Experiences with

Stoma surgery

[i]An interesting investigation aimed at validating the use of PSMA PET/CT in patients to adjust the Gleason score (downward) of their cancer based on conventional pre-surgery biopsy, scans (ultrasound & MRI). In this instance the focus was on downgrading from a high-risk of 8 to an intermediate-risk

my consultant has now said I have the start of cataracts bin both eyes 🥲my NTG is progressing despite being in maximum eye drops for3 months Visual field tests have shown progression So I’m due to have i stent and cataract surgery in next few weeks I’m trying to stay positive but also worried

Hi everyone, I have posted before so just wanted to post an update on my experience after finally getting validation on my symptoms 🙂. Following 3 and a half years of pain, negative laparoscopy (nothing found), normal ultrasounds, multiple gaslighting occasions and medical professionals saying I didn

Got diagnosed with bile acid malabsorption over a year ago terrible pain before and after bowel movements that lasts a good few hours seeing a different doctor at my surgery he said he could be the bile salts aggravating my colon so i have to up the colesevelam to 2 a day instead of 1 if that dont help

has anyone else had weird raised veins in legs and feet ?? i went to gp yesterday saw yet a different doctor she hadn’t read any of my notes before arrival and it was after a phone call where I mentioned my veins they called me in to take a look- she made me go through telling her my history when I

Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report

Hi everyone, It's been some time since I updated my situation after having been told my Lung nodules had grown. I had a lung wedge resection last year July after a biopsy which was terrible. I had infections a couple of times after the surgery. That is when I received the devastating news about my diagnosis

Hey everyone, my boyfriend just tried to change the bandages at each side of my stomach following the surgery, but the bandages seem to be actually stuck to my skin like felt as though my skin was being ripped off🤢 we had to leave it as it was far too painful. I had a look online and it says if it is

Hi, I was due to have a laproscopy a few months ago at my local hospital because of my adenomyosis, endometriosis and 6cm cyst on my right ovary. However the surgeon cancelled the surgery and said I need to be transferred to a specialist hospital. After 3 months, I attended my appointment today. I was

I have been following this website for over a year now and have learned so much from others who have shared their journey that I feel compelled to share my story in hopes that it might help someone in their decision making process. First of all, a big thank you to everyone who posts on this site. The

hi everyone! my mum had her debunking surgery 4 weeks ago yesterday and was told at the time the surgery had gone perfectly and she was NED. We went in today for the appointment to plan the chemo and the Registrar said that actually when the MDT had later reviewed the op they’d noticed microscopic

Hi everyone, this is my first post and reading others seems I am in the right place to discuss these issues with others who know exactly what I am going through. Others, even close friends, I think at times just dont get it... From what I read others too have had a long long road to diagnosis and treatment

Hi guys, Anyone had over 10 days of high fertility flashing smilies on a CB digital advance before? I'm on day 10 now which is unusual for me, the line is getting darker (both on CB and on the cheapy sticks) but no peak yet.... The CB website says I probs won't ovulate this month, which would suck.

Hi Everyone, Looking for some advice or anyone who's been through a similar experience. I had Endo 3 years ago some of my main symptoms where bowel issues bloating, gassy, stomach cramps and diarrhea whenever I ate to much. Initially the doctor put it down to IBS. Obviously that wasn't the case and it

Hi everyone :) I don't think I've posted before, probably because as awful as endo is, I've been lucky in a lot of ways. . I was diagnosed via laparoscopy in 2015, and I live in a city with an accredited endo centre, so my surgeon knew what he was doing. He found and excised a few spots in various places

I have had a GP for 8 yrs who used to categorize everything as depression or anxiety or uncurable or everyone gets it. I used to have gut issue and my GP would just tell me that is normal thing. And I should change my diet I had given up on NHS. I had stopped visiting my GP altogether. However

Hi I'm now 3 weeks off pramipexole and started Gabapentin a week ago. The first 2 of those weeks I was in hospital having surgery for something else and recovering with opioid painkillers which removed the need for anything else. The 3rd week I started gabapentin but I don't have the levels right

So following on from my last post, I received a call from the Consultant yesterday to confirm that my CT results are clear and the polyp he removed from my cervix has come back benign which I am so relieved about. My Consultant now plans to do a Laproscopy to remove the endometrioma together with my

As I say goodbye 👋 for a wee while to running and to posting here, I am aware that new adventures await. I cannot run in the short term as I face surgery & recovery but I can look ahead and plan what happens next. You may have just completed HU10 or a 5k race… and living in the happy aftermath but

I had a call from my GP surgery about taking statins.Apparently my cholesterol is okay but I have a 38% risk of having a stroke or heart attack. Even though I take anticoagulant statins work in a different way and are recommended for me as I am in persistent afib I do not want to take statins but wondered