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What products help you most with your PRD symptoms?
Hi, I volunteer for PRDA as a fundraiser, and I am keen to get businesses to donate to PRDA, especially those that supply products that people with Pelvic Radiation Disease find particularly useful. Please could you reply with any information about your medication, medical products (such as continence
Hi, I volunteer for PRDA as a fundraiser, and I am keen to get businesses to donate to PRDA, especially those that supply products that people with Pelvic Radiation Disease find particularly useful. Please could you reply with any information about your medication, medical products (such as continence
PurpleIris47
Community Pioneer
in
Pelvic Radiation Disease Association
4 years ago
Diet with a colostomy
Hi everybody I was interested to see if anybody had any idea of how to eat a controlled diet with a stoma. [Edited by moderator] Greens I’m unable to eat with my stoma but I’m thinking maybe I could make a smoothie of some sort to help? Does anybody have any other advice of what I may be able to eat
Hi everybody I was interested to see if anybody had any idea of how to eat a controlled diet with a stoma. [Edited by moderator] Greens I’m unable to eat with my stoma but I’m thinking maybe I could make a smoothie of some sort to help? Does anybody have any other advice of what I may be able to eat
Emma-Jane87
in
My Ovacome
4 years ago
Bowel blockage
Hello ladies, I'm so scared right now, my mum is having a reoccurance after 6 years in remission, she has been quite unwell since March, this last month her ca125 shot up to 600, she has been hardly able to eat, she has constant bowel problems which have finally reached to her being admitted to hospital
Hello ladies, I'm so scared right now, my mum is having a reoccurance after 6 years in remission, she has been quite unwell since March, this last month her ca125 shot up to 600, she has been hardly able to eat, she has constant bowel problems which have finally reached to her being admitted to hospital
Holdingontohope
in
My Ovacome
4 years ago
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Possible Stoma - help!
Hi everyone! I hope you are all well and enjoying this amazing weather. I was diagnosed with stage IIIC ovarian cancer at the end of Feb and, after having three chemos, my CA125 is 22 and I am scheduled for an op in around two weeks. However, despite being told that my response to chemo is very good
Hi everyone! I hope you are all well and enjoying this amazing weather. I was diagnosed with stage IIIC ovarian cancer at the end of Feb and, after having three chemos, my CA125 is 22 and I am scheduled for an op in around two weeks. However, despite being told that my response to chemo is very good
LesleyGB
in
My Ovacome
4 years ago
Bag lady
Thank you for all you wonderful comments and support on my last post, they help so much. Unfortunately things have taken a turn for the worse, hubby took me to A & E Monday morning was in agony stomach pain. Turns out bowel obstruction which I thought it could have been. So major op yest and now have
Thank you for all you wonderful comments and support on my last post, they help so much. Unfortunately things have taken a turn for the worse, hubby took me to A & E Monday morning was in agony stomach pain. Turns out bowel obstruction which I thought it could have been. So major op yest and now have
Samjane
in
My Ovacome
4 years ago
Newbie bowel / lung cancer
Hi all I’m a newbie ,..I’m 51 years old and got diagnosed with stage 4 blwel / lung cancer ...I have 5 kids ,4 my youngest are all autistic and my husband passed away very suddenly 3 years ago so I’m all they have ( both sets of grandparents passed ) my fear is who’s going to take care of them when I
Hi all I’m a newbie ,..I’m 51 years old and got diagnosed with stage 4 blwel / lung cancer ...I have 5 kids ,4 my youngest are all autistic and my husband passed away very suddenly 3 years ago so I’m all they have ( both sets of grandparents passed ) my fear is who’s going to take care of them when I
Sannyboop
in
The Roy Castle Lung Cancer Foundation
4 years ago
Colostomy due to Ovarian Cancer
Has anyone had to get an ostomy because of a tumor? If so how long did you have it? Was it permanent or reversed? Are you done with treatment?
Has anyone had to get an ostomy because of a tumor? If so how long did you have it? Was it permanent or reversed? Are you done with treatment?
Apwulady
in
SHARE Ovarian Cancer Support
4 years ago
HELP ME! WWE all night! My arms and legs are waving and slapping all night long. I tear the bed apart, beat myself and my husband. HELP
I was taking Clonazepam with THE best results after trials with
Soma
( & at least 2 other muscle relaxants), the 2 meds that are specifically for RLS (? names escape me) a patch maybe, a couple of antidepressants in the amitriptyline category, and a couple in the SSRI family.
I was taking Clonazepam with THE best results after trials with
Soma
( & at least 2 other muscle relaxants), the 2 meds that are specifically for RLS (? names escape me) a patch maybe, a couple of antidepressants in the amitriptyline category, and a couple in the SSRI family.
Hidden
in
Restless Legs Syndrome
4 years ago
Reoccurance
Good evening ladies, I have not posted for years, why, firstly I joined this forum when my mum got diagnosed stage 3 C ovarian, 2 huge tumours and spots on the bowel, chemo etc, big op, I can't remember the exact details because it had become almost a distant memory for me, my mum has had 6 wonderful
Good evening ladies, I have not posted for years, why, firstly I joined this forum when my mum got diagnosed stage 3 C ovarian, 2 huge tumours and spots on the bowel, chemo etc, big op, I can't remember the exact details because it had become almost a distant memory for me, my mum has had 6 wonderful
Holdingontohope
in
My Ovacome
4 years ago
Heartbroken
My husband is scheduled for a Colostomy on 5-08-2020. He said he is scared, I am crying because my husband is not scared of anything. He went through Chemo and Radiation treatments at the same time in 2014. He been in remission for five years but his cancer left a terrible wound that won't heal. They
My husband is scheduled for a Colostomy on 5-08-2020. He said he is scared, I am crying because my husband is not scared of anything. He went through Chemo and Radiation treatments at the same time in 2014. He been in remission for five years but his cancer left a terrible wound that won't heal. They
Pollymae
in
Living with a Stoma
4 years ago
What should I do?
I have a stoma from what was thought to be a permanent tracheostomy which I decanulated after 7 years. Does this increase my chance for infection what can I do to prevent that
I have a stoma from what was thought to be a permanent tracheostomy which I decanulated after 7 years. Does this increase my chance for infection what can I do to prevent that
Dubbstix
in
ICUsteps
4 years ago
Advice and help please
Hi I was diagnosed 2 years ago with clear cell ovarian cancer and had 6 rounds of carbo taxol after a hysterectomy.I went to UCLH in london who discovered I did not have clear cell in March 2019 but germ cell yolk sac. I then needed more surgery and they found a new lesion that tested positive. Because
Hi I was diagnosed 2 years ago with clear cell ovarian cancer and had 6 rounds of carbo taxol after a hysterectomy.I went to UCLH in london who discovered I did not have clear cell in March 2019 but germ cell yolk sac. I then needed more surgery and they found a new lesion that tested positive. Because
NIKKibailie
in
My Ovacome
4 years ago
What was your mobility like when you were discharged home?
So my Dad has been in hospital 7 weeks, 6 of which have been in ICU after suffering a ruptured aneurysm. He also has a stoma after some of his large bowel died and he later developed pneumonia from ventilator. Now he is on medical ward but not mobile and with alot of muscle wasting. I am worried because
So my Dad has been in hospital 7 weeks, 6 of which have been in ICU after suffering a ruptured aneurysm. He also has a stoma after some of his large bowel died and he later developed pneumonia from ventilator. Now he is on medical ward but not mobile and with alot of muscle wasting. I am worried because
NICOLETTE2020
in
ICUsteps
4 years ago
Endometriosis surgery
Hello, hope everyone is well. Has anybody had laparoscopy for vagina & bowel as it will be a double surgery for me as my endometriosis is accumulating in my pouch of Douglas, some in my intestine, bowel the list goes on. I am on the waiting list to have this procedure done, there is a possibility I
Hello, hope everyone is well. Has anybody had laparoscopy for vagina & bowel as it will be a double surgery for me as my endometriosis is accumulating in my pouch of Douglas, some in my intestine, bowel the list goes on. I am on the waiting list to have this procedure done, there is a possibility I
SD20
in
Endometriosis UK
4 years ago
Does serra enzyme work?
I have stage 4 endometriosis and cysts and my period pains for first 3 days are unbearable. I've been taking serra enzyme not sure if it works. Had surgery but they couldn't complete it as a bowel surgeon was also needed. The bowel surgeon after looking at my results said that there would be a very
I have stage 4 endometriosis and cysts and my period pains for first 3 days are unbearable. I've been taking serra enzyme not sure if it works. Had surgery but they couldn't complete it as a bowel surgeon was also needed. The bowel surgeon after looking at my results said that there would be a very
Sayidati
in
Endometriosis UK
4 years ago
Pain! Ovarian ongoing
Just had to colonic bowel stents! Caelyx stopped! Waiting for new biopsy Thursday! To try profiling etc! My butt is painful as is my bowels! What more can I go through! Talk about trying times! Feel like I’m attached to toilet and giving birth every minute 😬at lease there was a end and baby was here
Just had to colonic bowel stents! Caelyx stopped! Waiting for new biopsy Thursday! To try profiling etc! My butt is painful as is my bowels! What more can I go through! Talk about trying times! Feel like I’m attached to toilet and giving birth every minute 😬at lease there was a end and baby was here
jools53
in
My Ovacome
4 years ago
Life is a Wonderful Thing
On the 15th October 2013 I kissed Jayne goodbye with the usual “see you later” and went off to my job - the Service Manager of the local BMW Dealer, the trade I’d been in since starting as an Apprentice Mechanic in 1980. Rewind to the Thursday, 2 weeks prior. I’d complained of a nagging headache and
On the 15th October 2013 I kissed Jayne goodbye with the usual “see you later” and went off to my job - the Service Manager of the local BMW Dealer, the trade I’d been in since starting as an Apprentice Mechanic in 1980. Rewind to the Thursday, 2 weeks prior. I’d complained of a nagging headache and
Belmont45
in
Headway
4 years ago
Doctor refuses to give me VItamin B12 injections
I’ve had crohns for a long time and in 1996 I had and ileostomy and then a further two small bowel resections For the last 17 years I’ve had B12 injections every three months. I moved 180 miles away from my surgery where I used to go. I now have a doctor who refuses my B12 injection saying I don’t need
I’ve had crohns for a long time and in 1996 I had and ileostomy and then a further two small bowel resections For the last 17 years I’ve had B12 injections every three months. I moved 180 miles away from my surgery where I used to go. I now have a doctor who refuses my B12 injection saying I don’t need
Barbie73
in
Pernicious Anaemia Society
4 years ago
Hi ladies, has anyone had a Hartmann’s Reversal?
Hello lovely ladies. I hope you are all managing the social distancing and self isolating okay - like we need the extra challenge! I’m 9 months post op, completed first line chemo and now having Avastin until September. I still have a small lesion on my liver but I’m hoping Avastin will keep it at
Hello lovely ladies. I hope you are all managing the social distancing and self isolating okay - like we need the extra challenge! I’m 9 months post op, completed first line chemo and now having Avastin until September. I still have a small lesion on my liver but I’m hoping Avastin will keep it at
Meridian14
in
My Ovacome
4 years ago
My journey to date.
I was diagnosed with OC in july 2018. My ca125 was 6800. After 3 rounds of carbo/paxl I had debulking surgery & a total colon removal in Nov 2018. I received 3 further rounds of just carbo after ,,due to severe nerve damage to fingers with paxl. If I was to continue it would have affected my ability
I was diagnosed with OC in july 2018. My ca125 was 6800. After 3 rounds of carbo/paxl I had debulking surgery & a total colon removal in Nov 2018. I received 3 further rounds of just carbo after ,,due to severe nerve damage to fingers with paxl. If I was to continue it would have affected my ability
Maltida61
in
My Ovacome
4 years ago
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