I have been told I will have to wait to start the above infusions due to shortage of beds in the local Hospital. Several people on here have advised they had to wait 4 months for the first infusion. I need to go overseas in August. I have only just been approved and if I have to wait 4 months it will be mid September before my first infusion. I will need to have the infusions for at least a month before I can travel and also to start reducing the steroids as they are causing my feet and legs to swell which makes it difficult to fly. I would be interested to know how many people here in the UK had to wait to start the infusions and for how long? I realize each hospital will have different waiting times, I am located in the Greater Manchester area. I would like to start on injections as that would be more convenient but I have been told that would take even longer to organize.
I would appreciate any advise given.
Many thanks, Sue