myeloma returned & COVID. I isolated for his sake & before I knew it I had panic attacks every night, depression & anxiety. Tried
Seaturtlemama72
in
Anxiety and Depression Support
1 year ago
Money! money! money!
Spending too much while depressed. Spoke with mental health professionals. They came up with HRT. If balancing me would cause me to spend less would be great but I don't think it will serriousluy help. Stepping back a little - ie not spending right away but waiting alittle was a very good suggestion
Spending too much while depressed. Spoke with mental health professionals. They came up with HRT. If balancing me would cause me to spend less would be great but I don't think it will serriousluy help. Stepping back a little - ie not spending right away but waiting alittle was a very good suggestion
Hidden
in
Mental Health Support
1 year ago
RLS during in the morning and during the day when trying to take a nap?
Dear everyone here, fellow RLS sufferers, I am so grateful for this forum, I am on it daily to see what else can help my mother. First time I was here because she suffered badly from RLS which worsened a lot after hip replacement. And she was on 900 mg Neurontin and 0.0375 mg of Pramipexole that time
Dear everyone here, fellow RLS sufferers, I am so grateful for this forum, I am on it daily to see what else can help my mother. First time I was here because she suffered badly from RLS which worsened a lot after hip replacement. And she was on 900 mg Neurontin and 0.0375 mg of Pramipexole that time
daisydaisy26
in
Restless Legs Syndrome
1 year ago
First BFN today 😢 - trying to decide on back to back or a break.
Although I was expecting the news, it was heartbreaking to hear the words "I'm sorry..." and have our suspicions confirmed that there was failed implantation.We are now faced with making a decision in quick time as our Dr has signed us off to start our next Frozen cycle as soon as I have the withdrawal
Although I was expecting the news, it was heartbreaking to hear the words "I'm sorry..." and have our suspicions confirmed that there was failed implantation.We are now faced with making a decision in quick time as our Dr has signed us off to start our next Frozen cycle as soon as I have the withdrawal
Minniemouse88
in
Fertility Network UK
1 year ago
Spinal arthritis
I have had spinal problems for a number of years but since my hip replacement in 2018 left me with shorter leg i have ended up with pain in my left lower spinal area radiating into buttock and hip. Saw surgeon who did my hip and he said my old hip was no worse on xray than in 2018 but my lower spine
I have had spinal problems for a number of years but since my hip replacement in 2018 left me with shorter leg i have ended up with pain in my left lower spinal area radiating into buttock and hip. Saw surgeon who did my hip and he said my old hip was no worse on xray than in 2018 but my lower spine
Cat49
in
Pain Concern
1 year ago
Pain and discomfort
Hi, does any one else suffer with joint pain and stiffness.Some times I feel that I cam barely walk.. it'd likes the joints and ligaments don't want to move. I cant work out what is thyroidal and what is age related. I am currently taking HRT.. and this helped for a little while but it was very short
Hi, does any one else suffer with joint pain and stiffness.Some times I feel that I cam barely walk.. it'd likes the joints and ligaments don't want to move. I cant work out what is thyroidal and what is age related. I am currently taking HRT.. and this helped for a little while but it was very short
Physiogran65
in
Thyroid UK
1 year ago
HRT and MPN
Hi there,I've been recently diagnosed with Essential Thrombothycemia and Polythycemia Vera. I'm also Jak2 positive. I've just had my bonemarrow biopsy and will have those results in a few weeks time. My platelet levels are in the 600 mark and my red blood cell count is around 178. I have been on transdermal
Hi there,I've been recently diagnosed with Essential Thrombothycemia and Polythycemia Vera. I'm also Jak2 positive. I've just had my bonemarrow biopsy and will have those results in a few weeks time. My platelet levels are in the 600 mark and my red blood cell count is around 178. I have been on transdermal
YogaRonnie
in
MPN Voice
1 year ago
My 25year old son's blood test results
Could these results suggest a Thyroid problem? Someone on the forum suggested investigating Pernicious Anaemia also. Jan'22 Ferritin 78ug/L (22-275) Folate 9.8 ug/L (3.0-20.0) Vit B12 472 ng/L (187 - 883) Sodium 142 (133-146) Potassium 4.2 (3.5-5.3) Chloride 103 (85 - 108) Urea 3.1 (2.5-7.8) Creatinine
Could these results suggest a Thyroid problem? Someone on the forum suggested investigating Pernicious Anaemia also. Jan'22 Ferritin 78ug/L (22-275) Folate 9.8 ug/L (3.0-20.0) Vit B12 472 ng/L (187 - 883) Sodium 142 (133-146) Potassium 4.2 (3.5-5.3) Chloride 103 (85 - 108) Urea 3.1 (2.5-7.8) Creatinine
Mindseye
in
Thyroid UK
1 year ago
my 25 year old son's blood test results
Could this be B12 deficiency? Jan'22 Ferritin 78ug/L (22-275) Folate 9.8 ug/L (3.0-20.0) Vit B12 472 ng/L (187 - 883) Sodium 142 (133-146) Potassium 4.2 (3.5-5.3) Chloride 103 (85 - 108) Urea 3.1 (2.5-7.8) Creatinine 82 (40-130) eGFR >59 (<60 - CKD stage 3.4 or 5) AST 20 (0-45) ALT 14 (0-55) Bilirubin
Could this be B12 deficiency? Jan'22 Ferritin 78ug/L (22-275) Folate 9.8 ug/L (3.0-20.0) Vit B12 472 ng/L (187 - 883) Sodium 142 (133-146) Potassium 4.2 (3.5-5.3) Chloride 103 (85 - 108) Urea 3.1 (2.5-7.8) Creatinine 82 (40-130) eGFR >59 (<60 - CKD stage 3.4 or 5) AST 20 (0-45) ALT 14 (0-55) Bilirubin
Mindseye
in
Pernicious Anaemia Society
1 year ago
Serum Ferritin
Hello Just a query My Ferratin levels are 83 and Serum Folate is 4.7 my Heart Nurse wants me to have an Iron Infusion on the 11th April. She has also phoned me and said I should phone and ask for a GP appointment to see what is causing the lower levels of Ferratin, Heart Nurse did say this could
Hello Just a query My Ferratin levels are 83 and Serum Folate is 4.7 my Heart Nurse wants me to have an Iron Infusion on the 11th April. She has also phoned me and said I should phone and ask for a GP appointment to see what is causing the lower levels of Ferratin, Heart Nurse did say this could
Prada47
in
British Heart Foundation
1 year ago
edoxaban and hip replacement.
I’m a 66 year old woman, due to have a complete hip replacement in late Feb - have been looking forward to it for months. Always considered myself to be very fit and healthy. However, 8 weeks ago I found myself in A&E with a self-limiting episode of AFib, which lasted maybe 45 mins. I didn’t see a cardiologist
I’m a 66 year old woman, due to have a complete hip replacement in late Feb - have been looking forward to it for months. Always considered myself to be very fit and healthy. However, 8 weeks ago I found myself in A&E with a self-limiting episode of AFib, which lasted maybe 45 mins. I didn’t see a cardiologist
TickityBoo
in
AF Association
1 year ago
Estrogen dominance and endometriosis, advice please
Hey everyone I follow your posts and appreciate your advice so back story is officially diagnosed with endometriosis thats spread to bladder and rectum since 2018 but recently bloodwork keeps showing estrogen dominant. No idea what that means or how it affects endometriosis. I'm also hypothyroid and
Hey everyone I follow your posts and appreciate your advice so back story is officially diagnosed with endometriosis thats spread to bladder and rectum since 2018 but recently bloodwork keeps showing estrogen dominant. No idea what that means or how it affects endometriosis. I'm also hypothyroid and
Escapologygirl
in
Endometriosis UK
1 year ago
Did you take a break after a failed transfer? Feeling lost after 1st transfer
Hi, I'm at the end of my first tww and had bright red blood last night. I've know instinctively that it didn't work for a couple of days but have to wait until Monday for the official test.😢 I have another four embryos frozen and my clinic asked if I wanted to start another cycle straight away. I feel
Hi, I'm at the end of my first tww and had bright red blood last night. I've know instinctively that it didn't work for a couple of days but have to wait until Monday for the official test.😢 I have another four embryos frozen and my clinic asked if I wanted to start another cycle straight away. I feel
Minniemouse88
in
Fertility Network UK
1 year ago
Need help with my numbers
Hello everyone, i’m new. Been reading most posts related to thyroidomectomy and hormone replacement therapy, now i need help with numbers. I had total thyrodectomy due to cancer in January and on Levothyroxine 125 since then. Tsh 0.03 (0.27-4.2), t3 free 2.9 (2.0-4.4), t4free 1.80 (0.93-2.10), Tg less
Hello everyone, i’m new. Been reading most posts related to thyroidomectomy and hormone replacement therapy, now i need help with numbers. I had total thyrodectomy due to cancer in January and on Levothyroxine 125 since then. Tsh 0.03 (0.27-4.2), t3 free 2.9 (2.0-4.4), t4free 1.80 (0.93-2.10), Tg less
Kofhte
in
Thyroid UK
1 year ago
Mastocytosis?
Hi I was diagnosed with MCAS back in 2015. I became incredibly ill after a antibiotic resistant Urine infection. I ended up in Intensive care and I have never fully recovered. I then started having terrible attacks involving my gallbladder and was hospitalised many time. There where no stones. I had
Hi I was diagnosed with MCAS back in 2015. I became incredibly ill after a antibiotic resistant Urine infection. I ended up in Intensive care and I have never fully recovered. I then started having terrible attacks involving my gallbladder and was hospitalised many time. There where no stones. I had
Redfleur
in
The UK Mastocytosis Support Group
1 year ago
Introduction
hi everyone, I’m 50, in perimenopause and struggling big time with declining cognition, adhd hormonal issues. I currently take adderall XR which I find helpful but it wears off quickly. Would like to use hormone replacement But Dr says no…I’m still menstruating every month.
hi everyone, I’m 50, in perimenopause and struggling big time with declining cognition, adhd hormonal issues. I currently take adderall XR which I find helpful but it wears off quickly. Would like to use hormone replacement But Dr says no…I’m still menstruating every month.
ScaryMary123
in
Menopause and Perimenopause Support
1 year ago
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