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Experiences with
Sodium tetradecyl sulfate (STS)
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Treating autoimmune hemolytic anemia (AIHA)
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
SantaZia
in
CLL Support
2 years ago
Medication mixes
My 9 yr old son has been on the highest dose of Desmopressin for a year, and movicol and docusate sodium. We recently changed to both Pico sulfate, and Laxido, and he is now wetting almost every night. Does anyone know if it will be the new medication conflicting with the Desmo melts? Many thanks.
My 9 yr old son has been on the highest dose of Desmopressin for a year, and movicol and docusate sodium. We recently changed to both Pico sulfate, and Laxido, and he is now wetting almost every night. Does anyone know if it will be the new medication conflicting with the Desmo melts? Many thanks.
Hopeful1234567
in
ERIC
2 years ago
Implications of butyrate and its derivatives for gut health and animal production 2018
Implications of butyrate and its derivatives for gut health and animal production https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC6104520/ Looks like I won't be dropping butyrate anytime soon. 2. Butyrate in the human colon The importance of butyrate for human colon health has been demonstrated in
Implications of butyrate and its derivatives for gut health and animal production https://www.ncbi.nlm.nih.gov/labs/pmc/articles/PMC6104520/ Looks like I won't be dropping butyrate anytime soon. 2. Butyrate in the human colon The importance of butyrate for human colon health has been demonstrated in
Bolt_Upright
in
Cure Parkinson's
2 years ago
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Blood work results.
Good morning. I finally got all the results the endo asked me to bring with me on Thursday. My cholesterol is high but I won't bother you reading it. I'll put the reference values in brackets. My sodium is 131 (135-146) Vit D-OH total: 29 (30-100) Vit D-OH D3 : 29 Vit D. 25 OH, D2 : <4 Testosterone
Good morning. I finally got all the results the endo asked me to bring with me on Thursday. My cholesterol is high but I won't bother you reading it. I'll put the reference values in brackets. My sodium is 131 (135-146) Vit D-OH total: 29 (30-100) Vit D-OH D3 : 29 Vit D. 25 OH, D2 : <4 Testosterone
Hidden
in
Thyroid UK
2 years ago
My partner's story
Hello to everyone, I've been a silent member of this group for a few weeks and I have found your posts really helpful. I have decided that now is the time to share with you the story so far with my partner and his diagnosis of alcohol related liver disease. He's 43 years old and he's been a daily drinker
Hello to everyone, I've been a silent member of this group for a few weeks and I have found your posts really helpful. I have decided that now is the time to share with you the story so far with my partner and his diagnosis of alcohol related liver disease. He's 43 years old and he's been a daily drinker
Bibbs
in
British Liver Trust
2 years ago
Fixing the Microbiome - Fighting Pathogens?
I do a lot of things to help my brain and clean up a-synuclein in the gut (and hopefully the brain), but it seems to me that no protocol is complete unless it addresses normalizing the microbiome, and assuming that if there is some pathogen in the microbiome that started this cascade, addressing that
I do a lot of things to help my brain and clean up a-synuclein in the gut (and hopefully the brain), but it seems to me that no protocol is complete unless it addresses normalizing the microbiome, and assuming that if there is some pathogen in the microbiome that started this cascade, addressing that
Bolt_Upright
in
Cure Parkinson's
2 years ago
Vitamin advice
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
I know from here that multi vitamins are generally no good I wondered what the experts think to these Alive woman’s energy vitamins please? I currently take vitamins D, K, C, magnesium and selenium, but wouldn’t mind trying something for an extra energy boost! In addition to the photo, they also contain
CornishChick
in
Thyroid UK
2 years ago
Doctor re sodium.
At the beginning of September I received a copy of a letter sent by my GCA Consultant to my Doctor. In it she said my sodium was low - 128 - and would my Doctor look into it. I have heard nothing. Should I be worried?
At the beginning of September I received a copy of a letter sent by my GCA Consultant to my Doctor. In it she said my sodium was low - 128 - and would my Doctor look into it. I have heard nothing. Should I be worried?
prunus
in
PMRGCAuk
2 years ago
Does anyone have a Low sodium level?
My levels are super low, Hyponatremia like. Docs have told me it’s related to AMN, but they seem to blame it for everything 😊
My levels are super low, Hyponatremia like. Docs have told me it’s related to AMN, but they seem to blame it for everything 😊
3WheelWonder
in
AMN EASIER
2 years ago
Rapid decline in GFR, getting no answers.
I am a 46 year old male. In Jan. 2019 my GFR was 63 - when it was checked in Early 2021 it had dropped to 27. Now only a few months later I am down to an 18. I do have Type II Diabetes but it has been controlled for several years (5.4 - 6.5 A1c). We would not have caught the GFR drop had my BP not gone
I am a 46 year old male. In Jan. 2019 my GFR was 63 - when it was checked in Early 2021 it had dropped to 27. Now only a few months later I am down to an 18. I do have Type II Diabetes but it has been controlled for several years (5.4 - 6.5 A1c). We would not have caught the GFR drop had my BP not gone
MSWwv
in
Kidney Disease
2 years ago
Actinium/Keytruda/Xtandi trial update after 24 weeks.
At the 24 week mark of my trial at Weill Cornell, I had updated NM whole body bone scan and CTs of chest/abdomen/pelvis. Also had updated blood work. Was expecting my next 6 week infusion of Keytruda the next day. While waiting in the treatment area, there was some kind of a delay. Nurse came over
At the 24 week mark of my trial at Weill Cornell, I had updated NM whole body bone scan and CTs of chest/abdomen/pelvis. Also had updated blood work. Was expecting my next 6 week infusion of Keytruda the next day. While waiting in the treatment area, there was some kind of a delay. Nurse came over
HopingForTheBest1
in
Advanced Prostate Cancer
2 years ago
Sodium levels
Hi. Wonder if anyone has had this My blood sodium levels was 130 range 135-145 Retested , then 133 . No further investigation. GP said it was normal . I looked this up and hypothyroidism is the only thing that applies to me. I noticeable pee less in the day . I did end up in hospital going
Hi. Wonder if anyone has had this My blood sodium levels was 130 range 135-145 Retested , then 133 . No further investigation. GP said it was normal . I looked this up and hypothyroidism is the only thing that applies to me. I noticeable pee less in the day . I did end up in hospital going
Gcart
in
Thyroid UK
2 years ago
Iron question
Hi all. I was reading a recently cited Mayo Clinic paper, and it stated that "A common oral iron regimen [for RLS] is 325 mg of ferrous sulfate (65 mg elemental iron) ..." I've been taking two 25-mg capsules (every two days) of Ferrous Bisglycinate Chelate (the Ferrochel trademarked brand, marketed
Hi all. I was reading a recently cited Mayo Clinic paper, and it stated that "A common oral iron regimen [for RLS] is 325 mg of ferrous sulfate (65 mg elemental iron) ..." I've been taking two 25-mg capsules (every two days) of Ferrous Bisglycinate Chelate (the Ferrochel trademarked brand, marketed
Dougg
in
Restless Legs Syndrome
2 years ago
Radium 223
Hi there Just wondering does radium 223 act the same as chemo when it comes to xtandi versus abiterone? My hubby has done 6 months of radium 223 while on xtandi and will now have scans in feb. Will he be able to try abiterone now or will he be faced with chemo? I know it might not work for long anyhow
Hi there Just wondering does radium 223 act the same as chemo when it comes to xtandi versus abiterone? My hubby has done 6 months of radium 223 while on xtandi and will now have scans in feb. Will he be able to try abiterone now or will he be faced with chemo? I know it might not work for long anyhow
Omc64
in
Advanced Prostate Cancer
2 years ago
Can’t figure it all out
So my husband went to the hospital today they said his GFR has dropped from 32 about a month ago now it’s 27, his creatinine is 216 umo1/L Sodium 140mmo1/L Potassium 3.9mmo1/L So maybe you could shine more light on it for me. Thank you
So my husband went to the hospital today they said his GFR has dropped from 32 about a month ago now it’s 27, his creatinine is 216 umo1/L Sodium 140mmo1/L Potassium 3.9mmo1/L So maybe you could shine more light on it for me. Thank you
42108
in
Kidney Disease
2 years ago
Low Ferritin and hair loss, would appreciate advice please
Hi All Would be so grateful for advice on my blood tests and also desperate for advice on how to raise my ferritin levels without upsetting my stomach. I have been taking Levothyroxine for about 8 years, current dose 50mg/75mg on alternate days. I understand little about thyroid hormones but am trying
Hi All Would be so grateful for advice on my blood tests and also desperate for advice on how to raise my ferritin levels without upsetting my stomach. I have been taking Levothyroxine for about 8 years, current dose 50mg/75mg on alternate days. I understand little about thyroid hormones but am trying
Pearlyqueen
in
Thyroid UK
2 years ago
Low iron first time in years despite supps
Hello, I just had an iron panel done as it turned out my iron is 4% of range.... 55 (50-170)! Ferritin better at 30% range, but still not great. I used to take Floradix and my iron was over midrange on it, then took 60 mg Actiferol (ferric pyrophosphate) in powder from the pharmacy for couple of months
Hello, I just had an iron panel done as it turned out my iron is 4% of range.... 55 (50-170)! Ferritin better at 30% range, but still not great. I used to take Floradix and my iron was over midrange on it, then took 60 mg Actiferol (ferric pyrophosphate) in powder from the pharmacy for couple of months
Incoguto
in
Thyroid UK
2 years ago
CKD minerals and labs?
Hello. New here and new to ckd. I’m just wondering, with your lab results, when you have high potassium do you also have high everything else? Sodium calcium etc? Asking because my dad has consistently high potassium and low sodium. But right now he’s having mild edema on his legs. Our nephro keeps saying
Hello. New here and new to ckd. I’m just wondering, with your lab results, when you have high potassium do you also have high everything else? Sodium calcium etc? Asking because my dad has consistently high potassium and low sodium. But right now he’s having mild edema on his legs. Our nephro keeps saying
Slaxx
in
Kidney Disease
2 years ago
Salt or no salt
Just after I had 2 stents fitted just over 4 years ago, I was advised to cut salt out of my diet as it was considered that there was enough salt in the food already. Recently had a blood test that reveals that I’m low in sodium. Anyone shed any light on this? Cheers.
Just after I had 2 stents fitted just over 4 years ago, I was advised to cut salt out of my diet as it was considered that there was enough salt in the food already. Recently had a blood test that reveals that I’m low in sodium. Anyone shed any light on this? Cheers.
TeflonT
in
British Heart Foundation
2 years ago
The strangest place this 5 and 1/2 year journey has taken me to date.
I was diagnosed in june of 2016 with a 9 gleason score. Had rad prostectomy, then salvage. Followed by 18mos of milage from zytiga and a Brief minute with xtandi, until it failed. Onward, to a couple of clinical trials, Bombesin which failed miserbly putting me in the hospital. Then the harpoon
I was diagnosed in june of 2016 with a 9 gleason score. Had rad prostectomy, then salvage. Followed by 18mos of milage from zytiga and a Brief minute with xtandi, until it failed. Onward, to a couple of clinical trials, Bombesin which failed miserbly putting me in the hospital. Then the harpoon
Costarica1961
in
Advanced Prostate Cancer
2 years ago
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