Hi everyone who has been following my infusion post's, thank you.
I had my first last Tuesday and it went very well, no side effects. My blood pressure was higher than normal but I put that down to some anxiety being the first infusion.
I was advised by the nurse to go straight home and rest for day which I did. I had a slight headache above my right eye, not the type the nurse advised on the top of my head. In have been having slight headaches above my right eye for weeks off and on so I wasn't worried.
I felt OK until Thursday 2am and I work up with the worst pain ever in my right knee, it was very swollen and I could hardly move my leg. I also had pain in my right shoulder, that is'nt new, I usually have pain in my right side whenever I have a flare up.
I was told to start reducing the prednisilone by 2.5mg each week once I hah, had the infusion, I waited until the following day. I wondered ifI should waited a week or two before starting to reduce the steroids. Today I am over the flare up apart from the trigger fingers also on my right hand.
I had a INR blood test and that was low at 1.6 I have to have another test in 2 weeks, hopefully it will get back to normal and back to 6-7 weeks for the INR blood test. It could be the infusion or the steroid dose being reduced.
I can't complain it has gone a lot better than expected.
I will keep in touch and let you know how I feel after my next infusion.
Take care everyone, hope you are all keeping well and enjoying the lovely weather. Sue xx