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Preliminary research info on Covid-19 in rheumatology patients
Hello all, I just saw a tweet about the findings from the Covid-19 Global Rheumatology Alliance. I'll paste part of the 'Key Messages' section here as it explains better than I can: "Due to underlying immune system dysfunction and the common use of immunosuppressants, there is concern about poorer
Hello all, I just saw a tweet about the findings from the Covid-19 Global Rheumatology Alliance. I'll paste part of the 'Key Messages' section here as it explains better than I can: "Due to underlying immune system dysfunction and the common use of immunosuppressants, there is concern about poorer
dawkin_S
in
NRAS
4 years ago
Church Straus symptoms
I have many symptoms of churg strays but blood tests negative.Late onset severe asthma digestive problems sinus problems joint muscle pain eye problems loss of taste n smell heart problems etc.Any advice plz rgds
I have many symptoms of churg strays but blood tests negative.Late onset severe asthma digestive problems sinus problems joint muscle pain eye problems loss of taste n smell heart problems etc.Any advice plz rgds
torfruda
in
Vasculitis UK
4 years ago
Blurry vision and headache
I suffer with a squint in my right eye, which causes a lot of symptoms. I had an operation when I was 9, but it's all gone down hill. I've woken up with blurry vision in my right eye and an extreme headache when looking around. Anyone have any ideas what this could be?.
I suffer with a squint in my right eye, which causes a lot of symptoms. I had an operation when I was 9, but it's all gone down hill. I've woken up with blurry vision in my right eye and an extreme headache when looking around. Anyone have any ideas what this could be?.
Animallover09
in
National Migraine Centre
4 years ago
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Steam Cell Update
Patients who were the first to receive a new treatment for wet age-related macular degeneration (AMD) derived from stem cells in 2015 have maintained improvements in their vision five years on. In 2018 it was reported that the first patients to receive a new treatment derived from stem cells had gone
Patients who were the first to receive a new treatment for wet age-related macular degeneration (AMD) derived from stem cells in 2015 have maintained improvements in their vision five years on. In 2018 it was reported that the first patients to receive a new treatment derived from stem cells had gone
Becky_MacularSociety
Administrator
in
Macular Society
4 years ago
Myo and D Chiro Inositol for Hashimotos
Hi all I’d really appreciate your thoughts. I was diagnosed with Hashimotos around 6 years ago after gradually becoming very unwell with Hypo symptoms. Two years ago I found out the Hashimotos had destroyed my ovarian reserve and after a number of false starts and two rounds of IVF my consultant advised
Hi all I’d really appreciate your thoughts. I was diagnosed with Hashimotos around 6 years ago after gradually becoming very unwell with Hypo symptoms. Two years ago I found out the Hashimotos had destroyed my ovarian reserve and after a number of false starts and two rounds of IVF my consultant advised
sazzle2680
in
Thyroid UK
4 years ago
Dry very itchy eyes
I think I have posted for advice re. eye problem before and for a time was taking Hycosan, hycosan extra and hycosan night which provided quite a bit of ease. However no longer working...anyone got any other suggestions?, opticians only dealing with emergencies at present.
I think I have posted for advice re. eye problem before and for a time was taking Hycosan, hycosan extra and hycosan night which provided quite a bit of ease. However no longer working...anyone got any other suggestions?, opticians only dealing with emergencies at present.
foxglove
in
Thyroid UK
4 years ago
Stem Cell Research Webinar
World-leading eye researcher Professor Pete Coffey, who is investigating the use of stem cells to treat age-related macular degeneration, will be hosting a webinar today to talk about the groundbreaking project. The London Project to Cure Blindness is a partnership between Professor Pete Coffey from
World-leading eye researcher Professor Pete Coffey, who is investigating the use of stem cells to treat age-related macular degeneration, will be hosting a webinar today to talk about the groundbreaking project. The London Project to Cure Blindness is a partnership between Professor Pete Coffey from
Becky_MacularSociety
Administrator
in
Macular Society
4 years ago
Thealoz duo eye drops
Anyone used these with any success? I have terribly dry eyes which is affecting my vision. I’ve been using carbomer eye gel and hycosan extra with little relief. Also using heated eye mask at night. Really hoping these drops give me a little relief, my eyes are bone dry
Anyone used these with any success? I have terribly dry eyes which is affecting my vision. I’ve been using carbomer eye gel and hycosan extra with little relief. Also using heated eye mask at night. Really hoping these drops give me a little relief, my eyes are bone dry
GlasgowHen
in
LUPUS UK
5 years ago
I’m not gonna just give up
Hi all. Well isn’t life a strange oddity. One and a half months ago I lost my home,my wife and my step kids.i was with her and the kids for eight years.married 5 years this April.the day just came and went with out even a thought of what a magical day it was back then. Any way,so I’ve been made homeless
Hi all. Well isn’t life a strange oddity. One and a half months ago I lost my home,my wife and my step kids.i was with her and the kids for eight years.married 5 years this April.the day just came and went with out even a thought of what a magical day it was back then. Any way,so I’ve been made homeless
Tiggerakafidgity
in
Mental Health Support
4 years ago
Worried about latest decision made by new consultant
Hi I have been taken off hydroxy I was on 200mg daily. Recent optician appointment show macular degeneration in both eyes. Went to see hospital and told to stop by rheumatologist still waiting on seeing eye clinic told 4 to 6 month wait really worried as really breathless since stopping them. Heart rhythm
Hi I have been taken off hydroxy I was on 200mg daily. Recent optician appointment show macular degeneration in both eyes. Went to see hospital and told to stop by rheumatologist still waiting on seeing eye clinic told 4 to 6 month wait really worried as really breathless since stopping them. Heart rhythm
lilliebetfairies
in
LUPUS UK
4 years ago
Intra-muscular depo-madrone injection
I have had an intramuscular 120mg depo-medrol injection to treat newly diagnosed rheumatoid arthritis affecting my hands and wrists as a “test” before starting DMARDS. Can anyone shed any light on what as a “test” means, how long it takes to work and how long any relief may last?
I have had an intramuscular 120mg depo-medrol injection to treat newly diagnosed rheumatoid arthritis affecting my hands and wrists as a “test” before starting DMARDS. Can anyone shed any light on what as a “test” means, how long it takes to work and how long any relief may last?
sp22
in
Thyroid UK
4 years ago
1st Buserelin injection!!
Hey girls, so I’ve started down reg today and it’s gone a bit red and rashy where I’ve injected! Is this normal? I’m panicking I’m allergic now 😫 xx
Hey girls, so I’ve started down reg today and it’s gone a bit red and rashy where I’ve injected! Is this normal? I’m panicking I’m allergic now 😫 xx
Mrsmc2019
in
Fertility Network UK
4 years ago
Injection Update
Hi Everyone. Today I went for my injection which is every 2 months. Precautions were tighter than last visit. This time I had to ware a mask. I hated it, it seemed so difficult to breath. Cannot imagine having to work all day wearing a mask. Last visit I only had injection but this time I had
Hi Everyone. Today I went for my injection which is every 2 months. Precautions were tighter than last visit. This time I had to ware a mask. I hated it, it seemed so difficult to breath. Cannot imagine having to work all day wearing a mask. Last visit I only had injection but this time I had
Bobbie915
in
Macular Society
4 years ago
Emdr for Real Event OCD
Has anyone ever done EMDR for Real Event OCD? I did something to someone years ago that I simply cannot forgive myself for though they have forgiven me. I think about it daily and it was over a year ago. Thanks!
Has anyone ever done EMDR for Real Event OCD? I did something to someone years ago that I simply cannot forgive myself for though they have forgiven me. I think about it daily and it was over a year ago. Thanks!
Hidden
in
My OCD Community
4 years ago
Sjogrens Diagnosis
Hi all 😊 I am undergoing tests for suspected Sjogrens, am due third set of blood tests at end of June. Symptoms are dry eyes, blurred vision( some of the time) dry mouth, burning skin predominantly in legs ( occasionally just burning in random places) all symptoms much worse after exposure to sunlight
Hi all 😊 I am undergoing tests for suspected Sjogrens, am due third set of blood tests at end of June. Symptoms are dry eyes, blurred vision( some of the time) dry mouth, burning skin predominantly in legs ( occasionally just burning in random places) all symptoms much worse after exposure to sunlight
Maloo19
in
Thyroid UK
4 years ago
First run done.
I’ve taken the opportunity to start the C25K as the streets are much quieter. I’m visually impaired (blind in one eye and no peripheral vision in the other) therefore I’ve always been worried about bumping into people! So I’m enjoying a little more space during this lockdown. I’ve started exercising
I’ve taken the opportunity to start the C25K as the streets are much quieter. I’m visually impaired (blind in one eye and no peripheral vision in the other) therefore I’ve always been worried about bumping into people! So I’m enjoying a little more space during this lockdown. I’ve started exercising
lucialu
in
Couch to 5K
4 years ago
Face mask project part 1
Well, I was all set to try making a face mask, pieces are all cut out ready, when I got a message on Friday from brother who lives in an assisted living facility with his wife who is paralysed down her left side following a brain stem stroke. Anyway, he’d decided he wanted to give her carers thank you
Well, I was all set to try making a face mask, pieces are all cut out ready, when I got a message on Friday from brother who lives in an assisted living facility with his wife who is paralysed down her left side following a brain stem stroke. Anyway, he’d decided he wanted to give her carers thank you
MissKota
in
Lung Conditions Community Forum
4 years ago
Pegasys syringe sometimes leaks
I have been on Pegasys 90mcg weekly since last July. I am always very careful preparing the syringe but approximately every second or third week some leaks out from the join between the needle part and the syringe part. The drug is working so I can't be losing that much I suppose (even though it feels
I have been on Pegasys 90mcg weekly since last July. I am always very careful preparing the syringe but approximately every second or third week some leaks out from the join between the needle part and the syringe part. The drug is working so I can't be losing that much I suppose (even though it feels
Otterfield
in
MPN Voice
4 years ago
Dry mouth and sore tongue
I wonder if anyone can help, I have an under active thyroid and I take 50mg thyroxine my mouth and tongue is sore and I have ulcers also a dry mouth , just wondering if there’s a connection.
I wonder if anyone can help, I have an under active thyroid and I take 50mg thyroxine my mouth and tongue is sore and I have ulcers also a dry mouth , just wondering if there’s a connection.
sapphiresam53
in
Thyroid UK
4 years ago
Being on hydroxychloroquine for SLE makes no difference to severity of Coronavirus infection - Covid-19 Global Rheum Alliance report
This has just been released. https://ard.bmj.com/content/early/2020/05/07/annrheumdis-2020-217690 Sadly no protection for us being on hydroxychloroquine it seems. Also the hospitalisation figures (55 - 57%) were horribly high in this, but I'm reminding myself that these cases are physician reported
This has just been released. https://ard.bmj.com/content/early/2020/05/07/annrheumdis-2020-217690 Sadly no protection for us being on hydroxychloroquine it seems. Also the hospitalisation figures (55 - 57%) were horribly high in this, but I'm reminding myself that these cases are physician reported
Cathyan
in
LUPUS UK
4 years ago
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