Good afternoon! I apologize in advance for the length of this post, but I want you all to have all the information I do and for you to give me your opinion and experiences if any.
I am 49 years old and was diagnosed with stage 4 margnal zone NH lymphoma two months ago, for which I'm on watch & wait. My mother had stage IV breast cancer and then went on to have ovarian cancer. I often have precancerous skin lesions. Throughout all the testing for the lymphoma, adenomyosis of my uterus with hemorrhagic cystic changes as well as a lesion on each ovary were found. The MRI reports that the lesions are "likely to be fibroma." I have just returned from the gynecologist/oncologist, who after reviewing everything, has given me the option of bilateral oophorectomy with a D&C to biopsy the uterus or to watch and wait for three months. She feels with the information she has they are most likely benign fibromas, however, is unable to confirm this. The only way to biopsy these "fibromas" is to remove the ovaries. She will support either decision and is removing all personal bias and gave me my options. Could not get her to sway either way lol.
I have yet to go through menopause, although I am perimenopausal as I am having night sweats and my period is beginning to become irregular. Having the surgery would remove my risk of ovarian cancer given my history with my mom and assure me that the lesions are negative (or positive and receive immediate treatment) but it would also put me into early menopause, which she indicated could affect bone health and cardiovascular health.
My question to you is would you opt for the surgery? I'm curious as to how many of you have developed secondary surgeries to your lymphomas? Those of you that have had your ovaries removed, even with benign findings, are you thankful that you did? Did you every regret it? How bad was the menopause? What would you do?
Obviously I don't want to compromise my health in other ways, however, given all that I have gone through the last month with being diagnosed with cancer, my mother's history, and now not being able to confirm for sure they are benign, I'm stuck at what to do. In addition to my diagnosis, my husband was diagnosed a week after me with prostate cancer. To say our lives have been in an upheaval is an understatement. At this point I'm probably the healthiest I'll ever be and am wondering if my lymphoma gets to the point I need treatment, and then eventually need something with my ovaries done, how I would fare. Not sure if any of this makes sense, but thanks in advance for your insights!