Hi all, hope you are enjoying the sun.
This is a bit of a long post, so please bear with me and I hope you could give me some advice.
I’ve been in hospital 5 times over the past 8 months due to , sepsis and severe diverticulitis flare and perforations in the intestines. I have just been discharged from hospital last Monday (3 March 2025) after being admitted in via A&E (again ,after 11days from the previous visit) and had to have an emergency operation as I had sepsis, the sigmoid, large bowel and part of intestines taken out and a stoma put in. Then I got aquired Flu A whilst in hospital. So it’s been a bumpy ride.
Before going into hospital I managed to reduce from 30 mg to 12.5mg. Over the past year. And was going ok. Had PMR diagnosed last year.
Whilst in hospital this time they increased the steroids to, apparently , 200 mg whilst having operation (had operation 16th feb 2025) then reduced to 60mg. They had changed it from prednisone to hydrocortisone as I was on liquid only drips. I made it quite clear that I was worried about reducing too quick as was worried about adrenal issues -amongst all the other stuff I’m trying to cope with at present. So the pharmacist has come up with a reduction plan. Which started from 3/3/25 as 30 mg for two days, 25 for three days, 20 for 3 days -which is where I am now and then from 11th 15 mg for 3 days then go to 12.5 from 14th.
I am really feeling effects of this reduction, I’ve been falling asleep in morning and feeling pretty “woozy” legs are like cement and then feeling wiped out in afternoon.
Suppose the question is, although the pharmacist at hospital has given me this schedule I do wonder if this is too quick and scared I could be going into a flare for PMR , my body is still not right from the operation, and having to heal after such a long time being so ill. what are your thoughts?