Experiences with

Speech problems

I was diagnosed with SCA 6 8 years ago but my first symptom started about 4 years before that when I noticed that I was slurring a bit and sometimes had difficulty pronouncing words. ( My GP at the time dismissed this and I think he put me down as a hypochondriac!) After 12 years I sometimes explain

My main problem is my balance, occasional speech problems and inability to write. Anyone else have similar?

Do you have speech problems with your fnd , I had a stroke like system a couple of weeks ago but without the stroke and its left me having difficulty talking ,I have to think what I'm trying to say and getting the words out is difficult but I've noticed my mind feels empty, I can be walking around in

Hi Folks, My son is 11 years old and in the 5th grade. Unfortunately our district ran out of room in the elementary schools so 5th grade is now part of middle school. My son has ADHD and Tourette’s and was previously medicated in 1st-2nd grade. We seriously tried all medications and then went meds

You be careful out there. I fell in my kitchen just walking across the kitchen floor and broke my femur. This was before Christmas. And let me tell you something like that can really set you back. I was in the hospital twice. The second time due to high blood pressure. And rehab but boy when

Stuart had an oesophagectomy on 14 November last year quite high up. He had another swallow test end of January which showed no improvement in his swallowing. We had a long meeting with speech therapist about this. He’ll have another swallow test in 3 months meanwhile he has a series of specific exercises

My partner, Stuart, had an oesophagectomy on 14 November 24. Since then he has not been able to swallow due to how high up the surgery took place. He had a video last week to check if he could swallow safely but sadly not. The response from the therapist that there was “an absence of swallowing exercises

Hi, I've seen a couple of items on here regarding the palliative care and making sure its on medical records.My husband was diagnosed 16th December 2024 with CBD after seeing a neurologist. We have been seeing the parkinsons physiotherapists and got an OT that is due to come and access our home for his

Life after stroke.Marriage to roommate. My spouse had a clot stroke in October. He is healing and going to a speech therapist but married relationships is more like roommates. I don't pressure him and understand that the way he thinks is a bit different now because the stroke damaged or changed a portion

Hello all,We have had some weeks now with our daughter back home after brain injury rehab unit. She got her brain swell in July last year. A scary time having her home again and not knowing what she was going to do. We have therapists coming to the home for 10 weeks which include neuro psychology, occ

swallowing probems - dysphagia - aspiration "Electrical stimulation" for dysphagia in Parkinson's disease typically refers to neuromuscular electrical stimulation (NMES), where electrical currents are applied to the muscles in the neck region to potentially improve swallowing function by stimulating

Hi, I've been diagnosed with Parkinsonism in 2016 and then re-diagnosed with MSA-P in 2020. Amongst all the different symptoms, my voice/speech is suffering greatly. I see. a speech therapist and do regular voice exercises but my voice is getting worse. I'd be interested in people's experiences with

my sister had a heart attack and died for three minutes. They put her in a medically and she is now conscious but has speech difficulty and balance issues as well as the confusion and remembering names. She’s in a very good rehab center, but is refusing to cooperate or eat. Is there any advice on

My name is Phil. My wife Janet is 87 and has recently been diagnosed with atypical Parkinsons. We tried meds - NeuPro and Rytary BUT - because of the bad side effects (at least bad for Janet who weighs 86 lbs) - we have stopped both now The biggest issue is balance - - and falling backwards - breaking

I’ve been struggling with panic attacks for quite some time now. It started subtly—I would find myself crying in the middle of a crowd during an otherwise normal conversation, with tears rolling down my face for no apparent reason. Over time, these moments escalated into full-blown panic attacks, where

My daughter has been diagnosed with ADHD. She was born premature at 1lb 1/2. We had to put her in speech therapy. What I later t learned on my own was that although she’s 13 YOA, psychologically and emotionally she’s 8-9 YOA. I was treating her like a 13 year old but then learned this when I found myself

My daughter 22 fell ill with encephalitis in July this year. She responded very well to IVIG and steroids for 5 days. She left hospital feeling well enough to return to Uni and work. She has autoimmune encephalitis seronegative. In late August she deteriorated and returned to hospital in September

my poor mum has reached the stage where conversation is nigh on impossible….. yet she knows exactly what she wants to say!!! I’ve had phone calls from her distressed friends and other family members recently all getting very upset that they can’t understand what mum is saying..,,, Any advice or tips

Follow the link below https://tactustherapy.com/parkinsons-disease-pd-improve-speech-therapy/

My leg muscles feel strange. It is a combination of weakness and burning, and then I just have to sit. I don't feel I can stand any longer. I was just Dx'd in September, but I'm pretty sure it has been with me for a while. Is this the course of PD? Is this part of the package? Would it help if I tried