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Anyone with PSP-PAGF
I am from India and new to this association. My husband age 69 was diagnosed (mis?) as Parkinson's patient in 2019. He was having speech issues and slow movements Last month, he started freezing and can only walk with baby steps. Consulted a movement disorder specialist who diagnosed it as PSP-PAGF.
I am from India and new to this association. My husband age 69 was diagnosed (mis?) as Parkinson's patient in 2019. He was having speech issues and slow movements Last month, he started freezing and can only walk with baby steps. Consulted a movement disorder specialist who diagnosed it as PSP-PAGF.
Sharsuk
in
PSP Association
1 year ago
Speech therapy advice
Hello My brother Chris had a severe brain injury 5 months ago. He’s currently in rehab (NHS) where he’s been for 2 months as it took time to get a suitable rehab placement. Chris’ injury was on the left side of his head. Initially, he couldn’t move his right arm but quickly got mobility and some
Hello My brother Chris had a severe brain injury 5 months ago. He’s currently in rehab (NHS) where he’s been for 2 months as it took time to get a suitable rehab placement. Chris’ injury was on the left side of his head. Initially, he couldn’t move his right arm but quickly got mobility and some
HopeForChris
in
Headway
1 year ago
Advice Please
I was diagnosed with ataxia sca6 in 2018, after 5yrs of
problems
.
Speech
in 2015 became difficult and it’s been downhill since. Now I feel that I’ve constant motion sickness, does anyone else have the same problem? Any tips on how to manage gratefully received.
I was diagnosed with ataxia sca6 in 2018, after 5yrs of
problems
.
Speech
in 2015 became difficult and it’s been downhill since. Now I feel that I’ve constant motion sickness, does anyone else have the same problem? Any tips on how to manage gratefully received.
Lilielost
in
Ataxia UK
1 year ago
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Needing answers....
Still having crushing chest and neck pain,
problems
with
speech
vocal palsy, exhaustion and light headedness. Just had follow up 24hr ECG and Thoratic ECG at BHI. Trying to get answers of diagnosis, prognosis, treatment.
Still having crushing chest and neck pain,
problems
with
speech
vocal palsy, exhaustion and light headedness. Just had follow up 24hr ECG and Thoratic ECG at BHI. Trying to get answers of diagnosis, prognosis, treatment.
Hugomum
in
British Heart Foundation
8 months ago
Proud Parkie Dad
I did 2 hours gloves before setting off and delivered my
speech
without serious
problems
. Thank you kwisatz and erniediaz for the kind words and Gioc for the flowers
I did 2 hours gloves before setting off and delivered my
speech
without serious
problems
. Thank you kwisatz and erniediaz for the kind words and Gioc for the flowers
WinnieThePoo
in
Cure Parkinson's
1 year ago
Suspected Endo Help
Hi All, Just wondering if anyone can help, I'm in the very early stages of being investigated for Endometriosis. I've been suffering for as long as I can remember with heavy periods, dehabilitating pain, throwing up, clots, constipation or diarrhoea however just thought that was normal for periods it's
Hi All, Just wondering if anyone can help, I'm in the very early stages of being investigated for Endometriosis. I've been suffering for as long as I can remember with heavy periods, dehabilitating pain, throwing up, clots, constipation or diarrhoea however just thought that was normal for periods it's
Amy_P_1996
in
Endometriosis UK
1 year ago
Coming off the pill and periods
Hello everyone. I have decided to come off the pill but I'm unsure how to calculate when my first period will be. Do I count my cycle length from the day I stop taking the pill or the first day of my withdrawal bleed? I know it is unlikely to be exact as it takes the body a while to get back into a normal
Hello everyone. I have decided to come off the pill but I'm unsure how to calculate when my first period will be. Do I count my cycle length from the day I stop taking the pill or the first day of my withdrawal bleed? I know it is unlikely to be exact as it takes the body a while to get back into a normal
Sar94
in
Women's Health
1 year ago
2 week Late Period
Has anyone had late period but negative pregnancy test? Im so confused to whats going on with my body and I have tried to see my GP but cant get an appointment My periods are always regular so this has threw me off and im just very confused to whats going on with my body and have noone to talk to
Has anyone had late period but negative pregnancy test? Im so confused to whats going on with my body and I have tried to see my GP but cant get an appointment My periods are always regular so this has threw me off and im just very confused to whats going on with my body and have noone to talk to
Reggie2020
in
Endometriosis UK
1 year ago
Helpful Info for Speech and Swallowing Problems
I found wonderful information on YouTube from Speech Therapist Matt McKeon. Two videos I highly recommend for anyone seeking help. Wholistic Speech Therapy Channel “The McKeon Method” Cure PSP Channel presentation by Matt McKeon, includes MSA information.
I found wonderful information on YouTube from Speech Therapist Matt McKeon. Two videos I highly recommend for anyone seeking help. Wholistic Speech Therapy Channel “The McKeon Method” Cure PSP Channel presentation by Matt McKeon, includes MSA information.
SaltyFlorist
in
Multiple System Atrophy Trust
1 year ago
New to endometriosis
hi all.. My journey started 5 years ago I noticed I used to bloat a lot 2 weeks before period and leading to period. My periods also changed from 28 day cycle to 33,35, I also had pelvic pain and shooting pain I would have bad period pains and lower back pain aswell as leg pain but thought this was
hi all.. My journey started 5 years ago I noticed I used to bloat a lot 2 weeks before period and leading to period. My periods also changed from 28 day cycle to 33,35, I also had pelvic pain and shooting pain I would have bad period pains and lower back pain aswell as leg pain but thought this was
Starfish44
in
Endometriosis UK
1 year ago
Exhaustion after Laparoscopy
Hello, I am 2 weeks post laparoscopy which found and removed endometriosis. I've healed externally and pain is manageable without many drugs but I am still suffering from exhaustion. I'm trying to push myself to do things like food shopping and school run, but often I have to sleep for 2 or 3 hours in
Hello, I am 2 weeks post laparoscopy which found and removed endometriosis. I've healed externally and pain is manageable without many drugs but I am still suffering from exhaustion. I'm trying to push myself to do things like food shopping and school run, but often I have to sleep for 2 or 3 hours in
Camodo_Cat
in
Endometriosis UK
1 year ago
Ivf after laparoscopy
Hi, I'm starting ivf stims and had a laparoscopy for stage 4 endo about 6 weeks ago. I'm in so much pain but can't tell if it's the injections to stimulate the ovaries or if its 'just' my period and sore from surgery still. Hoping things get easier but I'm on 7th day of period and been in agony.
Hi, I'm starting ivf stims and had a laparoscopy for stage 4 endo about 6 weeks ago. I'm in so much pain but can't tell if it's the injections to stimulate the ovaries or if its 'just' my period and sore from surgery still. Hoping things get easier but I'm on 7th day of period and been in agony.
Apricottree
in
Endometriosis UK
1 year ago
Can someone help me please
Hi can anyone help please is this implantation bleeding 3 days early
Hi can anyone help please is this implantation bleeding 3 days early
Dannii_2023
in
British Pregnancy Advisory Service
1 year ago
If you have Speech problems..take part in this Study
Researchers want to learn about experiences using call centres from people with speech that is difficult to understand. They will use the results of this project to understand how the accessibility of telephone communication can be improved. https://www.ataxia.org.uk/wp-content/uploads/2023/02/Flyer_group1
Researchers want to learn about experiences using call centres from people with speech that is difficult to understand. They will use the results of this project to understand how the accessibility of telephone communication can be improved. https://www.ataxia.org.uk/wp-content/uploads/2023/02/Flyer_group1
wobblybee
in
Ataxia UK
1 year ago
Does your endo come back with different symptoms to before?
I was diagnosed with endo in 2019 during a laparoscopy. I never had painful or heavy periods but did have deep nagging pelvic and lower back pain. The endo was removed by excision and I've been fine ever since. Lately, at any point during my cycle I am getting a similar deep nagging pain again which
I was diagnosed with endo in 2019 during a laparoscopy. I never had painful or heavy periods but did have deep nagging pelvic and lower back pain. The endo was removed by excision and I've been fine ever since. Lately, at any point during my cycle I am getting a similar deep nagging pain again which
misterbroc
in
Endometriosis UK
1 year ago
How to confirm I have endometriosis?
I have a cyst in my both ovaries. After a number of tests including CA 125 and series of Ultrasound and antibiotics, the doctors diagnosed that I have endometriosis and straight away suggested that I should go for surgery and get my both ovaries removed for which I am not ready at all. Also I am really
I have a cyst in my both ovaries. After a number of tests including CA 125 and series of Ultrasound and antibiotics, the doctors diagnosed that I have endometriosis and straight away suggested that I should go for surgery and get my both ovaries removed for which I am not ready at all. Also I am really
Sproutedmoongdaal
in
Endometriosis UK
1 year ago
Periods returning?
Hi. I have been on 2 different GNRH analogues for 2.5 years ish. I have decided to come off the injections as I can no longer tolerate the side effects. Especially joint pains. How long does it take for your periods to return? Will they be as bad as before? Thanks
Hi. I have been on 2 different GNRH analogues for 2.5 years ish. I have decided to come off the injections as I can no longer tolerate the side effects. Especially joint pains. How long does it take for your periods to return? Will they be as bad as before? Thanks
Awwy
in
Endometriosis UK
1 year ago
Started my period!!!?
Hey Ladies! So I’ve been on the progesterone only pill a little over a month ago, and I take it without breaks. I’ve mapped out my cycles in the past, and this is exactly when I was supposed to start this month.Symptoms are similar to period and bleeding is dark/heavy. Is this normal???
Hey Ladies! So I’ve been on the progesterone only pill a little over a month ago, and I take it without breaks. I’ve mapped out my cycles in the past, and this is exactly when I was supposed to start this month.Symptoms are similar to period and bleeding is dark/heavy. Is this normal???
Hooplove00
in
Endometriosis UK
1 year ago
Prostap3 and periods
At the moment I'm on my 3rd injection of Prostap3. So I'm in my 7 month and I'm so sick of bleeding....at first it was just light pink discharge continuously....this has progressed to 6 days heavy bleeding with clots.....then a break anywhere between a day to a week then bleeding and clots again....
At the moment I'm on my 3rd injection of Prostap3. So I'm in my 7 month and I'm so sick of bleeding....at first it was just light pink discharge continuously....this has progressed to 6 days heavy bleeding with clots.....then a break anywhere between a day to a week then bleeding and clots again....
Smm445
in
Endometriosis UK
1 year ago
Is Laparoscopy worth it based on my symptoms?
Hi Ladies, My backstory is I came off Microgynon contraceptive pill a couple of years to regulate hormones before trying to conceive. Since coming off pill my periods have not been fun at all and symptoms seem to have gotten worse. Me and my husband have been ttc for 7 months which is not a very long
Hi Ladies, My backstory is I came off Microgynon contraceptive pill a couple of years to regulate hormones before trying to conceive. Since coming off pill my periods have not been fun at all and symptoms seem to have gotten worse. Me and my husband have been ttc for 7 months which is not a very long
Jennifer89
in
Endometriosis UK
1 year ago
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