Does anyone have experience or knowledge please of how long side effects from a 4 weekly infusion might last please? Any infusion, doesn't have to be the same as mine ....
I posted at the end of the week regarding some problems I've been experiencing following a Tocilizumab Infusion I had on Wednesday. I managed to speak to the specialist nurse on Friday who felt I'd had a reaction to the infusion ..no kidding!!
Anyway, still feeling pretty rough ..I'm feeling very nauseas, completely wiped out, a few low fevers, slightly faint and dizzy if on my feet for very long and a little breathless if I walk upstairs. So provided I do nothing I should be ok!!! This isn't good as I have 3 children and I work.
What I'd really find helpful is to get some idea of how long this might go on for. Toci infusions are 4 weekly, so surely I'm not going to feel like this for 4 weeks? I don't really understand how infusions work, you get a big dose of a drug that lasts for a longer period of time but the science of this escapes me so I don't really know how to guess at how long I'm going to be feeling like this for. I really need to manage things at work as I'm barely fit to do the school run let alone go to work at the minute.
Any experiences of side effects from any infusions, or any knowledge anyone might have on this would be really helpful please.