Search
Search
About
Log in
Join
Experiences with
Tocilizumab
Posts
Communities
687 public posts
Filter results
Which biological this time?
Today I was offered the choice of Rituximab infusions or
Tocilizumab
injections to replace the Cimzia that has stopped being effective after 6 years. Has anyone been on either of these drugs and if so how were they for you?
Today I was offered the choice of Rituximab infusions or
Tocilizumab
injections to replace the Cimzia that has stopped being effective after 6 years. Has anyone been on either of these drugs and if so how were they for you?
Alderess
in
NRAS
9 years ago
Tocs injections
I have spoken to someone else here about this, i wanted to know if anybody is having weekly
tocilizumab
injections?
I have spoken to someone else here about this, i wanted to know if anybody is having weekly
tocilizumab
injections?
alibromo
in
NRAS
9 years ago
Tocilizumab and side effects
Hi everyone, been a while since I've been on and need some advice/shared experience of taking
Tocilizumab
please. I had my first infusion yesterday afternoon and all went well with that.
Hi everyone, been a while since I've been on and need some advice/shared experience of taking
Tocilizumab
please. I had my first infusion yesterday afternoon and all went well with that.
Rosie_rabbit
in
NRAS
9 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Drug named Tocilizumab or also Actemra
Has anyone had any experience with these drugs.? I have written several times before, and now have a new Rheumatologist in San Francisco who is wonderful She is from Ireland and has actually treated several people before with GCA . I have been on Prednisone for almost a year now, beginning at 80 mg.
Has anyone had any experience with these drugs.? I have written several times before, and now have a new Rheumatologist in San Francisco who is wonderful She is from Ireland and has actually treated several people before with GCA . I have been on Prednisone for almost a year now, beginning at 80 mg.
DeliaGray
in
PMRGCAuk
9 years ago
How long will infusion side effects last?
I posted at the end of the week regarding some problems I've been experiencing following a
Tocilizumab
Infusion I had on Wednesday. I managed to speak to the specialist nurse on Friday who felt I'd had a reaction to the infusion ..no kidding!!
I posted at the end of the week regarding some problems I've been experiencing following a
Tocilizumab
Infusion I had on Wednesday. I managed to speak to the specialist nurse on Friday who felt I'd had a reaction to the infusion ..no kidding!!
Rosie_rabbit
in
NRAS
9 years ago
Help
. :-( No meds have worked so far Just taken me off infusion of
Tocilizumab
and await new meds by infusion in July as had reaction I dont think they know what they are doing :-( but it is me who is suffering I have seen there is a National Rhumatoid Arthriits hospital in Bath Does anyone know how good
. :-( No meds have worked so far Just taken me off infusion of
Tocilizumab
and await new meds by infusion in July as had reaction I dont think they know what they are doing :-( but it is me who is suffering I have seen there is a National Rhumatoid Arthriits hospital in Bath Does anyone know how good
dobsey
in
NRAS
9 years ago
Tocilizumab Infusions
I have been told I will have to wait to start the above infusions due to shortage of beds in the local Hospital. Several people on here have advised they had to wait 4 months for the first infusion. I need to go overseas in August. I have only just been approved and if I have to wait 4 months it will
I have been told I will have to wait to start the above infusions due to shortage of beds in the local Hospital. Several people on here have advised they had to wait 4 months for the first infusion. I need to go overseas in August. I have only just been approved and if I have to wait 4 months it will
angel-delight
in
NRAS
9 years ago
Tocilizumab
Anyone on
Tocilizumab
/Roactemra. What are your experiences with it, and has it a lot of Side effects? XxBas
Anyone on
Tocilizumab
/Roactemra. What are your experiences with it, and has it a lot of Side effects? XxBas
bassiefromholland
in
NRAS
9 years ago
Tocilizumab Infusions/Injhections
I went to see the nurse at my Rheumy Clinic this morning as I needed to have my blood tests updated and she wanted to have a chat with me. I am ready to start the above infusions and then to have it in injection form asap. I was told their could be a delay due to having a shortage of beds at the local
I went to see the nurse at my Rheumy Clinic this morning as I needed to have my blood tests updated and she wanted to have a chat with me. I am ready to start the above infusions and then to have it in injection form asap. I was told their could be a delay due to having a shortage of beds at the local
angel-delight
in
NRAS
9 years ago
Injection day
Finally had my first injection of
tocilizumab
last Tuesday. 10 min demonstration then in it goes. Tuesday will from now on be injection day. So here I am on another Tuesday hoping it starts working soon where all the other drugs have failed.
Finally had my first injection of
tocilizumab
last Tuesday. 10 min demonstration then in it goes. Tuesday will from now on be injection day. So here I am on another Tuesday hoping it starts working soon where all the other drugs have failed.
Rachel43
in
NRAS
9 years ago
TB RESPIRATORY MEDICINE APPOINTMENT
Hello, several of you may have seen my posts regarding
Tocilizumab
infusions/injections. I finally had an appointment today to see a Consultant for an assessment before my Rheumy Consultant can arrange for me to have the above infusion. Good News!!
Hello, several of you may have seen my posts regarding
Tocilizumab
infusions/injections. I finally had an appointment today to see a Consultant for an assessment before my Rheumy Consultant can arrange for me to have the above infusion. Good News!!
angel-delight
in
NRAS
9 years ago
tocilizumab
Well it seems I might be getting
tocilizumab
injections after a 5 month wait. I'm really hoping this treatment works for me. Anybody using this & what's your experience? Also does it sting like humira? Rachel
Well it seems I might be getting
tocilizumab
injections after a 5 month wait. I'm really hoping this treatment works for me. Anybody using this & what's your experience? Also does it sting like humira? Rachel
Rachel43
in
NRAS
9 years ago
Worried about loosing job
How long people have found
tocilizumab
starts to work? If anyone has found a difference in the infusion & injection? Thanks Rachel
How long people have found
tocilizumab
starts to work? If anyone has found a difference in the infusion & injection? Thanks Rachel
Rachel43
in
NRAS
9 years ago
Tocilizumab did it work for you
Hi I am new to the site and feeling a bit apprehensive as I have been to see my rhuematoligist today ,and she wants to start me on
Tocilizumab
in 3 weeks .At the moment I take methotrexate sulfasalazine 4 a day and folic acid 6 days a week.
Hi I am new to the site and feeling a bit apprehensive as I have been to see my rhuematoligist today ,and she wants to start me on
Tocilizumab
in 3 weeks .At the moment I take methotrexate sulfasalazine 4 a day and folic acid 6 days a week.
Euphemia41
in
NRAS
9 years ago
Angioplasty?
I'm treated at Addenbrookes and have just started taking
Tocilizumab
. The doctors have just started talking more seriously about doing angioplasty on my left sub clavian. I would be interested in hearing anyone else's experiences with this procedure. Thanks. Jane
I'm treated at Addenbrookes and have just started taking
Tocilizumab
. The doctors have just started talking more seriously about doing angioplasty on my left sub clavian. I would be interested in hearing anyone else's experiences with this procedure. Thanks. Jane
JElsom
in
Vasculitis UK
9 years ago
Tocilizumab
I am starting
tocilizumab
via infusion next week. I've had lots of biologics without success including humira, enbrel and simponi. I'm hoping this will help as its my only remaining option at this time.
I am starting
tocilizumab
via infusion next week. I've had lots of biologics without success including humira, enbrel and simponi. I'm hoping this will help as its my only remaining option at this time.
kerpag
in
NRAS
9 years ago
Tocilizumab trial
Hi, I was diagnosed 21 years ago, I'm 42 now. Last flare started around June and still struggling. I am on week 19 of the trial with the drug above together with hydroxy chloroquine. There has been improvement but still very stiff and painful to move. Still off work. Also struggling with isolation since
Hi, I was diagnosed 21 years ago, I'm 42 now. Last flare started around June and still struggling. I am on week 19 of the trial with the drug above together with hydroxy chloroquine. There has been improvement but still very stiff and painful to move. Still off work. Also struggling with isolation since
nesantos
in
NRAS
9 years ago
Tocilizumab injections
Does anyone in the Pennine Trust hospitals that cover Rochdale, Oldham, North Manchester and Bury, have the
Tocilizumab
injections yet.
Does anyone in the Pennine Trust hospitals that cover Rochdale, Oldham, North Manchester and Bury, have the
Tocilizumab
injections yet.
shazbat
in
NRAS
9 years ago
RoActemra/ tocilizumab
Does anyone have an experience of this drug? After 10 months of trying MTX and Sulpha (both of which helped the RA but had side effects that meant I could not continue to take them) I went for my first infusion last week. However, it seems my body doesn't want to like any drugs and I had an allergic
Does anyone have an experience of this drug? After 10 months of trying MTX and Sulpha (both of which helped the RA but had side effects that meant I could not continue to take them) I went for my first infusion last week. However, it seems my body doesn't want to like any drugs and I had an allergic
speersy
in
NRAS
9 years ago
Tocilizumab
I have had all my blood tests and x-ray, the TB blood test came back failed, the nurse said it was the test that failed not that I have TB. I was asked to go for another blood test last Monday, I am hoping all the results come back clear. I have no idea how long it will take to get the results. I was
I have had all my blood tests and x-ray, the TB blood test came back failed, the nurse said it was the test that failed not that I have TB. I was asked to go for another blood test last Monday, I am hoping all the results come back clear. I have no idea how long it will take to get the results. I was
angel-delight
in
NRAS
9 years ago
1
...
30
31
32
...
35
Next page
10
20
30
Filter results
Clear filters
Posted in
All communities
NRAS
335 results
PMRGCAuk
283 results
Vasculitis UK
20 results
View top 10 communities
Sort by
Most Relevant
Newest