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Tocilizumab
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Tocilizumab
I am advised that a biosimilar to
tocilizumab
has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months.
I am advised that a biosimilar to
tocilizumab
has been approved in the UK and will be available at a more economical price , enabling NICE to allow NHS prescriptions for GCA after the initial 12 months.
Niblick
in
PMRGCAuk
10 days ago
Vasculitus, a promising road ahead- let’s hope so!
After the seminal GiACTA trial,
tocilizumab
is now recommended as a first-line therapy for giant cell arteritis in combination with a glucocorticoid taper.’ (Worth reading the embedded links.) There’s a difference between
Tocilizumab
being recommended and actually being prescribed.
After the seminal GiACTA trial,
tocilizumab
is now recommended as a first-line therapy for giant cell arteritis in combination with a glucocorticoid taper.’ (Worth reading the embedded links.) There’s a difference between
Tocilizumab
being recommended and actually being prescribed.
Exflex
in
PMRGCAuk
3 months ago
Switching biologics.
I am switching from
Tocilizumab
to Anatacept. Has anyone got much experience with abatacept please?
I am switching from
Tocilizumab
to Anatacept. Has anyone got much experience with abatacept please?
Hiphopsix
in
NRAS
2 months ago
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High blood pressure
Could any of these be the culprit for high blood pressure rather than
Tocilizumab
injections?
Could any of these be the culprit for high blood pressure rather than
Tocilizumab
injections?
AliDeJ
in
PMRGCAuk
14 days ago
Results of our GCA and Tocilizumab Survey Published
The results clearly illustrate the unmet need for better treatment options for English patients who stop
tocilizumab
and then have a GCA relapse. Importantly, it brings to life the results found in TOC STOP where up to half of people with GCA had a relapse after they stopped
tocilizumab
.
The results clearly illustrate the unmet need for better treatment options for English patients who stop
tocilizumab
and then have a GCA relapse. Importantly, it brings to life the results found in TOC STOP where up to half of people with GCA had a relapse after they stopped
tocilizumab
.
Fran_Benson
Partner
in
PMRGCAuk
2 months ago
TOC STOP research published
Recent research (V Quick et al) shows that for many GCA patients a one year course of
tocilizumab
isn't sufficient.
Recent research (V Quick et al) shows that for many GCA patients a one year course of
tocilizumab
isn't sufficient.
Fran_Benson
Partner
in
PMRGCAuk
5 months ago
medication and infection
Do I change anything, increase steroids, not take
Tocilizumab
/Methotrexate?
Do I change anything, increase steroids, not take
Tocilizumab
/Methotrexate?
Noni71
in
PMRGCAuk
4 months ago
Tyenne /Tocilizumab
Hi just to say I be just received a letter to say I’m changing from actemra to this brand. Hopefully a lower price will make it an option for more people.
Hi just to say I be just received a letter to say I’m changing from actemra to this brand. Hopefully a lower price will make it an option for more people.
Devoid
in
PMRGCAuk
3 months ago
Life after Tocilizumab?
I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health ok. I'm seeing rheumatologist next week and my concern is I'm guessing that I won't be eligible for further Tox after my current prescription runs
I've been off steroids since mid-May. Continuing to take methotrexate (15mg weekly) and Toxilizumab weekly. I seem to be doing well - bloods fine and health ok. I'm seeing rheumatologist next week and my concern is I'm guessing that I won't be eligible for further Tox after my current prescription runs
tweety_pie
in
PMRGCAuk
2 days ago
Tocilizumab
Have PMRGCAuk lobbied NICE to allow NHS Doctors to prescribe a second year of
Tocilizumab
?
Have PMRGCAuk lobbied NICE to allow NHS Doctors to prescribe a second year of
Tocilizumab
?
Niblick
in
PMRGCAuk
5 months ago
Tocilizumab and heartburn
I’m finally back on
Tocilizumab
after an ankle replacement, 2 bouts of C-diff, a chest infection and minor surgery for an ingrowing toenail. It’s been a bad 3 months and my RA has been flaring the whole time with little I could take other than paracetamol.
I’m finally back on
Tocilizumab
after an ankle replacement, 2 bouts of C-diff, a chest infection and minor surgery for an ingrowing toenail. It’s been a bad 3 months and my RA has been flaring the whole time with little I could take other than paracetamol.
Inanotherlife
in
NRAS
1 month ago
Qualifying for Tocilizumab
So three questions: Has everyone else needed this evidence to get
tocilizumab
? And Is the tapering at the correct level? And Why do doctors not agree on tapering rate Thank goodness for this site.
So three questions: Has everyone else needed this evidence to get
tocilizumab
? And Is the tapering at the correct level? And Why do doctors not agree on tapering rate Thank goodness for this site.
Golfers1
in
PMRGCAuk
1 month ago
Abatacept shortage
I posted a couple of weeks ago that I was going to start Abatacept as the
Tocilizumab
didn’t work 🙄. My consultant has contacted me to say there is a national shortage so I’m to start JAK inhibitor tablets instead. Has anyone had good results with these please? 🙏🏻
I posted a couple of weeks ago that I was going to start Abatacept as the
Tocilizumab
didn’t work 🙄. My consultant has contacted me to say there is a national shortage so I’m to start JAK inhibitor tablets instead. Has anyone had good results with these please? 🙏🏻
Hiphopsix
in
NRAS
2 months ago
Neutropenia whilst on Tocilizumab
For last 2 months I have been on weekly
Tocilizumab
injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked by this development.
For last 2 months I have been on weekly
Tocilizumab
injections; this followed a further flare up in December 2023 when the entire aorta was inflamed (I have never had cranial symptoms). I was certainly shocked by this development.
Magsters123
in
PMRGCAuk
1 month ago
STARTED NEW BIOLOGIC
Hello, IMRALDI biologic pen injections I was on
Tocilizumab
weekly injections for a few years but my RA has been progressing rather aggressively. I was taking hydroxychloroquine as a support but had to stop this because I had serious problems with my eyes, serious itching etc.
Hello, IMRALDI biologic pen injections I was on
Tocilizumab
weekly injections for a few years but my RA has been progressing rather aggressively. I was taking hydroxychloroquine as a support but had to stop this because I had serious problems with my eyes, serious itching etc.
JGBH
in
NRAS
21 days ago
Tocilizumab
Can anyone using this remember how long before they felt any improvement, assuming it worked? Thank you I did my first injection on Wednesday after 3 weeks off Baracitinib and was hoping that because things were so bad, I’d notice a slight lift. I know they say usually a couple of weeks and possibly
Can anyone using this remember how long before they felt any improvement, assuming it worked? Thank you I did my first injection on Wednesday after 3 weeks off Baracitinib and was hoping that because things were so bad, I’d notice a slight lift. I know they say usually a couple of weeks and possibly
Inanotherlife
in
NRAS
6 months ago
Stopping meds before operation. 😏
I have been told to stop my meds because I have to have a lumpectomy on 8th May 🙄 I had to stop my
Tocilizumab
and Sulfasalazine 4 weeks before and my Metoject 2 weeks before. I also had to stop other meds too: HRT (for good) and statin.
I have been told to stop my meds because I have to have a lumpectomy on 8th May 🙄 I had to stop my
Tocilizumab
and Sulfasalazine 4 weeks before and my Metoject 2 weeks before. I also had to stop other meds too: HRT (for good) and statin.
Moomin8
in
NRAS
3 months ago
weight loss question please
Been on prednisone since February 2023, also on
tocilizumab
injections. Currently taking 7mg prednisone. I am trying to lose some of my weight gain. I tried 1500 calories a day and lost nothing. Now doing low carb but weight not moving.
Been on prednisone since February 2023, also on
tocilizumab
injections. Currently taking 7mg prednisone. I am trying to lose some of my weight gain. I tried 1500 calories a day and lost nothing. Now doing low carb but weight not moving.
Smellydog9
in
PMRGCAuk
3 months ago
Tocilizumab and raised blood pressure.
Hello all. I have been on Tcz for almost a year for recurrent GCA-.six injections left in my fridge. I am down to 5mg pred. I have tapered very slowly by 0.5 mg per month. My blood pressure has gone up. This happened after6 months of Tcz. Now a steady 153/100. .my cholesterol is borderline high as well
Hello all. I have been on Tcz for almost a year for recurrent GCA-.six injections left in my fridge. I am down to 5mg pred. I have tapered very slowly by 0.5 mg per month. My blood pressure has gone up. This happened after6 months of Tcz. Now a steady 153/100. .my cholesterol is borderline high as well
AliDeJ
in
PMRGCAuk
14 days ago
Charity request for help: GCA patients in England
If you do not live in England, have not had
tocilizumab
, or you are still taking
tocilizumab
then please do not fill out this survey.
If you do not live in England, have not had
tocilizumab
, or you are still taking
tocilizumab
then please do not fill out this survey.
Fran_Benson
Partner
in
PMRGCAuk
7 months ago
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