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Stem cell and bone marrow transplants
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Patients with higher apolipoprotein A-I levels at greater risk for giant cell arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
https://www.healio.com/news/rheumatology/20240315/patients-with-higher-apolipoprotein-ai-levels-at-greater-risk-for-giant-cell-arteritis
perceptual63
in
PMRGCAuk
2 months ago
Tapering
Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist told me to go up to 7.5mg. The flare abated. I then got an infection/virus and on the advice of the rheumatology nurses increased to 10mg for a
Just a quick question about tapering Prednisolone. I have had GCA since Aug 22. Have tapered down to 5mg but had the beginnings of a flare. My rheumatologist told me to go up to 7.5mg. The flare abated. I then got an infection/virus and on the advice of the rheumatology nurses increased to 10mg for a
Noni71
in
PMRGCAuk
3 months ago
new onset neuropathy
hi Hi since a liver transplant 3.5 months ago I have been getting burning feet esp at night. It has gradually worsened and now I get it during the day with pain and swelling and my hands have kicked off now. It is so bad at times I just can’t walk with the discomfort and pain. I’ve heard it’s due
hi Hi since a liver transplant 3.5 months ago I have been getting burning feet esp at night. It has gradually worsened and now I get it during the day with pain and swelling and my hands have kicked off now. It is so bad at times I just can’t walk with the discomfort and pain. I’ve heard it’s due
Zechariah123
in
British Liver Trust
9 months ago
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Aortitis
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
I was diagnosed with non cranial Giant Cell Arteritis in September last year. So far I haven't managed to find anyone else with this condition because most people have the temporal version with the headaches.Mine is Aortitis which apparently is rare. I'd love to share experiences with someone else
Dance62
in
PMRGCAuk
3 months ago
Second kidney transplant
Hi, My nephrologist is putting in the application for me to go back onto the transplant list. I am very lucky as I have had my first transplant for over 28 years. My GFR is running at 12. Something I wondered about is do they remove my previous transplant and put the new one in the same place? I
Hi, My nephrologist is putting in the application for me to go back onto the transplant list. I am very lucky as I have had my first transplant for over 28 years. My GFR is running at 12. Something I wondered about is do they remove my previous transplant and put the new one in the same place? I
DoylerOz
in
Kidney Transplant
9 months ago
Severn Bridge 10k - long post warning ⚠️
Everyone else has written brilliant posts on the Race Support Forum but here is version 4 and I’ve put it on the Bridge Forum to give those on the journey to 10k an inkling of the excitement of a 10k race! I have been wanting to do the Severn Bridge 10k for years, having read many race reports by
Everyone else has written brilliant posts on the Race Support Forum but here is version 4 and I’ve put it on the Bridge Forum to give those on the journey to 10k an inkling of the excitement of a 10k race! I have been wanting to do the Severn Bridge 10k for years, having read many race reports by
Dexy5
Graduate10
in
Bridge to 10K
9 months ago
Stage 5 Chronic Kidney Disease (CKD)
Dialysis and kidney transplant are the only two treatments for people with kidney failure. It is also important for patients to continue managing any other health conditions they may have, including high blood pressure and/or diabetes. Learn more at: https://www.kidney.org/atoz/content/stage-5-chronic-kidney-disease-ckd
Dialysis and kidney transplant are the only two treatments for people with kidney failure. It is also important for patients to continue managing any other health conditions they may have, including high blood pressure and/or diabetes. Learn more at: https://www.kidney.org/atoz/content/stage-5-chronic-kidney-disease-ckd
JackieJ_NKF
Partner
in
Kidney Dialysis
9 months ago
Bone marrow transplant possibility and leriglitazone update
An update to which I had previously posted; ,I went to London and met Doctor Robin Lachmann. He is going to start me on the drug soon then I will need to go bk to London after being on it for 4 weeks so they can tweak the dosage. He views this more of a temporary solution though and I think has concerns
An update to which I had previously posted; ,I went to London and met Doctor Robin Lachmann. He is going to start me on the drug soon then I will need to go bk to London after being on it for 4 weeks so they can tweak the dosage. He views this more of a temporary solution though and I think has concerns
JShough
in
AMN EASIER
1 year ago
Transplant.vs dialysis
Hi. I am going through the process for a kidney transplant. I had my first appointment with the transplant deans was supposed by what he was saying. I felt like he was trying to talk me ougetting a transplant. He told me there was no guarantee a transplant would improve my life more than dialysis.
Hi. I am going through the process for a kidney transplant. I had my first appointment with the transplant deans was supposed by what he was saying. I felt like he was trying to talk me ougetting a transplant. He told me there was no guarantee a transplant would improve my life more than dialysis.
Jade1982
in
Kidney Transplant Patient Support
9 months ago
new diagnosis: ovarian serous borderline tumour
(I’m 52 and have three adult daughters and have had some menopause already due to chemically induced from
stem
cell
transplant
) Thanks for reading, I’m obviously a bit shell shocked!
(I’m 52 and have three adult daughters and have had some menopause already due to chemically induced from
stem
cell
transplant
) Thanks for reading, I’m obviously a bit shell shocked!
Atai
in
My Ovacome
1 year ago
latest news on liver transplants fo4 young people
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
take a look at this link where young people are waiting longer than people over age of 60 for transplant decisions made by computer algorithms https://www.bbc.co.uk/news/health-66259618 any thoughts? I’ve just been given probably 5 years to live without a transplant, and some have been waiting for
Harriet-sarah
in
British Liver Trust
9 months ago
CYSTOSCOPY NEGATIVE August 2023
Hey Ladies and Gents. The urologist/oncologist says we can stop the monthly chemo infusions since my urinary bladder looks free of any neoplasm. And next April (2024), if it holds, I’ll be cancer free for three years and can get back on the lung transplant list. “Let your last thinks all be thanks
Hey Ladies and Gents. The urologist/oncologist says we can stop the monthly chemo infusions since my urinary bladder looks free of any neoplasm. And next April (2024), if it holds, I’ll be cancer free for three years and can get back on the lung transplant list. “Let your last thinks all be thanks
Sharp5Flat13
in
Lung Conditions Community Forum
10 months ago
Kidney disease and inheritance.
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
nlee
in
Kidney Transplant
10 months ago
Kidney transplant and children
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
Hello everyone, I have kidney transplant 32 years ago. I now have 2 boys. My question is does kidney disease pass on to my children? My tenage son just went to have a urine test, and the result show there is a trace amount of blood in his urine. I am so worry because I don't want my kids to have
nlee
in
Kidney Transplant Patient Support
10 months ago
Lightheadedness and Knee heaviness/dull pain after kidney transplant
Hi everyone, My client developed lightheadedness after kidney transplant, he's 3 months post transplant now. Actually, he had dizziness and imbalance pre-transplant and it worsen after the transplant. Moreover, he complains of knee heaviness, sometimes with dull pain. His BP is quite stable, not taking
Hi everyone, My client developed lightheadedness after kidney transplant, he's 3 months post transplant now. Actually, he had dizziness and imbalance pre-transplant and it worsen after the transplant. Moreover, he complains of knee heaviness, sometimes with dull pain. His BP is quite stable, not taking
Jeeeemv
in
Kidney Transplant
10 months ago
First patient receives milestone stem cell-based transplant for Parkinson Disease at Lund University, Sweden.
https://www.lunduniversity.lu.se/article/first-patient-receives-milestone-
stem
-
cell
-based-
transplant
-parkinsons-disease On 13th of February, a
transplant
of
stem
cell
-derived nerve cells was administered to a person with Parkinson’s at Skåne University Hospital, Sweden.
https://www.lunduniversity.lu.se/article/first-patient-receives-milestone-
stem
-
cell
-based-
transplant
-parkinsons-disease On 13th of February, a
transplant
of
stem
cell
-derived nerve cells was administered to a person with Parkinson’s at Skåne University Hospital, Sweden.
Hidden
in
Cure Parkinson's
1 year ago
3 months post kidney transplant question
My husband is 3 months post kidney transplant. He is experiencing severe gut issues. Can he take probiotics, Vitamins like fish oil, Turmeric and add more fiber into diet? Regular doctors are not offering ANY assistance. H. pylori and BK came back negative. He is nauseous, gassy and has lost over
My husband is 3 months post kidney transplant. He is experiencing severe gut issues. Can he take probiotics, Vitamins like fish oil, Turmeric and add more fiber into diet? Regular doctors are not offering ANY assistance. H. pylori and BK came back negative. He is nauseous, gassy and has lost over
Loveoflife
in
Kidney Transplant
10 months ago
Dating and kissing for young adults with kidney transplant
Please answer only if you have gone through the same situation. How do you do to avoid rejection when meeting a potential romantic partner? I wear a mask in closed public places. All women I met when they know that I have a kidney transplant start to keep distance and do not give me a chance to
Please answer only if you have gone through the same situation. How do you do to avoid rejection when meeting a potential romantic partner? I wear a mask in closed public places. All women I met when they know that I have a kidney transplant start to keep distance and do not give me a chance to
vision22
in
Kidney Transplant
10 months ago
Heart Transplant
Good morning all, just wanted to know if any has or known some who has had a heart transplant. I have had a serious heart condition for 50 years and became seriously I’ll last year. I am now on the waiting list for a transplant since Jan 23. I suppose the question I’m asking is what it was like ? as
Good morning all, just wanted to know if any has or known some who has had a heart transplant. I have had a serious heart condition for 50 years and became seriously I’ll last year. I am now on the waiting list for a transplant since Jan 23. I suppose the question I’m asking is what it was like ? as
DW4019
in
British Heart Foundation
10 months ago
Have kidney transplant and dr found a intraduct mass on my breast is really small but im so worried
I going through a difficult time here I have a kidney transplant for 22 years just when to get a ultrasound and they found an intraductal mass which is really mass . I did a biopsy and I'm terrified that it could be cancerous. I don't want to know waiting for results is torture for me. I read and did
I going through a difficult time here I have a kidney transplant for 22 years just when to get a ultrasound and they found an intraductal mass which is really mass . I did a biopsy and I'm terrified that it could be cancerous. I don't want to know waiting for results is torture for me. I read and did
jennifer24
in
Kidney Transplant
10 months ago
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