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Sodium tetradecyl sulfate (STS)
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IBS Diarrhoea
Hi Just wondered if other people have experienced the same as me, I have had diarrhoea for over 5 weeks now and gone through 5 boxes of Imodium and severe stomach pain with several trips to the hospital in the last month. I have not been able to work in the last month and have no idea what to eat
Hi Just wondered if other people have experienced the same as me, I have had diarrhoea for over 5 weeks now and gone through 5 boxes of Imodium and severe stomach pain with several trips to the hospital in the last month. I have not been able to work in the last month and have no idea what to eat
Buddybella
in
IBS Network
8 months ago
Change of diet
Wanted to share that I was also told at my LSE clinic to rethink my diet. They advised the following:- Peel all fruit and vegetables before eating Try to decrease the amount of food on my plate by say a third Avoid wholemeal or seeded bread stick to white Avoid nuts and seeds together and limit the
Wanted to share that I was also told at my LSE clinic to rethink my diet. They advised the following:- Peel all fruit and vegetables before eating Try to decrease the amount of food on my plate by say a third Avoid wholemeal or seeded bread stick to white Avoid nuts and seeds together and limit the
Hidden
in
Pelvic Radiation Disease Association
8 months ago
Following SOC here in BC Canada
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
I am currently at the CRPC stage of my disease. About 7 years since diagnosis. Started with ADT and Docetaxel. Was able to be castrate sensitive for 4.5 years. Tried to add Abiraterone and it failed after a couple of months. Had Radium 223 and it was okay but did nothing to the PSA. Cancer kept progressing
Islandboy2021
in
Advanced Prostate Cancer
4 months ago
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Uncontrolled RLS
I’d like to report the observations of a friend with RLS whose disorder worsened to the point of not being able to ride in a car without extreme discomfort. The thought of a car ride produced anxiety. Standing or moving relieved the symptoms. In the evening and at night, the RLS worsened. When attempting
I’d like to report the observations of a friend with RLS whose disorder worsened to the point of not being able to ride in a car without extreme discomfort. The thought of a car ride produced anxiety. Standing or moving relieved the symptoms. In the evening and at night, the RLS worsened. When attempting
Busunsc713
in
Restless Legs Syndrome
8 months ago
Night sweats
Hi all , last night I woke up with night sweats , I’m 70 so it’s not the menopause ! Is it connected to ET jak 2 pos . I also have a condition where my Bp drops when standing up called POTs , orthostatic hypotension also I’m starting on Ferritin pills for low iron . See Gp again Thursday he sees me
Hi all , last night I woke up with night sweats , I’m 70 so it’s not the menopause ! Is it connected to ET jak 2 pos . I also have a condition where my Bp drops when standing up called POTs , orthostatic hypotension also I’m starting on Ferritin pills for low iron . See Gp again Thursday he sees me
Birdlady2021
in
MPN Voice
1 year ago
My husband has passed.
On Wednesday 17th April Ronnie suffered a brain hemorrhage in the late afternoon at home. He died in hospital in the early hours of Thursday 18th. He had just turned 71. He was diagnosed in January 2020. I believe that Radium 223 precipitated his death. I have written before here on his experiences
On Wednesday 17th April Ronnie suffered a brain hemorrhage in the late afternoon at home. He died in hospital in the early hours of Thursday 18th. He had just turned 71. He was diagnosed in January 2020. I believe that Radium 223 precipitated his death. I have written before here on his experiences
rhenrick
in
Advanced Prostate Cancer
4 months ago
iron deficiency
Hi all , just found out my blood tests show low in iron ,is this common with ET etc first time I have this I take sodium tablets also because was very low and vitamin. D so taking it long term ! I wonder if it’s all part of the condition ? Or the hydroxycarbamide or my age I’m 70 now 😀
Hi all , just found out my blood tests show low in iron ,is this common with ET etc first time I have this I take sodium tablets also because was very low and vitamin. D so taking it long term ! I wonder if it’s all part of the condition ? Or the hydroxycarbamide or my age I’m 70 now 😀
Birdlady2021
in
MPN Voice
1 year ago
night out flare up
sitting in a lovely hotel room with hubby, due to see a show in 3 hrs and having a bad flare up. Lots of trapped wind, pain and dashing to the loo. Taken an Imodium but feel washed out now. Supposed to be having a nice meal before show, but now scared to eat, and not sure if I can make show either😭.
sitting in a lovely hotel room with hubby, due to see a show in 3 hrs and having a bad flare up. Lots of trapped wind, pain and dashing to the loo. Taken an Imodium but feel washed out now. Supposed to be having a nice meal before show, but now scared to eat, and not sure if I can make show either😭.
Booth29
in
IBS Network
8 months ago
Bring PSA from 6.7 to 3.1 in 4 weeks by pure water fast (3wks) and vegan diet (1 wk).
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
Note from moderator: NO ONE SHOULD ATTEMPT THE SUGGESTIONS IN THIS POST WITHOUT FIRST CONSULTING WITH YOUR UROLOGIST AND/or ONCOLOGIST. READ ALL OF THE COMMENTS BELOW THE POST. THE WISDOM AND CONCERN OF OUR COMMUNITY IS THE ONLY REASON THIS POST REMAINS PUBLISHED, I have prostate cancer, and I
DADICIDAD
in
Advanced Prostate Cancer
1 year ago
Just need to talk.
hi there, Since, I really have no idea what I’m doing and having an ileostomy complicates things like I can’t just drink water I have to drink isotonic drinks etc. Anyway, I have stents due to hydronephrosis. My egfr was 22, then 20 in hospital last year. I have nephrostomy’s for a while. last week
hi there, Since, I really have no idea what I’m doing and having an ileostomy complicates things like I can’t just drink water I have to drink isotonic drinks etc. Anyway, I have stents due to hydronephrosis. My egfr was 22, then 20 in hospital last year. I have nephrostomy’s for a while. last week
AndreaBabyC
in
Kidney Disease
1 year ago
Imodium
Hello, does anyone find it helpful to take Imodium to prevent diarrhoea if going out? Or would you recommend taking anything else as a preventative?
Hello, does anyone find it helpful to take Imodium to prevent diarrhoea if going out? Or would you recommend taking anything else as a preventative?
Freefallin
in
IBS Network
8 months ago
Newly diagnosed; so scared, confused, and depressed
Hello. I'm so glad to have found this supportive and helpful community! I apologize for the long post. I first noticed when I received routine bloodwork results a year ago that my eGFR was flagged as low at 80. Since I didn't know what an eGFR was, I started researching and was alarmed to read that
Hello. I'm so glad to have found this supportive and helpful community! I apologize for the long post. I first noticed when I received routine bloodwork results a year ago that my eGFR was flagged as low at 80. Since I didn't know what an eGFR was, I started researching and was alarmed to read that
GracieMom
in
Kidney Disease
11 months ago
Has anyone been using TUDCA or Restore Gold? Have you seen slowing or halting of progression of symptoms?
It looks like TUDCA is one of two ingredients in a drug now being sold to treat ALS, under the brand name Relyvrio in the U.S. (but at an extortionate list price of $158,000 a year) and ALBRIOZA in Canada. Co-formulated sodium phenylbutyrate/taurursodiol (PB/TURSO). Approved by the FDA in Dec. 2022 and
It looks like TUDCA is one of two ingredients in a drug now being sold to treat ALS, under the brand name Relyvrio in the U.S. (but at an extortionate list price of $158,000 a year) and ALBRIOZA in Canada. Co-formulated sodium phenylbutyrate/taurursodiol (PB/TURSO). Approved by the FDA in Dec. 2022 and
kathy775
in
Cure Parkinson's
1 year ago
December and flare ups
I have suffered with chronic IBS D for over twenty years and I always seem to get worse this time of year, but I have no idea why! I have tried many different anti depressants to try to alleviate the problem, and I am currently on citalopram which doesn’t seem to do anything. I am resorting to taking
I have suffered with chronic IBS D for over twenty years and I always seem to get worse this time of year, but I have no idea why! I have tried many different anti depressants to try to alleviate the problem, and I am currently on citalopram which doesn’t seem to do anything. I am resorting to taking
Wheatstone20
in
IBS Network
8 months ago
Covid question
I’ve avoided Covid up until now. My partner and I picked it up in Cuba. Started with what we thought was food poisoning, the dreaded diarrhea. It’s now been 14 days. We’ve had chills, fevers, fatigue and daily diarrhea. I’m at the final three months of V treatment so was advised to start the antiviral
I’ve avoided Covid up until now. My partner and I picked it up in Cuba. Started with what we thought was food poisoning, the dreaded diarrhea. It’s now been 14 days. We’ve had chills, fevers, fatigue and daily diarrhea. I’m at the final three months of V treatment so was advised to start the antiviral
Cottager1989
in
CLL Support
8 months ago
Chemo Update March 27, 2024
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
I was treated with 6 rounds of docetaxel in 2017/2018 when I was HSPC and I responded exceptionally well. I have been CRPC since 2022 and have tried abiraterone and Radium 223 (Xofigo). I just completed 7 rounds of docetaxel again and PSA went from 105 to 3.1 after 4 rounds then started doubling. Now
Islandboy2021
in
Advanced Prostate Cancer
5 months ago
Suffering from RLS
My name is William Henry I am 77 years of age I have suffered from RLS for many years Towards the end of 2022 I was coping with this terrible affliction reasonably well without medication In mid Jan of 2023 I had keyhole surgery to remove a large Polyp Since then my RLS has got much worse My Consultant
My name is William Henry I am 77 years of age I have suffered from RLS for many years Towards the end of 2022 I was coping with this terrible affliction reasonably well without medication In mid Jan of 2023 I had keyhole surgery to remove a large Polyp Since then my RLS has got much worse My Consultant
williamghenry
in
Restless Legs Syndrome
8 months ago
Loosing the weight/Blood Results
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
hi, this is my second post regarding under active thyroid & trying to get a straight answer for loosing the weight. Was given lots of advice from your members & advised to get full bloods done, saw GP & she did all bloods, results are on here now, asked about the weight & still couldn’t get a straight
Btsfan
in
Thyroid UK
1 year ago
Light headed.
Twice this week I have felt slightly dizzy and lightheaded. My sodium levels are usually low. I'm waiting to go back for another test. I wonder if this could be causing my symptoms. I feel drained too. Usually, I am fine. It makes me really worried thinking I might have a stroke or heart attack
Twice this week I have felt slightly dizzy and lightheaded. My sodium levels are usually low. I'm waiting to go back for another test. I wonder if this could be causing my symptoms. I feel drained too. Usually, I am fine. It makes me really worried thinking I might have a stroke or heart attack
benmaise
in
AF Association
1 year ago
Diazepam Stomach Cramps
I’ve had numerous attempts at getting off Diazepam with sometimes a couple of years clean . Anyway this year I started taking them again. I had gone up to 40mg a day. I had considered that a low amount , one of my episodes I was taking a lot more than that. At 40mg I started a very slow taper dropping
I’ve had numerous attempts at getting off Diazepam with sometimes a couple of years clean . Anyway this year I started taking them again. I had gone up to 40mg a day. I had considered that a low amount , one of my episodes I was taking a lot more than that. At 40mg I started a very slow taper dropping
dexter92
in
Anxiety and Depression Support
9 months ago
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