Experiences with

Speech problems

I was diagnosed with SCA 6 8 years ago but my first symptom started about 4 years before that when I noticed that I was slurring a bit and sometimes had difficulty pronouncing words. ( My GP at the time dismissed this and I think he put me down as a hypochondriac!) After 12 years I sometimes explain

Life after stroke.Marriage to roommate. My spouse had a clot stroke in October. He is healing and going to a speech therapist but married relationships is more like roommates. I don't pressure him and understand that the way he thinks is a bit different now because the stroke damaged or changed a portion

Hello all,We have had some weeks now with our daughter back home after brain injury rehab unit. She got her brain swell in July last year. A scary time having her home again and not knowing what she was going to do. We have therapists coming to the home for 10 weeks which include neuro psychology, occ

swallowing probems - dysphagia - aspiration "Electrical stimulation" for dysphagia in Parkinson's disease typically refers to neuromuscular electrical stimulation (NMES), where electrical currents are applied to the muscles in the neck region to potentially improve swallowing function by stimulating

Hi, I've been diagnosed with Parkinsonism in 2016 and then re-diagnosed with MSA-P in 2020. Amongst all the different symptoms, my voice/speech is suffering greatly. I see. a speech therapist and do regular voice exercises but my voice is getting worse. I'd be interested in people's experiences with

my sister had a heart attack and died for three minutes. They put her in a medically and she is now conscious but has speech difficulty and balance issues as well as the confusion and remembering names. She’s in a very good rehab center, but is refusing to cooperate or eat. Is there any advice on

My name is Phil. My wife Janet is 87 and has recently been diagnosed with atypical Parkinsons. We tried meds - NeuPro and Rytary BUT - because of the bad side effects (at least bad for Janet who weighs 86 lbs) - we have stopped both now The biggest issue is balance - - and falling backwards - breaking

I’ve been struggling with panic attacks for quite some time now. It started subtly—I would find myself crying in the middle of a crowd during an otherwise normal conversation, with tears rolling down my face for no apparent reason. Over time, these moments escalated into full-blown panic attacks, where

My daughter has been diagnosed with ADHD. She was born premature at 1lb 1/2. We had to put her in speech therapy. What I later t learned on my own was that although she’s 13 YOA, psychologically and emotionally she’s 8-9 YOA. I was treating her like a 13 year old but then learned this when I found myself

My daughter 22 fell ill with encephalitis in July this year. She responded very well to IVIG and steroids for 5 days. She left hospital feeling well enough to return to Uni and work. She has autoimmune encephalitis seronegative. In late August she deteriorated and returned to hospital in September

my poor mum has reached the stage where conversation is nigh on impossible….. yet she knows exactly what she wants to say!!! I’ve had phone calls from her distressed friends and other family members recently all getting very upset that they can’t understand what mum is saying..,,, Any advice or tips

Follow the link below https://tactustherapy.com/parkinsons-disease-pd-improve-speech-therapy/

My leg muscles feel strange. It is a combination of weakness and burning, and then I just have to sit. I don't feel I can stand any longer. I was just Dx'd in September, but I'm pretty sure it has been with me for a while. Is this the course of PD? Is this part of the package? Would it help if I tried

Hi, I'm new here. Yesterday, after 2 years of searching, my 75-year-old mother was finally diagnosed. We are from Poland, where there is no other treatment apart from amantadine and levodopa. There are also no websites or support groups like yours. That's why I would like to ask if, apart from a physiotherapist

I was looking for a motor control success story and came across this Re-Active interview with Julie. At the end of it I heard Katie mention some speech therapy technique for tics that had helped her. I found this, its called CBIT Tic Therapy. https://practicalneurology.com/articles/2020-mar-apr/comprehensive-behavioral-intervention-for-tics

(Low blood sugars, low bp, hormone imbalance, debilitating joint and muscle pain and stiffness, muscle weakness spasms, severe fatigue, speech problems) all these symptoms always improve once meds are stopped. Tried out dosages for nearly 2 years now and vits/mins all optimal.

Hi All This is just an update on how my 8-year-old boy is doing after his Hemorrhagic stroke. We're slowly making progress with his motor skills, most of the time he crawls about the house but with help from me walking a little. his appetite has improved a lot so very happy on that side of things.

I will try and be short about my story. It is a snapshot of events whilst I was on Levothyroxine for more or less 25 yrs. I never felt well and was never referred to an endocrinologist. I gained weight, my hair thinned. I had problems not only with my voice, but swallowing food. I had brain fog, acute

🙂 Many of us have noticed changes in our Speech…it can be embarrassing and frustrating. If this becomes a real problem we’re generally referred to a Speech Therapist..and there is also the option of joining AtaxiaUKs link to Speech Therapy. Something else I’ve seen recommended..is learning another

Seeing if anyone has any insight. On May 16th my mom (62 years old) went to her cardiologist with chest pain. She did have afib for the last three year but she had that under control. When she went to her cardiologist on the 16th he sent her to the ER just because he was concerned with chest pains