Diagnosed with RA in September 2013, it literally came on over night went to bed no pains healthy, woke up pains everywhere.
I was told within 12 months everything will be under control and you don't get crippled hands and feet like you used to.
Now my index and middle fingers are turning in and my toes as well , terrible pains in knees, ankles and shoulders
One joint on elbows very sore, cant put arms down on surfaces to rest, not main joint but underside one
Cant turn neck completely only 50% terrible headaches all the time now
Lower back pain sometimes cant even bend, but doctor says you cant get RA in lower back, nurses say pulled muscles or sciatica , but its not muscle or sciatica, gets really bad when i have a flare up.
When i exercise it relieves the pain, but then comes back after a few hours or so, it is excruciating at times, sometimes walk hunched up as can't straighten.
Need a stick to walk with ( cant get used to it) as have fallen six times now as knees seem to give way, also walking up stairs i sometimes i have to stop due to pain, coming down is so dodgy, have to be careful as knees give way so easy walking down the stairs.
Wrists all painful now and hard to carry stuff, wear supports
Gets my throat and my eyes, but they say it does not affect your eyes, but mine get very dry and sore and i struggle with vision, but then it goes back to normal , really strange.
my hips are sore on the outside of my thigh, they said that is not my hips but my back, if it was my hips they would hurt in the groin, is this true, as they are so sore on both sides where you feel the joint is.
Is this the norm, does it carry on getting worse.
No meds have worked so far
Just taken me off infusion of Tocilizumab and await new meds by infusion in July as had reaction
I dont think they know what they are doing but it is me who is suffering
I have seen there is a National Rhumatoid Arthriits hospital in Bath
Does anyone know how good it is there, is it worth me travelling to get treatment.
Any help would be appreciated as i am starting to feel that i am going to end up in a wheelchair, and i struggle big time with that
All they want to do is give me more and more pain killers.
Thanks, sorry to burden you