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Ibrance plus letrozole working
I’ve been taking Ibrance 75 mg two weeks on two weeks off for 3 1/2 years Took a while to get the Ibrance balance. I take letrozole daily. Scans taken every 4 months have shown no progression. I had a double mastectomy and bone lesions on my spine. I followed Joe Tippens protocol for 2 years. I did
I’ve been taking Ibrance 75 mg two weeks on two weeks off for 3 1/2 years Took a while to get the Ibrance balance. I take letrozole daily. Scans taken every 4 months have shown no progression. I had a double mastectomy and bone lesions on my spine. I followed Joe Tippens protocol for 2 years. I did
myrtice
in
SHARE Metastatic Breast Cancer
2 years ago
Three months post surgery
I had a mastectomy three months ago. Overall it’s gone very well. However yesterday I started to feel incredibly cold and could not get warm. Took my temperature and it was 37.9. I still have some fluid around the scar but it’s manageable. However, now the fluid is firmer and it’s throbbing. It
I had a mastectomy three months ago. Overall it’s gone very well. However yesterday I started to feel incredibly cold and could not get warm. Took my temperature and it was 37.9. I still have some fluid around the scar but it’s manageable. However, now the fluid is firmer and it’s throbbing. It
RestlessMe
in
My Breast Cancer Community
2 years ago
Hair Loss while on IBrance?
After my 3rd recurrance of breast cancer (all in breast and chest area) and even after bi lateral mastectomies and radiation and chemo. I've been on ibrance/letrozole for 1 1/2 yrs. I noticed some thinning of my hair approximately 6 months ago. Lately its thinning further. Anyone else had this
After my 3rd recurrance of breast cancer (all in breast and chest area) and even after bi lateral mastectomies and radiation and chemo. I've been on ibrance/letrozole for 1 1/2 yrs. I noticed some thinning of my hair approximately 6 months ago. Lately its thinning further. Anyone else had this
sonycamera
in
SHARE Metastatic Breast Cancer
2 years ago
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Lymphedema after mastectomy & sentinel node biopsy
Hello,I was wondering if anyone has experienced lymphedema in their arm 1 year + after a sentinel node biopsy. I had a hysterectomy procedure yesterday and they told me I can't have IV's, blood draws or blood pressure checks in my right arm because they removed lymph nodes. I had a colonoscopy in October
Hello,I was wondering if anyone has experienced lymphedema in their arm 1 year + after a sentinel node biopsy. I had a hysterectomy procedure yesterday and they told me I can't have IV's, blood draws or blood pressure checks in my right arm because they removed lymph nodes. I had a colonoscopy in October
Fallin77
in
My Breast Cancer Community
2 years ago
A brief respite and now back with a vengeance
I suffer from restless legs syndrome and was prescribed pramipexole. I started a reduction program several months ago and by September I was down to half a tablet today. I was diagnosed with breast cancer and had to have a mastectomy 3 moths ago. Unbeknown to me the surgery temporarily raised my ferritin
I suffer from restless legs syndrome and was prescribed pramipexole. I started a reduction program several months ago and by September I was down to half a tablet today. I was diagnosed with breast cancer and had to have a mastectomy 3 moths ago. Unbeknown to me the surgery temporarily raised my ferritin
RestlessMe
in
Restless Legs Syndrome
2 years ago
Recently Diagnosed with DCIS Breast Cancer
Hello All! I was recently diagnosed with Stage 0 Noninvasive DCIS breast cancer, my surgery is scheduled for the 29th, however, during the MRI (which the Surgeon wanted before surgery) they found something very small in the left breast, that will be biopsied on the 19th. I'm supposed to have surgery
Hello All! I was recently diagnosed with Stage 0 Noninvasive DCIS breast cancer, my surgery is scheduled for the 29th, however, during the MRI (which the Surgeon wanted before surgery) they found something very small in the left breast, that will be biopsied on the 19th. I'm supposed to have surgery
May2023HighlandHike
in
My Breast Cancer Community
2 years ago
Nuclear bone scans and CT scan all clear
I was recently diagnosed with Stage 2 Bladder cancer. my MO ordered a comprehensive blood test as well as a nuclear bone scat and a CT scan with and without contrast to rule out any bladder cancer metastatic spread of bladder cancer. Both the bone scan and the CT scan were negative to any spread and
I was recently diagnosed with Stage 2 Bladder cancer. my MO ordered a comprehensive blood test as well as a nuclear bone scat and a CT scan with and without contrast to rule out any bladder cancer metastatic spread of bladder cancer. Both the bone scan and the CT scan were negative to any spread and
old64horn
in
Advanced Prostate Cancer
2 years ago
The entire world is in an anxiety meltdown particularly in America! Hearts don't go out of rhythm for no reason
Having had 10 cardioversions and two ablations that left me a shell of my former self and medically traumatised me and damaged my heart, I implore you all to look deeper within yourself and attend to any old trauma from childhood any time in your life that has contributed to your carrying fear worry
Having had 10 cardioversions and two ablations that left me a shell of my former self and medically traumatised me and damaged my heart, I implore you all to look deeper within yourself and attend to any old trauma from childhood any time in your life that has contributed to your carrying fear worry
Sparky143
in
AF Association
2 years ago
anything different to do after another failed fet?
hi all, this is my first post here. Sadly I received the news that my 3rd fet cycle failed today. My clinic has changed the protocol of each cycle with this one being more intense I.e. short down regulation (about 2 weeks) with buserline for mild ademiosis, lubion + pessaries for progestrone, patches
hi all, this is my first post here. Sadly I received the news that my 3rd fet cycle failed today. My clinic has changed the protocol of each cycle with this one being more intense I.e. short down regulation (about 2 weeks) with buserline for mild ademiosis, lubion + pessaries for progestrone, patches
Bed12
in
Fertility Network UK
2 years ago
Hi, ongoing issue, looking for advice x
Hi all, I married into a family where I have never been accepted (nothing new, my family don't accept me either). My husband is 13 years older than me and has two children from previous relationships, aged 19 and 14 respectively . He had a vasectomy 13 years ago, and a reversal that didn't work 3 years
Hi all, I married into a family where I have never been accepted (nothing new, my family don't accept me either). My husband is 13 years older than me and has two children from previous relationships, aged 19 and 14 respectively . He had a vasectomy 13 years ago, and a reversal that didn't work 3 years
KR2022
in
Anxiety and Depression Support
2 years ago
Mastectomy tomorrow!
I have been worked in a bit earlier (tomorrow!) than I expected for my mastectomy. I had a request in to speak to my rheumatologist but she was out all last week and yesterday, so her receptionist just got back to me this morning. The Dr won’t speak to me because I haven’t seen her in a year. She wants
I have been worked in a bit earlier (tomorrow!) than I expected for my mastectomy. I had a request in to speak to my rheumatologist but she was out all last week and yesterday, so her receptionist just got back to me this morning. The Dr won’t speak to me because I haven’t seen her in a year. She wants
Babysingstheblues
in
PMRGCAuk
2 years ago
endo and adhesion to bowel
hi I was diagnosed with endometriosis with cysts on both ovaries that have pulled them back adhering to my bowel last month after years of downplaying my symptoms as a stressful life or the doctors saying I had IBS , unexplained abdominal pain or nerve damage after gall bladder removal. They fitted
hi I was diagnosed with endometriosis with cysts on both ovaries that have pulled them back adhering to my bowel last month after years of downplaying my symptoms as a stressful life or the doctors saying I had IBS , unexplained abdominal pain or nerve damage after gall bladder removal. They fitted
Jem33
in
Endometriosis UK
2 years ago
ILC: Double Mastectomy-all breast tissue removed - Pathology showed positive margins.
My wife was diagnosed with Invasive Lobular Carcinoma in April. HR/PR positive (95%) Ki67-12%, HER2 1+ Negative. Oncotype test indicated or confirmed IV chemo would not be effect based of her ILC composition. Due to the size of the tumors she was put on Ibrance and Letrozole to help shrink the tumors
My wife was diagnosed with Invasive Lobular Carcinoma in April. HR/PR positive (95%) Ki67-12%, HER2 1+ Negative. Oncotype test indicated or confirmed IV chemo would not be effect based of her ILC composition. Due to the size of the tumors she was put on Ibrance and Letrozole to help shrink the tumors
ba5083
in
My Breast Cancer Community
2 years ago
ILC: Double Mastectomy positive margins complete breast tissue removed
My wife was diagnosed with Invasive Lobular Carcinoma in April. HR/PR positive (95%) Ki67-12%, HER2 1+ Negative. Oncotype test indicated or confirmed IV chemo would not be effect based of her ILC composition. Due to the size of the tumors she was put on Ibrance and Letrozole to help shrink the tumors
My wife was diagnosed with Invasive Lobular Carcinoma in April. HR/PR positive (95%) Ki67-12%, HER2 1+ Negative. Oncotype test indicated or confirmed IV chemo would not be effect based of her ILC composition. Due to the size of the tumors she was put on Ibrance and Letrozole to help shrink the tumors
ba5083
in
SHARE Metastatic Breast Cancer
2 years ago
Long-term Endo here but need advice around contraceptive options
Hi everyone, bit of info about me: I was diagnosed with PCOS many years ago when trying to have children and had my first laparoscopy in 2009 where they also found small pockets of endo which they lasered off. In 2011 I had my second laparoscopy whilst still undergoing investigations for infertility
Hi everyone, bit of info about me: I was diagnosed with PCOS many years ago when trying to have children and had my first laparoscopy in 2009 where they also found small pockets of endo which they lasered off. In 2011 I had my second laparoscopy whilst still undergoing investigations for infertility
OhEmGee80
in
Endometriosis UK
2 years ago
No Blood Markers…
I have been diagnosed with non-metastatic Breast Cancer 3 times since 2005 (2 rounds of radiation + tamoxifen and then a bilateral mastectomy in 2016). My final Stage 4 diagnosis came in 2022 with mets in spine, Lungs & lymph nodes. I was surprised at the diagnosis since I have had regular blood tests
I have been diagnosed with non-metastatic Breast Cancer 3 times since 2005 (2 rounds of radiation + tamoxifen and then a bilateral mastectomy in 2016). My final Stage 4 diagnosis came in 2022 with mets in spine, Lungs & lymph nodes. I was surprised at the diagnosis since I have had regular blood tests
PlutosNose
in
SHARE Metastatic Breast Cancer
2 years ago
An Interesting Dilemma
I saw this story in the Guardian today https://www.theguardian.com/society/2022/nov/07/genetic-tests-could-identify-people-at-risk-of-heart-disease-nhs-study-finds And it got me thinking about genetic testing, which seems to be the future of modern medicine and something that looks likely to be expanded
I saw this story in the Guardian today https://www.theguardian.com/society/2022/nov/07/genetic-tests-could-identify-people-at-risk-of-heart-disease-nhs-study-finds And it got me thinking about genetic testing, which seems to be the future of modern medicine and something that looks likely to be expanded
Sparklingsunshine
in
Thyroid UK
2 years ago
Latest Update to Here We Go Again
Underwent the "simple mastectomy" on Nov 1 on the right side. This is my third breast cancer surgery and sixth primary cancer overall. I was so discouraged to have cancer again and did not want the surgery, but it was the only rational option. Already have had so much radiation to the chest (lung cancer
Underwent the "simple mastectomy" on Nov 1 on the right side. This is my third breast cancer surgery and sixth primary cancer overall. I was so discouraged to have cancer again and did not want the surgery, but it was the only rational option. Already have had so much radiation to the chest (lung cancer
anrean
in
SHARE Breast Cancer Support
2 years ago
Multi Vitamins
I am having a total gastrectomy in December and have been told that I will need to take a multi vitamin for the rest of my life, however the one the dietician recommended has vitamin K in it. Can anyone recommend a multi vitamin without this vitamin in that I can purchase in uk please. Many thanks
I am having a total gastrectomy in December and have been told that I will need to take a multi vitamin for the rest of my life, however the one the dietician recommended has vitamin K in it. Can anyone recommend a multi vitamin without this vitamin in that I can purchase in uk please. Many thanks
Molly100
in
Hughes Syndrome APS Forum
2 years ago
Mirena coil experiences?
Does anyone have experience of a Mirena Coil with Hypothyroidism (esp. Hashimoto's)? I have very heavy periods, now on 100mcg Levo and feeling much improved. I'm 48 so very likely peri-menopausal too. Just had an appointment with the Womens' Health Nurse at our practice who suggested Mirena IUD as
Does anyone have experience of a Mirena Coil with Hypothyroidism (esp. Hashimoto's)? I have very heavy periods, now on 100mcg Levo and feeling much improved. I'm 48 so very likely peri-menopausal too. Just had an appointment with the Womens' Health Nurse at our practice who suggested Mirena IUD as
Regenallotment
in
Thyroid UK
2 years ago
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