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ADT/Exercise and QoL thanks
While attending a 10 day Vipassana silent meditation course (you do not speak for the 10 days and have no electronics/connection with the outside world - very liberating) I was not able to exercise, other than about 10,000 steps per day. As background, I have been on ADT (Firmagon) for 6 months (just
While attending a 10 day Vipassana silent meditation course (you do not speak for the 10 days and have no electronics/connection with the outside world - very liberating) I was not able to exercise, other than about 10,000 steps per day. As background, I have been on ADT (Firmagon) for 6 months (just
LongevityAT
in
Advanced Prostate Cancer
11 months ago
Oligomets and SBRT: "Whack a Mole"?
"PSMA-PET guided SBRT for oligo-metachronous PCa recurrence in appropriately triaged patients results in excellent local control, low toxicity and over 50% ADT free at 5 years." See "Long-term outcomes of SBRT for PSMA PET detected oligometastatic prostate cancer" https://ro-journal.biomedcentral.com
"PSMA-PET guided SBRT for oligo-metachronous PCa recurrence in appropriately triaged patients results in excellent local control, low toxicity and over 50% ADT free at 5 years." See "Long-term outcomes of SBRT for PSMA PET detected oligometastatic prostate cancer" https://ro-journal.biomedcentral.com
FrankyB4
in
Advanced Prostate Cancer
11 months ago
When to introduce ADT after RP failure
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
I'm progressing well on Triplet Therapy coming up 12 months after Chemo and comparing myself to my brothers situation. He doesn't belong on this advanced prostate group but I hope his cancer does not advance to the point that he does! [i]Diagnoses[/i] [i]Biochemical failure following radical prostatectomy
LakeT
in
Advanced Prostate Cancer
11 months ago
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pBAT update after two cycles.
I started BAT using testosterone propianate which requires injections every other day during high T cycle. The beauty of that is fast clearing and slamming the jail cell shut on the beast with darolutamide. My recent PSA came in as 0,05 which is almost at end on my 2nd darolutamide cycle. My Numbers
I started BAT using testosterone propianate which requires injections every other day during high T cycle. The beauty of that is fast clearing and slamming the jail cell shut on the beast with darolutamide. My recent PSA came in as 0,05 which is almost at end on my 2nd darolutamide cycle. My Numbers
KocoPr
in
Fight Prostate Cancer
11 months ago
Recommendations for an endocrinologist who will prescribe NDT
I would be very grateful for any recommendations by private message for endocrinologists who will prescribe NDT, as there are only a couple on the Thyroid UK list. I live in S W London, but location wouldn’t matter if they do online consultations. Many thanks.
I would be very grateful for any recommendations by private message for endocrinologists who will prescribe NDT, as there are only a couple on the Thyroid UK list. I live in S W London, but location wouldn’t matter if they do online consultations. Many thanks.
bluejourney
in
Thyroid UK
11 months ago
Kidney Stones
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
I’m 19 months into ADT (Lupron) following open RP and 38 rounds of radiation last summer. All treatments or for Gleason 9 (5/4) PC that had spread outside the prostate. A few weeks ago I started getting loose bowels, incontinence and blood in my urine. My urologist thought I had radiation cause cancer
Parlorman
in
Advanced Prostate Cancer
11 months ago
ADT for a year?
Had intermediate grade PC no spread, had SBRT. Three months out my Psa is .03. Am on Lupron for the fourth month out of a projected 12 month stint. Do docs ever say, six or nine months is enough? Testosterone at 6 right now.
Had intermediate grade PC no spread, had SBRT. Three months out my Psa is .03. Am on Lupron for the fourth month out of a projected 12 month stint. Do docs ever say, six or nine months is enough? Testosterone at 6 right now.
Photographerhere
in
Prostate Cancer Network
11 months ago
Cortisone Injections?
Hi Does anyone have information on whether one can receive cortisone shots for various injuries unrelated to PC without adversely impacting one’s ADT treatment? I am in physical therapy for an injured shoulder and recently had a cortisone shot and forgot to consult my MO before receiving it. I was
Hi Does anyone have information on whether one can receive cortisone shots for various injuries unrelated to PC without adversely impacting one’s ADT treatment? I am in physical therapy for an injured shoulder and recently had a cortisone shot and forgot to consult my MO before receiving it. I was
jfoesq
in
Advanced Prostate Cancer
11 months ago
Ongoing BCR case. Advices are appreciated.
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
RP 09/17/2015 GS 7(4+3), PNI,SVI, ECE, positive margins (35% right half, 15% left half (PT3b N0M0)) 11/12/2015 PSA 0.06 first postop 01/13/2016 finished adjuvant RT 6600 cGy/33x to prostate bed 02/22/2016 PSA 0.03 first post RT 05/13/2019 PSA 0.11 DETECTABLE 01/29/2020
MSTI
in
Advanced Prostate Cancer
11 months ago
Acupuncture and Hot Flashes
Throughout my life as an athlete, I have always worked out and continue to do so. I have also always tended to run hot and sweat a lot. I am now 15 months into ADT and hot flashes have been epic. Every 1 to 2 hours - full body flop sweats for 3-5 minutes. I have gone to wearing black shirts so it
Throughout my life as an athlete, I have always worked out and continue to do so. I have also always tended to run hot and sweat a lot. I am now 15 months into ADT and hot flashes have been epic. Every 1 to 2 hours - full body flop sweats for 3-5 minutes. I have gone to wearing black shirts so it
Huzzah1
in
Advanced Prostate Cancer
11 months ago
Is Adrenal Fatigue caused by ADT/Abiraterone?
Tossing and turning in bed at night, daytime sleepiness, ... ?
Tossing and turning in bed at night, daytime sleepiness, ... ?
Derf4223
in
Advanced Prostate Cancer
11 months ago
i can’t lose weight & blood results. Advice please?
Hi Team I’ve been feeling pretty good in myself on my current dose of 3 grains of NDT at 5:30am 10mcg T3 at 12 and 1.5 grains at 3pm. i can exercise and generally stay awake until bedtime (😂 no more afternoon naps). But i cannot shift my weight i gained nearly 10% of my body weight and it’s really
Hi Team I’ve been feeling pretty good in myself on my current dose of 3 grains of NDT at 5:30am 10mcg T3 at 12 and 1.5 grains at 3pm. i can exercise and generally stay awake until bedtime (😂 no more afternoon naps). But i cannot shift my weight i gained nearly 10% of my body weight and it’s really
PixieElv
in
Thyroid UK
11 months ago
anaemia and ADT
just had full blood test before I press on with ADT aiming for 18 months and done 9 months adjuvant with RT for G9 - as posted before my oncologist seems to lean to me stopping ADT now as worries about the effect in my polio - though she isn’t a polio expert of course, she just thinks the extra gain
just had full blood test before I press on with ADT aiming for 18 months and done 9 months adjuvant with RT for G9 - as posted before my oncologist seems to lean to me stopping ADT now as worries about the effect in my polio - though she isn’t a polio expert of course, she just thinks the extra gain
SimMartin
in
Advanced Prostate Cancer
11 months ago
Can NDT help with low calcium levels?
Since my total thyroidectomy in April I have been on put on 125 mcg of Levothyroxine and am tolerating it quite well ( no gastro problems like with most tablets and energy levels ok ) except for extreme muscle stiffness and joint pain. Calcium levels tend to be fluctuating between ‘ normal’ and low.
Since my total thyroidectomy in April I have been on put on 125 mcg of Levothyroxine and am tolerating it quite well ( no gastro problems like with most tablets and energy levels ok ) except for extreme muscle stiffness and joint pain. Calcium levels tend to be fluctuating between ‘ normal’ and low.
Britpol
in
Thyroid UK
11 months ago
NON SURGICAL OPTIONS?
Has any gone through successful or unsuccessful [u]
non-surgical treatments
[/u] with their breast cancer? [u]
Off-label drugs, diet change, hormone therapy, metabolic oncology
[/u], etc? Please share your story. This is all so sudden and shocking (as with most people's experience I'm
Has any gone through successful or unsuccessful [u]
non-surgical treatments
[/u] with their breast cancer? [u]
Off-label drugs, diet change, hormone therapy, metabolic oncology
[/u], etc? Please share your story. This is all so sudden and shocking (as with most people's experience I'm
jawsbar75
in
SHARE Breast Cancer Support
1 year ago
HIP XRAYS- Will they effect my recovery or effect my Prostate Cancer-I am now 7 months post IMRT Treatment and healing fine.
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
JWS13
in
Prostate Cancer Network
1 year ago
How to obtain NDT (e.g., Armour/ERFA Thyroid)?
Hi, I have autoimmune hypothyroidism and I'm currently taking levothyroxine (25mg), but I've read that some people prefer taking NDT. I'm thinking of getting a prescription for NDT from a private UK doctor, but I was also wondering if I could get NDT from a reputable online source without a prescription
Hi, I have autoimmune hypothyroidism and I'm currently taking levothyroxine (25mg), but I've read that some people prefer taking NDT. I'm thinking of getting a prescription for NDT from a private UK doctor, but I was also wondering if I could get NDT from a reputable online source without a prescription
JJ_Thyroid
in
Thyroid UK
1 year ago
Is my recovery typical or more novel
I had 7=4+3 prostate cancer PSA=5.4 with a Gleason of 0.7. MRI showed the tumor had not compromised the wall of the prostate. It was an aggressive cancer genetically and was at stage three. Bad news but apparently ample margin for victory. I had ADT from 7/22 till 12/22 and received Proton beam therapy
I had 7=4+3 prostate cancer PSA=5.4 with a Gleason of 0.7. MRI showed the tumor had not compromised the wall of the prostate. It was an aggressive cancer genetically and was at stage three. Bad news but apparently ample margin for victory. I had ADT from 7/22 till 12/22 and received Proton beam therapy
Hidden
in
Advanced Prostate Cancer
1 year ago
Heme iron versus ferrous gluconate
Recent bloodwork shows a low iron problem accross several measures. PCP says to take ferrous gluconate. I remember iron discussions from a previous site in which heme iron was recommended for its better absorption, though ferrous gluconate is superior to some other forms in terms of absorption. I
Recent bloodwork shows a low iron problem accross several measures. PCP says to take ferrous gluconate. I remember iron discussions from a previous site in which heme iron was recommended for its better absorption, though ferrous gluconate is superior to some other forms in terms of absorption. I
cigafred
in
Fight Prostate Cancer
1 year ago
Varian Trubeam Rapidarc to do VMAT
In a previous post my daughter AppleTree43 posted a query about radiotherapy. I have prostate cancer with local and some distant nodes in the back. Tall Allen told her all are within dimensions used for NRG Oncology. Mo at Kaiser and second opinion from UCSF are hopeful radiotherapy of prostate, local
In a previous post my daughter AppleTree43 posted a query about radiotherapy. I have prostate cancer with local and some distant nodes in the back. Tall Allen told her all are within dimensions used for NRG Oncology. Mo at Kaiser and second opinion from UCSF are hopeful radiotherapy of prostate, local
pj1121
in
Advanced Prostate Cancer
1 year ago
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