Search
Search
About
Log in
Join
Experiences with
Temodal
Posts
Communities
1,095 public posts
Filter results
Giant Cell Arteritis and Tocilizumab Patient Experience Needed
If you have been treated with Tocilizumab for Giant Cell Arteritis VUK would like to hear of your experiences both good and bad. Please contact John Mills email John.mills@vasculitis.org.uk as soon as possible
If you have been treated with Tocilizumab for Giant Cell Arteritis VUK would like to hear of your experiences both good and bad. Please contact John Mills email John.mills@vasculitis.org.uk as soon as possible
Suzym2u
Vasculitis UK
in
Vasculitis UK
7 years ago
Understanding Post-Mastectomy Syndrome
Does anyone here have experience with Post-Mastectomy Syndrome? The article below sheds some more light on the issue. Look forward to reading your thoughts. http://bit.ly/2u5C0jB "One of the unfortunate side effects of mastectomy is a loss of sensation in the chest area. The blood supply and nerves that
Does anyone here have experience with Post-Mastectomy Syndrome? The article below sheds some more light on the issue. Look forward to reading your thoughts. http://bit.ly/2u5C0jB "One of the unfortunate side effects of mastectomy is a loss of sensation in the chest area. The blood supply and nerves that
joann86
in
SHARE Breast Cancer Support
7 years ago
For those diagnosed with Giant Cell Arteritis - this was tweeted just a few minutes ago
A breakthrough in the treatment of GCA @RheumatologyUK @PMRGCAuk @vascuk Please follow this link https://www.ncbi.nlm.nih.gov/pubmed/28745999
A breakthrough in the treatment of GCA @RheumatologyUK @PMRGCAuk @vascuk Please follow this link https://www.ncbi.nlm.nih.gov/pubmed/28745999
Suzym2u
Vasculitis UK
in
Vasculitis UK
7 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Ovary removal stop progression?
Hi I've pretty much convinced myself I have endo all over the place. Including possibly in my veins (vena cava) which terrifies me. I don't want any more children and will do anything to stop it progressing and spreading anywhere else. I haven't had a lap for a few years as I've had 2 children recently
Hi I've pretty much convinced myself I have endo all over the place. Including possibly in my veins (vena cava) which terrifies me. I don't want any more children and will do anything to stop it progressing and spreading anywhere else. I haven't had a lap for a few years as I've had 2 children recently
Nickster20
in
Endometriosis UK
7 years ago
Ovaries Removal
Hello Brave ladies. Hope things are better and you are all feeling as best as you can. Hoping that I can get some input and opinions . My mum was diagnosed with stage 3c serous ovarian cancer. She was 48 at the time, 2014. She underwent chemo and the surgery and more chemo after surgery. She was Ned
Hello Brave ladies. Hope things are better and you are all feeling as best as you can. Hoping that I can get some input and opinions . My mum was diagnosed with stage 3c serous ovarian cancer. She was 48 at the time, 2014. She underwent chemo and the surgery and more chemo after surgery. She was Ned
Cilla18
in
My Ovacome
7 years ago
Thoughts and feelings
Hi everyone Yesterday I was diagnosed with Endometriosis. Currently i'm feeling a mix of relief and upset as it's taken 10 years to get to this point. I'm waiting on confirmation for my laroposcopy appointment but my consultant essentially said that based on what she can tell so far, I might be leaning
Hi everyone Yesterday I was diagnosed with Endometriosis. Currently i'm feeling a mix of relief and upset as it's taken 10 years to get to this point. I'm waiting on confirmation for my laroposcopy appointment but my consultant essentially said that based on what she can tell so far, I might be leaning
CLee88
in
Endometriosis UK
7 years ago
Moringa for Ovarian and breast cancer
Hi My mom is stage 4 breast and Stage 3c ovarian cancer patient. Currently she is taking tamoxifen for breast cancer metasize to bones. For Ovarian cancer she had complete hysterectomy, Oophorectomy 1 yr back and completed 6 cycles of Chemo. Her CA125 is being checked every 3 months.Now slowly her
Hi My mom is stage 4 breast and Stage 3c ovarian cancer patient. Currently she is taking tamoxifen for breast cancer metasize to bones. For Ovarian cancer she had complete hysterectomy, Oophorectomy 1 yr back and completed 6 cycles of Chemo. Her CA125 is being checked every 3 months.Now slowly her
checddd
in
Breast Cancer India
7 years ago
Less Invasive Techniques Gaining Traction in Ovarian Cancer Prevention
From CureToday: http://bit.ly/2t4551r For women genetically predisposed to ovarian cancer, prevention is extremely important. But what are the most effective and least invasive prevention techniques, and when is the best time in life to employ them? Because they cause so few recognizable symptoms, ovarian
From CureToday: http://bit.ly/2t4551r For women genetically predisposed to ovarian cancer, prevention is extremely important. But what are the most effective and least invasive prevention techniques, and when is the best time in life to employ them? Because they cause so few recognizable symptoms, ovarian
joann86
Administrator
in
SHARE Ovarian Cancer Support
7 years ago
Newbie with Temporal Arteritis. New drug Tocilizumab (actrema)
Hi, I am new and have been reading a lot of good info an was so comforted when I read a post by another newbie who also has been in this battle alone. It has been 28 months and I just relapsed(Flared) I was down to 10mg now back to 35. I also relapsed Christmas Eve. My Rheumatologist wants me to go on
Hi, I am new and have been reading a lot of good info an was so comforted when I read a post by another newbie who also has been in this battle alone. It has been 28 months and I just relapsed(Flared) I was down to 10mg now back to 35. I also relapsed Christmas Eve. My Rheumatologist wants me to go on
Hidden
in
PMRGCAuk
7 years ago
Surgery feeling very sudden...
So. I saw the consultant last Tuesday and admitted defeat. Coil and Zoladex both unsuccessful, and oopherectomy ruled out by me. He warned that I had multiple stages of endo in the nodule and even if I declined excision surgery then I'd be monitored very closely with MRIs etc to check growth. I gave
So. I saw the consultant last Tuesday and admitted defeat. Coil and Zoladex both unsuccessful, and oopherectomy ruled out by me. He warned that I had multiple stages of endo in the nodule and even if I declined excision surgery then I'd be monitored very closely with MRIs etc to check growth. I gave
Starry
in
Endometriosis UK
7 years ago
Second mastectomy preventive?
Hi ladies looking for some advice, had a full mastectomy and total lymph node removal, unfortunately due to small spread to my left hip was not able to have chemo or radiotherapy at this time as they want to keep this for a later date if cancer spreads to major organs. I am currently on Letrozole. I
Hi ladies looking for some advice, had a full mastectomy and total lymph node removal, unfortunately due to small spread to my left hip was not able to have chemo or radiotherapy at this time as they want to keep this for a later date if cancer spreads to major organs. I am currently on Letrozole. I
Anita-B
in
My Breast Cancer Community
7 years ago
Mastectomy, lymph node removal stage 3 advice
Hi everyone. I had mastectomy and lymph node removal done and had swelling in my arm. Went for advice to a lymphodaema clinic and was told how to massage, exercise and was given a arm stocking to reduce the swelling. I found that keeping my weight down to a normal level and exercising helped. Also
Hi everyone. I had mastectomy and lymph node removal done and had swelling in my arm. Went for advice to a lymphodaema clinic and was told how to massage, exercise and was given a arm stocking to reduce the swelling. I found that keeping my weight down to a normal level and exercising helped. Also
Loulou669
in
My Breast Cancer Community
7 years ago
Update and worried
Hi ladies, I posted on here 5 months ago as was worried about my situation. Well things are still in the grey area only I know am in the situation of having to have a second laparoscopy within 5 months due to the first BSO oopherectomy seems not to have been performed properly. My first one was in January
Hi ladies, I posted on here 5 months ago as was worried about my situation. Well things are still in the grey area only I know am in the situation of having to have a second laparoscopy within 5 months due to the first BSO oopherectomy seems not to have been performed properly. My first one was in January
Nats45
in
My Ovacome
7 years ago
Bilateral ovarian fibroma - what to do????
Good afternoon! I apologize in advance for the length of this post, but I want you all to have all the information I do and for you to give me your opinion and experiences if any. I am 49 years old and was diagnosed with stage 4 marg[i]nal zone [/i]NH lymphoma two months ago, for which I'm on watch
Good afternoon! I apologize in advance for the length of this post, but I want you all to have all the information I do and for you to give me your opinion and experiences if any. I am 49 years old and was diagnosed with stage 4 marg[i]nal zone [/i]NH lymphoma two months ago, for which I'm on watch
sbelmonte
in
My Ovacome
7 years ago
Giant cell arteritis
I just this minute signed up with healthunlocked. I am looking to talk with someone who has giant cell arteritis....particularly if you are experiencing fatigue.
I just this minute signed up with healthunlocked. I am looking to talk with someone who has giant cell arteritis....particularly if you are experiencing fatigue.
Buddyk
in
PMRGCAuk
7 years ago
Surgical menopause?
Hello ladies, I'm interested to hear please how quickly you became aware of menopause symptoms after removal of ovaries. I'm 48, my first ovary was removed in 2015 with a big dermoid, and my remaining ovary was removed a week ago along with a large endometrioma. Prior to surgery I'd been on goserelin
Hello ladies, I'm interested to hear please how quickly you became aware of menopause symptoms after removal of ovaries. I'm 48, my first ovary was removed in 2015 with a big dermoid, and my remaining ovary was removed a week ago along with a large endometrioma. Prior to surgery I'd been on goserelin
girli1111
in
Endometriosis UK
7 years ago
New hi! - and need some help with results
Hi I've joined in the past posted once or twice but have been having an ongoing mystery illness driving me crazy for about 7 years now before then I was a uk 16 and I'm now a uk 6 (initially dropped to 8-10 now can't gain and struggle to maintain weight) I have ibs since then sudden onset I was told
Hi I've joined in the past posted once or twice but have been having an ongoing mystery illness driving me crazy for about 7 years now before then I was a uk 16 and I'm now a uk 6 (initially dropped to 8-10 now can't gain and struggle to maintain weight) I have ibs since then sudden onset I was told
lostmyoldlogin
in
Thyroid UK
7 years ago
Surgical menopause?
Hi There, Im back again after 4yrs. Thought having my big fibroids removed I would be ok but over the past 2yrs, the little ones have started to grow and be a nuisance. This lead Me to be put on decapeptil..faking my body into menopause so the fibroids would naturally shrink. A yr later and they shrunk
Hi There, Im back again after 4yrs. Thought having my big fibroids removed I would be ok but over the past 2yrs, the little ones have started to grow and be a nuisance. This lead Me to be put on decapeptil..faking my body into menopause so the fibroids would naturally shrink. A yr later and they shrunk
binabi2002
in
Endometriosis UK
7 years ago
endo left after hystorectomy still pain even though this has been removed - help!
has anyone any experience of bio identical hormones and whether these cause less pain than synthetic hrt. Im having a terrible time. Post hystorectomy with ovary removal really bad pain more so than before. i feel my HRT stimulates the pain but i need it for night sweats sanity etc. Had a second opinion
has anyone any experience of bio identical hormones and whether these cause less pain than synthetic hrt. Im having a terrible time. Post hystorectomy with ovary removal really bad pain more so than before. i feel my HRT stimulates the pain but i need it for night sweats sanity etc. Had a second opinion
caroljane80
in
Endometriosis UK
7 years ago
Where I'm At Now and Thanks
Age 46, initial diagnosis in February 2016, PSA of 286, Gleason 9 (5+4) Stage 4 metastasized to lymph nodes. Bulky disease showing in pelvic and abdominal lymph nodes in CT scans and bone scan clean. Immediately placed on Lupron and Casodex. Did 6 rounds of chemotherapy which consisted of docetaxel while
Age 46, initial diagnosis in February 2016, PSA of 286, Gleason 9 (5+4) Stage 4 metastasized to lymph nodes. Bulky disease showing in pelvic and abdominal lymph nodes in CT scans and bone scan clean. Immediately placed on Lupron and Casodex. Did 6 rounds of chemotherapy which consisted of docetaxel while
Dayatatime
in
Advanced Prostate Cancer
7 years ago
1
...
37
38
39
...
55
Next page
10
20
30
40
50
Filter results
Clear filters
Posted in
All communities
Endometriosis UK
274 results
PMRGCAuk
194 results
My Ovacome
116 results
View top 10 communities
Sort by
Most Relevant
Newest